Experiences with

Immunosuppressants

Due to having AIH and being on immunosuppressants I’ve been shielding for a year now.

It said as I’m on immunosuppressants, anyone living with me is eligible for the vaccine and to send me their details to sort it out. Mightily impressed. Has anyone else had this? Take care D x

Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks

Hi all, got diagnosed with Crohn’s last year via MRI and ultrasound. Been on budesonide for 2 months and azathioprene for 6 months, however just had a colonoscopy yesterday as it was delayed due to covid. The colonoscopy showed that my ileum looked pretty bad despite medication with fissures, ulcers

This is following a year of being unwell with several illnesses and being unable to take my immunosuppressants to manage my Behcets.

Feel quite nauseous today, think it’s second vaccine at war with immunosuppressants I took last night. B ffgreek yoghurt, 7 blueberries and 10 g muesli, small orange.

Anyone taking Rituxan or any other immunosuppressants during covid? I’ve been putting my infusion off, I’m nervous not knowing how to way risks.

I’m on Prednisolone and Azothiaprine. I’ve had the Oxford A-Z vaccine. Has anyone been tested for Antibodies and had a result following ? Should I get tested?

Hi everyone. My 8 year old daughter was diagnosed with SLE, myositis and idiopathic arthritis in OCT 2020. I also have SLE but was diagnosed when I was around 16. She was initially given IV prednisolone, hydroxychloroquine, folic acid, lanzoprazole as main treatments. Sent home with oral prednisolone

There’s been a lot of comment about the Pfizer vaccine today,but still no info to say whether people on immunosuppressants will be able to have this vaccination? It’s a worrying time.

I seem to b in a constant flare up despite immunosuppressants and steroids from 5mgs to 20mgs.

The drs gave me an ultrasound and found no or hardly any inflammation so they don’t think the lupus is attacking my joint so more immunosuppression will work (they did put me on more immunosuppressants but it ended up oversupressing my immune system.

I have read up that all the clinics are supposed to start you on immunosuppressants more than a week before your transfer. It’s all so confusing. With the dose and the timings. :( Can you ladies please advice what was the protocol for you all to suppress immunity before the embryo transfer?

Then (as I am classed as vulnerable and work with older people) got the first Covid vaccination on Tuesday💉 Our Hep Consultants reassured me it safe, though possibly not as effective post transplant people taking immunosuppressants👍 (70/75%).

Also I am a medical student in the UK so I am about to start working as a doctor in the NHS - is this a problem for me being on immunosuppressants :( am a bit scared of the future. Are there any doctors/nurses/healthcare workers in this forum with the disease?

I looked it up on the nhs website as I was looking to see if there were any risks to me, but on there it said that babies who’s mother has taken immunosuppressants through pregnancy or when breastfeeding (of which I have done both) shouldn’t have the vaccination.

I'm sure my Rheumatology consultant told me if I ever take antibiotics I have to stop taking my mycophenolate as they both make eachother less effective. I've got an infected wisdom tooth and when I mentioned stopping my mycophenolate because I have to take antibiotics both the dentist, and later the

There has always been a question about overlap with AIH but there has never been enough compelling evidence to put me on steroids or immunosuppressants. My bloods are generally well controlled with urso and are usually within or just above normal levels.

But the researchers noted that “as most prednisone users were on other immunosuppressants in this study, efforts to taper prednisone as safely as possible while initiating additional therapies may be needed to permit optimal antibody responses from mRNA-based vaccines.”

This one then also got cancelled due to COVID again and I’m being told it can’t go ahead due to them using immunosuppressants during the treatment and it being against HFEA guidelines to do that during a pandemic.