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Experiences with
Intravenous immunoglobulin (IVIg)
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IvIg Infusions
Finished my
IvIg
infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful.
Finished my
IvIg
infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful.
robster1
in
My MSAA Community
3 months ago
IVIg infusion clinic help
hello, I have been advised to do both intralipid and
Ivig
infusion for my next FET with immunotherapy. Our doctor is ok for us to do
IVIG
elsewhere to save money. I’m based in London and prices for
IVIg
are scary. I’ve read of people who travelled to do it abroad: where did you go?
hello, I have been advised to do both intralipid and
Ivig
infusion for my next FET with immunotherapy. Our doctor is ok for us to do
IVIG
elsewhere to save money. I’m based in London and prices for
IVIg
are scary. I’ve read of people who travelled to do it abroad: where did you go?
Oumil
in
Fertility Network UK
5 months ago
IVIG makes cells drop severely
Prior to the
IVIG
they were just under 600k on 1000mg of Hydrea daily. The white cells and lymphocytes were just a little below normal. Neutrophils well into normal range.
IVIG
can cause counts to drop but not as much as mine did.
Prior to the
IVIG
they were just under 600k on 1000mg of Hydrea daily. The white cells and lymphocytes were just a little below normal. Neutrophils well into normal range.
IVIG
can cause counts to drop but not as much as mine did.
George1976
in
MPN Voice
2 months ago
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itp(information)
I am not sure what to think, but I do believe is because of the
Ivig
infusion and decadron that I had in March for first time ever, just one treatment ever and stopped. please help me if you have any information regarding this issue.
I am not sure what to think, but I do believe is because of the
Ivig
infusion and decadron that I had in March for first time ever, just one treatment ever and stopped. please help me if you have any information regarding this issue.
05Pink
in
ITP Support Association
3 months ago
Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
4 months ago
IVIG with CALR ET
Has anyone with ET/MPN ever received
IVIG
? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily.
IVIG
has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed.
Has anyone with ET/MPN ever received
IVIG
? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily.
IVIG
has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed.
George1976
in
MPN Voice
5 months ago
Intralipids, IVIG experience?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids /
IVIG
? Any good (or bad) experiences of using them?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids /
IVIG
? Any good (or bad) experiences of using them?
WaitingforGabriel
in
Fertility Network UK
5 months ago
Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need
ivig
for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need
ivig
for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
5 months ago
Immune issues with donor eggs
My ivf clinic proposes to use of steriods, intralipids and
IVIG
to help on that front. Thank you Anisha
My ivf clinic proposes to use of steriods, intralipids and
IVIG
to help on that front. Thank you Anisha
Anisha29
in
Fertility Network UK
3 months ago
Action too late
My
IVIG
introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the Atmost to stay out of Trouble.
My
IVIG
introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the Atmost to stay out of Trouble.
Traudel
in
CLL Support
3 months ago
Advice needed
I had a follow up today with my consultant who said exactly what I thought she would - that we could try a repeat ERA or
IVIG
to help with immune suppression. I really really don't want to have another ERA test (timing and money) and
IVIG
is £2000 a pop so not really viable either.
I had a follow up today with my consultant who said exactly what I thought she would - that we could try a repeat ERA or
IVIG
to help with immune suppression. I really really don't want to have another ERA test (timing and money) and
IVIG
is £2000 a pop so not really viable either.
Millbanks
in
Fertility Network UK
5 months ago
return of immune system
My immune system has still not returned and I’ve thankfully been given
IVIG
infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone had the same issue? Thx.
My immune system has still not returned and I’ve thankfully been given
IVIG
infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone had the same issue? Thx.
Cllinmaryland
in
CLL Support
6 months ago
Steriods
Near the end of those steroids I visited the lab for my 4 week
IVIG
. As usual I receive a CBC at the beginning then get my copy to review. To my surprise my labs were normal for the first time in 13 years!
Near the end of those steroids I visited the lab for my 4 week
IVIG
. As usual I receive a CBC at the beginning then get my copy to review. To my surprise my labs were normal for the first time in 13 years!
Fant1924
in
CLL Support
22 days ago
Has anyone had IVIG as well as intralipids - within the same cycle?
My last cycle I had
IVIG
, steroids and clexane (no intralipids) with a tested embryo and it failed. This embryo is not tested which actually makes me think maybe I should save the
IVIG
money for donor egg cycles (as I am less confudent than I was with the tested embryo)?
My last cycle I had
IVIG
, steroids and clexane (no intralipids) with a tested embryo and it failed. This embryo is not tested which actually makes me think maybe I should save the
IVIG
money for donor egg cycles (as I am less confudent than I was with the tested embryo)?
Skittles11
in
Fertility Network UK
9 months ago
IVF transfer protolols (adenomyosis / endometriosis)
I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols (medicated long, medicated short, natural, natural modified + steroids /
IVIG
/ intralipids).
I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols (medicated long, medicated short, natural, natural modified + steroids /
IVIG
/ intralipids).
Falafelrovers
in
Fertility Network UK
2 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
My daughter received treatment of steroids,
IVIG
and has just completed her second dose of Rituximab.
My daughter received treatment of steroids,
IVIG
and has just completed her second dose of Rituximab.
Cat29red
in
Encephalitis International
5 months ago
Success stories/advice after multiple miscarriages
This miscarriage hurts as we tested our embryos this time around so it should be a normal embryo, we had PIMSI to support with male factor infertility and high DNA fragmentation, I had
IVIG
and have been taking prednisolene as I have elevated cytokines. This was our 5th transfer.
This miscarriage hurts as we tested our embryos this time around so it should be a normal embryo, we had PIMSI to support with male factor infertility and high DNA fragmentation, I had
IVIG
and have been taking prednisolene as I have elevated cytokines. This was our 5th transfer.
Ctk123
in
Fertility Network UK
4 months ago
IVIG and prednisone luck with PGS tested embryos after Multiple failed implantation
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
Poop84
in
Fertility Network UK
2 months ago
In Remission for a year
The first time I had less then 10 for a couple weeks which was brought back to normal with
IVIG
and promacta. I was on medication for a month then none at all. Platelets went back to normal for 14 months before less then 10 again. Shorter time to return to normal 2 weeks after
IVIG
and promacta.
The first time I had less then 10 for a couple weeks which was brought back to normal with
IVIG
and promacta. I was on medication for a month then none at all. Platelets went back to normal for 14 months before less then 10 again. Shorter time to return to normal 2 weeks after
IVIG
and promacta.
joecirillo
in
ITP Support Association
8 months ago
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma
ivig
infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma.
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma
ivig
infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma.
Brucex100
in
CLL Support
5 months ago
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