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Decapeptyl and pain
Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 years old,no children.Am on Decapeptyl 3 month injection to shrink my 9 fibroids. At least a year an half ago I had 9 of them,the size of small oranges 6,5cm. They are everywhere. One sits on my bladder. Now not sure as
Hi,I am currently awaiting total hysterectomy with ovarian preservation. Am 48 years old,no children.Am on Decapeptyl 3 month injection to shrink my 9 fibroids. At least a year an half ago I had 9 of them,the size of small oranges 6,5cm. They are everywhere. One sits on my bladder. Now not sure as
Snowwhite2207
in
Endometriosis UK
18 days ago
I am not sure what to do next ?
Sorry its bit of a long one and I am dyslexic so please bare with me but I am really unsure what to do . I am 33 and for 13 years I was miss diagnosed with stomach issues that the hospital said was a number of things e.g ibs, gallbladder. It wasn't untill 2 years ago I found out what it was which was
Sorry its bit of a long one and I am dyslexic so please bare with me but I am really unsure what to do . I am 33 and for 13 years I was miss diagnosed with stomach issues that the hospital said was a number of things e.g ibs, gallbladder. It wasn't untill 2 years ago I found out what it was which was
nicola19cola
in
British Heart Foundation
7 months ago
Consider the options?
Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side effects are just destroying me. I am 80, the Olaparib goes through to mid June 2026 and the Avastin finishes at the end of this year. Oncologist
Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side effects are just destroying me. I am 80, the Olaparib goes through to mid June 2026 and the Avastin finishes at the end of this year. Oncologist
Pawpaw22
in
My Ovacome
22 days ago
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Normal CA-125
I am going in for a total hysterectomy on the 25th They suspect a Granulosa Cell Tumour due the presence of a mass on my ovary and thickened womb lining However my CA-125 is in the ‘normal’ range, I am just curious if others received a DX with normal CA-125? I am ready for whatever comes but just
I am going in for a total hysterectomy on the 25th They suspect a Granulosa Cell Tumour due the presence of a mass on my ovary and thickened womb lining However my CA-125 is in the ‘normal’ range, I am just curious if others received a DX with normal CA-125? I am ready for whatever comes but just
Starflower2946
in
My Ovacome
1 month ago
Whats the chances
Whats the chances of falling pregnant with endometriosis,adenomyosis and pcos? I can't stop thinking about it I've googled and there's nothing on it. I was thinking of doing one of those fertility tests but would it be accurate as I'm in medically induced menopause atm? I just want some clarity and
Whats the chances of falling pregnant with endometriosis,adenomyosis and pcos? I can't stop thinking about it I've googled and there's nothing on it. I was thinking of doing one of those fertility tests but would it be accurate as I'm in medically induced menopause atm? I just want some clarity and
En89
in
Endometriosis UK
7 months ago
Experiences of using HRT after oophorectomy+ hysterectomy
Hello, Would anyone mind sharing their experiences of using HRT after oophorectomy+ hysterectomy? I'm wondering whether to persevere with trying to find something better, or just give up entirely. Thanks 🙂 (I had my op years ago. Took over 2 years to get past the meno symptoms (no HRT). Thought
Hello, Would anyone mind sharing their experiences of using HRT after oophorectomy+ hysterectomy? I'm wondering whether to persevere with trying to find something better, or just give up entirely. Thanks 🙂 (I had my op years ago. Took over 2 years to get past the meno symptoms (no HRT). Thought
My_Username
in
Endometriosis UK
7 months ago
thoughts on result update
I posted my daughters pre hysterectomy bloods in September and had some excellent advice. She has redone the blood tests and I still think the thyroid test results are strange. She has been on iron for 8 weeks. The first results are for September. And the second for
I posted my daughters pre hysterectomy bloods in September and had some excellent advice. She has redone the blood tests and I still think the thyroid test results are strange. She has been on iron for 8 weeks. The first results are for September. And the second for
Auntyp62
in
Thyroid UK
7 months ago
pros and con of a hysterectomy
hi all I’ve been told I’m going to be put on the waiting list. It could be years before I get one for a hysterectomy. I want to know the pros and cons in your opinion was it worth it for those I’ve had one personally, I am desperate for one week as I’ve had enough of the ProStap injections I desperately
hi all I’ve been told I’m going to be put on the waiting list. It could be years before I get one for a hysterectomy. I want to know the pros and cons in your opinion was it worth it for those I’ve had one personally, I am desperate for one week as I’ve had enough of the ProStap injections I desperately
Prettythings1
in
Endometriosis UK
7 months ago
Anyone else had both ovaries out?
Hey all, so due to Endo and PMDD I had a hysterectomy on 1st August. Last minute paranoia meant I decided to keep an ovary. My PMDD has returned and I’ve been getting pains in my lonesome ovary. Really struggling if I’m honest and have gyne next week. I know they are going to offer to take the other
Hey all, so due to Endo and PMDD I had a hysterectomy on 1st August. Last minute paranoia meant I decided to keep an ovary. My PMDD has returned and I’ve been getting pains in my lonesome ovary. Really struggling if I’m honest and have gyne next week. I know they are going to offer to take the other
AmyPeeps
in
Endometriosis UK
7 months ago
HRT post ovarian cancer
Hi, does anyone have anything on HRT post ovarian cancer and radical hysterectomy? I’m 14 years post diagnosis and struggling with brain fog and fatigue. Is HRT an option?
Hi, does anyone have anything on HRT post ovarian cancer and radical hysterectomy? I’m 14 years post diagnosis and struggling with brain fog and fatigue. Is HRT an option?
ruthc
in
My Ovacome
2 months ago
Fibroids hysterectomy
Anyone had a hysterectomy? I've been informed my fibrioids are very large unfortunately and causing me pain every day I am opting for an operation
Anyone had a hysterectomy? I've been informed my fibrioids are very large unfortunately and causing me pain every day I am opting for an operation
Hidden
in
Endometriosis UK
7 months ago
Update after hysterectomy for adenomyosis
I posted here just over a week ago with the background and my pre-operative anxieties: https://healthunlocked.com/endometriosis-uk/posts/150262788/adenomyosis-should-i-have-hysterectomy so I thought I'd update. When I went in to hospital I was still quite ambivalent and fearful. But when I talked to
I posted here just over a week ago with the background and my pre-operative anxieties: https://healthunlocked.com/endometriosis-uk/posts/150262788/adenomyosis-should-i-have-hysterectomy so I thought I'd update. When I went in to hospital I was still quite ambivalent and fearful. But when I talked to
mavenmi
in
Endometriosis UK
7 months ago
Recurence
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
Hi wondered what side effects with niropirad as am being offereredjust out hospital after total hysterectomy omentom removed and shock stoma was given mopup chemo that put me in hospital just don't feel ready for more treatments as last year in out of hospital no normal life been told they removed
PaumicB123
in
My Ovacome
2 months ago
Ovaries or no Ovaries
I'm 46 next week and have recently been diagnosed with a large fibroid approx 15cm x 10cm and also an ovarian cyst. Consultant has recommended an hysterectomy as I'm also having severe bleeding during my period and am very anaemic. Hysterectomy is also being recommended as my mother had breast cancer
I'm 46 next week and have recently been diagnosed with a large fibroid approx 15cm x 10cm and also an ovarian cyst. Consultant has recommended an hysterectomy as I'm also having severe bleeding during my period and am very anaemic. Hysterectomy is also being recommended as my mother had breast cancer
Pizzame
in
Pelvic Pain Support Network
7 months ago
You Are All Amazing
Ladies, I came to read some of your stories, being new to the forum and you are all are amazing and brave.I am 49 and at a regular annual check a week ago on a transvaginal ultrasound the doctor saw three large masses near my left ovary in addition to pretty heavy endometriosis. My right ovary was removed
Ladies, I came to read some of your stories, being new to the forum and you are all are amazing and brave.I am 49 and at a regular annual check a week ago on a transvaginal ultrasound the doctor saw three large masses near my left ovary in addition to pretty heavy endometriosis. My right ovary was removed
QuietSorbus
in
My Ovacome
7 months ago
Why all of a sudden Endo?
I am aware on here that many people have experienced problems for many years, since puberty. I have what is suspected to be Endometriosis, but I haven't had any problems until the past 2 and a half years. Is this unusual? I know it takes a long time to get a correct diagnosis. I am waiting for a
I am aware on here that many people have experienced problems for many years, since puberty. I have what is suspected to be Endometriosis, but I haven't had any problems until the past 2 and a half years. Is this unusual? I know it takes a long time to get a correct diagnosis. I am waiting for a
Kittie5117
in
Endometriosis UK
7 months ago
Good News
It seems unfair to share my good news as I know many on this site are unsure how there diagnosis will go, as I was too at the beginning of my journey. But it is also good to read how many have good results. I was diagnosed with stage 3 Ovarian cancer over two years ago now. I had a hysterectomy, six
It seems unfair to share my good news as I know many on this site are unsure how there diagnosis will go, as I was too at the beginning of my journey. But it is also good to read how many have good results. I was diagnosed with stage 3 Ovarian cancer over two years ago now. I had a hysterectomy, six
Jingles6
in
My Ovacome
8 months ago
Medically induced menopause at 24
So I had surgery in July my pain ramped up post surgery and I'm not in excruciating pain daily some days bed bound I work and had 37 days of since km worried about my job they seem OK but its a worry still. I've exhausted alot of options eg. Pain relief and dienogest, doubling my pill for hormones ect
So I had surgery in July my pain ramped up post surgery and I'm not in excruciating pain daily some days bed bound I work and had 37 days of since km worried about my job they seem OK but its a worry still. I've exhausted alot of options eg. Pain relief and dienogest, doubling my pill for hormones ect
En89
in
Endometriosis UK
8 months ago
Deep Infilrative Endometriosis - Recommended Hysterectomy. Age 35.
Hi All, I have been to see a specialist at Endometriosis Centre in Birmingham. He has done an MRI where he can see Endometriosis around my csection scar, my pelvis, back, on bladder and bowel. He's consulting with MDT re bowel and bladder to check it has not infiltrating into there. He has recommended
Hi All, I have been to see a specialist at Endometriosis Centre in Birmingham. He has done an MRI where he can see Endometriosis around my csection scar, my pelvis, back, on bladder and bowel. He's consulting with MDT re bowel and bladder to check it has not infiltrating into there. He has recommended
Rachp88
in
Endometriosis UK
8 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
3 months ago
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