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COVID-19 Vaccine and Behçet’s - updated 27/01/21
This includes those on
immunosuppressants
who should have the Pfizer/BioNTech Covid-19 Vaccine (and it is not a live vaccine).
This includes those on
immunosuppressants
who should have the Pfizer/BioNTech Covid-19 Vaccine (and it is not a live vaccine).
TonyWT
Partner
in
Behçet's UK
4 years ago
Has the debate been clarified?
Sorry if this is old news but I finally got to speak to my Haematology consultant’s secretary today about the Oxford virus. According to her all the Haematology team had been sent emails to say all the vaccines were safe for haematology patients including those who were immunosuppressed so I am going
Sorry if this is old news but I finally got to speak to my Haematology consultant’s secretary today about the Oxford virus. According to her all the Haematology team had been sent emails to say all the vaccines were safe for haematology patients including those who were immunosuppressed so I am going
jillydabrat
in
Positive Wellbeing During Self-Isolation
4 years ago
Vaccine
Hi does anyone know if people on immunosuppressant like us will get the vaccine ???? Hope everyone is keeping safe
Hi does anyone know if people on immunosuppressant like us will get the vaccine ???? Hope everyone is keeping safe
Deejojo
in
NRAS
4 years ago
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COVID-19 Vaccination and immunosuppressed patients - UPDATE from 12/01/2021
This has just been posted on the LupusUK forum by Paul Howard: "We've updated our information and guidance about lupus and COVID-19 vaccination - https://www.lupusuk.org.uk/covid19-vaccination/ In the past week there has been some confusion and misinformation regarding the Oxford/AstraZeneca vaccine
This has just been posted on the LupusUK forum by Paul Howard: "We've updated our information and guidance about lupus and COVID-19 vaccination - https://www.lupusuk.org.uk/covid19-vaccination/ In the past week there has been some confusion and misinformation regarding the Oxford/AstraZeneca vaccine
PMRpro
Ambassador
in
PMRGCAuk
4 years ago
Lupus & COVID-19 Vaccination - UPDATED 12/01/2021
Hi everyone We've updated our information and guidance about lupus and COVID-19 vaccination - https://www.lupusuk.org.uk/covid19-vaccination/ In the past week there has been some confusion and misinformation regarding the Oxford/AstraZeneca vaccine. This was especially the case following Prof David
Hi everyone We've updated our information and guidance about lupus and COVID-19 vaccination - https://www.lupusuk.org.uk/covid19-vaccination/ In the past week there has been some confusion and misinformation regarding the Oxford/AstraZeneca vaccine. This was especially the case following Prof David
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Seeking a volunteer to be interviewed about lupus and COVID-19 vaccination for BBC News Website - NOW CLOSED
***Thank you so much to those who volunteered for this interview. It has now been completed and we await the publication of the story.***
Hi everyone, I've just been on the phone with Joseph Lee who is a journalist for the BBC News Website. He is writing an article about people with health conditions
***Thank you so much to those who volunteered for this interview. It has now been completed and we await the publication of the story.***
Hi everyone, I've just been on the phone with Joseph Lee who is a journalist for the BBC News Website. He is writing an article about people with health conditions
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Treatment for dry, peeling lips
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
roxanne67
in
The Australian Sjögren's Syndrome Association
4 years ago
One for Prof Harrison via Maz?
While I was having my transfusion today I overheard a nurse telling a patient that if they were on any type of immunosuppressive treatment that that should be discontinued before receiving covid vaccine. I am taking 20mg Ruxolitinib twice daily and have a consistently low white count with neutrophils
While I was having my transfusion today I overheard a nurse telling a patient that if they were on any type of immunosuppressive treatment that that should be discontinued before receiving covid vaccine. I am taking 20mg Ruxolitinib twice daily and have a consistently low white count with neutrophils
beetle
in
MPN Voice
4 years ago
Coronavirus disease (COVID-19) advice for the public: Mythbusters
FACT: Vitamin and mineral supplements cannot cure COVID-19 Micronutrients, such as vitamins D and C and zinc, are critical for a well-functioning immune system and play a vital role in promoting health and nutritional well-being. There is currently no guidance on the use of micronutrient supplements
FACT: Vitamin and mineral supplements cannot cure COVID-19 Micronutrients, such as vitamins D and C and zinc, are critical for a well-functioning immune system and play a vital role in promoting health and nutritional well-being. There is currently no guidance on the use of micronutrient supplements
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Stem Cell Transplantation at Mass General
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
I have posted about this particular stem cell transplantation at least twice before. I understand that it was a "pay for play" situation. I understand that it is an "N of 1" situation. I understand that "placebo effect" could be a factor. I understand that much broader studies may be necessary. With
jimcaster
in
Cure Parkinson's
4 years ago
COVID vaccine information for APS patients
Unlike
immunosuppressants
, hydroxychloroquine is an immunomodulatory drug and is unlikely to limit the body’s response to infection.
Unlike
immunosuppressants
, hydroxychloroquine is an immunomodulatory drug and is unlikely to limit the body’s response to infection.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Starting on Mycophenolate
Also I am a medical student in the UK so I am about to start working as a doctor in the NHS - is this a problem for me being on
immunosuppressants
:( am a bit scared of the future. Are there any doctors/nurses/healthcare workers in this forum with the disease?
Also I am a medical student in the UK so I am about to start working as a doctor in the NHS - is this a problem for me being on
immunosuppressants
:( am a bit scared of the future. Are there any doctors/nurses/healthcare workers in this forum with the disease?
zchaamo
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Anyone taking Rituxan during covid?
Anyone taking Rituxan or any other
immunosuppressants
during covid? I’ve been putting my infusion off, I’m nervous not knowing how to way risks.
Anyone taking Rituxan or any other
immunosuppressants
during covid? I’ve been putting my infusion off, I’m nervous not knowing how to way risks.
Stargazingirl27
in
My MSAA Community
4 years ago
Has anyone had a transplant without tac or cyclosporine?
I am worried about post transplant tremors as my studies/future job involve lots of very accurate drawing. As such, I was wondering whether it is possible to have a transplant without tacrolimus or cyclosporine, using other immunosuppression. Thanks.
I am worried about post transplant tremors as my studies/future job involve lots of very accurate drawing. As such, I was wondering whether it is possible to have a transplant without tacrolimus or cyclosporine, using other immunosuppression. Thanks.
Mollymoo100
in
Kidney Transplant
4 years ago
Cyclosporine
Hi everyone! Has anyone ever been on cyclosporine?! It’s not for my asthma but is for cholinergic urticaria (hives/angioedema). If so I would like to know of your experience as I am scared to take it due to the side effects which sound awful!! Also worried as it’s an immunosuppressant and I might be
Hi everyone! Has anyone ever been on cyclosporine?! It’s not for my asthma but is for cholinergic urticaria (hives/angioedema). If so I would like to know of your experience as I am scared to take it due to the side effects which sound awful!! Also worried as it’s an immunosuppressant and I might be
Sunnydays1982
in
Asthma Community Forum
4 years ago
‘Long COVID’ may be caused by body attacking itself, not the virus – study
In study not yet peer-reviewed, Yale researchers find that coronavirus patients had high levels of autoantibodies that targeted organs and tissue instead of latching onto virus By TOI STAFF 14 December 2020 This 2020 electron microscope image made available by the National Institute of Allergy and Infectious
In study not yet peer-reviewed, Yale researchers find that coronavirus patients had high levels of autoantibodies that targeted organs and tissue instead of latching onto virus By TOI STAFF 14 December 2020 This 2020 electron microscope image made available by the National Institute of Allergy and Infectious
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Antibiotics and immunosupressant??
Hello, I just managed to get an eye infection and the GP prescribed chloramphenicol eye ointment and flucloxacillin. I already take methotrexate, hydroxichloroquine and prednisolone. She told me to check with the rheumatology nurse to see if I need to stop the immunosuppressant. I tried to get in touch
Hello, I just managed to get an eye infection and the GP prescribed chloramphenicol eye ointment and flucloxacillin. I already take methotrexate, hydroxichloroquine and prednisolone. She told me to check with the rheumatology nurse to see if I need to stop the immunosuppressant. I tried to get in touch
Leades
in
NRAS
4 years ago
Pfizer vaccine
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
Evie3
in
NRAS
4 years ago
*sensitive - picture attached
We had PGS tested done, ERA test done, I am on progesteron injections, blood thinner,
immunosuppressants
, tyroxine all that we could imagine and the outcome is the same... just another chemical. I don't understand what else we can improve?!?
We had PGS tested done, ERA test done, I am on progesteron injections, blood thinner,
immunosuppressants
, tyroxine all that we could imagine and the outcome is the same... just another chemical. I don't understand what else we can improve?!?
Ranchu90
in
Fertility Network UK
4 years ago
Upcoming Clinical Trial Will Test Immunosuppressant in Slowing Parkinson’s
An upcoming clinical trial, known as the AZA-PD study, will test whether limiting the activity of the immune system through the use of an immunosuppressant can slow the progression of Parkinson’s disease. The Phase 2 trial (ISRCTN14616801) — officially Azathioprine immunosuppression and disease modification
An upcoming clinical trial, known as the AZA-PD study, will test whether limiting the activity of the immune system through the use of an immunosuppressant can slow the progression of Parkinson’s disease. The Phase 2 trial (ISRCTN14616801) — officially Azathioprine immunosuppression and disease modification
JayPwP
in
Cure Parkinson's
4 years ago
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