I was diagnosed with ITP 8 months ago after I got my first Covid 19 shot. A week after the shot I had bruising all over my arms and stomach. I went to my doctor and my platelet count was 3,000. I was put in the hospital for a week and given a platelet transfusion and IVIG treatment. Since then I have been on prednison starting at 60 mg and have tapered down to 5mg. That is when my platelets dropped again to 20,000 and I am now considered having Chronic ITP. The doctor now has me on a combination of Promacta 50 mg along with10 mg of prednison. After two months of this combination I am still running low so the doctor now has me on 75 mg of promacta with the same amount of predinson. For the past two weeks I have had terrible headaches in the temple in the eye and in the back of my neck. Has anyone else had this occur?
Headaches: I was diagnosed with ITP... - ITP Support Assoc...
Headaches
Written by
hiltonhead
To view profiles and participate in discussions please or .
Read more about...
2 Replies
•
Though my ITP has stabilised, I too had really bad migraines from the Promacta, never having migraines before it wasn't fun, so I know how you feel.
Ask about N plate injection 💉 works for me little or no side effects! Romiplostim.
Not what you're looking for?
You may also like...
Covid Shot or No Covid Shot. That is the question!
In March of 2021 I received my first Covid 19 shot. A week later my platelets dropped to 3,000. I...
Splenectomy or other options?
Our 6½ year old son has chronic itp. He was diagnosed with itp at 18 months old. His platelet...
Did anyone experience severe headaches with Promacta?
Hello, I am a nineteen year old girl who has been recently diagnosed with ITP. Just last week I...
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
Hi All,
I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am...
SHOULD FLU SHOTS BE GIVEN TO ITP PATIENTS
i received a flu shot and within a week my platllets went from 39,soon 4 then 46. now im on 125...