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Doyens Honeycomb Retinal Dystrophy also known as Famillia Dominant Drusen
I have a rare eye condition that is caused by a faulty gene. Doyens Honeycomb Retinal Dystrophy otherwise known as Famillia Dominant Drusen. Im patcially sighted in my right eye other eye isn't so bad at the moment and I am still able to work which is fab. My Question is I do need a good light to
I have a rare eye condition that is caused by a faulty gene. Doyens Honeycomb Retinal Dystrophy otherwise known as Famillia Dominant Drusen. Im patcially sighted in my right eye other eye isn't so bad at the moment and I am still able to work which is fab. My Question is I do need a good light to
Jazzywoman
in
Macular Society
4 years ago
Eye pain
I’m light sensitive, occasional eye pain but fortunately not bad at the moment. But there’s time yet. As you know fibromyalgia moves around your body. My worst are my back hips groin. Though I found out I have a prolapsed womb now as well and it’s hard to know what pains what. I’d go to the opticians
I’m light sensitive, occasional eye pain but fortunately not bad at the moment. But there’s time yet. As you know fibromyalgia moves around your body. My worst are my back hips groin. Though I found out I have a prolapsed womb now as well and it’s hard to know what pains what. I’d go to the opticians
Hidden
in
Fibromyalgia Action UK
4 years ago
RETINA BLEED
IS ANYONE ELSE HAVING DISTORTED VISION AFTER RECEIVING AVASTIN INJECTION.? IF SO PLEASE DESCRIBE WHAT YOU ARE SEEING
IS ANYONE ELSE HAVING DISTORTED VISION AFTER RECEIVING AVASTIN INJECTION.? IF SO PLEASE DESCRIBE WHAT YOU ARE SEEING
ricebet
in
Macular Society
4 years ago
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Glutamate triggers!
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
wantokporo
in
Restless Legs Syndrome
4 years ago
Interpreting the results
Despite having had AMD since 2017 I don’t actually understand some of the terminology. “OCT indicated right eye
[i]drusen[/i]
and
[i]pigment epithelial detachment[/i]
with no intraretinal or subretinal fluid and left eye pigment epithelial detachment with subretinal and intraretinal fluid
Despite having had AMD since 2017 I don’t actually understand some of the terminology. “OCT indicated right eye
[i]drusen[/i]
and
[i]pigment epithelial detachment[/i]
with no intraretinal or subretinal fluid and left eye pigment epithelial detachment with subretinal and intraretinal fluid
Catseyes235
in
Macular Society
4 years ago
Is there any relationship between Bulged Belly button with B12 deficiency?
Hi all. Anybody knows belly button bulging related to B12 deficiency since I was diagnosed in 2013 with low B12 but didn't seek proper treatment and had injection for three times only . Since then gradually many symptoms started to develop. At the beginning it was just losing muscle volume then problem
Hi all. Anybody knows belly button bulging related to B12 deficiency since I was diagnosed in 2013 with low B12 but didn't seek proper treatment and had injection for three times only . Since then gradually many symptoms started to develop. At the beginning it was just losing muscle volume then problem
Hamayeshguy
in
Pernicious Anaemia Society
4 years ago
Emdr for guilt and shame
Can Emdr help when one suffers from guilt and shame when they inadvertently harmed someone else? My friend’s son is bi polar and did something very foolish to someone.....did not cause physical harm....yet feels extreme guilt and shame. Thanks.
Can Emdr help when one suffers from guilt and shame when they inadvertently harmed someone else? My friend’s son is bi polar and did something very foolish to someone.....did not cause physical harm....yet feels extreme guilt and shame. Thanks.
Hidden
in
Heal My PTSD
4 years ago
Does anyone wear a medical bracelet or other form of medical information alert showing their RA, Fibro, AS, Sjogrens, etc status?
Medical Alert
Medical Alert
movinalong11
in
NRAS
4 years ago
Emdr
EMDR has helped me a bit although still having blackouts There is no wright or ring with emdr. Good luck
EMDR has helped me a bit although still having blackouts There is no wright or ring with emdr. Good luck
Mark_Stevens
in
Heal My PTSD
4 years ago
Have you had EMDR and what was your experience with PTSD relief?
Hey there everyone, I have been working through PTSD since I can remember. I have had therapy for the past 3 years and have "graduated" to EMDR. I really want something that will help with my symptoms. Like, really help me move on and live my best life without that panic and paranoia.
Hey there everyone, I have been working through PTSD since I can remember. I have had therapy for the past 3 years and have "graduated" to EMDR. I really want something that will help with my symptoms. Like, really help me move on and live my best life without that panic and paranoia.
Ziggythurman
in
Heal My PTSD
4 years ago
Laser treatment
So today I had another lucentis injection, pictures and finally saw my dr. The scans showed no leaking and sight test was good, I have brvo. He said I can go 8 weeks between injections now but then said he wants me to have laser treatment as a preventative measure for the future. I asked why and he just
So today I had another lucentis injection, pictures and finally saw my dr. The scans showed no leaking and sight test was good, I have brvo. He said I can go 8 weeks between injections now but then said he wants me to have laser treatment as a preventative measure for the future. I asked why and he just
MillieT
in
Macular Society
4 years ago
Sodium benzoate in soft drinks?
Hi everyone. I hope you are doing ok in this difficult time. I wanted to know if anyone has ever had a reaction to sodium benzoate (also known as E211), which is a preservative found in a lot of processed foods. Sometimes I feel that my throat/chest is a bit irritated when I drink Diet Coke but then
Hi everyone. I hope you are doing ok in this difficult time. I wanted to know if anyone has ever had a reaction to sodium benzoate (also known as E211), which is a preservative found in a lot of processed foods. Sometimes I feel that my throat/chest is a bit irritated when I drink Diet Coke but then
jamiepanic
in
Asthma Community Forum
4 years ago
dry eyes
Thought I saw something a few days ago about this. Im at 6.5 mg prednisone. Im pretty active but always have a sleepy feeling like I want to close my eyes. Its hard to read for too long too now im thinking its not exhaustion but an eye problem . is this from prednisone or PMR?
Thought I saw something a few days ago about this. Im at 6.5 mg prednisone. Im pretty active but always have a sleepy feeling like I want to close my eyes. Its hard to read for too long too now im thinking its not exhaustion but an eye problem . is this from prednisone or PMR?
Paperroses
in
PMRGCAuk
4 years ago
Need some help
I was diagnosed with LUPUS in 2015 and am on the surface managing ok but am increasingly worried about back pain, upper left and central spine mostly which keeps me awake at night. My eyesight is getting worse as is my hearing, i appreciate that may just be aging but not sure. Also have constant swollen
I was diagnosed with LUPUS in 2015 and am on the surface managing ok but am increasingly worried about back pain, upper left and central spine mostly which keeps me awake at night. My eyesight is getting worse as is my hearing, i appreciate that may just be aging but not sure. Also have constant swollen
yellowmarie
in
LUPUS UK
4 years ago
How can i fix anxiety ?
I can't get rid of anxiety, other than antidepressants(ssri) ??? I've been on cipralex for a while and I don't want to go back on it, it has too many side effects. Although I take t3 and levo but I still have anxiety and visual disturbance. t3 helped me a lot but I don't get rid of anxiety.My doctor
I can't get rid of anxiety, other than antidepressants(ssri) ??? I've been on cipralex for a while and I don't want to go back on it, it has too many side effects. Although I take t3 and levo but I still have anxiety and visual disturbance. t3 helped me a lot but I don't get rid of anxiety.My doctor
hipolion
in
Thyroid UK
4 years ago
Dry eye and Meibomian Gland Dysfunction...
Hello All. I have Hashimotos, and have developed dry eye (tear deficiency) and MGD - blocked glands and was diagnosed with same about a month ago. This appeared out of the blue and came on within about 2 months. Never had a problem with dry eyes before... I don't have blepharitis (the crusty eyelash
Hello All. I have Hashimotos, and have developed dry eye (tear deficiency) and MGD - blocked glands and was diagnosed with same about a month ago. This appeared out of the blue and came on within about 2 months. Never had a problem with dry eyes before... I don't have blepharitis (the crusty eyelash
cltt97
in
Thyroid UK
4 years ago
Eye Ache - cause for concern?
Diagnosed with GCA in October: initially on 60mg of Prednisolone, reduced in stages, reaching 35mg on Monday 28th December. No adverse effects or return of October symptoms, but I have had the occasional, momentary mild ache in my right eye. This may have been going on unnoticed for months, long before
Diagnosed with GCA in October: initially on 60mg of Prednisolone, reduced in stages, reaching 35mg on Monday 28th December. No adverse effects or return of October symptoms, but I have had the occasional, momentary mild ache in my right eye. This may have been going on unnoticed for months, long before
Matt_Finish
in
PMRGCAuk
4 years ago
Chronic Uveitis & Meds for lifetime...?
I’ve had Uveitis for around 15 years & after several years of severe long term flares, permanent loss of sight in left eye (due to botched cataract operation & lens replacement, many injections in the eyeball & long term steroid use) I was in remission for about 5 years. But for the last 6 months, a
I’ve had Uveitis for around 15 years & after several years of severe long term flares, permanent loss of sight in left eye (due to botched cataract operation & lens replacement, many injections in the eyeball & long term steroid use) I was in remission for about 5 years. But for the last 6 months, a
jmh4leo
in
Macular Society
4 years ago
Pregnenolone - things to look out for
I’ve just started using pregnenolone to address low testosterone and progesterone issues. Having just had one of my “moments” (sudden anxiety, shakes, cold, tiredness, racing heart), it’s spurred me into posting what I had forgotten to weeks ago! Is there anything I should look out for? Will it negatively
I’ve just started using pregnenolone to address low testosterone and progesterone issues. Having just had one of my “moments” (sudden anxiety, shakes, cold, tiredness, racing heart), it’s spurred me into posting what I had forgotten to weeks ago! Is there anything I should look out for? Will it negatively
Murphysmum
in
Thyroid UK
4 years ago
Has anyone experienced swollen eye lids at the base of the lid and lashes?
After three years, I finally tapered off of prednisone at the end of LAST December. In the beginning of March, I noticed a bit of swelling and it has become worse with some stye's under the lids over the last nine months. I've been to eys doctors and skin docs and no one has been able to help me
After three years, I finally tapered off of prednisone at the end of LAST December. In the beginning of March, I noticed a bit of swelling and it has become worse with some stye's under the lids over the last nine months. I've been to eys doctors and skin docs and no one has been able to help me
Bonnig
in
PMRGCAuk
4 years ago
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