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Experiences with
Intravenous immunoglobulin (IVIg)
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Spontaneous remission of stage 3 Burkitt's recurrence with very minimal treatment
At the end of his regimen he was also dx'd with spinal stenosis and common variable immunodeficiency (CVID) which means he has no immune system and needs 10-12hr immunoglobulin infusions (
IVIG
) every 28 days. But he survived it all.
At the end of his regimen he was also dx'd with spinal stenosis and common variable immunodeficiency (CVID) which means he has no immune system and needs 10-12hr immunoglobulin infusions (
IVIG
) every 28 days. But he survived it all.
snowmom
in
Non Hodgkin's Lymphoma Friends
8 years ago
CAR-T Complete Remission Duration in Follicular Lymphoma
* After 1 year about 50% of his follicular lymphoma CAR-T patients no longer need
IVIG
infusions.
* After 1 year about 50% of his follicular lymphoma CAR-T patients no longer need
IVIG
infusions.
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
SHOULD FLU SHOTS BE GIVEN TO ITP PATIENTS
i received a flu shot and within a week my platllets went from 39,soon 4 then 46. now im on 125 daily on prednizone(ugg). i was hospitalized for 3 days, given solumedrol,
IVIG
infusions, platelet infusions, now on out patient hemothologist office visits for monitoring the wining down of prednizone.
i received a flu shot and within a week my platllets went from 39,soon 4 then 46. now im on 125 daily on prednizone(ugg). i was hospitalized for 3 days, given solumedrol,
IVIG
infusions, platelet infusions, now on out patient hemothologist office visits for monitoring the wining down of prednizone.
jose1946
in
ITP Support Association
8 years ago
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Zika
I have been having monthly
IVIG
infusions for many years now.
I have been having monthly
IVIG
infusions for many years now.
Catskillady
in
CLL Support
8 years ago
TODDLER WITH ITP
Treated his ITP with
IVIG
. My question is -did any of you audults maybe have this when younger and it was not diagnosed. I am afraid that he will have this as an adult. His platelets have been good since February after treatment. The doctor believes he may never have a problem again
Treated his ITP with
IVIG
. My question is -did any of you audults maybe have this when younger and it was not diagnosed. I am afraid that he will have this as an adult. His platelets have been good since February after treatment. The doctor believes he may never have a problem again
Bens_mom2013
in
ITP Support Association
8 years ago
Saw EP today
If AF episodes do become frequent then may consider another ablation but that would mean
IVIG
treatment prior to any sedation so rather not unless it really effects QOL. I am one happy and relieved bunny. And feeling quite well at present.
If AF episodes do become frequent then may consider another ablation but that would mean
IVIG
treatment prior to any sedation so rather not unless it really effects QOL. I am one happy and relieved bunny. And feeling quite well at present.
CDreamer
in
Atrial Fibrillation Support
8 years ago
Holiday insurance
Hi everybody looking for travel insurance have cll had chemo 6 years ago now have
Ivig
every 6 weeks keep me topped up looking for best deal I can any suggestions had I quote so far that will except me but it was well over 300 pounds for single trip and yearly was £600 price of my holiday Regards
Hi everybody looking for travel insurance have cll had chemo 6 years ago now have
Ivig
every 6 weeks keep me topped up looking for best deal I can any suggestions had I quote so far that will except me but it was well over 300 pounds for single trip and yearly was £600 price of my holiday Regards
Edgefield12
in
CLL Support
8 years ago
ITP – Need more options
I have tried, Prednisone,
IVIG
, Rituxan, MMF, Nplate and a few others I can't think of at the moment. The only drug that seems to work is Nplate although the weekly Dr visit are not fun. Without drugs my count is usually 4-17. My new goal is to get the splenectomy.
I have tried, Prednisone,
IVIG
, Rituxan, MMF, Nplate and a few others I can't think of at the moment. The only drug that seems to work is Nplate although the weekly Dr visit are not fun. Without drugs my count is usually 4-17. My new goal is to get the splenectomy.
ITP_September_2014
in
ITP Support Association
8 years ago
Behcets and cancer.
I found it, eventually, and now have had treatment according. (
IVIG
and prednisone so far) just as I thought I was on the road to some kind of better health ( long over due) I was diagnosed with kidney cancer. I am wondering if anyone else has had cancer with behcets?
I found it, eventually, and now have had treatment according. (
IVIG
and prednisone so far) just as I thought I was on the road to some kind of better health ( long over due) I was diagnosed with kidney cancer. I am wondering if anyone else has had cancer with behcets?
ambersorganics
in
Behçet's UK
8 years ago
About doctor Jill Schofield.
She believes the reason was most likely the increasing number of patients she has tried to get
IVIG
and other immune therapies for and the huge amount of time and effort it takes both on the part of the physician as well as the staff to make this happen, since none of these therapies are approved for
She believes the reason was most likely the increasing number of patients she has tried to get
IVIG
and other immune therapies for and the huge amount of time and effort it takes both on the part of the physician as well as the staff to make this happen, since none of these therapies are approved for
Hidden
in
Hughes Syndrome APS Forum
8 years ago
Internal bleeding in brain due to itp
She was given
Ivig
, 2 doses of a new drug name nova seven, and multiple platelet transfusions. I am seeking for any advice or hope. Thanks I live in Bangalore India
She was given
Ivig
, 2 doses of a new drug name nova seven, and multiple platelet transfusions. I am seeking for any advice or hope. Thanks I live in Bangalore India
arjunmech
in
ITP Support Association
8 years ago
Our Dog has Chronic ITP
On 6/10/16, we make the decision to give Izzie a
IVIG
transfusion. On 6/11/16, we bring Izzie home because the vets say either the
IVIG
is going to work or it isn't. Izzie has a follow up appointment on 6/13/16 to recheck platelets. On 6/13/16, her platelets are at over 816,000. Wow.
On 6/10/16, we make the decision to give Izzie a
IVIG
transfusion. On 6/11/16, we bring Izzie home because the vets say either the
IVIG
is going to work or it isn't. Izzie has a follow up appointment on 6/13/16 to recheck platelets. On 6/13/16, her platelets are at over 816,000. Wow.
jmj7583
in
ITP Support Association
8 years ago
ITP Spleen removal
Ever since I have had a single figure platelet count, proving non responsive to pred,
IVIG
, elmotrobag, romniplostim, rituximab, MMF. My options now are to have my spleen removed. I have requested an indium scan but been told that I do not have enough platelets to scan so this is not an option.
Ever since I have had a single figure platelet count, proving non responsive to pred,
IVIG
, elmotrobag, romniplostim, rituximab, MMF. My options now are to have my spleen removed. I have requested an indium scan but been told that I do not have enough platelets to scan so this is not an option.
Katewag
in
ITP Support Association
8 years ago
New sarcoid user
I had a course of
IVIg
and was discharged. Following this I continued my life with my husband and 2 children of 6 & 2 and went back to work as a nurse working in a discharge team of a very busy hospital.
I had a course of
IVIg
and was discharged. Following this I continued my life with my husband and 2 children of 6 & 2 and went back to work as a nurse working in a discharge team of a very busy hospital.
MG82
in
SarcoidosisUK
8 years ago
IVIG in the UK?
Reading on here it seems that some of you folks have been put on
IVIG
when you have had similar experiences.
Reading on here it seems that some of you folks have been put on
IVIG
when you have had similar experiences.
Jamie_james
in
CLL Support
8 years ago
IVIG
I am wondering if anyone here with SS has been treated with
IVIG
? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations?
I am wondering if anyone here with SS has been treated with
IVIG
? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations?
Megansheart
in
The Australian Sjögren's Syndrome Association
8 years ago
Ivig
He got
ivig
a week ago and now the petechiae is back and I'm scared his platelets are going down again.
He got
ivig
a week ago and now the petechiae is back and I'm scared his platelets are going down again.
kjosborne
in
ITP Support Association
9 years ago
ataxia, as a way of life, ugh
Yesterday, I went to my neuro and it seems the
IVIg
has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that.
Yesterday, I went to my neuro and it seems the
IVIg
has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that.
neta
in
Ataxia UK
9 years ago
Giant cell hepatitis
anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets
Ivig
anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets
Ivig
Rueben13
in
Children's Liver Disease Foundation
9 years ago
FCR follow up is CT necessary?
His onco has been insisting on two month visits (he does receive
IVIG
treatment every two months). Now wants to do a CT scan at the next two month visit to look for large nodes internally that would not be palpable (he did have a large mass near his spleen before treatment).
His onco has been insisting on two month visits (he does receive
IVIG
treatment every two months). Now wants to do a CT scan at the next two month visit to look for large nodes internally that would not be palpable (he did have a large mass near his spleen before treatment).
dwolden
in
CLL Support
9 years ago
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