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Experiences with
Intravenous immunoglobulin (IVIg)
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Does any cll patient feel that stress adds to their general demise??
He currently has
ivig
every 28 days, and has nebulised colomycin for haemophyllus influenza which he developed whilst we did the major house clean.In the long term, I feel to be nearer the hospital would be very beneficial, but in the short-term I am concerned the move might enhance the need for more
He currently has
ivig
every 28 days, and has nebulised colomycin for haemophyllus influenza which he developed whilst we did the major house clean.In the long term, I feel to be nearer the hospital would be very beneficial, but in the short-term I am concerned the move might enhance the need for more
lartington
in
CLL Support
11 years ago
Talk about Lack of support
I'm supposed to be having a kidney and skin biopsy and maybe a
IVIG
but my manager has said I must rearrange this as there is no cover - I've explained the these appointments are like gold dust and infact I can not put this off as it is very serious and possibly life changing depending on the results
I'm supposed to be having a kidney and skin biopsy and maybe a
IVIG
but my manager has said I must rearrange this as there is no cover - I've explained the these appointments are like gold dust and infact I can not put this off as it is very serious and possibly life changing depending on the results
Hidden
in
LUPUS UK
12 years ago
Hate this!Hard to make plans!! Neta
I wish there was a more scientific way of determining the efficacy of the
IVIg
. No one believes me. Is this the worst (for me) or just the beginning?? Hard to make plans. Neta
I wish there was a more scientific way of determining the efficacy of the
IVIg
. No one believes me. Is this the worst (for me) or just the beginning?? Hard to make plans. Neta
neta
in
Ataxia UK
12 years ago
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Does anyone else have IVIG monthly infusions?
I have been having
IVIG
infusions for about 2 yrs now and don't know I notice a difference. I wasn't sure if you do feel different or if you just get less serious infections. Felicity
I have been having
IVIG
infusions for about 2 yrs now and don't know I notice a difference. I wasn't sure if you do feel different or if you just get less serious infections. Felicity
Steamboat
in
Behçet's UK
12 years ago
Has anyone been treated with IVIg infusions for suspected autoimmune induced CA?
neta
in
Ataxia UK
12 years ago
Where do they go?
Karen May CLL Dx 12/07, W&W
IVIG
monthly
Karen May CLL Dx 12/07, W&W
IVIG
monthly
Kjohnsonmay
in
CLL Support
12 years ago
Has anyone seen Professor Farida Fortune at the behcets centre of excellence? Or know one in Kent/Sussex?
I read the national (queens square) often treat it with
ivig
Thank you
I read the national (queens square) often treat it with
ivig
Thank you
vikkilouise
in
Behçet's UK
12 years ago
Has anyone had a splenectomy and does it work? I have IVIG every 4 weeks to keep my count up I also have ME (chronic fatigue syndrome).
sgreenhalgh
in
ITP Support Association
12 years ago
IVIG and Plasmapheresis
Is there anyone that does
IVIG
or Plasmapheresis for treatment on a regular basis? if so why are you?
Is there anyone that does
IVIG
or Plasmapheresis for treatment on a regular basis? if so why are you?
Skyllark
in
Hughes Syndrome APS Forum
12 years ago
Raynauds....The begginiing stage of oh so much more to come!
I have a pain pump that pumps Fentayl 24/7, I have done IV chemo for the better part of 10yrs-along with
IVIG
infusions and the list goes on and on. I have dealt with it, but after noticing my two youngest son's feet and lower legs turning purple for sometime, fear struck my heart!
I have a pain pump that pumps Fentayl 24/7, I have done IV chemo for the better part of 10yrs-along with
IVIG
infusions and the list goes on and on. I have dealt with it, but after noticing my two youngest son's feet and lower legs turning purple for sometime, fear struck my heart!
Toniraquel
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
suggest me about revolade in children, my daughter is suffering from itp since four years, she has taken Retuximab, IVIG, Steriode, Anti -D
suggest me about revolade in children, my daughter is suffering from itp since four years, she has taken Retuximab,
IVIG
, Steriode, Anti -D. she suffer from ITP in 4 years old now she is 8 years. her plts acount are between 15000 - 20000 only.
suggest me about revolade in children, my daughter is suffering from itp since four years, she has taken Retuximab,
IVIG
, Steriode, Anti -D. she suffer from ITP in 4 years old now she is 8 years. her plts acount are between 15000 - 20000 only.
Purpura1
in
ITP Support Association
12 years ago
Ivig?
My friend said at the hospital she goes to some people with behcets go and have
ivig
which works well for them. I already have thin bones and am worried what steroids would do to them.
My friend said at the hospital she goes to some people with behcets go and have
ivig
which works well for them. I already have thin bones and am worried what steroids would do to them.
vikkilouise
in
Behçet's UK
12 years ago
whats everyones thoughts on cyclosporine, tried promacta, ivig, n plate, everything, seems cyclosporine is keeping my wife at good levels
musicguy60
in
ITP Support Association
12 years ago
What next?
He has tried (in order) prednisolone,
Ivig
, menthol prednisolone, eltrombopag, romoplostim. None of which has worked. During this time his platelet counts has been as high as 265 and lowest being 2.
He has tried (in order) prednisolone,
Ivig
, menthol prednisolone, eltrombopag, romoplostim. None of which has worked. During this time his platelet counts has been as high as 265 and lowest being 2.
clh02
in
ITP Support Association
12 years ago
Severe asthma - Unconventional Treatment
I am on every asthma medication available, including at least 40 mg of prednisone a day, xolair, and
ivig
. my docs are now suggesting trying more aggresive treatments, as my pft's are slowly drifting down and begining to become irreversible. they are suggesting cellcept, and antirejection drug, or even
I am on every asthma medication available, including at least 40 mg of prednisone a day, xolair, and
ivig
. my docs are now suggesting trying more aggresive treatments, as my pft's are slowly drifting down and begining to become irreversible. they are suggesting cellcept, and antirejection drug, or even
Hidden
in
Asthma Community Forum
18 years ago
IV Immunoglobulin - any advice
As title suggests I am after any advice from anyone who has had
IVIG
. My son had his first dose over last weekend - 2 lots of 16 hour infusions. He tolerated it well and apart from a sore cannula site he left hospital on Monday hapy and bubbly.
As title suggests I am after any advice from anyone who has had
IVIG
. My son had his first dose over last weekend - 2 lots of 16 hour infusions. He tolerated it well and apart from a sore cannula site he left hospital on Monday hapy and bubbly.
Hidden
in
Asthma Community Forum
15 years ago
By how much do normal platelet counts generally fluctuate?
He went from having a platelet count of 8000 in May to 295K in December after an
IVig
treatment. Our doctor officially declared him an acute case at that point and said he is done with ITP!
He went from having a platelet count of 8000 in May to 295K in December after an
IVig
treatment. Our doctor officially declared him an acute case at that point and said he is done with ITP!
MaineMom3
in
ITP Support Association
13 years ago
I have been admitted to hospital 6 times in the last 15 months. How do you cope when you are frightened by not knowing the next step?
I was then given
IVIg
but got meningitis and a retinal bleed and my platelets crashed to 3. I was then given rituximab and my count went up then crashed to 2 I then had a splenectomy and my count went up to 593 and then crashed to 3.
I was then given
IVIg
but got meningitis and a retinal bleed and my platelets crashed to 3. I was then given rituximab and my count went up then crashed to 2 I then had a splenectomy and my count went up to 593 and then crashed to 3.
NickyD
in
ITP Support Association
12 years ago
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