Experiences with

Immunosuppressants

Has anyone noticed vision changes and blurry vision after transplant or from immunosuppressants?

Hallo all Just wondering if anyone has been prescribed Paxlovid, the very new antiviral, if you are on immunosuppressants for your RA? I am on Baricitinib and Prednisolone and have had Covid since Sunday when I tested positive.

I've been diagnosed with overlapping PBC and autoimmune hepatitis and doctors are hesitant to prescribe immunosuppressants since I recently had breast cancer. I'm looking for treatment alternatives. Thanks!!

To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous.

As some who has had a liver transplant and on immunosuppressants obviously and also having had a portal vein thrombosis I’m reluctant to have the covid19 vaccine As reported early on in this “pandemic” certain vaccines were and still are responsible for clotting, besides the clotting issue the fact

Hi, I'm sorry if this question has been answered in this group before but after a long hiatus I'm back to see if anyone has advice or experience of covid post transplant and on immunosuppressants.

Merry Christmas to All I’ve read a couple of medical articles that indicates, even at a low dose of prednisone, the vaccine is not nearly as effective, than if a person were to be on other immunosuppressants, and it is puzzling to some scientists as to why this is.

Is it safe to continue my regular immunosuppressants ? Mycophenolate 750mgs mane 500mgs nocte Prednisolone 5mgs OD. I’m concerned the efficacy of theJab will be reduced. How long, if recommended, can I omit the above medication or will I be at risk of a “flare” up of my Autoimmune Hepatitis?

I have also taken various immunosuppressants like IVIG, Rituximab and Prednisolone. This hair fall is completely normal, so don't worry. I found using soaking fenugreek seeds in water and spraying that water helps a lot. Try using Himalaya Anti Hair Fall Shampoo. It really helps.

Hi everyone, We know that a lot of people with lupus on immunosuppressants have experienced difficulty getting their third primary doses. The RAIRDA survey conducted a couple of weeks ago found that more than 1-in-5 people who are eligible still hadn't received their dose.

The common cold is the plague when taking immunosuppressants, it soon persists into a viral condition gastroenteritis to be precise!. Rate laugh! So 3 weeks in with shivers and shxxs....boom there you go.... kidney failure stage 3 injury..... hospital for you Danny.

I am aware that those on Biologics and other immunosuppressants may have a reduced effectiveness from the vaccines. I hope having the 3 vaccines and then a booster may give some increased protection. Best wishes to everyone coping with the uncertainty and effects of the Pandemic.

getting prediabetes letter from doctor,it motivated me to lose weight I gained shielding.so now I weigh 11st 6lbs.which is over a stone gone.I have now bought an electric treadmill.not new.it is giving me the exercise and helping me get walking again after shielding.still not going out very much due to immunosuppressants

I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs

I am coming to this forum for assistance with managing joint pain (and hopefully avoiding immunosuppressants whilst I can).

There is someone at my work who received an organ transplant and was advised not to get the vaccine as it would not matter because they were on immunosuppressants. I do not know how true this is however my understanding is this individual is still unvaccinated based on what their doctor told them.

This embryo was made before my husband became unwell and before he started immunosuppressants. So question: Should I go and do a fresh cycle after this round just so they can collect the eggs to make embryos whilst I’m 38.

I take immunosuppressants so have to be very careful about infections of any kind so he put me on 2 types of antibiotics for 2 weeks but said if the bleeding was from an infection it should stop after 4 days on antibiotics.

The SRUK website confirms that most of us taking immunosuppressants would be offered a third jab imminently. This is NOT the booster, which will be given to a much larger group and is to boost declining antibodies 6 months after jab 2. .

And what did your doctor advise you about breastfeeding while taking your immunosuppressants?