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Immunosuppressants
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New diagnosis
I’ve just stumbled across a new diagnosis of Bronchiectasis on my Patient Access record. I have UCTD /lupus and bronchiolitis already. Will anything need to change for me ? I take Trelegy and immunosuppression (Mycophenolate and pred) and keep as active as I can. Feeling a bit scared of this new label
I’ve just stumbled across a new diagnosis of Bronchiectasis on my Patient Access record. I have UCTD /lupus and bronchiolitis already. Will anything need to change for me ? I take Trelegy and immunosuppression (Mycophenolate and pred) and keep as active as I can. Feeling a bit scared of this new label
Fennella02
in
Lung Conditions Community Forum
3 years ago
Update for people with liver disease on the Covid-19 vaccine
Update for people with liver disease on the Covid-19 vaccine The recent news that a Covid-19 vaccine has been effective in trials will bring hope to liver patients, many of whom are clinically extremely vulnerable and might experience more severe symptoms if they were to catch the virus. Although
Update for people with liver disease on the Covid-19 vaccine The recent news that a Covid-19 vaccine has been effective in trials will bring hope to liver patients, many of whom are clinically extremely vulnerable and might experience more severe symptoms if they were to catch the virus. Although
Hidden
British Liver Trust
in
British Liver Trust
3 years ago
NRAS statement on the breaking news regarding the Pfizer Vaccine
The Pfizer vaccine is not a live vaccine but there are many other vaccines in the pipeline – some live, but most not. Most vaccine trials have excluded people with rheumatic disease on immune modulation from participation, so we currently do not have data to base decisions upon if they will be safe
The Pfizer vaccine is not a live vaccine but there are many other vaccines in the pipeline – some live, but most not. Most vaccine trials have excluded people with rheumatic disease on immune modulation from participation, so we currently do not have data to base decisions upon if they will be safe
Nadine-NRAS
NRAS
in
NRAS
3 years ago
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thanks for your help
thanks to all of you My thyroid issues are due to MS and being treated with an immunosuppressant some years ago. I was told to decrease from 100 to 125 before lockdown in March because my thyroid seemed to be recovering, and so I decided to go down to 100 instead. This was too low apparently because
thanks to all of you My thyroid issues are due to MS and being treated with an immunosuppressant some years ago. I was told to decrease from 100 to 125 before lockdown in March because my thyroid seemed to be recovering, and so I decided to go down to 100 instead. This was too low apparently because
fastandslow
in
Thyroid UK
3 years ago
Methotrexate or Not?
I have PMR and have been tapering prednisone for the past year. I amcurrently at 6mg. My rheumy is pushy and insists I decrease by 1mg each month. I am not so compliant due to pain, so I am choosing to decrease at 1/2mg per month. We butt heads often because he wants to add Methotrexate. Today he called
I have PMR and have been tapering prednisone for the past year. I amcurrently at 6mg. My rheumy is pushy and insists I decrease by 1mg each month. I am not so compliant due to pain, so I am choosing to decrease at 1/2mg per month. We butt heads often because he wants to add Methotrexate. Today he called
Zareda
in
PMRGCAuk
4 years ago
Low Lymphocyte Count - does it matter?
My gp surgery just sent me a record of my last twelve months of DMARD monitoring test results. My White Blood Count and Neutrophil Count are always just inside the normal range (on the low end), but my Lymphocyte count has been dropping and is now down to 1.13 (normal range is 1.5 to 4.5). This hasn't
My gp surgery just sent me a record of my last twelve months of DMARD monitoring test results. My White Blood Count and Neutrophil Count are always just inside the normal range (on the low end), but my Lymphocyte count has been dropping and is now down to 1.13 (normal range is 1.5 to 4.5). This hasn't
mjrminor
in
NRAS
4 years ago
Immunosuppressants and antibiotics.
I'm sure my Rheumatology consultant told me if I ever take antibiotics I have to stop taking my mycophenolate as they both make eachother less effective. I've got an infected wisdom tooth and when I mentioned stopping my mycophenolate because I have to take antibiotics both the dentist, and later the
I'm sure my Rheumatology consultant told me if I ever take antibiotics I have to stop taking my mycophenolate as they both make eachother less effective. I've got an infected wisdom tooth and when I mentioned stopping my mycophenolate because I have to take antibiotics both the dentist, and later the
eescvc
in
LUPUS UK
4 years ago
Long term side effects of Mycophenolate in ITP?
I’ve spoken to my haematologist about this worry and he assured me that the risk is in people on multiple
immunosuppressants
. However, I am unable to shake this worry and the anxiety is getting to the point where I’m unable to think about anything else.
I’ve spoken to my haematologist about this worry and he assured me that the risk is in people on multiple
immunosuppressants
. However, I am unable to shake this worry and the anxiety is getting to the point where I’m unable to think about anything else.
Ju2000
in
ITP Support Association
4 years ago
Confirmation of Importance of Galactin-3
Galectin-3 in Prostate Cancer Stem-Like Cells Is Immunosuppressive and Drives Early Metastasis. October 8, 2020 Galectin-3 (Gal-3) is an extracellular matrix glycan-binding protein with several immunosuppressive and pro-tumor functions. The role of Galectin-3 in cancer stem-like cells (CSCs) is poorly
Galectin-3 in Prostate Cancer Stem-Like Cells Is Immunosuppressive and Drives Early Metastasis. October 8, 2020 Galectin-3 (Gal-3) is an extracellular matrix glycan-binding protein with several immunosuppressive and pro-tumor functions. The role of Galectin-3 in cancer stem-like cells (CSCs) is poorly
cigafred
in
Advanced Prostate Cancer
4 years ago
The Flu Vaccine, Inflammatory Arthritis, and COVID-19: What You Need to Know
Although researchers have also found that people taking methotrexate or TNF inhibitor biologics — like etanercept (Enbrel), adalimumab (Humira), and infliximab (Remicade) — do have an acceptable response to the flu vaccine, the response isn’t as strong as it is in healthy individuals who are not taking
immunosuppressants
Although researchers have also found that people taking methotrexate or TNF inhibitor biologics — like etanercept (Enbrel), adalimumab (Humira), and infliximab (Remicade) — do have an acceptable response to the flu vaccine, the response isn’t as strong as it is in healthy individuals who are not taking
immunosuppressants
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
2020..Possible treatment for Idiopathic Cerebellar Ataxia
Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people with ataxia are not given a specific diagnosis for the cause of their ataxia. This is known as idiopathic ataxia. In two new publications, Professor Hadjivassiliou at the Sheffield Ataxia Centre, and his colleagues, describe
Diagnosing and treating primary autoimmune cerebellar ataxia (PACA) Many people with ataxia are not given a specific diagnosis for the cause of their ataxia. This is known as idiopathic ataxia. In two new publications, Professor Hadjivassiliou at the Sheffield Ataxia Centre, and his colleagues, describe
wobblybee
in
Ataxia UK
4 years ago
Should I go for splenectomy?
I started Prednisone (corticosteroid) and after no response, I started Imuran (
immunosuppressants
). My platelet count is still less than 10,000.
I started Prednisone (corticosteroid) and after no response, I started Imuran (
immunosuppressants
). My platelet count is still less than 10,000.
fooka
in
ITP Support Association
4 years ago
So concerned about schools
Hi everyone just wanted to express my concern and hear your thoughts as I’m feeling really anxious and so at risk right now re Covid .. So , like most of you I’m on 2 immunosuppressant meds methx and a biologic so shielded and even gave up my little admin job at the hospital as was always mixing with
Hi everyone just wanted to express my concern and hear your thoughts as I’m feeling really anxious and so at risk right now re Covid .. So , like most of you I’m on 2 immunosuppressant meds methx and a biologic so shielded and even gave up my little admin job at the hospital as was always mixing with
claireyj
in
NRAS
4 years ago
The withdrawal of oral anticoagulation (OAC) in patients with SLE and secondary aPL syndrome (SAPS) who become seronegative
Objective The withdrawal of oral anticoagulation (OAC) in patients with SLE and secondary aPL syndrome (SAPS) who become seronegative has not been clearly investigated to date. Our aim was to evaluate the prevalence of aPL seroconversion and the prognosis of SLE patients with SAPS who withdrew OAC after
Objective The withdrawal of oral anticoagulation (OAC) in patients with SLE and secondary aPL syndrome (SAPS) who become seronegative has not been clearly investigated to date. Our aim was to evaluate the prevalence of aPL seroconversion and the prognosis of SLE patients with SAPS who withdrew OAC after
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Beta blockers-how long to stay on them?
I developed tachycardia 18 months ago after an immunosuppressant treatment . A GP put me on a beta blocker. A month later another GP took me off the beta blocker and I got bad withdrawal symptoms- palpitations, high heart rate etc. I saw a cardiologist privately who changed the beta blocker from propanalol
I developed tachycardia 18 months ago after an immunosuppressant treatment . A GP put me on a beta blocker. A month later another GP took me off the beta blocker and I got bad withdrawal symptoms- palpitations, high heart rate etc. I saw a cardiologist privately who changed the beta blocker from propanalol
Caitlyn6
in
British Heart Foundation
4 years ago
GP
Hi all as you know I am at home recovering from my transplant, which is going well at the moment, I had been trying to get my prescription sorted out at my gp as we all know how important the immunosuppressant drugs are, well I have just found out my gp has basically dumped me, they told my hospital
Hi all as you know I am at home recovering from my transplant, which is going well at the moment, I had been trying to get my prescription sorted out at my gp as we all know how important the immunosuppressant drugs are, well I have just found out my gp has basically dumped me, they told my hospital
Thanksnhs
in
British Heart Foundation
4 years ago
NHS rapid policy statement on Tocilizumab for GCA during the Covid-19 pandemic
Hello everyone, and I hope you are all staying safe ( and sane) in these scary times. Forgive me if someone has already brought this to people’s attention, but I only just came across this important statement put out by the NHS which most certainly affects me, and could affect other GCA sufferers who
Hello everyone, and I hope you are all staying safe ( and sane) in these scary times. Forgive me if someone has already brought this to people’s attention, but I only just came across this important statement put out by the NHS which most certainly affects me, and could affect other GCA sufferers who
Suzita76
in
PMRGCAuk
4 years ago
Immune suppression treatment
Has anyone heard that immune suppression treatment might be starting again Iv heard a rumour it might?
Has anyone heard that immune suppression treatment might be starting again Iv heard a rumour it might?
Hidden
in
Fertility Network UK
4 years ago
Urticarial vasculitis syndrome & hydroxychloroquine
Because I have a mannose binding lectin deficiency, an immune deficiency, I have been warned that they would not be keen to put me on
immunosuppressants
as my immune system is compomised and I get repeated shingles. I take valacyclovir daily to counter this. I have never been tried on steroids.
Because I have a mannose binding lectin deficiency, an immune deficiency, I have been warned that they would not be keen to put me on
immunosuppressants
as my immune system is compomised and I get repeated shingles. I take valacyclovir daily to counter this. I have never been tried on steroids.
Hoofprints
in
Vasculitis UK
4 years ago
Immune response to Sars-Cov-2 following organ transplantation.
Even patients with suppressed immune systems can achieve a strong immune response to Sars-Cov-2. A test helps to adapt therapy following an infection. A research team from the University Hospital at Ruhr-Universität Bochum (RUB) has developed a test that provides information on the immune response
Even patients with suppressed immune systems can achieve a strong immune response to Sars-Cov-2. A test helps to adapt therapy following an infection. A research team from the University Hospital at Ruhr-Universität Bochum (RUB) has developed a test that provides information on the immune response
2greys
in
Lung Conditions Community Forum
4 years ago
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