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Add back hrt with Zoladex
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Saffie123
in
Endometriosis UK
8 months ago
Post menopause, pernicious anaemia and endometriosis
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Fiestadrive
in
Endometriosis UK
8 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
9 months ago
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Feeling so alone
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
Ho0lio76
in
Myositis UK
9 months ago
Uterosacral Ligament removal ?
Hi, hope everyone is doing as well as they can.My question is do they remove the Uterosacral ligament In total hysterectomy,I had my surgery back in June everything including cervix removed .Whilst in hospital recovering I mentioned a distinct pain in left sided area ,I mentioned it to the consultant
Hi, hope everyone is doing as well as they can.My question is do they remove the Uterosacral ligament In total hysterectomy,I had my surgery back in June everything including cervix removed .Whilst in hospital recovering I mentioned a distinct pain in left sided area ,I mentioned it to the consultant
K2023
in
Endometriosis UK
5 months ago
Help! Consultant appt brought forward....
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
MJD1712
in
Endometriosis UK
9 months ago
It's back after 7 years!
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
Hi ladies, not been following these groups for a while as had total hysterectomy in 2016 removing uterus and ovaries after many years of pain with stage 4 endo on womb, bowel and pouch of douglas. Went on HRT and have gradually got better since -until about 18 months ago. The symptoms I used to suffer
KarenBHorrocks
in
Endometriosis UK
5 months ago
Can’t decide
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
I have significant stage 4 endometriosis and adenomyosis for which I’ve had multiple surgeries including two excision and removal of left ovary and both tubes. Since my last excision I’ve been in pain every day which is now much worse as the disease returns within months of surgery even when excised
Lily1986
in
Endometriosis UK
7 months ago
Chronic pain medication review - help!
Hi all. I've been taking opioid medication for over 10 years for endometriosis/adenomyosis. I'm now finally on the waiting list for a total hysterectomy which should get rid of the bulk of my pain - and therefore i will stop the pain medication.However, I've now to have a meeting with a chronic pain
Hi all. I've been taking opioid medication for over 10 years for endometriosis/adenomyosis. I'm now finally on the waiting list for a total hysterectomy which should get rid of the bulk of my pain - and therefore i will stop the pain medication.However, I've now to have a meeting with a chronic pain
KM1986
in
Pain Concern
5 months ago
Constant pain down below and heavy feeling.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Loveneige
in
Endometriosis UK
9 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
9 months ago
Best apps for tracking cycle after hysterectomy
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
PaintToughTed
in
Endometriosis UK
9 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
9 months ago
post menopausal health problems - pain in pelvic area after total hysterectomy
Hi Since being properly post menopausal and having a total hysterectomy for early stage cancer which was cured by surgery, I have developed several new health issues. One which causes me a lot of discomfort is pain in my pelvic area - it feels like it’s just inside my right buttock near the perineum
Hi Since being properly post menopausal and having a total hysterectomy for early stage cancer which was cured by surgery, I have developed several new health issues. One which causes me a lot of discomfort is pain in my pelvic area - it feels like it’s just inside my right buttock near the perineum
Lara1244
in
Menopause and Perimenopause Support
5 months ago
Dolly wow1999
Im soon yo have a radical hysterectomy at age 61.....and im concerned about my angina acting up ...its endometrial adeno carcinoma stage 1
Im soon yo have a radical hysterectomy at age 61.....and im concerned about my angina acting up ...its endometrial adeno carcinoma stage 1
Dollywow1999
in
British Heart Foundation
5 months ago
Borderline Tumor
Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix. I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing
Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix. I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing
Dolphinseasshore
in
My Ovacome
9 months ago
Pain relief. How do advocate for myself?
Hello lovely people. Wishing you a peaceful pain free day.I need some support on how to advocate for myself as I'm pretty useless. I'm currently on the waiting list for a total hysterectomy for stage 4 and will be my 4th op. I've been on strong opioid pain meds for 11 years using them to varying degrees
Hello lovely people. Wishing you a peaceful pain free day.I need some support on how to advocate for myself as I'm pretty useless. I'm currently on the waiting list for a total hysterectomy for stage 4 and will be my 4th op. I've been on strong opioid pain meds for 11 years using them to varying degrees
KM1986
in
Endometriosis UK
5 months ago
Well am living the dream once again second laporaascopy and still the same any advice anybody in a lot of pain
On my second laporaascopy and still in pain when will this nightmare end any advice would you op for a other laporaascopy or hysterectomy
On my second laporaascopy and still in pain when will this nightmare end any advice would you op for a other laporaascopy or hysterectomy
Callum2010
in
Endometriosis UK
9 months ago
Mixed news!
Good morning everyone. Following the emergency removal of my ovarian tumour and then my full hysterectomy, the biopsies showed some pre-cancerous cells in the cervix. Waited 4 months for a CT scan, the results are no evidence of disease from tumour, or cervix area, and lung embolism appears to have
Good morning everyone. Following the emergency removal of my ovarian tumour and then my full hysterectomy, the biopsies showed some pre-cancerous cells in the cervix. Waited 4 months for a CT scan, the results are no evidence of disease from tumour, or cervix area, and lung embolism appears to have
Atai
in
My Ovacome
9 months ago
Bowel resection with total hysterectomy
I’m seeking advice from anyone who has had to have a bowel resection with a total hysterectomy. I’m 48yo and have endo, adeno and fibroids. My endo is stage 4 with my bowel and right ovary stuck to my womb, bits of recto-vaginal area also stuck together. I have surgery planned in Feb/Mar to remove a
I’m seeking advice from anyone who has had to have a bowel resection with a total hysterectomy. I’m 48yo and have endo, adeno and fibroids. My endo is stage 4 with my bowel and right ovary stuck to my womb, bits of recto-vaginal area also stuck together. I have surgery planned in Feb/Mar to remove a
Drakesie
in
Endometriosis UK
5 months ago
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