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Intravenous immunoglobulin (IVIg)
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*Sensitive* - OE Testing update - 11dp5dt
After much preparation: weight loss, exercise, supplementation, Quartet test (ERA, ALICE, EMMA), multiple rounds of antibiotics and multiple courses of probiotics, Immunes (Intralipid and Steroids - I was asked to do
IVIG
due to slightly elevated NK cells in the vagina and refused because I was afraid
After much preparation: weight loss, exercise, supplementation, Quartet test (ERA, ALICE, EMMA), multiple rounds of antibiotics and multiple courses of probiotics, Immunes (Intralipid and Steroids - I was asked to do
IVIG
due to slightly elevated NK cells in the vagina and refused because I was afraid
Dogpark
in
Fertility Network UK
2 years ago
VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
for more vaccination information for those with neutropenia or those receiving
IVIG
/SCIG.
for more vaccination information for those with neutropenia or those receiving
IVIG
/SCIG.
CLLerinOz
Administrator
in
CLL Support
2 years ago
Not injecting IVIG due to low IGA
Sorry, my text is too long, my question is, does anyone have the experience of not injecting
IVIG
due to low IGA? And do I with this immune system. Is it possible for me to have immunotherapy?
Sorry, my text is too long, my question is, does anyone have the experience of not injecting
IVIG
due to low IGA? And do I with this immune system. Is it possible for me to have immunotherapy?
ava1967ir
in
CLL Support
2 years ago
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Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome
[u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran - liver damage Cellcept- unsuccessful Plasmapheresis - unsuccessful
IVIG
- unsuccessful SFEMG- abnormal Prednisone in high dosage that is then tapered down to 5mg has relieved the double vision.
[u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran - liver damage Cellcept- unsuccessful Plasmapheresis - unsuccessful
IVIG
- unsuccessful SFEMG- abnormal Prednisone in high dosage that is then tapered down to 5mg has relieved the double vision.
Jen2803
in
Myasthenia Gravis Association
2 years ago
advise on how to manage the derma (skin) with DM
I'm already on hydroxychloroquine and I've read sometimes they add mexthotrexate or
IVIG
(if greater than 10% body surface area is affected). Anyone been on either of these meds and what sort of results? any adverse effects?
I'm already on hydroxychloroquine and I've read sometimes they add mexthotrexate or
IVIG
(if greater than 10% body surface area is affected). Anyone been on either of these meds and what sort of results? any adverse effects?
Slydog
in
Myositis UK
2 years ago
Safe to have kittens?
I have high-risk cll, successfully treated with daily ibrutrinib and an
ivig
every 4 weeks. Covid destroyed 40% of my lungs in 2020. I am 73. On paper my health sounds awful, but I exercise daily and eat healthy. Last summer I climbed an Adirondack Mt. Would cats bring in more germs than pleasure?
I have high-risk cll, successfully treated with daily ibrutrinib and an
ivig
every 4 weeks. Covid destroyed 40% of my lungs in 2020. I am 73. On paper my health sounds awful, but I exercise daily and eat healthy. Last summer I climbed an Adirondack Mt. Would cats bring in more germs than pleasure?
Splashes
in
CLL Support
2 years ago
Low platelets
Hematologist tried
ivig
therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at least stabilize platelet production or circulation.
Hematologist tried
ivig
therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at least stabilize platelet production or circulation.
AlleyBoy
in
CLL Support
2 years ago
Booster recs after 5 vaccine administration snd Evusheld
I get
IVIG
and had some antibodies on 8/20/21 I received vacation # 5 FULL Moderna 11/23/21 and had a response of 600 on a scale of 0-2500. I received Evusheld 12/40/22 and the second dose Evusheld 2/20/22.
I get
IVIG
and had some antibodies on 8/20/21 I received vacation # 5 FULL Moderna 11/23/21 and had a response of 600 on a scale of 0-2500. I received Evusheld 12/40/22 and the second dose Evusheld 2/20/22.
skipro
in
CLL Support
2 years ago
Two PerPLEXing Cases of Hashimoto’s Encephalopathy Unresponsive to Steroid and Intravenous Immunoglobulin Therapy
Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What
Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Autoimmune Autonomic Ganglionopathy Associated with Voltage-Gated Potassium Channel Antibodies
At that time, treatment with
IVIG
was initiated. Six months after initiation of
IVIG
, autonomic testing had essentially normalized, with a notable decrease in antibody titer.
At that time, treatment with
IVIG
was initiated. Six months after initiation of
IVIG
, autonomic testing had essentially normalized, with a notable decrease in antibody titer.
SilentEchoes
in
Cure Parkinson's
2 years ago
How careful do I need to be when on IVIGs??
I won’t be taking steroids/intralipids, just the
IVIG
infusions. My question is around just how careful I need to be when on the immune suppression treatment?? Our doctor has been quite vague and just said to ‘take care’ but I’m not actually sure what that means in practice!
I won’t be taking steroids/intralipids, just the
IVIG
infusions. My question is around just how careful I need to be when on the immune suppression treatment?? Our doctor has been quite vague and just said to ‘take care’ but I’m not actually sure what that means in practice!
Bistbee
in
Fertility Network UK
2 years ago
Anybody using Arizona Health Care Cost Containment System (AHCCCS)
Hi is anybody using AHCCCS in Arizona to get medications for CLL and
IVIG
treatments?
Hi is anybody using AHCCCS in Arizona to get medications for CLL and
IVIG
treatments?
pragnar
in
CLL Support
2 years ago
Preparing for FTET - anybody else doing immunes?
I was recommended to take steroids and to go on
IVIG
. Is anyone else here in a similar situation, and how do you feel about undergoing these treatment add-ons during the pandemic?
I was recommended to take steroids and to go on
IVIG
. Is anyone else here in a similar situation, and how do you feel about undergoing these treatment add-ons during the pandemic?
Dogpark
in
Fertility Network UK
2 years ago
IVIG opinion
I am at the clinic and I’ve been offered
IVIG
(£2500) today as my NK cells are elevated. Is there any point if my hcg does not rise well? I am almost 6 weeks, I had intralipids last week before my NK test results came back, just to be on the safe side and act immediately.
I am at the clinic and I’ve been offered
IVIG
(£2500) today as my NK cells are elevated. Is there any point if my hcg does not rise well? I am almost 6 weeks, I had intralipids last week before my NK test results came back, just to be on the safe side and act immediately.
FrancyItaly
in
Fertility Network UK
2 years ago
Post Splenectomy
Prednisone,,,dexamethasone.....
IVIG
.....Rituximab.....Revolade.......BUT lots of side effects. Seven months ago I had my spleen removed. Since then my platelets are hovering around 20 - 30 with no medications. I have not had any issues with bleeding or bruising. I am in my 70’s.
Prednisone,,,dexamethasone.....
IVIG
.....Rituximab.....Revolade.......BUT lots of side effects. Seven months ago I had my spleen removed. Since then my platelets are hovering around 20 - 30 with no medications. I have not had any issues with bleeding or bruising. I am in my 70’s.
Bradyella
in
ITP Support Association
2 years ago
After transplant treatments
Has anyone had an
IVIG
infusion?
Has anyone had an
IVIG
infusion?
Porter20
in
Kidney Transplant
2 years ago
People of HU - Neuromyelitis Optica: Ashlee's story
He immediately admitted me so I could undergo intravenous immunoglobulin (
IVIG
) but as my luck would have it, it was, once again, too late. I will never forget the day my doctor sat down on my bed and told me that I had tested positive for NMO.
He immediately admitted me so I could undergo intravenous immunoglobulin (
IVIG
) but as my luck would have it, it was, once again, too late. I will never forget the day my doctor sat down on my bed and told me that I had tested positive for NMO.
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Recent diagnosis of Dermamyositosis
This makes me 😟 Has had 40 now 30 mg of prednisone, 5 days of
IVIG
as swallowing was poor, started on mycophenelate building up to full dose. Is feeling better but so afraid of the future and the C word. Anyone else had this association?
This makes me 😟 Has had 40 now 30 mg of prednisone, 5 days of
IVIG
as swallowing was poor, started on mycophenelate building up to full dose. Is feeling better but so afraid of the future and the C word. Anyone else had this association?
Treacle666
in
Myositis UK
2 years ago
Evusheld and booster and IVIG
Secondly, I am scheduled for my next
IVIG
on Friday which would be a week after my Evusheld. Again, am curious if there needs to be a recommended time lapse between the two. Thanks
Secondly, I am scheduled for my next
IVIG
on Friday which would be a week after my Evusheld. Again, am curious if there needs to be a recommended time lapse between the two. Thanks
Flyman
in
CLL Support
2 years ago
HCG rollercoaster/scans. Do you always see a heartbeat at 6w 2d?
I was meant to do
IVIG
but as my hcg came back ok they changed their mind and told me to go home. Hcg is been all over the place as you can see but they had to check to see it I should have
IVIG
. Any hope for me left? I have another scan next Friday.
I was meant to do
IVIG
but as my hcg came back ok they changed their mind and told me to go home. Hcg is been all over the place as you can see but they had to check to see it I should have
IVIG
. Any hope for me left? I have another scan next Friday.
FrancyItaly
in
Fertility Network UK
2 years ago
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