SarcoidosisUK | HealthUnlocked

I first had my first encounter with Sarcoidosis when Uveitis was diagnosed in my eyes in 1996. Treatment for that was with prednisilone drops until the...

Did lots of research into having eyebrows tattooed (really sparse after years of plucking!) I eventually found someone who was referred to me by a nurse who...

Hello everyone. I’m experiencing Olfactory Hallucinations. I cannot tell you how annoying this is to smell something that’s not there. Is anyone else...

Hi Joined today. Now approx 14 years post sarcoidosis, with some lung fibrosis, otherwise ok. Ask me anything.

Hello all, I was happy to find this support group, thank you for allowing me to join. I hope to learn new info about sarc, its treatments, and from others...

Wife’s having a sarcoidosis attack on chest limph nodes, consultant offered steroids but she also has type 2 diabetes, low iron and menopause any help for her...

Thank you so much for welcoming me into the group. The NIH group I was a member of well I’m not able to find it on line, but it was so beneficial to me....

I’m relatively new to the group so I’m very familiar with sarcoidosis because I was diagnosed with this horrible disease in 2006. I had pulmonary sarcoidosis...

So is this community still active? I’m noticing there aren’t many posts or responses.

I have seen numerous doctors etc and they all tell me different things as to what is wrong with me - so I then do my own research and take control rather than...

Anyone have any symptoms of stomach pain through there sarcoidosis my wife was diagnosed Three years ago and has been ok for about 18 months but is now...

Good afternoon I am still on the journey of being diagnosed with Sarc, ct chest scan came back with a shadow that’s going to be investigated. Awaiting brain...

I was diagnosed with sarcoidosis in 2007 and it lasted until 2010. By then I had put all my lost weight back on and a CT scan confirmed that it had cleared up....

Has anyone ever suffered with neurosarcoidosis, my ACE blood test came as 64 & it should of been 50. Doc sent me for chest X-ray thankfully it came back clear....

I have Giant Cell Arteritis (in remission) and Polycythemia. I am taking Prednisone and Hydroxycarbamide. However over the past 18 months I have developed...

I think I have Sarcoidosis and I am petrified. I have a tattoo that I've had for 5 years. It has a few rough areas feels like goosebumps and 1 or 2 pimple...

This is nothing to do with my other health conditions! I have had 'pins and needles' at the tips of my fingers three times in the past months. It is horrible...

I have sarcoidosis of lymph nodes in neck region.that nodes does not pain . They only grow .i had sarcoidosis when I 12 years old . I also had operation at...

Any one knows?

My son is 35 and was diagnosed with Sarc about 10 years ago. It started after he had a bad chest infection, he also has asthma. At first it was treated as a...

I was diagnosed April 1986 after a doctor looked at my xrays and told me my lungs look like they were full of paint. When my Daughter was born in Oct of 1972 I...

I am new and live in USA. I have never known anyone with sarcoidosis. I have a niece who has lupus. They diagnosed me with sarcoidosis due to enlarged lymph...

my sons mother found out two weeks ago by chance as she was coughing a lot and was admitted two hospital,she had a disease which was attacking her lungs,she...

my sons mother found out two weeks ago by chance as she was coughing a lot and was admitted two hospital,she had a disease which was attacking her lungs,she...

Hello everybody , after blood tests and x ray , i have been diagnosed with chronic sarcoidosis. I am on steroids now for 1 month and i am getting very better...

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Is anyone out there?

It suck I don't understand this disease I'm always tired sleepy can't concentrate really I'm just frustrated with everything now

Hi anyone here? No one seems to come on this site anymore it's such a shame x

My father has had sarcoidosis for about the last three years but I don't really know that much about this illness the consultant just tell us about the bloods...