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Experiences with
Intravenous immunoglobulin (IVIg)
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Financial assistance for IVIG
Is there any financial assistance for
IVIG
treatment in USA?
Is there any financial assistance for
IVIG
treatment in USA?
pragnar
in
CLL Support
3 years ago
IVIG seems to have shared some antibodies from previous COVID patient
I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting
IVIG
for ITP (immune system gobbling up platelets) dx 7/21. I am also in the US LLS study, and as mono Venclexta patient, have been producing some level of antibodies, unlike those on Gazyva+Venclexta.
I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting
IVIG
for ITP (immune system gobbling up platelets) dx 7/21. I am also in the US LLS study, and as mono Venclexta patient, have been producing some level of antibodies, unlike those on Gazyva+Venclexta.
E-Lynn
in
CLL Support
3 years ago
CBC testing frequency with ITP?
My doctor only intervenes with a medicine (
IVIG
, Rituxan, etc) if I am having bad symptoms (bleeding or petechiae). Since I tell him when I am experiencing those symptoms I don't feel the need to check the numbers so frequently.
My doctor only intervenes with a medicine (
IVIG
, Rituxan, etc) if I am having bad symptoms (bleeding or petechiae). Since I tell him when I am experiencing those symptoms I don't feel the need to check the numbers so frequently.
bellumbus
in
ITP Support Association
3 years ago
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Spike Protein AB Test - What color Vial
I attended the hospital today for my monthly
IVIG
infusion. Whilst there, I also have my regular blood draw. Included in the blood draw today was a Covid Spike Protein Antibody Test. It was not known to the nurses what color vial should be used.
I attended the hospital today for my monthly
IVIG
infusion. Whilst there, I also have my regular blood draw. Included in the blood draw today was a Covid Spike Protein Antibody Test. It was not known to the nurses what color vial should be used.
RobertCLL
in
CLL Support
3 years ago
IViG
Has anyone achieved remission on
IVIG
.? Also can I expect to feel better after these infusions?
Has anyone achieved remission on
IVIG
.? Also can I expect to feel better after these infusions?
Loftyc
in
ITP Support Association
3 years ago
IVIG infusion
When do patients get started on
IVIG
infusion please?
When do patients get started on
IVIG
infusion please?
Vocals
in
CLL Support
3 years ago
Plasmapheresis treatments
Will be discussing options with docs Monday after they discuss…
IVIG
or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying to figure out the site. Have visual disturbance, many neurological problems.
Will be discussing options with docs Monday after they discuss…
IVIG
or another IV tx starts with an R (sorry, brain 🧠🙄). New here, trying to figure out the site. Have visual disturbance, many neurological problems.
Byourownadvocate
in
Hughes Syndrome APS Forum
3 years ago
A 4th Moderna shot for the Immunocompromised?
She gets an
IVIG
infusion every 2 months. She has had 3 Moderna shots so far, the latest being in August 2021. My questioln is what is the guidance for a 4th Moderna shot for immunocompromised people?
She gets an
IVIG
infusion every 2 months. She has had 3 Moderna shots so far, the latest being in August 2021. My questioln is what is the guidance for a 4th Moderna shot for immunocompromised people?
wmay13241
in
CLL Support
3 years ago
Thoughts on cycling with ARGC or doing surrogacy?
With ARGC I'm conscious we will prob spend the last of our savings and potentially may not get any further even with
IVIG
and the monitoring. Equally surrogacy is a big step and very expensive too. Thoughts
With ARGC I'm conscious we will prob spend the last of our savings and potentially may not get any further even with
IVIG
and the monitoring. Equally surrogacy is a big step and very expensive too. Thoughts
letro112
in
Fertility Network UK
3 years ago
IVIG and Covid Vaccinations
Is there a recommendation of the time that should be allowed between a Covid jab and a
IVIG
infusion?
Is there a recommendation of the time that should be allowed between a Covid jab and a
IVIG
infusion?
RobertCLL
in
CLL Support
3 years ago
Any other parents of very young children here? Searching for hope.
Since then he’s had two courses of high-dose steroids,
IVIG
, plasmapheresis, and two infusions of Rituximab (the second one just under a week ago). He’s out of the hospital now, his seizures are under control, and overall he seems to be slowly recovering (thank God!)
Since then he’s had two courses of high-dose steroids,
IVIG
, plasmapheresis, and two infusions of Rituximab (the second one just under a week ago). He’s out of the hospital now, his seizures are under control, and overall he seems to be slowly recovering (thank God!)
Harper1
in
Encephalitis International
3 years ago
IVIG
She also said it is setting the stage to start
IVIG
if need be. I told her that
IVIG
is something i want to stay away from unless I have no choice, because I know it means starting something you don't stop with infusions every three weeks.
She also said it is setting the stage to start
IVIG
if need be. I told her that
IVIG
is something i want to stay away from unless I have no choice, because I know it means starting something you don't stop with infusions every three weeks.
wizzard166
in
CLL Support
3 years ago
Blacks eyes without injury
Have another
ivig
treatment soon. Just noticed I have bruises under and beside my eyes. Has anyone experienced that? No injury!
Have another
ivig
treatment soon. Just noticed I have bruises under and beside my eyes. Has anyone experienced that? No injury!
Porter01
in
CLL Support
3 years ago
Plavix and ITP
Eventually with
IVig
treatments and promacta they went up to 202. At the point that I am hoping it was still the Plavix that caused it and it will just go away.
Eventually with
IVig
treatments and promacta they went up to 202. At the point that I am hoping it was still the Plavix that caused it and it will just go away.
joecirillo
in
ITP Support Association
3 years ago
BK virus and Low WBC
However, his creatinine increased from 1.2 to 1.6 so they decided to start him on
IVIG
which he currently is at the hospital doing. The other worrisome part is I noticed his WBC has been lowering every week since his transplant. He started at 6.0 before transplant and now he’s at 1.15.
However, his creatinine increased from 1.2 to 1.6 so they decided to start him on
IVIG
which he currently is at the hospital doing. The other worrisome part is I noticed his WBC has been lowering every week since his transplant. He started at 6.0 before transplant and now he’s at 1.15.
Nyc147
in
Kidney Transplant
3 years ago
Covid antibodies lost in short time periode
I should add that I need
IvIg
monthly. I have to admit that this rapid loss of antibodies is not only surprising my docs but it is also quite disappointing and scary for me. To end my post with something positive... I am still mrd- after V+ O (5/2015 - 9/2018). Reinhard
I should add that I need
IvIg
monthly. I have to admit that this rapid loss of antibodies is not only surprising my docs but it is also quite disappointing and scary for me. To end my post with something positive... I am still mrd- after V+ O (5/2015 - 9/2018). Reinhard
Reinhard
in
CLL Support
3 years ago
Looking for success stories after treatment with Humira
Hi all, Extremely high immunes.. keep having CP losses and MC .. about to start humira and
IVIG
for what will be my 5th and final IVF cycle.. wondering if anyone has had success.. or am I basically wasting my time trying one last time?
Hi all, Extremely high immunes.. keep having CP losses and MC .. about to start humira and
IVIG
for what will be my 5th and final IVF cycle.. wondering if anyone has had success.. or am I basically wasting my time trying one last time?
letro112
in
Fertility Network UK
3 years ago
IVIG Infusions
I have an
IVIG
every three weeks to boost my platelet count. Does anyone else have
IVIG
on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
I have an
IVIG
every three weeks to boost my platelet count. Does anyone else have
IVIG
on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
Bradyella
in
ITP Support Association
3 years ago
Low Levels of IgA, IgG and IgM - What Triggers IGIV?
Since I won't see the Doc until mid-October, I'd be grateful if someone could shed some light on what criteria is used to determine whether or not
IVIG
will be administered. Q3: One site stated that oncology will test for low IgA before prescribing
IVIG
.
Since I won't see the Doc until mid-October, I'd be grateful if someone could shed some light on what criteria is used to determine whether or not
IVIG
will be administered. Q3: One site stated that oncology will test for low IgA before prescribing
IVIG
.
Jungle-Jim
in
CLL Support
3 years ago
Followup to my post 8 months back, sudden jaundice and hemolytic anemia
Couple of questions I have is can we start him on
IVIG
immediately to get his platelets up temporarily until his other meds (eltrombopag, rituxan) start kicking in or wait as he still stable right now with no bleeding incidents. Thanks!
Couple of questions I have is can we start him on
IVIG
immediately to get his platelets up temporarily until his other meds (eltrombopag, rituxan) start kicking in or wait as he still stable right now with no bleeding incidents. Thanks!
Akam
in
Hughes Syndrome APS Forum
3 years ago
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