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Sclerodactyly treatment suggestions?
I have been put on weekly Methotrexate (
immunosuppressants
)and currently taking Prednisolone (steroids) daily for six weeks.
I have been put on weekly Methotrexate (
immunosuppressants
)and currently taking Prednisolone (steroids) daily for six weeks.
SKivell
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Covid Vaccine information Via JCVI
I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please note the third dose is part of your primary course of vaccination and is separate to a booster vaccination, which you will also be eligible for
I am posting this for purely information relating to the immunosuppressed and Covid vaccination, it is a letter I received today from the Hospital. " Please note the third dose is part of your primary course of vaccination and is separate to a booster vaccination, which you will also be eligible for
AncientMariner
in
PMRGCAuk
3 years ago
Covid vaccine confusions
I know there has been other posts about boosters and 3rd vaccines but I am still confused about when I am due a booster. I am under 50 and had my 2nd dose in April. I am currently taking hydroxy so not classed as immunosuppressed. I asked my gp for some guidance and they just said they weren’t involved
I know there has been other posts about boosters and 3rd vaccines but I am still confused about when I am due a booster. I am under 50 and had my 2nd dose in April. I am currently taking hydroxy so not classed as immunosuppressed. I asked my gp for some guidance and they just said they weren’t involved
Raven_claw
in
LUPUS UK
3 years ago
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First diagnosis finally
I don’t no how I feel about this. Not sure I lf I am happy or sad. But today after months of eye hospital visits I have been diagnosed with severe autoimmune inflammatory eye disease and given immunosuppression eye drops and more steroids. My rheumatologist has now handed me over to the connective tissue
I don’t no how I feel about this. Not sure I lf I am happy or sad. But today after months of eye hospital visits I have been diagnosed with severe autoimmune inflammatory eye disease and given immunosuppression eye drops and more steroids. My rheumatologist has now handed me over to the connective tissue
BabyOleg
in
LUPUS UK
3 years ago
Chance to participate: Barriers for vaccination - research study for immunosuppressed patients with inflammatory condtions.
As you know I always like to support any research, and Paul Howard at LupusUK has found another opportunity: https://healthunlocked.com/lupusuk/posts/147129807/research-study-barriers-facilitators-for-vaccination?utm_source=notification&utm_medium=email&utm_campaign=email_individual_new_blog#post_title
As you know I always like to support any research, and Paul Howard at LupusUK has found another opportunity: https://healthunlocked.com/lupusuk/posts/147129807/research-study-barriers-facilitators-for-vaccination?utm_source=notification&utm_medium=email&utm_campaign=email_individual_new_blog#post_title
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
Getting antivirals UK
Hi looking for information and help. I have been in contact with someone who has tested positive for covid (LFT positive and PCR test to follow). I knew my CLL consultant didn’t know of any protocol within the hospital for the use of antivirals with the immunosuppressed so I rang the hospital pharmacy
Hi looking for information and help. I have been in contact with someone who has tested positive for covid (LFT positive and PCR test to follow). I knew my CLL consultant didn’t know of any protocol within the hospital for the use of antivirals with the immunosuppressed so I rang the hospital pharmacy
camper2
in
CLL Support
3 years ago
Research Study: Barriers & Facilitators for Vaccination
Hi everyone, A team of researchers at University of Nottingham are investigating the barriers and facilitators for vaccination in people with inflammatory conditions treated with immunosuppressive medications. They would like to invite you to take part in a research interview to explore your understanding
Hi everyone, A team of researchers at University of Nottingham are investigating the barriers and facilitators for vaccination in people with inflammatory conditions treated with immunosuppressive medications. They would like to invite you to take part in a research interview to explore your understanding
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Third Vaccine / Covid 19 immune response
He is currently having an immunosuppressant holiday between finishing his chemo and starting oral
immunosuppressants
so in our heads this would be a great time to have the vaccine booster but we are hitting brick walls when making any attempts to get one. Can anyone enlighten us? Thank you
He is currently having an immunosuppressant holiday between finishing his chemo and starting oral
immunosuppressants
so in our heads this would be a great time to have the vaccine booster but we are hitting brick walls when making any attempts to get one. Can anyone enlighten us? Thank you
harris1629
in
Vasculitis UK
3 years ago
Of great importance for those of us who are immunosuppressed
https://www.nbcnews.com/health/health-news/covid-antibody-drugs-protect-people-weak-immune-systems-rcna4597
https://www.nbcnews.com/health/health-news/covid-antibody-drugs-protect-people-weak-immune-systems-rcna4597
Transplant2018
in
Kidney Transplant
3 years ago
Third covid jab / covid booster
Hi all Just wondering if those of you who are immunosuppressed as confused as I was with regards to the above. I like in the uk and have been on ibrance since May 20. Had my first covid jab Feb 21, second April 21. Early October I was invited for my ‘booster’ but this in fact was a third primary dose
Hi all Just wondering if those of you who are immunosuppressed as confused as I was with regards to the above. I like in the uk and have been on ibrance since May 20. Had my first covid jab Feb 21, second April 21. Early October I was invited for my ‘booster’ but this in fact was a third primary dose
Archiedog
in
SHARE Metastatic Breast Cancer
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
The Problem: Early reports from COVID vaccine studies suggest that patients on
immunosuppressants
have lower response rates.
The Problem: Early reports from COVID vaccine studies suggest that patients on
immunosuppressants
have lower response rates.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Complications from Immunosuppressants
I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs
I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs
Tallyn
in
Kidney Transplant
3 years ago
Antibodies
I have heard that immunosuppressed patients or patients taking immunosuppressed drugs, who have not had Covid itself, do not build up the same amount of antibodies from the vaccines that non-immunosuppressed patients do. Does anybody know if this is true? Is there a test for the amount of vaccine
I have heard that immunosuppressed patients or patients taking immunosuppressed drugs, who have not had Covid itself, do not build up the same amount of antibodies from the vaccines that non-immunosuppressed patients do. Does anybody know if this is true? Is there a test for the amount of vaccine
Hdslimand62
in
Kidney Transplant
3 years ago
Rapid survey regarding 3rd primary dose of COVID vaccine
A group of charities and patient groups including NRAS is supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the progress of the roll-out of third primary COVID-19 vaccination doses for people who are severely immunosuppressed. We have heard from patients
A group of charities and patient groups including NRAS is supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the progress of the roll-out of third primary COVID-19 vaccination doses for people who are severely immunosuppressed. We have heard from patients
Hidden
in
NRAS
3 years ago
Rapid online survey about the roll-out of the third primary COVID-19 vaccine doses - PLEASE COMPLETE
Hi everyone LUPUS UK, along with other patient groups, is supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the progress of the roll-out of third primary COVID-19 vaccine doses for people who are severely immunosuppressed. We have heard from many people
Hi everyone LUPUS UK, along with other patient groups, is supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the progress of the roll-out of third primary COVID-19 vaccine doses for people who are severely immunosuppressed. We have heard from many people
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Survey of people with rheumatic conditions about third primary vaccination doses
A group of other charities and patient groups, are supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the progress of the roll-out of third primary COVID-19 vaccination doses for people who are severely immunosuppressed. We have heard from patients reporting
A group of other charities and patient groups, are supporting a rapid survey aimed at all adults with a rheumatic condition in the UK, to understand the progress of the roll-out of third primary COVID-19 vaccination doses for people who are severely immunosuppressed. We have heard from patients reporting
John_Mills
Vasculitis UK
in
Vasculitis UK
3 years ago
Vaccines and the Immunosuppressed
Some of you are probably already aware of the Zoe Covid study and will know of this webinar in little under two hours' time. For those of you who are not, here're are some details Hello! We're looking forward to seeing you at our webinar tomorrow: Vaccines and the Immunosuppressed Thursday 28th
Some of you are probably already aware of the Zoe Covid study and will know of this webinar in little under two hours' time. For those of you who are not, here're are some details Hello! We're looking forward to seeing you at our webinar tomorrow: Vaccines and the Immunosuppressed Thursday 28th
eve5
in
NRAS
3 years ago
Shingrix for immunosuppressed people
This is the article: https://www.gponline.com/gps-roll-non-live-shingles-vaccine-immunocompromised-patients/article/1725247 Perhaps I have misread it.
This is the article: https://www.gponline.com/gps-roll-non-live-shingles-vaccine-immunocompromised-patients/article/1725247 Perhaps I have misread it.
SheffieldJane
in
PMRGCAuk
3 years ago
Early Treatment for Covid-19 with SARS-CoV-2 Neutralizing Antibody Sotrovimab
Just published in the NEJM https://www.nejm.org/doi/full/10.1056/NEJMoa2107934?query=TOC&cid=NEJM%20eToc,%20October%2028,%202021%20DM415467_NEJM_Non_Subscriber&bid=685430303 Interim results from the COMET-ICE phase 3, placebo-controlled clinical trial of Sotrovimab for nonhospitalized patients with
Just published in the NEJM https://www.nejm.org/doi/full/10.1056/NEJMoa2107934?query=TOC&cid=NEJM%20eToc,%20October%2028,%202021%20DM415467_NEJM_Non_Subscriber&bid=685430303 Interim results from the COMET-ICE phase 3, placebo-controlled clinical trial of Sotrovimab for nonhospitalized patients with
bennevisplace
in
CLL Support
3 years ago
COVID-19 vaccine elicits antibodies in 90% taking immunosuppressants
The Centers for Disease Control and Prevention (CDC) recently recommended that people taking
immunosuppressants
receive a third dose of the vaccine to strengthen their immune responses.
The Centers for Disease Control and Prevention (CDC) recently recommended that people taking
immunosuppressants
receive a third dose of the vaccine to strengthen their immune responses.
2greys
in
Lung Conditions Community Forum
3 years ago
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