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Seeking person for LUPUS UK's Lupus Awareness Month radio campaign day
Hi everyone, October is coming upon us quickly and with it, our Lupus Awareness Month campaign. This year, we will be sharing the stories and experiences of people with lupus who are still at an increased risk from COVID-19. For most, this may be because they are on immunosuppressant treatments that
Hi everyone, October is coming upon us quickly and with it, our Lupus Awareness Month campaign. This year, we will be sharing the stories and experiences of people with lupus who are still at an increased risk from COVID-19. For most, this may be because they are on immunosuppressant treatments that
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Booster shots?
Hi all, I’m curious on the consensus regarding a third booster shot given the recent recommendation for the immunosuppressed. Does ET treated with the max interferon dose count, do you think? I am thinking that it is better to err on the side of caution and get one. I would love to hear of any recommendations
Hi all, I’m curious on the consensus regarding a third booster shot given the recent recommendation for the immunosuppressed. Does ET treated with the max interferon dose count, do you think? I am thinking that it is better to err on the side of caution and get one. I would love to hear of any recommendations
Purple478273
in
MPN Voice
3 years ago
Another guide to likely antibody ranges post Covid vaccine
Here are some alternative antibody range results, albeit from a private testing company, but covering a lot of patients, and helpfully distinguishing between immunosuppressed or not immunosuppressed, AstraZeneca or Pfizer, and one vaccine or two. Again my figure is 16.4 U/mL versus my husband Martin
Here are some alternative antibody range results, albeit from a private testing company, but covering a lot of patients, and helpfully distinguishing between immunosuppressed or not immunosuppressed, AstraZeneca or Pfizer, and one vaccine or two. Again my figure is 16.4 U/mL versus my husband Martin
vivdunstan
Volunteer
in
Vasculitis UK
3 years ago
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Do Corticosteroids Make You Immunosuppressed ?
I thought this article was very interesting and might help some on the forum. https://creakyjoints.org/living-with-arthritis/coronavirus/treatments/prednisone-steroids-immunosuppressing-coronavirus/
I thought this article was very interesting and might help some on the forum. https://creakyjoints.org/living-with-arthritis/coronavirus/treatments/prednisone-steroids-immunosuppressing-coronavirus/
kulina
in
PMRGCAuk
3 years ago
I have no words !!!!
Yesterday I received a letter from my local NHS Board, Scotland, informing me that I have been coded as having a condition (LUPUS) that could lead to immunosuppression. Lupus was not included as an at risk condition at the start of the pandemic, so 18 months on, I deemed to be at risk. I did not shield
Yesterday I received a letter from my local NHS Board, Scotland, informing me that I have been coded as having a condition (LUPUS) that could lead to immunosuppression. Lupus was not included as an at risk condition at the start of the pandemic, so 18 months on, I deemed to be at risk. I did not shield
Babsy2
in
LUPUS UK
3 years ago
Reducing organ transplant side-effects
A new research project aims to use personalised anti-rejection medication to reduce the health risks that organ transplant patients experience following surgery. Third-year PhD student Sarah Dart, from The University of Western Australia’s Medical School, said her research aimed to optimise immunosuppressant
A new research project aims to use personalised anti-rejection medication to reduce the health risks that organ transplant patients experience following surgery. Third-year PhD student Sarah Dart, from The University of Western Australia’s Medical School, said her research aimed to optimise immunosuppressant
2greys
in
Lung Conditions Community Forum
3 years ago
THIRD SHOT BEING RECOMMENDED BY CDC FOR IMMUNOCOMPROMISED
As a follow up to my post last week about getting a third shot, news stories caught my eye yesterday that I thought I'd pass on. As a precursor to some who missed my first post, I took it on my own to get a third shot without authorization. Now it appears that the government in the US is likely to
As a follow up to my post last week about getting a third shot, news stories caught my eye yesterday that I thought I'd pass on. As a precursor to some who missed my first post, I took it on my own to get a third shot without authorization. Now it appears that the government in the US is likely to
wizzard166
in
CLL Support
3 years ago
Drop in GFR after Covid Vaccine?
I am on 3
immunosuppressants
(myfortic, cosentyx and methotrexate). Despite this, my psoriasis is active and I am having flare-ups with my arthritis. Because of this, my nephorologist has instructed me to not get the covid vaccine.
I am on 3
immunosuppressants
(myfortic, cosentyx and methotrexate). Despite this, my psoriasis is active and I am having flare-ups with my arthritis. Because of this, my nephorologist has instructed me to not get the covid vaccine.
dogdayafter12
in
Kidney Disease
3 years ago
Any Advice on Transitioning to Armour?
The alternative is to keep on my current t4/t3 regime and go on
immunosuppressants
for what is being thought of as psoriatic arthritis (but it started when I started the levo and previously only happened if I ate in restaurants and there was cross contamination so I’m pretty sure it’s a reaction to the
The alternative is to keep on my current t4/t3 regime and go on
immunosuppressants
for what is being thought of as psoriatic arthritis (but it started when I started the levo and previously only happened if I ate in restaurants and there was cross contamination so I’m pretty sure it’s a reaction to the
HarlesBarles
in
Thyroid UK
3 years ago
Immunocompromised can develop a good immune response after vaccination against SARCoV-2
Patients suffering from an autoimmune disease often require treatment that dampens their immune system. This group of patients is therefore particularly prone to severe courses of COVID-19. It was hitherto unclear whether a SARS-CoV-2 vaccination guarantees an adequate response, particularly in patients
Patients suffering from an autoimmune disease often require treatment that dampens their immune system. This group of patients is therefore particularly prone to severe courses of COVID-19. It was hitherto unclear whether a SARS-CoV-2 vaccination guarantees an adequate response, particularly in patients
2greys
in
Lung Conditions Community Forum
3 years ago
Acalabrutinib anniversary
Hi everyone never posted before, never really needed to, as practically all my questions have mostly been answered in the feeds. A big thank you to all for your contributions. I was lucky enough to be selected for an Alcalabrutinib trial last August, only one of two in our NHS area. No real side affects
Hi everyone never posted before, never really needed to, as practically all my questions have mostly been answered in the feeds. A big thank you to all for your contributions. I was lucky enough to be selected for an Alcalabrutinib trial last August, only one of two in our NHS area. No real side affects
Krodney78
in
CLL Support
3 years ago
Shingrix OK For Immunocompromised Adults
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
lankisterguy
Volunteer
in
CLL Support
3 years ago
Preventive monoclonal antibodies
I got this information from someone and thought others would be interested: There is an FDA website on which one can write to the FDA about approving use of the monoclonal antibodies to help prevent COVID among the immune-compromised. We could try to inundate the FDA with questions as to why they have
I got this information from someone and thought others would be interested: There is an FDA website on which one can write to the FDA about approving use of the monoclonal antibodies to help prevent COVID among the immune-compromised. We could try to inundate the FDA with questions as to why they have
krperez
in
CLL Support
3 years ago
Covid and Pfizer: What has Israel discovered so far?
How long do antibodies last, which patients get hit the hardest, how does the vaccine handle the Delta variant – the latest scientific findings from Israel. By Abigail Klein Leichman JULY 26, 2021 Israel has led the world in getting its citizens vaccinated, so it’s no surprise that it has also become
How long do antibodies last, which patients get hit the hardest, how does the vaccine handle the Delta variant – the latest scientific findings from Israel. By Abigail Klein Leichman JULY 26, 2021 Israel has led the world in getting its citizens vaccinated, so it’s no surprise that it has also become
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Experience with Tacrolimus with or without Azathioprine
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Hi all! My drs are suggesting to put me on tacrolimus alongside AZA to help with my joint pain. Has anyone been on tacrolimus? With or without AZA or another immunosuppressant? How is your experience? Anyone have any knowledge/experience of long-term tacrolimus? Also, I got told by the nurse
Sandy1212
in
LUPUS UK
3 years ago
Has anyone used cordyceps as an adjunctive treatment for kidney disease?
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Cordyceps worm mold is widely used in China to treat kidney disease, and some scientific studies indicate that it may reduce creatinine values in patients with chronic kidney disease. I have never found found much personal benefit from it. Conclusions of recent Chinese study: "Current evidence shows
Falkenhayn
in
Kidney Transplant Patient Support
3 years ago
Waning antibody levels over time
The Guardian this afternoon ran an article about waning antibody levels after the vaccine, and why boosters are so important. https://www.theguardian.com/world/2021/jul/22/uk-scientists-back-covid-boosters-as-study-finds-post-jab-falls-in-antibodies I managed to find what I think is the linked academic
The Guardian this afternoon ran an article about waning antibody levels after the vaccine, and why boosters are so important. https://www.theguardian.com/world/2021/jul/22/uk-scientists-back-covid-boosters-as-study-finds-post-jab-falls-in-antibodies I managed to find what I think is the linked academic
vivdunstan
Volunteer
in
Vasculitis UK
3 years ago
Covid antibodies
Is there any guidance available for people who take
immunosuppressants
as to where we go next. I have read that 54% of people may develop some antibodies but will not have full protection. Should we still be shielding? I don't believe that there is much research information available.
Is there any guidance available for people who take
immunosuppressants
as to where we go next. I have read that 54% of people may develop some antibodies but will not have full protection. Should we still be shielding? I don't believe that there is much research information available.
Sandpiperx
in
PBC Foundation
3 years ago
Vaccinating children covid 19
Thoughts on vaccinating our children because we are immunosuppressed?
Thoughts on vaccinating our children because we are immunosuppressed?
Harry19
in
LUPUS UK
3 years ago
Government’s plan recklessly exposes millions in the UK to infection when they could be vaccinated
In allowing mass infection, Boris Johnson’s government is pursuing a strategy that will lead to avoidable deaths and long term illness, say this group of authors The statement from the prime minister, Boris Johnson, on 12 July leaves little doubt that the government’s latest pandemic plan involves recklessly
In allowing mass infection, Boris Johnson’s government is pursuing a strategy that will lead to avoidable deaths and long term illness, say this group of authors The statement from the prime minister, Boris Johnson, on 12 July leaves little doubt that the government’s latest pandemic plan involves recklessly
2greys
in
Lung Conditions Community Forum
3 years ago
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