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Pelvic or vulvadinya
Hi I thought I was new to the group sit checked I’m not forgot my head is all over the place with all the diagnosis they give me was told fibro until I persisted for investigation now I’m told chronic pain syndrome and nerve damage. The next paragraph is where I’m at now apart from the other pains in
Hi I thought I was new to the group sit checked I’m not forgot my head is all over the place with all the diagnosis they give me was told fibro until I persisted for investigation now I’m told chronic pain syndrome and nerve damage. The next paragraph is where I’m at now apart from the other pains in
Serenity61
in
Pelvic Pain Support Network
4 years ago
Belly button pain 9 months after laparoscopy.
Hi, I had a Laparoscopy in January this year and was diagnosed with endo. They removed what they could from between my womb and bowel but said there is more inside my womb which cannot be removed as I'm only 24 and a hysterectomy is not an option for me now. I am still suffering with quite significant
Hi, I had a Laparoscopy in January this year and was diagnosed with endo. They removed what they could from between my womb and bowel but said there is more inside my womb which cannot be removed as I'm only 24 and a hysterectomy is not an option for me now. I am still suffering with quite significant
Hufflepuffsoph
in
Endometriosis UK
4 years ago
Fibroids - Zoladex Success? UFE Feedback anyone?
I am so happy I have found this source of information! I was diagnosed with 2 x grapefruit size fibroids in May 2020. Have had MRI and gynaecologist has suggested I have Zoladex injections for 12 months. Also been referred to radiologist for possible UFE procedure (I want to avoid hysterectomy if poss
I am so happy I have found this source of information! I was diagnosed with 2 x grapefruit size fibroids in May 2020. Have had MRI and gynaecologist has suggested I have Zoladex injections for 12 months. Also been referred to radiologist for possible UFE procedure (I want to avoid hysterectomy if poss
Project123
in
Pelvic Pain Support Network
4 years ago
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Consultant phone call help plus working
Hi Ladies, Having a really low time at the moment and just really need opinions from other who understand. In 2018 and 2019 I had a cyst removed from right ovary. As it won't behave itself I had the actual ovary removed in July this year. I was due to start a new job in August but their medical people
Hi Ladies, Having a really low time at the moment and just really need opinions from other who understand. In 2018 and 2019 I had a cyst removed from right ovary. As it won't behave itself I had the actual ovary removed in July this year. I was due to start a new job in August but their medical people
ElmoFluff
in
Endometriosis UK
4 years ago
Phone call
So I had my phone call today with my consultant and he is putting me on the hrt gel to prep me for surgery for a hysterectomy, he’s calling me back in 6 weeks time to book in a date as said it shouldn’t be to long from then as private. Staying on the zodalex injections until surgery so fingers crossed
So I had my phone call today with my consultant and he is putting me on the hrt gel to prep me for surgery for a hysterectomy, he’s calling me back in 6 weeks time to book in a date as said it shouldn’t be to long from then as private. Staying on the zodalex injections until surgery so fingers crossed
Lou93
in
Endometriosis UK
4 years ago
Hysterectomy?
Does anyone have experience of their endometriosis issues stopping post hysterectomy? I have had my endometriosis operated on, been diagnosed with it in the walls of the womb and told hysterectomy may stop symptoms however body remembers pain in endometriosis and also endo spreads outside of reproductive
Does anyone have experience of their endometriosis issues stopping post hysterectomy? I have had my endometriosis operated on, been diagnosed with it in the walls of the womb and told hysterectomy may stop symptoms however body remembers pain in endometriosis and also endo spreads outside of reproductive
Ouch2020
in
Endometriosis UK
4 years ago
Colonoscopy booked
So hysterectomy still not booked in with a date but not all bad as my bowels are getting checked at long last!
So hysterectomy still not booked in with a date but not all bad as my bowels are getting checked at long last!
Thecrazypugglelady
in
Endometriosis UK
4 years ago
Hysterectomy
Hi All I'm new to this forum and seek advice from those of you who've had an hysterectomy caused by a small prolapse bladder and decending uterus? I'm 68 and until 5 months ago I was able to cycle around 25 to 30 km a day and classed my self as being fairly fit and active! I took up the cycling
Hi All I'm new to this forum and seek advice from those of you who've had an hysterectomy caused by a small prolapse bladder and decending uterus? I'm 68 and until 5 months ago I was able to cycle around 25 to 30 km a day and classed my self as being fairly fit and active! I took up the cycling
FlyingArrow
in
Pelvic Pain Support Network
4 years ago
Who would have thought?
Hi to my old friends who may or may not be reading this note! Firstly, some of you may remember me as that dare devil ShropshireLass who did that silly sky dive within day's of the Covid shutdown! You may also be wondering why I've changed my name! Well after the skydive I just wanted to hide as I
Hi to my old friends who may or may not be reading this note! Firstly, some of you may remember me as that dare devil ShropshireLass who did that silly sky dive within day's of the Covid shutdown! You may also be wondering why I've changed my name! Well after the skydive I just wanted to hide as I
FlyingArrow
in
British Liver Trust
4 years ago
Ovarian Cyst
Hi I had a hysterectomy in June following a bleed. She thought it was due to my pessary, however found I had a cyst on my left ovary. Was referred for sonogram/ultrasound and results were it was soft filled with liquid about 3.5 cm circumference. I also have a thickened endometriosis. No mention of
Hi I had a hysterectomy in June following a bleed. She thought it was due to my pessary, however found I had a cyst on my left ovary. Was referred for sonogram/ultrasound and results were it was soft filled with liquid about 3.5 cm circumference. I also have a thickened endometriosis. No mention of
bowlingqueen
in
Women's Health
4 years ago
Endo?? Adenomyosis??? Going crazy
Hi all, I'm writing because I feel like I'm losing my mind and I'm sure I'm not alone.!! I have lived for the last 12 years with a pain in my right side. I have had multiple ultrasounds and laparoscopies and visits to the ER due to pain and no diagnosis to date. 2 years ago I had a gynecologist who removed
Hi all, I'm writing because I feel like I'm losing my mind and I'm sure I'm not alone.!! I have lived for the last 12 years with a pain in my right side. I have had multiple ultrasounds and laparoscopies and visits to the ER due to pain and no diagnosis to date. 2 years ago I had a gynecologist who removed
Clyders1
in
Endometriosis UK
4 years ago
So much pain and unwell
Hello. I have stage 4 endometriosis. Since I stopped triptorelin injections in Spring I now have one week of every month where I feel very run down, fluey and feverish and my already excruciating daily pain increases. I get a bleed plus rectal bleeding too. The pain is absolutely horrendous. I’ve had
Hello. I have stage 4 endometriosis. Since I stopped triptorelin injections in Spring I now have one week of every month where I feel very run down, fluey and feverish and my already excruciating daily pain increases. I get a bleed plus rectal bleeding too. The pain is absolutely horrendous. I’ve had
Lily1986
in
Endometriosis UK
4 years ago
Pregnant and awaiting second Lap
Hello everyone, hope you are all doing okay. So I just wanting to know if there is anyone that has experienced this. I’m currently on the waiting list for my second Lap but me and my partner have decided to try for a baby and have my OP after and ask for a hysterectomy as our family would then be complete
Hello everyone, hope you are all doing okay. So I just wanting to know if there is anyone that has experienced this. I’m currently on the waiting list for my second Lap but me and my partner have decided to try for a baby and have my OP after and ask for a hysterectomy as our family would then be complete
Love_Yellow
in
Endometriosis UK
4 years ago
Endometriosis , adenymiosis
I have been waiting for support with my endometriosis for years myself. I was recently told I have adenemyosis also (apologies for spelling check) The twin to endometriosis too , besides Ibs copd and plenty more on my records I have been threw hell and I’m still near there now after so many tests , appointments
I have been waiting for support with my endometriosis for years myself. I was recently told I have adenemyosis also (apologies for spelling check) The twin to endometriosis too , besides Ibs copd and plenty more on my records I have been threw hell and I’m still near there now after so many tests , appointments
Newjeff
in
Endometriosis UK
4 years ago
After OC sleep problems
Hi Ladies, I know this is probably a trivial problem compared to the situations many of you are going through right now, but you were so lovely when I was in need of help and advice last time, I hoped you could help with a small issue. I am asking on behalf of my Mum (early 70’s) who was treated with
Hi Ladies, I know this is probably a trivial problem compared to the situations many of you are going through right now, but you were so lovely when I was in need of help and advice last time, I hoped you could help with a small issue. I am asking on behalf of my Mum (early 70’s) who was treated with
LittleMissMerit
in
My Ovacome
4 years ago
Fed up
Sorry for the moan... been in hospital for 5 days with horrendous pain they did an ultrasound but was clear surprise surprise they all have been in the past, has so many general surgeons see me and all said it’s your endometriosis, explained I am on zodalex injections and waiting for a hysterectomy,
Sorry for the moan... been in hospital for 5 days with horrendous pain they did an ultrasound but was clear surprise surprise they all have been in the past, has so many general surgeons see me and all said it’s your endometriosis, explained I am on zodalex injections and waiting for a hysterectomy,
Lou93
in
Endometriosis UK
4 years ago
Cough after surgery
Hi I had a hysterectomy on Thursday and that I can cope with but I’ve had a chesty cough since. Anyone else experienced this? X
Hi I had a hysterectomy on Thursday and that I can cope with but I’ve had a chesty cough since. Anyone else experienced this? X
Cazywazy
in
Endometriosis UK
4 years ago
Helpadvice welcome
Hi Newbie here! Have endo and had it removed 5 years ago, having terrible pain bloating been to a and e bad told scan and ovaries fine?! Consultant wants to do hysterectomy but scared anyone give me help : advice! Tia
Hi Newbie here! Have endo and had it removed 5 years ago, having terrible pain bloating been to a and e bad told scan and ovaries fine?! Consultant wants to do hysterectomy but scared anyone give me help : advice! Tia
LOE15313
in
Endometriosis UK
4 years ago
Help and advice regarding management of surgical menopause at 27 years old?
Hiya, I'm 27 years old, just been diagnosed with early stage uterine cancer and as it's estrogen positive, I will be unable to commence hormone replacement therapy after my hysterectomy (inc. uterus, cervix, fallopian tubes and removal of both ovaries). Any advice and help on how to mentally prepare
Hiya, I'm 27 years old, just been diagnosed with early stage uterine cancer and as it's estrogen positive, I will be unable to commence hormone replacement therapy after my hysterectomy (inc. uterus, cervix, fallopian tubes and removal of both ovaries). Any advice and help on how to mentally prepare
ayesha4993
in
My Ovacome
4 years ago
Still get cramps after hysterectomy
Hi..was just wondering if anyone still gets cramps after a full hysterectomy due to endometriosis?? Been a year since surgery..but I still seem to get cycle pain?!?🤨
Hi..was just wondering if anyone still gets cramps after a full hysterectomy due to endometriosis?? Been a year since surgery..but I still seem to get cycle pain?!?🤨
Pipersong
in
Endometriosis UK
4 years ago
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