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Immunosuppressants

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What do you take with Bela?

Hi - If you take Belatacept/Nulojix, do you take any other immunosuppressants with it? If so, can you please share what other immunosuppressants you take with Bela and the doses?
Hi - If you take Belatacept/Nulojix, do you take any other immunosuppressants with it? If so, can you please share what other immunosuppressants you take with Bela and the doses?
Denise-80 profile image
Denise-80
in Kidney Transplant
3 months ago

Immunosuppressants and COVID vaccine

Which vaccine is best for the immunosuppressed and have a primary immunodeficiency? I can't find any information on Novavax for the immunosuppressed. Does anyone know if the adjuvant it has is okay for us to take? I have searched and searched and cant find anything about it. Thank you.
Which vaccine is best for the immunosuppressed and have a primary immunodeficiency? I can't find any information on Novavax for the immunosuppressed. Does anyone know if the adjuvant it has is okay for us to take? I have searched and searched and cant find anything about it. Thank you.
Rocknlily profile image
Rocknlily
in Kidney Transplant
4 months ago

Rituximab timing of Covid2 vaccination

For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other immunosuppressants for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other immunosuppressants for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
AgedCrone profile image
AgedCrone
in NRAS
2 months ago
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cutaneous lupus

She is under rheumatology and dermatology and after two years still not found medication / immunosuppressants that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
She is under rheumatology and dermatology and after two years still not found medication / immunosuppressants that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
Nellons profile image
Nellons
in LUPUS UK
2 months ago

Uveitis treatment opinion please

So seems like I have 2 options now in terms of immunosuppressants. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?
So seems like I have 2 options now in terms of immunosuppressants. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?
Udupik profile image
Udupik
in Vasculitis UK
2 months ago

Impact on your life by taking immunosuppressants?

I'm curious whether you've had to make adjustments around your life being on immunosuppressants. My son will be off to nursery in 4m and I'm sure will be exposed to a whole host of germs.
I'm curious whether you've had to make adjustments around your life being on immunosuppressants. My son will be off to nursery in 4m and I'm sure will be exposed to a whole host of germs.
Nw6London profile image
Nw6London
in Scleroderma & Raynaud's UK (SRUK)
4 months ago

Prednisolone some effects

She's on a high dose of cyclosporine immunosuppressants. Does anyone have any experience of someone they care for having a change of personality and behaving irrationally? I'm beside myself and after 3 years of caring for her solely I feel so isolated and heartbroken
She's on a high dose of cyclosporine immunosuppressants. Does anyone have any experience of someone they care for having a change of personality and behaving irrationally? I'm beside myself and after 3 years of caring for her solely I feel so isolated and heartbroken
Samson08 profile image
Samson08
in PMRGCAuk
4 months ago

Help with blood test results

Current supplements are slow release Vit C and omega 3 fish oil I do take immunosuppressants every 2 weeks for Birdshot Uveitis and have recently developed patches of ? psoriasis which mat be due to the particular immunosuppressants I take (adalimumab).
Current supplements are slow release Vit C and omega 3 fish oil I do take immunosuppressants every 2 weeks for Birdshot Uveitis and have recently developed patches of ? psoriasis which mat be due to the particular immunosuppressants I take (adalimumab).
CarnelianT profile image
CarnelianT
in Thyroid UK
5 months ago

First FET - what grade embryo?

., clexane / immunosuppressants / asprin as this is only our 3rd transfer so can’t conclude ‘repeated implantation failure.’ We haven’t done ERA or any other ‘add-ons’ to inform this FET. Has anyone else gone through this thought process and can offer advice? Thanks in advance 💜
., clexane / immunosuppressants / asprin as this is only our 3rd transfer so can’t conclude ‘repeated implantation failure.’ We haven’t done ERA or any other ‘add-ons’ to inform this FET. Has anyone else gone through this thought process and can offer advice? Thanks in advance 💜
Vivkim profile image
Vivkim
in Fertility Network UK
4 months ago

Anyone on biologics and suffering leg ulcers

The nurses and gps at my surgery, keep saying it’s fine to continue immunosuppressants, as long as I don’t have an infection. I have only had one infection that was recently and required 2 weeks of antibiotics.
The nurses and gps at my surgery, keep saying it’s fine to continue immunosuppressants, as long as I don’t have an infection. I have only had one infection that was recently and required 2 weeks of antibiotics.
Runrig01 profile image
Runrig01
in NRAS
2 months ago

Wrist fusion (arthrodesis) and using a computer

I am right-handed and my right wrist is full of erosions, following a bad flare that started in 2015 and was difficult to get under control with immunosuppressants. Since then I have had little movement in the wrist, but the movement has not reduced so I don't think it is fusing naturally.
I am right-handed and my right wrist is full of erosions, following a bad flare that started in 2015 and was difficult to get under control with immunosuppressants. Since then I have had little movement in the wrist, but the movement has not reduced so I don't think it is fusing naturally.
DaphRA profile image
DaphRA
in NRAS
2 months ago

Foods to Avoid After Transplant

Are there any restrictions to what you can eat after a transplant, as in foods that interact negatively with the immunosuppressants?
Are there any restrictions to what you can eat after a transplant, as in foods that interact negatively with the immunosuppressants?
frebusmaxwell profile image
frebusmaxwell
in Kidney Transplant
10 months ago

Swollen lymph nodes

I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my immunosuppressants briefly and then changed me from Neoral to Cellcept thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.
I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my immunosuppressants briefly and then changed me from Neoral to Cellcept thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.
SOct91 profile image
SOct91
in Kidney Transplant
8 months ago

Lupkynis approved in Switzerland to treat adults with lupus nephritis

The approval specifically covers the treatment, given along immunosuppressants, for adults with active class 3, 4, and 5 lupus nephritis — three subtypes of the condition that are based on the type of tissue damage visible on a kidney biopsy.
The approval specifically covers the treatment, given along immunosuppressants, for adults with active class 3, 4, and 5 lupus nephritis — three subtypes of the condition that are based on the type of tissue damage visible on a kidney biopsy.
lupus-support1 profile image
lupus-support1
Administratorin LUpus Patients Understanding and Support
28 days ago

SLE patients may have reduced response to COVID-19 vaccination

Yet, withholding immunosuppressants had no significant effect on disease activity comparing the time before the first vaccine dose with the period immediately following the second vaccine dose.
Yet, withholding immunosuppressants had no significant effect on disease activity comparing the time before the first vaccine dose with the period immediately following the second vaccine dose.
lupus-support1 profile image
lupus-support1
Administratorin LUpus Patients Understanding and Support
3 months ago

Any runners on immunosuppressants?

I just started immunosuppressants (TNF-α blockers) and I was wondering if anyone of you here is on similar medication and how that might (or might not) interfere with your training. Should I reduce my training volume?
I just started immunosuppressants (TNF-α blockers) and I was wondering if anyone of you here is on similar medication and how that might (or might not) interfere with your training. Should I reduce my training volume?
marvinaki profile image
marvinaki
in Bridge to 10K
10 months ago

Phase 1 trial testing CAR T-cell therapy GC012F in SLE

Common therapeutic approaches include the use of immunosuppressants, as well as medications that specifically target and destroy B-cells, such as rituximab.
Common therapeutic approaches include the use of immunosuppressants, as well as medications that specifically target and destroy B-cells, such as rituximab.
lupus-support1 profile image
lupus-support1
Administratorin LUpus Patients Understanding and Support
14 days ago

Belatacept and Covid

Were you advised to adjust your other immunosuppressants?
Were you advised to adjust your other immunosuppressants?
Transplant2018 profile image
Transplant2018
in Kidney Transplant
11 months ago

Kidney Transplant Aug 25

How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about other people's experiences.
How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about other people's experiences.
frebusmaxwell profile image
frebusmaxwell
in Kidney Transplant
10 months ago

Mycophenolate or Azathioprine ?

He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either Mycophenolate or Azathioprine, both or which are immunosuppressants.
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either Mycophenolate or Azathioprine, both or which are immunosuppressants.
Spotty-ewe profile image
Spotty-ewe
in LUPUS UK
15 days ago
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