This is let out my sadness, my wife 35 yrs old.was diagnosed with Itp 10 years back spleenotomy done any 7 yrs back, we have tried all know treatments and the count has been fluctuating between 4 and 60. 2 days ago she suffered internal bleeding on her right brain and now post surgery she is still critical. The Nuro docs are a bit positive but her counts have not gone up. It's at 4. The hematologist is not very positive. She was given Ivig , 2 doses of a new drug name nova seven, and multiple platelet transfusions. I am seeking for any advice or hope. Thanks
I live in Bangalore India
Written by
arjunmech
To view profiles and participate in discussions please or .
2 years ago I was hospitalised with a platelet count of 2. My doctor started my treatment with steroids but that did not help. He then gave me Revolade, Eltrombopag, and within 1 to 2 weeks my platelet count was 75. I have been on Revolade, Eltrombopag about 18 months now and my count has always been in the 75 to 125 range. I lead a very active life not affected in any way by my condition and have no side effects from the one tablet a day that I take.
I think the problem with ITP is that every treatment does not suit every person, forget about prayer and superstition and trust in a good doctor to find a suitable treatment for your wife.
Hi Arjunmech, I am sorry to read of your wife's bleed on the brain. This is not common but can happen to those with ITP. I see one response has suggested Revolade also known as eltrombopag manufactured by Novartis. It is expensive but has had some very good results.
The ITP Support Association has a very good contact in West Bengal and is their contact in India. If you contact them through this website, I am sure they will provide you with contact details.
Hi, Sorry to hear this. Hope she recover soon. May I know which hospital she is in? I am also from Bangalore and tried all big hospitals in Bangalore. I felt the doctor 'Cecil Ross' who work for St' Johns hospital is best and he is most experienced Hematologist. Because of him i could retain my Spleen still and managing somehow with 'Revolade Elthrombopag' tablets. It's very difficult to get appointment but critical conditions like your wife's they will really consider. Please try.
Dr Ross had initially diagnosed the ITP in her as you know due to appointments and distance we started consulting Naryana Health and CMC vellor(alternatively) . Revolted is running in my mind will let the current doc know. Thank you
I was in the same boat only last Nov 2015. I was dicovered with having an ITP in the same date/month and instance when i felt dizziness and noticed some red patches/marks in my skin. Found put my platelet is only 2k and per test (MRI/CT scan), they found that i had a bloodclot in my right brain. IVIG, and other meds were given to me and after 2months, i was discharged (after minor operation dye ti bloodclotting on some arteries in both legs. Wy i am telling this? To give you strength all is well in God's mercy. I am still in my meds (eltrombopag, warfarin, plavix and rosevustatin) and my platelet is still on range of 10k to 30k only BUT i am fine and having positive outlook in life that in one day - i will be healed.. 😎. God bless and heal your wife. Be her strength!!
Sorry to hear about your wife i hope she is well soon. I have only just found this site as I have just been told I have low platelets between 33-44 at moment and so don't really know anything about it yet. But comments on here seem very good.
I am very sorry about your wife and wonder if Nplate injections would help and/or Promacta pill to increase her platelets. I wish you and your wife better health and hopes for recovery.
I hope your wife has recovered by now. There is a medicine Dapson which works in case of some patients. It is not a medicine for ITP but it's side effect is that it increases the generation of platelets and the success rate is about 60%. You may want to check with the hematologist. It is very economical in cost as well.
My wife has started it since last 3 months and the results are encouraging.
My wife passed away peacefully after fighting for a month. I wish and pray that no one goes through what we have been and thank you for all the wishes and support.
Hi sorry to hear about your situation....I believe that the main thing is she has already pass a few days in hospital....amd that is good..because if the bleeding in the brain occurs....its usually early demise...
So have faith.....
Can i ask if she took Any thing prior to the brain bleed....
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Child with history of ITP gradual reduction in platelet count
Newly diagnosed and searching for answers.
Hi can anyone please advise me on the side effects of Preglezone and if its necessary for a healthy 13year old girl with ITP to take it?
