Experiences with

Immunosuppressants

Hi - If you take Belatacept/Nulojix, do you take any other immunosuppressants with it? If so, can you please share what other immunosuppressants you take with Bela and the doses?

Which vaccine is best for the immunosuppressed and have a primary immunodeficiency? I can't find any information on Novavax for the immunosuppressed. Does anyone know if the adjuvant it has is okay for us to take? I have searched and searched and cant find anything about it. Thank you.

For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other immunosuppressants for IMIDs, and 26 age- and sex-matched healthy controls who received two doses

She is under rheumatology and dermatology and after two years still not found medication / immunosuppressants that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.

So seems like I have 2 options now in terms of immunosuppressants. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?

I'm curious whether you've had to make adjustments around your life being on immunosuppressants. My son will be off to nursery in 4m and I'm sure will be exposed to a whole host of germs.

She's on a high dose of cyclosporine immunosuppressants. Does anyone have any experience of someone they care for having a change of personality and behaving irrationally? I'm beside myself and after 3 years of caring for her solely I feel so isolated and heartbroken

Current supplements are slow release Vit C and omega 3 fish oil I do take immunosuppressants every 2 weeks for Birdshot Uveitis and have recently developed patches of ? psoriasis which mat be due to the particular immunosuppressants I take (adalimumab).

., clexane / immunosuppressants / asprin as this is only our 3rd transfer so can’t conclude ‘repeated implantation failure.’ We haven’t done ERA or any other ‘add-ons’ to inform this FET. Has anyone else gone through this thought process and can offer advice? Thanks in advance 💜

The nurses and gps at my surgery, keep saying it’s fine to continue immunosuppressants, as long as I don’t have an infection. I have only had one infection that was recently and required 2 weeks of antibiotics.

I am right-handed and my right wrist is full of erosions, following a bad flare that started in 2015 and was difficult to get under control with immunosuppressants. Since then I have had little movement in the wrist, but the movement has not reduced so I don't think it is fusing naturally.

Are there any restrictions to what you can eat after a transplant, as in foods that interact negatively with the immunosuppressants?

I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my immunosuppressants briefly and then changed me from Neoral to Cellcept thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.

The approval specifically covers the treatment, given along immunosuppressants, for adults with active class 3, 4, and 5 lupus nephritis — three subtypes of the condition that are based on the type of tissue damage visible on a kidney biopsy.

Yet, withholding immunosuppressants had no significant effect on disease activity comparing the time before the first vaccine dose with the period immediately following the second vaccine dose.

I just started immunosuppressants (TNF-α blockers) and I was wondering if anyone of you here is on similar medication and how that might (or might not) interfere with your training. Should I reduce my training volume?

Common therapeutic approaches include the use of immunosuppressants, as well as medications that specifically target and destroy B-cells, such as rituximab.

Were you advised to adjust your other immunosuppressants?

How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about other people's experiences.

He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either Mycophenolate or Azathioprine, both or which are immunosuppressants.