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Experiences with
Intravenous immunoglobulin (IVIg)
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Cerebral syndrome of unknown origin
He tried 4-Aminopyridin, Acetazolamid, Tanganil and
IVIG
-infusions without effect. Under cortisone he had paradox effects where the symptoms twice got better on day 3 of the therapy, but worsened significantly after that and only improved slightly again after weeks.
He tried 4-Aminopyridin, Acetazolamid, Tanganil and
IVIG
-infusions without effect. Under cortisone he had paradox effects where the symptoms twice got better on day 3 of the therapy, but worsened significantly after that and only improved slightly again after weeks.
Unyielding
in
Ataxia UK
7 months ago
2 Questions about IVIG
Also, if a person were to need/get an
IVIG
infusion, does that mean they’d pretty much be needing them on repeat forever? Or can one or just a couple be enough? If the questions are annoyingly dumb, sorry! —Dave!
Also, if a person were to need/get an
IVIG
infusion, does that mean they’d pretty much be needing them on repeat forever? Or can one or just a couple be enough? If the questions are annoyingly dumb, sorry! —Dave!
DRM18
in
CLL Support
2 years ago
Anyone received pre-op IVIG?
Has anyone heard of giving an immune compromised patient pre-op
IVIG
to help prevent infection? I was thinking about suggesting this to his surgeon.
Has anyone heard of giving an immune compromised patient pre-op
IVIG
to help prevent infection? I was thinking about suggesting this to his surgeon.
Ibru
in
CLL Support
1 year ago
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IVIG and Illness
One is if I'm not on
IVIG
and continue with a trip I'm planning to the Philippines for one month leaving Feb 8, and I get sick in the Philippines, can
IVIG
help me if an infection has already started?
One is if I'm not on
IVIG
and continue with a trip I'm planning to the Philippines for one month leaving Feb 8, and I get sick in the Philippines, can
IVIG
help me if an infection has already started?
wizzard166
in
CLL Support
2 years ago
Rapid onset of burning in joints at rest and worse when moving
No amount of pain medication helps (including a compounded cream with baclofen and gabapentin), nor the
IVIG
or Rituxan. It has gotten to the point where it is very difficult to raise my arms, grasp a full 20oz glass of water, take off clothes, walk very far, etc.
No amount of pain medication helps (including a compounded cream with baclofen and gabapentin), nor the
IVIG
or Rituxan. It has gotten to the point where it is very difficult to raise my arms, grasp a full 20oz glass of water, take off clothes, walk very far, etc.
TiredNerd
in
NRAS
2 years ago
Granocyte protocol- any experience?
My clinic has tried prednisolone, tacrolimus,
IVIG
as well as clexane and aspirin. They now want to try a granocyte protocol which seems to be injections of a growing stimulant every 3 day.
My clinic has tried prednisolone, tacrolimus,
IVIG
as well as clexane and aspirin. They now want to try a granocyte protocol which seems to be injections of a growing stimulant every 3 day.
river242
in
Fertility Network UK
2 years ago
Further problems with allergy - what to do?
I saw my GP again and he prescribed a blood test to check for various things, including whether there was an allergic reaction, and he also told me to talk to the doctor in charge of the day hospital where I have my monthly
IVIG
infusion.
I saw my GP again and he prescribed a blood test to check for various things, including whether there was an allergic reaction, and he also told me to talk to the doctor in charge of the day hospital where I have my monthly
IVIG
infusion.
Provence
in
CLL Support
1 year ago
Bronchiectasis and use Pulmicort with tooth issues.
Not on
IVIG
. I am ok with my Ventolin as use an Aero chamber. Any advice would be welcome. Thank you.
Not on
IVIG
. I am ok with my Ventolin as use an Aero chamber. Any advice would be welcome. Thank you.
Dottie11
in
Lung Conditions Community Forum
2 years ago
When We Have CLL, Why We Need Particularly need an Immunome. (Why neutrophil and immunoglobulin counts don't measure immunity all that well)
That's why being prescribed replacement IgG therapy (
IVIG
or subcutaneous IgG), requires [u]both[/u] a history of a sufficiently low IgG count (the count threshold depends on where you live), [u]as well as some serious, recent infections[/u].
That's why being prescribed replacement IgG therapy (
IVIG
or subcutaneous IgG), requires [u]both[/u] a history of a sufficiently low IgG count (the count threshold depends on where you live), [u]as well as some serious, recent infections[/u].
AussieNeil
Partner
in
CLL Support
1 month ago
New Here - Diagnosed FND - but only one leg
I recently had
IVIG
treatment (for my nerve damaged leg) and I regained mobility in both legs almost immediately. It was short lived (2 weeks) and mobility issues returned to both legs. Very frustrating 😞 Would love to hear from anyone else with a similar issue.
I recently had
IVIG
treatment (for my nerve damaged leg) and I regained mobility in both legs almost immediately. It was short lived (2 weeks) and mobility issues returned to both legs. Very frustrating 😞 Would love to hear from anyone else with a similar issue.
Hidden
in
Functional Neurological Disorder - FND Hope
2 years ago
Persistent pancytopenia/ "LGL"????
He has not had other symptoms, no night sweats, no frequent infections, no enlarged lymph nodes, and no treatment since discontinuing
IVIG
in 2018. Recently his hemo/onco doc has said he thinks my husband has ANOTHER blood cancer which went undiagnosed when the CLL was diagnosed and treated.
He has not had other symptoms, no night sweats, no frequent infections, no enlarged lymph nodes, and no treatment since discontinuing
IVIG
in 2018. Recently his hemo/onco doc has said he thinks my husband has ANOTHER blood cancer which went undiagnosed when the CLL was diagnosed and treated.
dwolden
in
CLL Support
2 years ago
Rising Lymphocytes
About 6 months back I asked that a steroid be administered prior to
IVIG
that I receive every 4 weeks. Coincidentally, my lymphocytes began to rise and are now in the 90%+ range. Wondering whether others may have experienced a similar result? thanks, Dennis, Venetoclax
About 6 months back I asked that a steroid be administered prior to
IVIG
that I receive every 4 weeks. Coincidentally, my lymphocytes began to rise and are now in the 90%+ range. Wondering whether others may have experienced a similar result? thanks, Dennis, Venetoclax
Fant1924
in
CLL Support
2 years ago
IVIG recommended
My oncologist is recommending
IVIG
infusions. Has anyone had these? How were the infusions tolerated? Thank you!
My oncologist is recommending
IVIG
infusions. Has anyone had these? How were the infusions tolerated? Thank you!
Cllinmaryland
in
CLL Support
2 years ago
Need help in understanding immunoglobulins..
I keep reading the term
IVIG
on this site and I am wondering will we all have to have
IVIG
eventually as this disease progresses? As the number lowers, does it mean we will have more infections or hospitalizations without
IVIG
? I would rather have
IVIG
now before it gets too low.
I keep reading the term
IVIG
on this site and I am wondering will we all have to have
IVIG
eventually as this disease progresses? As the number lowers, does it mean we will have more infections or hospitalizations without
IVIG
? I would rather have
IVIG
now before it gets too low.
Curling123
in
CLL Support
2 years ago
IVIG vs Intralipid
Hi ladies, this is more for anyone that’s had immune treatment success… my question is, has anyone NOT been successful with Intralipid but been successful with
IVIG
?
Hi ladies, this is more for anyone that’s had immune treatment success… my question is, has anyone NOT been successful with Intralipid but been successful with
IVIG
?
Kimbob82
in
Fertility Network UK
2 years ago
Covid-Induced ITP Recovery Questions
I've been given
IVIG
like 4 times (8/9, 8/10, 8/17, 9/16) to stop me from bottoming out too low again while I wait for something to work, but no dice. Does anyone have any info about how long it may take to see if Rituximab has worked?
I've been given
IVIG
like 4 times (8/9, 8/10, 8/17, 9/16) to stop me from bottoming out too low again while I wait for something to work, but no dice. Does anyone have any info about how long it may take to see if Rituximab has worked?
thestrugglebus
in
ITP Support Association
2 years ago
reaching out!!
I received 1 year of
IVIG
infusions( tapered-completed) My 2 year anniversary is October 2022 love to share my story with any and all( ask me anything)😀
I received 1 year of
IVIG
infusions( tapered-completed) My 2 year anniversary is October 2022 love to share my story with any and all( ask me anything)😀
Zanzibar3
in
Encephalitis International
2 years ago
happened again
Low dose
ivig
6. Calcium 7. Other supplements like prenatal, D3, fish oil etc. 8. Progesterone and estrogen I don’t have any known issues. Apart from unexplained infertility . All my embryos were PGT normal. I am not sure what else I can do have success.
Low dose
ivig
6. Calcium 7. Other supplements like prenatal, D3, fish oil etc. 8. Progesterone and estrogen I don’t have any known issues. Apart from unexplained infertility . All my embryos were PGT normal. I am not sure what else I can do have success.
Devi2021
in
Fertility Network UK
2 years ago
Unexpected remission - Maybe it will help (even one person)
I have had prednisone,
IVIG
(a lot) finally Rituximab nothing seemed to help and Ritux was deemed a failure. Also a few nasty Dexmethsone pulses. Fast forward I got Covid recovered ok then got very sick again soo short of breath almost passing out.
I have had prednisone,
IVIG
(a lot) finally Rituximab nothing seemed to help and Ritux was deemed a failure. Also a few nasty Dexmethsone pulses. Fast forward I got Covid recovered ok then got very sick again soo short of breath almost passing out.
Loftyc
in
ITP Support Association
2 years ago
complex question like your views please.
Just as a small point of interest I’m taking prophylactic antibiotics daily and haven’t been considered for
IVIG
don’t know why perhaps because it’s in short supply and cost and my immunoglobulins were .4 higher than the minimum to make me automatically get them and the fact I’ve somehow managed to remain
Just as a small point of interest I’m taking prophylactic antibiotics daily and haven’t been considered for
IVIG
don’t know why perhaps because it’s in short supply and cost and my immunoglobulins were .4 higher than the minimum to make me automatically get them and the fact I’ve somehow managed to remain
Leics
in
NRAS
2 years ago
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