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Experiences with
Intravenous immunoglobulin (IVIg)
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Internal bleeding in brain due to itp
She was given
Ivig
, 2 doses of a new drug name nova seven, and multiple platelet transfusions. I am seeking for any advice or hope. Thanks I live in Bangalore India
She was given
Ivig
, 2 doses of a new drug name nova seven, and multiple platelet transfusions. I am seeking for any advice or hope. Thanks I live in Bangalore India
arjunmech
in
ITP Support Association
8 years ago
Our Dog has Chronic ITP
On 6/10/16, we make the decision to give Izzie a
IVIG
transfusion. On 6/11/16, we bring Izzie home because the vets say either the
IVIG
is going to work or it isn't. Izzie has a follow up appointment on 6/13/16 to recheck platelets. On 6/13/16, her platelets are at over 816,000. Wow.
On 6/10/16, we make the decision to give Izzie a
IVIG
transfusion. On 6/11/16, we bring Izzie home because the vets say either the
IVIG
is going to work or it isn't. Izzie has a follow up appointment on 6/13/16 to recheck platelets. On 6/13/16, her platelets are at over 816,000. Wow.
jmj7583
in
ITP Support Association
8 years ago
ITP Spleen removal
Ever since I have had a single figure platelet count, proving non responsive to pred,
IVIG
, elmotrobag, romniplostim, rituximab, MMF. My options now are to have my spleen removed. I have requested an indium scan but been told that I do not have enough platelets to scan so this is not an option.
Ever since I have had a single figure platelet count, proving non responsive to pred,
IVIG
, elmotrobag, romniplostim, rituximab, MMF. My options now are to have my spleen removed. I have requested an indium scan but been told that I do not have enough platelets to scan so this is not an option.
Katewag
in
ITP Support Association
8 years ago
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New sarcoid user
I had a course of
IVIg
and was discharged. Following this I continued my life with my husband and 2 children of 6 & 2 and went back to work as a nurse working in a discharge team of a very busy hospital.
I had a course of
IVIg
and was discharged. Following this I continued my life with my husband and 2 children of 6 & 2 and went back to work as a nurse working in a discharge team of a very busy hospital.
MG82
in
SarcoidosisUK
8 years ago
IVIG in the UK?
Reading on here it seems that some of you folks have been put on
IVIG
when you have had similar experiences.
Reading on here it seems that some of you folks have been put on
IVIG
when you have had similar experiences.
Jamie_james
in
CLL Support
8 years ago
IVIG
I am wondering if anyone here with SS has been treated with
IVIG
? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations?
I am wondering if anyone here with SS has been treated with
IVIG
? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations?
Megansheart
in
The Australian Sjögren's Syndrome Association
8 years ago
Ivig
He got
ivig
a week ago and now the petechiae is back and I'm scared his platelets are going down again.
He got
ivig
a week ago and now the petechiae is back and I'm scared his platelets are going down again.
kjosborne
in
ITP Support Association
8 years ago
ataxia, as a way of life, ugh
Yesterday, I went to my neuro and it seems the
IVIg
has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that.
Yesterday, I went to my neuro and it seems the
IVIg
has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that.
neta
in
Ataxia UK
8 years ago
Giant cell hepatitis
anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets
Ivig
anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months ago with it but thank god since he hasn't been to sick he is on sirolimus and gets
Ivig
Rueben13
in
Children's Liver Disease Foundation
8 years ago
FCR follow up is CT necessary?
His onco has been insisting on two month visits (he does receive
IVIG
treatment every two months). Now wants to do a CT scan at the next two month visit to look for large nodes internally that would not be palpable (he did have a large mass near his spleen before treatment).
His onco has been insisting on two month visits (he does receive
IVIG
treatment every two months). Now wants to do a CT scan at the next two month visit to look for large nodes internally that would not be palpable (he did have a large mass near his spleen before treatment).
dwolden
in
CLL Support
8 years ago
Ivig
Has anyone found that the r e treatment of
Ivig
as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Has anyone found that the r e treatment of
Ivig
as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Jane1869
in
Myasthenia Gravis Association
8 years ago
Myasthenia gravis
Hi is there anyone in here who has
ivig
for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th
ivig
given over 5 days and it did not seem to work as well as the other 3 times x
Hi is there anyone in here who has
ivig
for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th
ivig
given over 5 days and it did not seem to work as well as the other 3 times x
Jane1869
in
Vasculitis UK
8 years ago
Shingles prior to ITP Diagnosis
This follows two conversations I have recently had whilst being given
IVIG
in hospital with fellow
IVIG
recipients who also had ITP and had had a bout of shingles prior to diagnosis. Is there a link?
This follows two conversations I have recently had whilst being given
IVIG
in hospital with fellow
IVIG
recipients who also had ITP and had had a bout of shingles prior to diagnosis. Is there a link?
rjsmyth
in
ITP Support Association
8 years ago
Is "watch and wait" approach to treatment a risky decision?
She thinks it might be a hypersensitivity vasculitis due to
IVIG
infusions, but it has lasted much longer than she would have expected if that was the case.
She thinks it might be a hypersensitivity vasculitis due to
IVIG
infusions, but it has lasted much longer than she would have expected if that was the case.
judya
in
Vasculitis UK
8 years ago
Ivig
Has anyone found that sometimes after an
IVIG
they feel ok and other times not. Usually I feel ok, but this last one I feel nauseous and extremely tired.
Has anyone found that sometimes after an
IVIG
they feel ok and other times not. Usually I feel ok, but this last one I feel nauseous and extremely tired.
Whitespot
in
ITP Support Association
8 years ago
recently diagnosed with CLL
The doctor told me I had ITP and treated me for 10 months with steroids,
IVIG
, and Nplate shots. After 3 more hospitalizations, I changed doctors in November.
The doctor told me I had ITP and treated me for 10 months with steroids,
IVIG
, and Nplate shots. After 3 more hospitalizations, I changed doctors in November.
ohiojim
in
CLL Support
8 years ago
Rituxin
I finished on the 30tb of December (with a week off in between my 3rd and 4th treatment because I had to get
IVIG
). My platelets keep dropping. Thank you.
I finished on the 30tb of December (with a week off in between my 3rd and 4th treatment because I had to get
IVIG
). My platelets keep dropping. Thank you.
Anna77M
in
ITP Support Association
8 years ago
colds and coughs
He got a regularly scheduled
IVIG
treatment today. This just seems to be part of a pattern of bad lung outcomes after FCR treatment a year and a half ago. We are truly grateful for the complete remission of the CLL; but the recurrent lung trouble is wearing him out and frightening me.
He got a regularly scheduled
IVIG
treatment today. This just seems to be part of a pattern of bad lung outcomes after FCR treatment a year and a half ago. We are truly grateful for the complete remission of the CLL; but the recurrent lung trouble is wearing him out and frightening me.
dwolden
in
CLL Support
8 years ago
IVIG
Has anyone found their joints very sore on
IVIG
?
Has anyone found their joints very sore on
IVIG
?
Whitespot
in
ITP Support Association
8 years ago
IVIG
Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or insight
Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or insight
rharvin
in
ITP Support Association
8 years ago
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