Internal bleeding in brain due to itp - ITP Support Assoc...

ITP Support Association

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Internal bleeding in brain due to itp

arjunmech profile image
43 Replies

Hi everyone,

This is let out my sadness, my wife 35 yrs old.was diagnosed with Itp 10 years back spleenotomy done any 7 yrs back, we have tried all know treatments and the count has been fluctuating between 4 and 60. 2 days ago she suffered internal bleeding on her right brain and now post surgery she is still critical. The Nuro docs are a bit positive but her counts have not gone up. It's at 4. The hematologist is not very positive. She was given Ivig , 2 doses of a new drug name nova seven, and multiple platelet transfusions. I am seeking for any advice or hope. Thanks

I live in Bangalore India

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arjunmech
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43 Replies
prasadyarra profile image
prasadyarra

Plz pray to God Jesus Christ ....

Our son also suffered with itp for 3years....so many medical tests done,... Ivig also done..... But no result.....

We all praise Jesus for heal....

Jesus Christ healed my son.. Yes it's true.... Be faith on Jesus.... Plz pray to God Jesus and ask him for healing, he definitely hear your prayer....

Plz pray to Jesus.....

Hallelujah.....

arjunmech profile image
arjunmech in reply to prasadyarra

Thank you your kind words mean a lot to me

LifeafterITP profile image
LifeafterITP in reply to arjunmech

Sorry to hear about your wife,

2 years ago I was hospitalised with a platelet count of 2. My doctor started my treatment with steroids but that did not help. He then gave me Revolade, Eltrombopag, and within 1 to 2 weeks my platelet count was 75. I have been on Revolade, Eltrombopag about 18 months now and my count has always been in the 75 to 125 range. I lead a very active life not affected in any way by my condition and have no side effects from the one tablet a day that I take.

I think the problem with ITP is that every treatment does not suit every person, forget about prayer and superstition and trust in a good doctor to find a suitable treatment for your wife.

arjunmech profile image
arjunmech in reply to LifeafterITP

Thank you I will consult with the Hemo doc on why these are not been given.. Thanks again

bloggerkhushi profile image
bloggerkhushi in reply to LifeafterITP

How much dose of revolde

..r u taking? Thanksu

opera1 profile image
opera1 in reply to LifeafterITP

Don't forget about prayer. It's not superstitious.

5bella5 profile image
5bella5 in reply to LifeafterITP

Prayer ( besides, Prayer is hardly a superstition)AND a good doctor works well together. May as well have 2 in your corner instead of one.

Ubud profile image
Ubud

Have you tried Revolade? I hear it's available in India? Good luck.

arjunmech profile image
arjunmech in reply to Ubud

No haven't yet still

SRJEER profile image
SRJEER in reply to arjunmech

We have Sujal pharma at Yelahanka 11.8 25mg per sheet

SRJEER profile image
SRJEER in reply to SRJEER

Active pharma Varun ,1 box 25mg 1150zero 300 postal for blr, I've tried.

akhurram profile image
akhurram in reply to Ubud

this one is very costly almost $25 / tablet

SoporRose profile image
SoporRose

Arjunmech,

I am so sorry to hear about your wife. I wish I had some useful advice for you, but all I can offer is sympathy. I join my hopes to yours.

Ruth

arjunmech profile image
arjunmech in reply to SoporRose

Thank you dear Ruth

hifi profile image
hifi

First of all I'm sorry to hear this.

Don't loose hope have faith.

Which doctor or hospital ur consulting coz even I stay in bangalore.As Ubud stated above Revolade is available in bangalore.

arjunmech profile image
arjunmech in reply to hifi

Dear hifi the hospital is Sakra world hospital and doc is Dr Vineet Guptha,

I am so sorry to hear this. My thoughts are with you. I wish I had some suggestions to help you.

sailor profile image
sailor

Hi Arjunmech, I am sorry to read of your wife's bleed on the brain. This is not common but can happen to those with ITP. I see one response has suggested Revolade also known as eltrombopag manufactured by Novartis. It is expensive but has had some very good results.

The ITP Support Association has a very good contact in West Bengal and is their contact in India. If you contact them through this website, I am sure they will provide you with contact details.

Good luck and we all hope your wife improves.

arjunmech profile image
arjunmech in reply to sailor

Thank you dear sailor

JasonJ profile image
JasonJ

Again, have you tried Revolade, it was the only drug that worked for me.

Good luck and best wishes to your wife.

arjunmech profile image
arjunmech in reply to JasonJ

No haven't tried it. Thank you dear JasonJ

virginiabranscom profile image
virginiabranscom

Sending best wishes for your wife and for you too!

GlendaInIowa profile image
GlendaInIowa

We will keep you and your wife in our thoughts and prayers. I wish I had the magical answer for you.

Holding you fiercely in the light. Please keep us posted.

arjunmech profile image
arjunmech in reply to GlendaInIowa

Your kindness means a lot to me thank you

ITPAffecty profile image
ITPAffecty

Hi, Sorry to hear this. Hope she recover soon. May I know which hospital she is in? I am also from Bangalore and tried all big hospitals in Bangalore. I felt the doctor 'Cecil Ross' who work for St' Johns hospital is best and he is most experienced Hematologist. Because of him i could retain my Spleen still and managing somehow with 'Revolade Elthrombopag' tablets. It's very difficult to get appointment but critical conditions like your wife's they will really consider. Please try.

arjunmech profile image
arjunmech in reply to ITPAffecty

Dr Ross had initially diagnosed the ITP in her as you know due to appointments and distance we started consulting Naryana Health and CMC vellor(alternatively) . Revolted is running in my mind will let the current doc know. Thank you

Alex_MC profile image
Alex_MC

I was in the same boat only last Nov 2015. I was dicovered with having an ITP in the same date/month and instance when i felt dizziness and noticed some red patches/marks in my skin. Found put my platelet is only 2k and per test (MRI/CT scan), they found that i had a bloodclot in my right brain. IVIG, and other meds were given to me and after 2months, i was discharged (after minor operation dye ti bloodclotting on some arteries in both legs. Wy i am telling this? To give you strength all is well in God's mercy. I am still in my meds (eltrombopag, warfarin, plavix and rosevustatin) and my platelet is still on range of 10k to 30k only BUT i am fine and having positive outlook in life that in one day - i will be healed.. 😎. God bless and heal your wife. Be her strength!!

arjunmech profile image
arjunmech in reply to Alex_MC

Thank you dear Alex and I am happy that you have recovered, your words has given me hope and strength..

Lynwoodley profile image
Lynwoodley

Sorry to hear about your wife i hope she is well soon. I have only just found this site as I have just been told I have low platelets between 33-44 at moment and so don't really know anything about it yet. But comments on here seem very good.

tip-3 profile image
tip-3

I am very sorry about your wife and wonder if Nplate injections would help and/or Promacta pill to increase her platelets. I wish you and your wife better health and hopes for recovery.

arjunmech profile image
arjunmech in reply to tip-3

Thank you they have started Rituximab now your wishes mean a lot to us

mahendra_nagraj profile image
mahendra_nagraj

I hope your wife has recovered by now. There is a medicine Dapson which works in case of some patients. It is not a medicine for ITP but it's side effect is that it increases the generation of platelets and the success rate is about 60%. You may want to check with the hematologist. It is very economical in cost as well.

My wife has started it since last 3 months and the results are encouraging.

arjunmech profile image
arjunmech

My wife passed away peacefully after fighting for a month. I wish and pray that no one goes through what we have been and thank you for all the wishes and support.

M_Umar profile image
M_Umar in reply to arjunmech

Really sad to hear about your wife...

sreema profile image
sreema in reply to arjunmech

Really Sad to here about ur Wife,Please keep patience.My prayers are always with you.

khair profile image
khair in reply to arjunmech

May her soul rest in peace. But need to know why surgery was performed.

Lynwoodley profile image
Lynwoodley

I am so sorry to hear about your wife my thoughts are with you at this very sad time

holcotts profile image
holcotts

all our thoughts are with you xxxx

Cannonbeach22 profile image
Cannonbeach22

How is your wife doing now?

NickyD profile image
NickyD

Hi My heart goes out to you. Sending you best wishes and I hope your wife gets better soon.

Ssam0 profile image
Ssam0

what are the symptoms if there is internal bleeding happening in ITP???? can anybody explain pls

Trep profile image
Trep

Hi sorry to hear about your situation....I believe that the main thing is she has already pass a few days in hospital....amd that is good..because if the bleeding in the brain occurs....its usually early demise...

So have faith.....

Can i ask if she took Any thing prior to the brain bleed....

Eg covid vaccine or so....???

I have also tried all the drugs while nothing worked for me since 2014. I found Doptelet at 40 mg a day keeps my numbers around 90,000.

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