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First Overseas Holiday post liver transplant
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
TripleCrown
in
British Liver Trust
4 months ago
happened to see this article In a news feed regarding B and T cells, Covid and antibodies…
I have wondered why if we don’t make antibodies by getting vaccinated, then why bother. This article gives me some hope that we are protected more than I thought. Hope that this article is credible. Just wanted to post it for our information. Subject may have been touched on before in HealthUnlocked
I have wondered why if we don’t make antibodies by getting vaccinated, then why bother. This article gives me some hope that we are protected more than I thought. Hope that this article is credible. Just wanted to post it for our information. Subject may have been touched on before in HealthUnlocked
Curling123
in
CLL Support
5 months ago
Itch and spots post liver transplant
hi this may be mote if a kidney group question than the than liver, but i am post-liver transplant 22 months but unfortunately sustained some kidney damage, i am left with a symptom of skin itching all over. i wonder how common this is, what causes it and if there is anything effective to stop it. the
hi this may be mote if a kidney group question than the than liver, but i am post-liver transplant 22 months but unfortunately sustained some kidney damage, i am left with a symptom of skin itching all over. i wonder how common this is, what causes it and if there is anything effective to stop it. the
Vargula
in
British Liver Trust
5 months ago
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Week 3 done
I finished week 3! Very happy to have made it this far! Up to 3 minute runs. The routine is going well although it's becoming more challenging to get out into this freezing cold weather!! The week has once again progressed with even more health news. I had some abnormal blood tests that indicate I do
I finished week 3! Very happy to have made it this far! Up to 3 minute runs. The routine is going well although it's becoming more challenging to get out into this freezing cold weather!! The week has once again progressed with even more health news. I had some abnormal blood tests that indicate I do
Irishgirlrunning23
in
Couch to 5K
5 months ago
AIH and the Mirena Coil
It also says that the coil may be reduced by medication used to increase liver enzymes which i am taking both steroids and
immunosuppressants
designed to increase my liver enzymes.
It also says that the coil may be reduced by medication used to increase liver enzymes which i am taking both steroids and
immunosuppressants
designed to increase my liver enzymes.
gingergymnast246
in
British Liver Trust
1 month ago
changing hospitals
hi, I have GPA have been diagnosed since 2020. I am considering changing hospitals that deal with my care, as I just don't feel like I'm getting the treatment and care that I need. I've not been on treatment for a year now, after the immunosuppressant beginning with A that I can't remember the name of
hi, I have GPA have been diagnosed since 2020. I am considering changing hospitals that deal with my care, as I just don't feel like I'm getting the treatment and care that I need. I've not been on treatment for a year now, after the immunosuppressant beginning with A that I can't remember the name of
gpawarrior88
in
Vasculitis UK
5 months ago
cutaneous lupus
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
Nellons
in
LUPUS UK
1 year ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
6 months ago
Let’s see? Bowel perforation and GCA Flare ?
I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,” and I’m grateful. You may recall I had shoulder replacement surgery in July, and my arm is in amazing condition considering the interruptions
I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,” and I’m grateful. You may recall I had shoulder replacement surgery in July, and my arm is in amazing condition considering the interruptions
Grammy80
in
PMRGCAuk
6 months ago
Lunch chat about vaccines
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
oldtimer2
in
NRAS
6 months ago
Uveitis treatment opinion please
So seems like I have 2 options now in terms of
immunosuppressants
. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?
So seems like I have 2 options now in terms of
immunosuppressants
. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?
Udupik
in
Vasculitis UK
1 year ago
CR Advanced Prostrate Ca, and start of chemotherapy after PSMA
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Ij2023
in
Advanced Prostate Cancer
6 months ago
Oh how I wish I was signposted to this site 18 months ago
I'm going to stick my neck out and say that I enjoy reading the posts here. Why? Because somewhat belatedly, they reassure me that I am not the only one! For those that wonder if things will improve, my story..... It was a Sunday in March 22 that my partner found me collapsed at home with a brain
I'm going to stick my neck out and say that I enjoy reading the posts here. Why? Because somewhat belatedly, they reassure me that I am not the only one! For those that wonder if things will improve, my story..... It was a Sunday in March 22 that my partner found me collapsed at home with a brain
Gurberly
in
ICUsteps
6 months ago
rituximab
Hello All, I hope you are all doing ok. I wondered if anyone has had rituximab infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option
Hello All, I hope you are all doing ok. I wondered if anyone has had rituximab infusions for their myositis and what the experience has been like - impact on disease, side effects, infections due to immune suppression, infusion process itself? The rheumatologist has given this as a potential option
ruablue
in
Myositis UK
6 months ago
Lipase blood test .
I had both Covid and flu jabs yesterday I usually split them. Feeling grotty first time ever and have had 7 over time being immunosuppressed. Today I'm due a fasting Lipase test. Is it wise to have it or should I wait. Been looking at Dr Google and only information I can find for the UK is give it at
I had both Covid and flu jabs yesterday I usually split them. Feeling grotty first time ever and have had 7 over time being immunosuppressed. Today I'm due a fasting Lipase test. Is it wise to have it or should I wait. Been looking at Dr Google and only information I can find for the UK is give it at
Jackie1947
in
Chronic Pancreatitis Support
7 months ago
lower back, sacroiliac joint maybe? hips affected. can you help me wait?
hello! hopefully i can describe clearly and succinctly what is going on... not always easy for me. my lower back has rumbled at me since i was a young person with cute swayback to fierce sciatica working on an assembly line in my 20s to not moving enough while playing music hunched over a fiddle and
hello! hopefully i can describe clearly and succinctly what is going on... not always easy for me. my lower back has rumbled at me since i was a young person with cute swayback to fierce sciatica working on an assembly line in my 20s to not moving enough while playing music hunched over a fiddle and
hazmatrec
in
Pain Concern
7 months ago
CAR T-cell therapy IMPT-514 gets FDA fast track designation for lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
Investigational treatment targets active, resistant lupus nephritis and SLE The U.S. Food and Drug Administration (FDA) has granted fast track designation to IMPT-514, a CAR T-cell therapy being developed by Immpact Bio for people with active, treatment-resistant lupus nephritis and systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Intensified Saphnelo dosing seen to benefit lupus nephritis patients
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupusnewstoday.com/news/intensified-dosing-of-saphnelo-seen-to-benefit-lupus-nephritis-patients/ October 16, 2023 Treatment with an intensified dosing regimen of Saphnelo (anifrolumab) led to greater improvements in kidney function compared with standard dosing or a placebo for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
COVID vaccine - old stock in use in the UK
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
flamboyant_hawking
in
MPN Voice
7 months ago
Any Tips re recovery from Peritonitis, ruptured caecum, appendicitis
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Barnclown
in
Crohn's and Colitis Support
7 months ago
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