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Immunodeficiencies and defective immune system
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If the metastasis is not severe (ie widespread) why not surgery first?
Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few areas of metastasis - why isn't surgery to remove the breast tumor, and then radation/targetted treatment on the areas of metastasis? Any insight
Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few areas of metastasis - why isn't surgery to remove the breast tumor, and then radation/targetted treatment on the areas of metastasis? Any insight
JustFoundOut51
in
SHARE Metastatic Breast Cancer
8 months ago
Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Cookiebum24
in
Restless Legs Syndrome
3 months ago
ANXIETY DISORDER AND PANIC DISORDER
Hello Great people! I’ve just been diagnosed with anxiety disorder and panic disorder. And it’s affecting my daily functioning and I can’t focus , I’m scared, worrying about unnecessary things. Is it curable? Any help to survive this situation , perhaps things I could do to help me straighten up. Thank
Hello Great people! I’ve just been diagnosed with anxiety disorder and panic disorder. And it’s affecting my daily functioning and I can’t focus , I’m scared, worrying about unnecessary things. Is it curable? Any help to survive this situation , perhaps things I could do to help me straighten up. Thank
Solomonlove
in
Anxiety and Depression Support
3 months ago
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Reply to issues with Spleen
Hi, I agree with most of these comments on here that the enlargement of your spleen is an indication perhaps that you are ready for some form of treatment, not removal. I had chemotherapy in 2020 and my spleen was massive. After a treatment cycle of FCR for 6 months and neutropenia sepsis for 10
Hi, I agree with most of these comments on here that the enlargement of your spleen is an indication perhaps that you are ready for some form of treatment, not removal. I had chemotherapy in 2020 and my spleen was massive. After a treatment cycle of FCR for 6 months and neutropenia sepsis for 10
Roseneath69
in
CLL Support
3 months ago
Decision time!
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
Rafflesbabe
in
SHARE Metastatic Breast Cancer
8 months ago
anxiety is soooo debilitatimg
hi i lost my wife of 34 years almost three years ago as a result of her suddenly leaving me to be living closer to all her friends and family I lost her, lost my beautiful property, my self build home and my confidence to keep working as a builder though it be part time My usual depressive episodes
hi i lost my wife of 34 years almost three years ago as a result of her suddenly leaving me to be living closer to all her friends and family I lost her, lost my beautiful property, my self build home and my confidence to keep working as a builder though it be part time My usual depressive episodes
Picoultlove
in
Anxiety and Depression Support
3 months ago
Varying side effects or formulations?
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
TammyCross
in
SHARE Metastatic Breast Cancer
8 months ago
4 year old (5 in May) soiling at school
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Hi, first time poster. My son started school in September (Reception) and wasn’t potty trained at that point - we had tried numerous time - absolutely not interested. We cracked the potty training in the October half term and he went back to school in pants - there was the occasional wee accident
Senmumma
in
ERIC
6 months ago
antispasmodic medication for irritable bowel syndrome
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
Hi, lately I have been going through a very difficult time with my physical problems. I am suffering from irritable bowel syndrome and have frequent severe cramps after eating something disagreeable. The anticholinergic or antispasmodic med Hyoscyamine Sulf 0.125 mg worsens my restless legs big time
halperinchen
in
Restless Legs Syndrome
6 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
8 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
8 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
8 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
8 months ago
GERD help
Hi everyone. Apologies if this is not in the right place. I am new here. Been recently diagnosed with GERD. Waiting on tests for Hospital. What symptoms do you guys have with it as I am worrying myself sick
Hi everyone. Apologies if this is not in the right place. I am new here. Been recently diagnosed with GERD. Waiting on tests for Hospital. What symptoms do you guys have with it as I am worrying myself sick
Lozza111
in
Pain Concern
6 months ago
Oral Thrush
Hi Apert from intense oral hygiene, keto diet, no alcohol, using doctor prescribed oral mouth rinse for at least 10 days can anyone suggest anything that will work and get rid of this awful feeling in my mouth. . Was pre diabetic before steroids now awaiting next bloods so suspecting steroid induced
Hi Apert from intense oral hygiene, keto diet, no alcohol, using doctor prescribed oral mouth rinse for at least 10 days can anyone suggest anything that will work and get rid of this awful feeling in my mouth. . Was pre diabetic before steroids now awaiting next bloods so suspecting steroid induced
merle1010
in
PMRGCAuk
6 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
8 months ago
Private specialist recommendation?
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
Puckster01
in
LUPUS UK
5 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
thrush in mouth
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
Karate-Kid1
in
Lung Conditions Community Forum
3 months ago
reassurance needed please
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
Hannahthom
in
British Liver Trust
8 months ago
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