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Experiences with
Intravenous immunoglobulin (IVIg)
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Splenectomy or other options?
He has been on promacta for the last several years also has had many
ivig
transfusions. He is currently at the highest dose of promacta that is FDA approved for kids which is 50mg. Insurance will obviously not cover a higher dose.
He has been on promacta for the last several years also has had many
ivig
transfusions. He is currently at the highest dose of promacta that is FDA approved for kids which is 50mg. Insurance will obviously not cover a higher dose.
RJanna
in
ITP Support Association
4 years ago
ITP cured after parasites eradicated
I got well within one month after these two treatments and never needed
IVIG
again. I am ITP free since October 2017.
I got well within one month after these two treatments and never needed
IVIG
again. I am ITP free since October 2017.
CDmom
in
ITP Support Association
4 years ago
IVIG CURE?
Is
IVIG
the magic ticket? In your opinion am I cured? I see many of you living with CLL for many years and I just seem like I have great blood work and gained too much weight. Also, does
IVIG
make anyone sick the weak after? Thank you.
Is
IVIG
the magic ticket? In your opinion am I cured? I see many of you living with CLL for many years and I just seem like I have great blood work and gained too much weight. Also, does
IVIG
make anyone sick the weak after? Thank you.
Kimsome
in
CLL Support
4 years ago
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Results after 3 months on Venetoclax, with questions?
i also found my IgG has dropped from 1000 to 422 and I have to have an infusion of
IVIG
this week. I can’t quite understand why this might have occurred. They tell me I am not hemolyzing again, but I am surely not bleeding from anywhere, and I haven’t any idea what could be going on.
i also found my IgG has dropped from 1000 to 422 and I have to have an infusion of
IVIG
this week. I can’t quite understand why this might have occurred. They tell me I am not hemolyzing again, but I am surely not bleeding from anywhere, and I haven’t any idea what could be going on.
KevinCLLITP
in
CLL Support
4 years ago
IVIg Infusion feedback
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Cgolen99
in
CLL Support
4 years ago
Grandchildren
Live on my own and have
IVIG
treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter of 5yrs. They live in wigan England and I live near Aberdeen Scotland.
Live on my own and have
IVIG
treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter of 5yrs. They live in wigan England and I live near Aberdeen Scotland.
Frodo21
in
Positive Wellbeing During Self-Isolation
4 years ago
CLL for 6 years, 80 years old!
So they stopped Imbruvica, and have him once a month doing infusions of
IVIG
. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely! Is there any help then a foundation, someone might advise??
So they stopped Imbruvica, and have him once a month doing infusions of
IVIG
. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely! Is there any help then a foundation, someone might advise??
Dummer70
in
CLL Support
4 years ago
IVIG Infusion - Patients with no masks
I attended the chemo ward today for my
IVIG
infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID.
I attended the chemo ward today for my
IVIG
infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID.
RobertCLL
in
CLL Support
4 years ago
Ivig and severe headache
Started
ivig
6 months ago.
Started
ivig
6 months ago.
Imbub
in
CLL Support
4 years ago
Gazyva and Low Platelet Count?
He immediately put me on 80mg of Prednisone last night and is looking into a potential infusion of
ivIG
, which I wasn’t familiar with. Any similar stories to share?
He immediately put me on 80mg of Prednisone last night and is looking into a potential infusion of
ivIG
, which I wasn’t familiar with. Any similar stories to share?
msccsm11
in
CLL Support
4 years ago
IVIG Infusions Suspended - Covid
Anyone in the UK had their
IVIG
suspended as a result of Covid and had it re-instated in the last few months?
Anyone in the UK had their
IVIG
suspended as a result of Covid and had it re-instated in the last few months?
RobertCLL
in
CLL Support
4 years ago
Persistence Paid Off
Got my first dose of
IVIG
for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll keep my fingers crossed and stay hydrated. Wondering if anyone has had
IVIG
for NPSLE? I know some people get it for PID but at a lower dose.
Got my first dose of
IVIG
for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll keep my fingers crossed and stay hydrated. Wondering if anyone has had
IVIG
for NPSLE? I know some people get it for PID but at a lower dose.
Jmiller623
in
LUPUS UK
4 years ago
IVIG Infusion
Has anyone had the
IVIG
infusion? If so, what was it like? Did it help?
Has anyone had the
IVIG
infusion? If so, what was it like? Did it help?
Dermatray15
in
Lung Conditions Community Forum
4 years ago
IVIG HELP
I have low IGG so I have
IVIG
every other month.
I have low IGG so I have
IVIG
every other month.
Kyranbigeyes
in
CLL Support
4 years ago
2019-2020 a comparison
following two emergency admissions, failed chemo, massive reduction of platelets and heamaglobin, weekly blood transfusions monthly
IVIG
in 2019, I find myself taking 'targeted therapy' on week 16 of 'shielding' and pondering do I really want to go back to work? meanwhile, family life rolls on!
following two emergency admissions, failed chemo, massive reduction of platelets and heamaglobin, weekly blood transfusions monthly
IVIG
in 2019, I find myself taking 'targeted therapy' on week 16 of 'shielding' and pondering do I really want to go back to work? meanwhile, family life rolls on!
Meic13
in
Cancer Journeys Foundation
4 years ago
For anyone new...
The nodes I had in my neck seem to have reduced (maybe from
ivig
?). Anyway, hang in there everyone and thank your lucky stars that the landscape has changed so drastically than that dreadful day 8 years ago! ❤️
The nodes I had in my neck seem to have reduced (maybe from
ivig
?). Anyway, hang in there everyone and thank your lucky stars that the landscape has changed so drastically than that dreadful day 8 years ago! ❤️
CoCoLuna11
in
CLL Support
4 years ago
Sweat smells like ammonia
An update on neuro stuff.... still waiting to get
IVIG
set up. Have not been able to get in touch with neurologist since appt about 3 weeks ago. Rheum won’t write for it. Getting very frustrated and depressed by this whole situation. I keep physically declining. My vision is crap.
An update on neuro stuff.... still waiting to get
IVIG
set up. Have not been able to get in touch with neurologist since appt about 3 weeks ago. Rheum won’t write for it. Getting very frustrated and depressed by this whole situation. I keep physically declining. My vision is crap.
Jmiller623
in
LUPUS UK
4 years ago
Vestibular problems
IVIG
, Rituxan, MTX or plasmapheresis. I was so elated that someone actually took my neuro symptoms seriously and recorded actual neuro problems in my chart. Cranial nerve neuritis finally seen and documented. Been fighting for this for over a year now!
IVIG
, Rituxan, MTX or plasmapheresis. I was so elated that someone actually took my neuro symptoms seriously and recorded actual neuro problems in my chart. Cranial nerve neuritis finally seen and documented. Been fighting for this for over a year now!
Jmiller623
in
LUPUS UK
4 years ago
Has anyone had issues with Hemolytic Anemia?
I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and left ankle, but to have a biopsy last week they gave me 4 strong doses of
IVIG
to support my platelets (i have ITP) as well.
I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and left ankle, but to have a biopsy last week they gave me 4 strong doses of
IVIG
to support my platelets (i have ITP) as well.
KevinCLLITP
in
CLL Support
4 years ago
IVIG(intravenous immunogbulin)
Is anyone taking
IVIG
(intravenous immunogbulin) for dermatomyositis? Is it helping your condition?
Is anyone taking
IVIG
(intravenous immunogbulin) for dermatomyositis? Is it helping your condition?
Dermatray15
in
Myositis UK
4 years ago
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