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Life after hysterectomy
Hello, I have been to see my consultant and he has given me a couple of options going forward one being a full hysterectomy. After 27 years I am wanting something a little more permanent. My question is how have people got on after a hysterectomy, has this totally relieved your symptoms or do you still
Hello, I have been to see my consultant and he has given me a couple of options going forward one being a full hysterectomy. After 27 years I am wanting something a little more permanent. My question is how have people got on after a hysterectomy, has this totally relieved your symptoms or do you still
MooBoos1
in
Endometriosis UK
7 months ago
Bleeding for holiday
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Kittie5117
in
Endometriosis UK
7 months ago
Zoledronate infusions yearly for 3 years
Hi ,i am 73 years old and am looking for reassurance that what i have been advised by my rheumatologist is right for me. Zoledronate infusions I had a full hysterectomy aged 34. One fracture of ankle,foot and fibular. One chipped ankle and one hairline fracture of wrist. Did fracture my patella aged
Hi ,i am 73 years old and am looking for reassurance that what i have been advised by my rheumatologist is right for me. Zoledronate infusions I had a full hysterectomy aged 34. One fracture of ankle,foot and fibular. One chipped ankle and one hairline fracture of wrist. Did fracture my patella aged
Metalmich
in
Bone Health and Osteoporosis UK
7 months ago
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Add back hrt with Zoladex
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Hi all, just after a bit of support/others’ experiences… I had my 3rd Zoladex last week and over the last 2 weeks menopause symptoms (muscle/joint ache, severe fatigue, palpitations etc) have kicked me hard. Previously prescribed Tibolone but massive headaches middle of the night so I tried to persevere
Saffie123
in
Endometriosis UK
7 months ago
Post menopause, pernicious anaemia and endometriosis
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Diagnosed with endomeriosis over 15 years years ago, had Prostap injections for 6 months, with little success and opted to try Mirena Coil first before hysterectomy. Mirena was a god send for me, it was great at controlling my symptons, I've had 3 mirena coils in total. The first one for a year
Fiestadrive
in
Endometriosis UK
7 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
7 months ago
Feeling so alone
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
I don't even know where to start after "getting better" when I was early teens from Dermatomyositis life has been pretty good I had two beautiful boys after being told I couldn't have children. Few bad choices on partners but now I have a great partner. 2 years ago I was diagnosed with fibroids but
Ho0lio76
in
Myositis UK
7 months ago
Help! Consultant appt brought forward....
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
Brief background, I had my 2nd laparoscopy on 31 August. Big fibroid squashing everything and stage 4 endometriosis....couldn't do anything because fibroid taking up so much room. And worry is endo infiltration of bowels. Pouch of Douglas 'obliterated'. Doc mentioned hysterectomy which freaked me out
MJD1712
in
Endometriosis UK
7 months ago
Constant pain down below and heavy feeling.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Please bare with me as this must be a common post!I have endo in uterus muscle, pouch of Douglas and on ligaments and on my bowel. Also had a 5cm endometrioma. I'm in pain most of the time from my endometrioma and bowel but used to get about 5to 7 days of less pain after my period in my other areas.
Loveneige
in
Endometriosis UK
7 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
7 months ago
Best apps for tracking cycle after hysterectomy
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
Hello all, I was wondering if anyone had any suggestions for useful apps for tracking your cycle after a hysterectomy? Back in Feb i had a hysterectomy and a small bowel resection, they left both ovaries. The recoveries not gone to plan. Was meant to be able to run/start yoga again after the 3 month
PaintToughTed
in
Endometriosis UK
7 months ago
Options?
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Endometriosis formally diagnosed via laparoscopy 2023, however had no effect and still in chronic pain. Due to other medical issues can’t go on any contraceptives and HRT. Tried the Decapaptyl (GNRH) injections but bleed 24/7 with them?! Endo BGSE specialist has said there are no other options as hysterectomy
Cats1311
in
Endometriosis UK
7 months ago
Borderline Tumor
Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix. I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing
Hello, I found a lump in my tummy in July, my CA125 was 80. After scans I was told, mid August, that I have a borderline tumor and will have a hysterectomy,removal of fallopian tubes, omentum & possibly appendix. I am still waiting for this op, I feel it has been a long time to wait. Should I be pushing
Dolphinseasshore
in
My Ovacome
7 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
9 days ago
Well am living the dream once again second laporaascopy and still the same any advice anybody in a lot of pain
On my second laporaascopy and still in pain when will this nightmare end any advice would you op for a other laporaascopy or hysterectomy
On my second laporaascopy and still in pain when will this nightmare end any advice would you op for a other laporaascopy or hysterectomy
Callum2010
in
Endometriosis UK
7 months ago
Recurrence :(
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4 HGSOC and had 6 rounds of carbotaxol with a total abdominal hysterectomy and omentectomy after the 3rd cycle. I then went on to Olaparib, initially
Kjpip
in
My Ovacome
20 days ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
24 days ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
25 days ago
Mixed news!
Good morning everyone. Following the emergency removal of my ovarian tumour and then my full hysterectomy, the biopsies showed some pre-cancerous cells in the cervix. Waited 4 months for a CT scan, the results are no evidence of disease from tumour, or cervix area, and lung embolism appears to have
Good morning everyone. Following the emergency removal of my ovarian tumour and then my full hysterectomy, the biopsies showed some pre-cancerous cells in the cervix. Waited 4 months for a CT scan, the results are no evidence of disease from tumour, or cervix area, and lung embolism appears to have
Atai
in
My Ovacome
7 months ago
Painful Sex
Hi Ladies If you had painful sex problems would you mind reading this and sharing if you experienced anything similar and if so what action was taken? My fear is that maybe the sex pain is an indication of a more worrying problem eg bowel adhesions or even recurrence. Thanks. On Friday my boyfriend
Hi Ladies If you had painful sex problems would you mind reading this and sharing if you experienced anything similar and if so what action was taken? My fear is that maybe the sex pain is an indication of a more worrying problem eg bowel adhesions or even recurrence. Thanks. On Friday my boyfriend
Emcee71
in
My Ovacome
1 month ago
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