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Experiences with
Immunosuppressants
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What do you take with Bela?
Hi - If you take Belatacept/Nulojix, do you take any other
immunosuppressants
with it? If so, can you please share what other
immunosuppressants
you take with Bela and the doses?
Hi - If you take Belatacept/Nulojix, do you take any other
immunosuppressants
with it? If so, can you please share what other
immunosuppressants
you take with Bela and the doses?
Denise-80
in
Kidney Transplant
3 months ago
Immunosuppressants and COVID vaccine
Which vaccine is best for the immunosuppressed and have a primary immunodeficiency? I can't find any information on Novavax for the immunosuppressed. Does anyone know if the adjuvant it has is okay for us to take? I have searched and searched and cant find anything about it. Thank you.
Which vaccine is best for the immunosuppressed and have a primary immunodeficiency? I can't find any information on Novavax for the immunosuppressed. Does anyone know if the adjuvant it has is okay for us to take? I have searched and searched and cant find anything about it. Thank you.
Rocknlily
in
Kidney Transplant
4 months ago
Rituximab timing of Covid2 vaccination
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other
immunosuppressants
for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other
immunosuppressants
for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
AgedCrone
in
NRAS
2 months ago
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cutaneous lupus
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
Nellons
in
LUPUS UK
2 months ago
Uveitis treatment opinion please
So seems like I have 2 options now in terms of
immunosuppressants
. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?
So seems like I have 2 options now in terms of
immunosuppressants
. 1. Take 2 g of mycophenolate ( daily) Or 2. Move to biologicals Based on your individual experience, which one would you advise ?
Udupik
in
Vasculitis UK
2 months ago
Impact on your life by taking immunosuppressants?
I'm curious whether you've had to make adjustments around your life being on
immunosuppressants
. My son will be off to nursery in 4m and I'm sure will be exposed to a whole host of germs.
I'm curious whether you've had to make adjustments around your life being on
immunosuppressants
. My son will be off to nursery in 4m and I'm sure will be exposed to a whole host of germs.
Nw6London
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Prednisolone some effects
She's on a high dose of cyclosporine
immunosuppressants
. Does anyone have any experience of someone they care for having a change of personality and behaving irrationally? I'm beside myself and after 3 years of caring for her solely I feel so isolated and heartbroken
She's on a high dose of cyclosporine
immunosuppressants
. Does anyone have any experience of someone they care for having a change of personality and behaving irrationally? I'm beside myself and after 3 years of caring for her solely I feel so isolated and heartbroken
Samson08
in
PMRGCAuk
4 months ago
Help with blood test results
Current supplements are slow release Vit C and omega 3 fish oil I do take
immunosuppressants
every 2 weeks for Birdshot Uveitis and have recently developed patches of ? psoriasis which mat be due to the particular
immunosuppressants
I take (adalimumab).
Current supplements are slow release Vit C and omega 3 fish oil I do take
immunosuppressants
every 2 weeks for Birdshot Uveitis and have recently developed patches of ? psoriasis which mat be due to the particular
immunosuppressants
I take (adalimumab).
CarnelianT
in
Thyroid UK
5 months ago
First FET - what grade embryo?
., clexane /
immunosuppressants
/ asprin as this is only our 3rd transfer so can’t conclude ‘repeated implantation failure.’ We haven’t done ERA or any other ‘add-ons’ to inform this FET. Has anyone else gone through this thought process and can offer advice? Thanks in advance 💜
., clexane /
immunosuppressants
/ asprin as this is only our 3rd transfer so can’t conclude ‘repeated implantation failure.’ We haven’t done ERA or any other ‘add-ons’ to inform this FET. Has anyone else gone through this thought process and can offer advice? Thanks in advance 💜
Vivkim
in
Fertility Network UK
4 months ago
Anyone on biologics and suffering leg ulcers
The nurses and gps at my surgery, keep saying it’s fine to continue
immunosuppressants
, as long as I don’t have an infection. I have only had one infection that was recently and required 2 weeks of antibiotics.
The nurses and gps at my surgery, keep saying it’s fine to continue
immunosuppressants
, as long as I don’t have an infection. I have only had one infection that was recently and required 2 weeks of antibiotics.
Runrig01
in
NRAS
2 months ago
Wrist fusion (arthrodesis) and using a computer
I am right-handed and my right wrist is full of erosions, following a bad flare that started in 2015 and was difficult to get under control with
immunosuppressants
. Since then I have had little movement in the wrist, but the movement has not reduced so I don't think it is fusing naturally.
I am right-handed and my right wrist is full of erosions, following a bad flare that started in 2015 and was difficult to get under control with
immunosuppressants
. Since then I have had little movement in the wrist, but the movement has not reduced so I don't think it is fusing naturally.
DaphRA
in
NRAS
2 months ago
Foods to Avoid After Transplant
Are there any restrictions to what you can eat after a transplant, as in foods that interact negatively with the
immunosuppressants
?
Are there any restrictions to what you can eat after a transplant, as in foods that interact negatively with the
immunosuppressants
?
frebusmaxwell
in
Kidney Transplant
10 months ago
Swollen lymph nodes
I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my
immunosuppressants
briefly and then changed me from Neoral to Cellcept thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.
I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my
immunosuppressants
briefly and then changed me from Neoral to Cellcept thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.
SOct91
in
Kidney Transplant
8 months ago
Lupkynis approved in Switzerland to treat adults with lupus nephritis
The approval specifically covers the treatment, given along
immunosuppressants
, for adults with active class 3, 4, and 5 lupus nephritis — three subtypes of the condition that are based on the type of tissue damage visible on a kidney biopsy.
The approval specifically covers the treatment, given along
immunosuppressants
, for adults with active class 3, 4, and 5 lupus nephritis — three subtypes of the condition that are based on the type of tissue damage visible on a kidney biopsy.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
28 days ago
SLE patients may have reduced response to COVID-19 vaccination
Yet, withholding
immunosuppressants
had no significant effect on disease activity comparing the time before the first vaccine dose with the period immediately following the second vaccine dose.
Yet, withholding
immunosuppressants
had no significant effect on disease activity comparing the time before the first vaccine dose with the period immediately following the second vaccine dose.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 months ago
Any runners on immunosuppressants?
I just started
immunosuppressants
(TNF-α blockers) and I was wondering if anyone of you here is on similar medication and how that might (or might not) interfere with your training. Should I reduce my training volume?
I just started
immunosuppressants
(TNF-α blockers) and I was wondering if anyone of you here is on similar medication and how that might (or might not) interfere with your training. Should I reduce my training volume?
marvinaki
in
Bridge to 10K
10 months ago
Phase 1 trial testing CAR T-cell therapy GC012F in SLE
Common therapeutic approaches include the use of
immunosuppressants
, as well as medications that specifically target and destroy B-cells, such as rituximab.
Common therapeutic approaches include the use of
immunosuppressants
, as well as medications that specifically target and destroy B-cells, such as rituximab.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
14 days ago
Belatacept and Covid
Were you advised to adjust your other
immunosuppressants
?
Were you advised to adjust your other
immunosuppressants
?
Transplant2018
in
Kidney Transplant
11 months ago
Kidney Transplant Aug 25
How many
immunosuppressants
are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about other people's experiences.
How many
immunosuppressants
are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about other people's experiences.
frebusmaxwell
in
Kidney Transplant
10 months ago
Mycophenolate or Azathioprine ?
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either Mycophenolate or Azathioprine, both or which are
immunosuppressants
.
He said high doses of steroids are not safe to stay on long term either so he’s recommended I start either Mycophenolate or Azathioprine, both or which are
immunosuppressants
.
Spotty-ewe
in
LUPUS UK
15 days ago
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