Hi everyone - just thought I would bring you up to date re the episode I posted about a few weeks ago as I met with the EP today.
Firstly he confirmed it was AF with AFl and we agreed that I now stay on anticoagulants.
Secondly he confirmed that I don't need to go to A&E at all unless I am feeling very ill as there is no 'safety' reason for being in A&E and as I am immune suppressed is probably the last place I would want to be. Agreed!
Thirdly he said he would write a note on my hospital record that I must not be given heart rate drugs - yeah! This was my biggest fear and why I really didn't want the paramedics to take me the other Tuesday. I will also carry copy of letter to GP saying not to prescribe beta blockers or calcium channel blockers. Big relief.
Fourthly - no other action required unless I feel ill or have frequent episodes and then his recommendation will be Flecainide intravenous followed by cardioversion ASAP so that the AF doesn't beget itself.
So I have a treatment plan and Hubbie was reassured that there is no danger in staying at home in fast AF, as long as I am not feeling ill with it and it doesn't go on for days as it could then become persistent.
If AF episodes do become frequent then may consider another ablation but that would mean IVIG treatment prior to any sedation so rather not unless it really effects QOL.
I am one happy and relieved bunny. And feeling quite well at present.
Enjoying these Beautiful autumn days and on cliff walk yesterday we were treated to the most magnificent display of a Spitfire practicing aerial acrobatics over the shoreline/sea. Felt like a display all for us, so exciting. Recognized unmistakeable noise of that engine long before we saw it!
Best wishes CD.