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Immunosuppressants
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reducing immunosuppressants
hi Looking for some advice regarding reducing immune suppressants and personal experiences. my OH is due to see his consultant in 3 weeks time and at the last appointment 1 year ago he mentioned that if he was still stable he would look at slowly reducing his MMF. he has had GPA vasculitis for
hi Looking for some advice regarding reducing immune suppressants and personal experiences. my OH is due to see his consultant in 3 weeks time and at the last appointment 1 year ago he mentioned that if he was still stable he would look at slowly reducing his MMF. he has had GPA vasculitis for
Main1234
in
Vasculitis UK
11 hours ago
blood pressure tabs
perindopril, but read inside it may interact with certain
immunosuppressants
!? I’m on benepali! Are anyone else on the same?
perindopril, but read inside it may interact with certain
immunosuppressants
!? I’m on benepali! Are anyone else on the same?
Dave74
in
NRAS
14 days ago
Experience with meds?
I'm also on
immunosuppressants
which I heard could interact negatively. If anyone takes
immunosuppressants
and anti-psychotics I'd love to hear your experience ❤️
I'm also on
immunosuppressants
which I heard could interact negatively. If anyone takes
immunosuppressants
and anti-psychotics I'd love to hear your experience ❤️
2Scared
in
Anxiety and Depression Support
3 months ago
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Covid vaccination
All their literature pointed to
immunosuppressants
medication which I’m not on. I am pleased they are being vigilant as obviously the most vulnerable need the vaccination.
All their literature pointed to
immunosuppressants
medication which I’m not on. I am pleased they are being vigilant as obviously the most vulnerable need the vaccination.
0range5520
in
British Liver Trust
4 months ago
3 weeks post triple heart bypass
Unfortunately I’m on
immunosuppressants
for so I’m thinking this could be why my recovery hasn’t been as straight forwards as others. Blimey this has been a roller coaster ride for sure. Has anyone got any advice how to deal with the emotional side of recovery?
Unfortunately I’m on
immunosuppressants
for so I’m thinking this could be why my recovery hasn’t been as straight forwards as others. Blimey this has been a roller coaster ride for sure. Has anyone got any advice how to deal with the emotional side of recovery?
Poppy-Pops
in
British Heart Foundation
1 month ago
confused
My respiratory wants me on
immunosuppressants
asap, rheumatologist is willing to trail me for 6 months and if I progress remain on them even though he is adamant this is not lupus! I feel I’m never going to find out correct cause of my effusions and rheumatologist isn’t a very nice man to talk to.
My respiratory wants me on
immunosuppressants
asap, rheumatologist is willing to trail me for 6 months and if I progress remain on them even though he is adamant this is not lupus! I feel I’m never going to find out correct cause of my effusions and rheumatologist isn’t a very nice man to talk to.
Numptybrain
in
LUPUS UK
2 months ago
Embarrasing skin
I know that
immunosuppressants
are not skin friendly but the skin on the lower parts of my arms and hands is horrible!!! It is discolored and scaly and it even gets really dark at times and then at other times it’s lighter but always there. I can’t even find picture of anything simalar anywhere.
I know that
immunosuppressants
are not skin friendly but the skin on the lower parts of my arms and hands is horrible!!! It is discolored and scaly and it even gets really dark at times and then at other times it’s lighter but always there. I can’t even find picture of anything simalar anywhere.
Blessed06
in
Kidney Transplant
3 months ago
NCGS/Celiac disease
The
immunosuppressants
I have been taking are Tacrolimus and Myfortic. The transplant center finally honored my request to switch to Myfortic last July after repeated requests to change from Mycophenolate Motifil. However, the switch has not made much of a difference.
The
immunosuppressants
I have been taking are Tacrolimus and Myfortic. The transplant center finally honored my request to switch to Myfortic last July after repeated requests to change from Mycophenolate Motifil. However, the switch has not made much of a difference.
6821green
in
Kidney Transplant
4 months ago
A questionnaire for those with ANCA associated vasculitis and renal involvement in the UK
For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long term use of
immunosuppressants
to the ilness burden.
For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long term use of
immunosuppressants
to the ilness burden.
zoe69
Vasculitis UK
in
Vasculitis UK
7 months ago
ongoing health issues
Has anyone else had bowel issues, whilst being off
immunosuppressants
Has anyone else had bowel issues, whilst being off
immunosuppressants
Runrig01
in
NRAS
7 months ago
Anyone with SLE taking collagen??
Has anyone else got any experience I'm so desperate to feel better I'm on triple
immunosuppressants
and loads more meds too.
Has anyone else got any experience I'm so desperate to feel better I'm on triple
immunosuppressants
and loads more meds too.
Sara_A
in
LUPUS UK
4 months ago
update on melanoma nail lesion.
I have been on different
immunosuppressants
since 2019 and read these are linked to melanoma in some patients. I also for the first time had gel nails in the last 2 Years and exposed my hands to UV light. My nails were pretty poor and this helped to strenghten them.
I have been on different
immunosuppressants
since 2019 and read these are linked to melanoma in some patients. I also for the first time had gel nails in the last 2 Years and exposed my hands to UV light. My nails were pretty poor and this helped to strenghten them.
artydutch
in
MPN Voice
4 months ago
Anyone with behcet's taking rinvoq?
I've always been a bit of worrier when it comes to these more potent
immunosuppressants
. Basically nothing else was controlling the flares, tried aza, colchicine, plaquenil, methotrexate, mercaptopurine, humira and probably others that I've forgotten.
I've always been a bit of worrier when it comes to these more potent
immunosuppressants
. Basically nothing else was controlling the flares, tried aza, colchicine, plaquenil, methotrexate, mercaptopurine, humira and probably others that I've forgotten.
FrancisB
in
Behçet's UK
8 months ago
Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?
My inflammation in the eye was relatively managed well with
immunosuppressants
. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
My inflammation in the eye was relatively managed well with
immunosuppressants
. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
Udupik
in
PMRGCAuk
10 months ago
Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?
My inflammation in the eye was relatively managed well with
immunosuppressants
. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
My inflammation in the eye was relatively managed well with
immunosuppressants
. But since having the Prevnar 13 , my inflammation is back in full swing . Has anyone experienced this ? If so, how have you resolved it ? Please advise .
Udupik
in
Vasculitis UK
10 months ago
COVID
I also have the auto immune disease sarcoidosis for which I am on
immunosuppressants
and a whole array of pills for heart issues and arthritis and inflammatory pain. Christmas will be more tissues than tinsel but hope I get through it ok.
I also have the auto immune disease sarcoidosis for which I am on
immunosuppressants
and a whole array of pills for heart issues and arthritis and inflammatory pain. Christmas will be more tissues than tinsel but hope I get through it ok.
artydutch
in
MPN Voice
9 months ago
VEXAS and Sweet's Syndrome
Other
immunosuppressants
are ineffective. - Janus kinase inhibitors, e.g. ruxolitinib, can be used to manage symptoms when steroids are reduced.
Other
immunosuppressants
are ineffective. - Janus kinase inhibitors, e.g. ruxolitinib, can be used to manage symptoms when steroids are reduced.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
7 months ago
crohns and immunosuppressants???
hello all first time poster after being recently diagnosed with crohns post colonoscopy which showed long term inflammation, ulcers and some restriction in the intestine. First presented with mild stomach pain and some blood in poo but NO other symptoms. I feel lucky to have so few symptoms compared
hello all first time poster after being recently diagnosed with crohns post colonoscopy which showed long term inflammation, ulcers and some restriction in the intestine. First presented with mild stomach pain and some blood in poo but NO other symptoms. I feel lucky to have so few symptoms compared
Awbee23
in
Crohn's and Colitis Support
11 months ago
brand new diagnosis
I start steroids and
immunosuppressants
tomorrow. Will I be on those forever? Any advice for any of this? I’m so new and I just don’t know what it all means. Severity, future, etc., etc., etc.
I start steroids and
immunosuppressants
tomorrow. Will I be on those forever? Any advice for any of this? I’m so new and I just don’t know what it all means. Severity, future, etc., etc., etc.
ematthews81
in
C3 Glomerulopathy
9 months ago
Extra Meds for Travel
Given that Medicare approves only 30 days of
immunosuppressants
per month and we are planning on a multi month stay in Europe, is there a way to get Medicare to approve additional months supply in advance.
Given that Medicare approves only 30 days of
immunosuppressants
per month and we are planning on a multi month stay in Europe, is there a way to get Medicare to approve additional months supply in advance.
Suchet23
in
Kidney Transplant
11 months ago
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