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Experiences with
Intravenous immunoglobulin (IVIg)
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Rituxin
I finished on the 30tb of December (with a week off in between my 3rd and 4th treatment because I had to get
IVIG
). My platelets keep dropping. Thank you.
I finished on the 30tb of December (with a week off in between my 3rd and 4th treatment because I had to get
IVIG
). My platelets keep dropping. Thank you.
Anna77M
in
ITP Support Association
8 years ago
colds and coughs
He got a regularly scheduled
IVIG
treatment today. This just seems to be part of a pattern of bad lung outcomes after FCR treatment a year and a half ago. We are truly grateful for the complete remission of the CLL; but the recurrent lung trouble is wearing him out and frightening me.
He got a regularly scheduled
IVIG
treatment today. This just seems to be part of a pattern of bad lung outcomes after FCR treatment a year and a half ago. We are truly grateful for the complete remission of the CLL; but the recurrent lung trouble is wearing him out and frightening me.
dwolden
in
CLL Support
8 years ago
IVIG
Has anyone found their joints very sore on
IVIG
?
Has anyone found their joints very sore on
IVIG
?
Whitespot
in
ITP Support Association
8 years ago
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IVIG
Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or insight
Hi, Ive been battling with ITP for a year and the doc have me getting weekly treatments but it dont seem as affective anymore can someone give me advise or insight
rharvin
in
ITP Support Association
8 years ago
Ivig
Was suppose to go for
IVIG
yesterday but they said I didn't need to, maybe things are looking up.
Was suppose to go for
IVIG
yesterday but they said I didn't need to, maybe things are looking up.
Whitespot
in
ITP Support Association
9 years ago
New to itp
Back in the hospital with two treatments of
Ivig
and up to 66000 the next week. Next week down to 14000 back in hospital with one treatment of
ivig
and 5 days of prednisone. Last day of prednisone on Monday and back to doctor on Tuesday.
Back in the hospital with two treatments of
Ivig
and up to 66000 the next week. Next week down to 14000 back in hospital with one treatment of
ivig
and 5 days of prednisone. Last day of prednisone on Monday and back to doctor on Tuesday.
Sam1930
in
ITP Support Association
9 years ago
My platelets in a graph!
The first two high peaks are
IVIG
, in between them I had Rituximab. The last part is Revolade and it goes up and down a bit depending on how much Prednisolone I have. The next stage is to get rid of prednisolone and take a bit higher dose of Revolade.
The first two high peaks are
IVIG
, in between them I had Rituximab. The last part is Revolade and it goes up and down a bit depending on how much Prednisolone I have. The next stage is to get rid of prednisolone and take a bit higher dose of Revolade.
JasonJ
in
ITP Support Association
9 years ago
My ITP journey
In Oct of 2012 was my last
IVIG
while I was hospitalized. I was so happy because it had been over two years since the last
IVIG
and hospitalization. But sad to say Sept 2015 my platelets fell to 11,000 i had petechiae on both if my legs which I new something was wrong.
In Oct of 2012 was my last
IVIG
while I was hospitalized. I was so happy because it had been over two years since the last
IVIG
and hospitalization. But sad to say Sept 2015 my platelets fell to 11,000 i had petechiae on both if my legs which I new something was wrong.
Nespinoza
in
ITP Support Association
9 years ago
itp since 8 month
my 8 year daughter has itp since 8 month. her platelets count is bellow 10000.she has been taken storied for six months .she was also infused
ivig
3 times , also infused anti d. but after a week her palates again dropped down. please help me .
my 8 year daughter has itp since 8 month. her platelets count is bellow 10000.she has been taken storied for six months .she was also infused
ivig
3 times , also infused anti d. but after a week her palates again dropped down. please help me .
547-amit
in
ITP Support Association
9 years ago
Control of CAR-T immune cells could mean safer, more precise cancer treatment for CLL and many other cancers.
IVIG
indefinitely, where each transfusion comes from the pooled donations of thousands of blood donors - hence its expense.
IVIG
indefinitely, where each transfusion comes from the pooled donations of thousands of blood donors - hence its expense.
AussieNeil
Partner
in
CLL Support
9 years ago
Treatment
After taking steroids and then
IVIG
I was wondering what everyone's next step was. Neither of those seem to keep my numbers up for very long?
After taking steroids and then
IVIG
I was wondering what everyone's next step was. Neither of those seem to keep my numbers up for very long?
Whitespot
in
ITP Support Association
9 years ago
Fostamatinib Trials
Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is
IVIG
temporarily.
Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is
IVIG
temporarily.
Sachmo16
in
ITP Support Association
9 years ago
ITP since May this year. Currently on Revolade
However my count did not improve so they started to reduce the steroids and tried an
IVIG
, this worked great for a few weeks my count peaked at 122 and gradually dropped off. During this time I had a bone marrow biopsy, which was all clear.
However my count did not improve so they started to reduce the steroids and tried an
IVIG
, this worked great for a few weeks my count peaked at 122 and gradually dropped off. During this time I had a bone marrow biopsy, which was all clear.
JasonJ
in
ITP Support Association
9 years ago
Explainer: how viruses can fool the immune system
That's why vaccines don't work that well for us and why our antibodies/Immunoglobulins (IgA, IgG and IgM) gradually drop away over time and we may need
IVIG
transfusions to help us stay free of infections.
That's why vaccines don't work that well for us and why our antibodies/Immunoglobulins (IgA, IgG and IgM) gradually drop away over time and we may need
IVIG
transfusions to help us stay free of infections.
AussieNeil
Partner
in
CLL Support
9 years ago
I need some advise for ITP
I was admited to the hospital that day, i started taking
IVIG
for two days four dosese a day but still my platelet were the same and still taking the prednesone , than he recomended to take artificial platelets for two days but still my body was distroing all, than he decided that i should take WinRho
I was admited to the hospital that day, i started taking
IVIG
for two days four dosese a day but still my platelet were the same and still taking the prednesone , than he recomended to take artificial platelets for two days but still my body was distroing all, than he decided that i should take WinRho
Kushtrim
in
ITP Support Association
9 years ago
Mycophenolate mofetil - longer term experiences?
My experiences during my early days with ITP were much like those others refractory to steroids but responsive to
IVIG
have described here.
My experiences during my early days with ITP were much like those others refractory to steroids but responsive to
IVIG
have described here.
artytransplantee
in
ITP Support Association
9 years ago
IVIG for bone marrow suppression?
Hi everyone Is
IVIG
useful when you are bone marrow suppression by FCR treatment or progression of CLL? Do anyone have such experience? Miee
Hi everyone Is
IVIG
useful when you are bone marrow suppression by FCR treatment or progression of CLL? Do anyone have such experience? Miee
Miee
in
CLL Support
9 years ago
Emotional wreck
I just had my second round of
ivig
. And both days find myself crying and very emotional. Has this happened to anyone else. I am scheduled for my splenectomy on Tuesday. And that also makes me have anxiety. I feel like I'm being a big drama queen. And just an emotional wreck.
I just had my second round of
ivig
. And both days find myself crying and very emotional. Has this happened to anyone else. I am scheduled for my splenectomy on Tuesday. And that also makes me have anxiety. I feel like I'm being a big drama queen. And just an emotional wreck.
Mary72
in
ITP Support Association
9 years ago
IVIG INFUSION
i have had my second
IVIG
INFUSION. after the first one i felt very tired and thought I would just go to sleep for a while. However I felt bad for several days after. They told me at the hospital that this was just coincidental. Now I had the second infusion and I felt even worse.
i have had my second
IVIG
INFUSION. after the first one i felt very tired and thought I would just go to sleep for a while. However I felt bad for several days after. They told me at the hospital that this was just coincidental. Now I had the second infusion and I felt even worse.
mary-reimer
in
ITP Support Association
9 years ago
Kindness of Strangers
I might not be here today if not for the timely administration of some
IVIG
many times some 8 and 9 years ago. Stay strong Brian http://bkoffman.blogspot.com
I might not be here today if not for the timely administration of some
IVIG
many times some 8 and 9 years ago. Stay strong Brian http://bkoffman.blogspot.com
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
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