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What should I do next?
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
Mardes
in
SHARE Ovarian Cancer Support
9 months ago
Lupron
My daughter is going to be put on this drug for uterine fibroids and potential endometriosis for a period of 7 months and then we'll have surgery for hysterectomy. She is very concerned about the side effects of this medication and I'm wondering if anyone on here has had experience using this medication
My daughter is going to be put on this drug for uterine fibroids and potential endometriosis for a period of 7 months and then we'll have surgery for hysterectomy. She is very concerned about the side effects of this medication and I'm wondering if anyone on here has had experience using this medication
Nature4Me
in
Endometriosis UK
9 months ago
Waiting for a Hysterectomy
Hello everyone, I am writing to ask for any advice/support or similar situations. I am 39, F, live in Scotland UK Have been having problems since May 2021 - heavy menstrual bleeding and pain, hadn't had any issues or bleeding for 20+ years on the mini-Pill Degestrel, so it came as a bit of a shock
Hello everyone, I am writing to ask for any advice/support or similar situations. I am 39, F, live in Scotland UK Have been having problems since May 2021 - heavy menstrual bleeding and pain, hadn't had any issues or bleeding for 20+ years on the mini-Pill Degestrel, so it came as a bit of a shock
Kittie5117
in
Endometriosis UK
9 months ago
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Aromatase Inhibitor Use?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
relap
in
SHARE Uterine Cancer Support
9 months ago
Link between adhesions and ongoing abdominal pain.
Happy New year to everyone. I wonder if anyone has had a similar experience? .20 years ago after several years of abdominal pain I had a total hysterectomy. They found that my abdomen was full of violin string adhesions. I was great for a short time then I started to have intermittent abdominal pain
Happy New year to everyone. I wonder if anyone has had a similar experience? .20 years ago after several years of abdominal pain I had a total hysterectomy. They found that my abdomen was full of violin string adhesions. I was great for a short time then I started to have intermittent abdominal pain
Mrsmr
in
Endometriosis UK
6 months ago
Diagnosis ????
Hi everyone. My name is Rose, I have a history of autoimmune disease..sle, sgraves disease and previous stage 4 endometriosis and bowel adhesions with multiple polypoid ovarian tumours. Previous hysterectomy and salpingo oopherectomy with excision of endometriosis.I have suffered with bowel issues
Hi everyone. My name is Rose, I have a history of autoimmune disease..sle, sgraves disease and previous stage 4 endometriosis and bowel adhesions with multiple polypoid ovarian tumours. Previous hysterectomy and salpingo oopherectomy with excision of endometriosis.I have suffered with bowel issues
Redrose81
in
Crohn's and Colitis Support
9 months ago
Post Hysterectomy
Hi all, I am 10 weeks post full hysterectomy. I feel I am doing well physically and have followed all advice. However, on Saturday some familiar pain started and I am now in bed with a severe flare up. I don't know where to turn or if this is normal?! Since my op I haven't really spent days in bed, I've
Hi all, I am 10 weeks post full hysterectomy. I feel I am doing well physically and have followed all advice. However, on Saturday some familiar pain started and I am now in bed with a severe flare up. I don't know where to turn or if this is normal?! Since my op I haven't really spent days in bed, I've
Cardiff87
in
Endometriosis UK
9 months ago
Advice needed!!
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
Good morning, my mum has had a radical hysterectomy earlier this year followed by 6 rounds of chemo. Ca125 15 and CT Scan post chemo performed - awaiting results. Stage 3C High grade serous cancer. Experiencing back pain in recent weeks, just wondered if anyone else had experienced this and if we should
ORGM
in
My Ovacome
6 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
6 months ago
looking for answers
hello! I have recently been diagnosed with severe pelvic endometriosis after years of fighting. My diagnosis was given to me by post 5 days after I was discharged following an ex lap and womb ablation! I have since had an mri and am awaiting a sigmoidoscopy. The consultants are being very vague and
hello! I have recently been diagnosed with severe pelvic endometriosis after years of fighting. My diagnosis was given to me by post 5 days after I was discharged following an ex lap and womb ablation! I have since had an mri and am awaiting a sigmoidoscopy. The consultants are being very vague and
FH90
in
Endometriosis UK
9 months ago
helloI’m Lorraine
hi I was diagnosed with stage 1A grade 2-3? They are not sure exactly ?! Endometrial cancer. On June 1 this year. I had a total Laparoscopic Hysterectomy in July of this year . I have recuperated well from surgery . I’m now undergoing vaginal brachytherapy . Had my first treatment so far so good
hi I was diagnosed with stage 1A grade 2-3? They are not sure exactly ?! Endometrial cancer. On June 1 this year. I had a total Laparoscopic Hysterectomy in July of this year . I have recuperated well from surgery . I’m now undergoing vaginal brachytherapy . Had my first treatment so far so good
Tawfiklm
in
SHARE Uterine Cancer Support
9 months ago
How long did you wait for a hysterectomy for Adenomyosis?
I'm desperate to have a hysterectomy and am seeing the consultant in 2 months. I'd be interested to know how long people have had to wait. My rough guess is 2 years 😢Thank you 💕
I'm desperate to have a hysterectomy and am seeing the consultant in 2 months. I'd be interested to know how long people have had to wait. My rough guess is 2 years 😢Thank you 💕
Mindfullness4791
in
Endometriosis UK
9 months ago
Endo back after hysterectomy
I had hysterectomy in March 2020 leaving my ovaries in. I've recently had an ultrasound due to pain and bloating that has indicated that my endo is back around my ovaries. Gynaecologist has suggested taking my ovaries since I am now nearly 48. Has anyone else had this experience?
I had hysterectomy in March 2020 leaving my ovaries in. I've recently had an ultrasound due to pain and bloating that has indicated that my endo is back around my ovaries. Gynaecologist has suggested taking my ovaries since I am now nearly 48. Has anyone else had this experience?
SMW1976
in
Endometriosis UK
9 months ago
Hormones vs hysterectomy
I am 43 and facing the next (hopefully last) stage in endometriosis life. I have had two laparoscopic surgeries and a successful few years on the mirena coil. After an unbearable few months it has been recommended that we induce early menopause to manage. The big question is Hormones vs hysterectomy.
I am 43 and facing the next (hopefully last) stage in endometriosis life. I have had two laparoscopic surgeries and a successful few years on the mirena coil. After an unbearable few months it has been recommended that we induce early menopause to manage. The big question is Hormones vs hysterectomy.
Rarebitrabbit
in
Endometriosis UK
9 months ago
Operations and GMC
Hi I’ve had a complaint in with GMC for a long time, it was about not having the hysterectomy with colorectal involvement which meant I had to have a further op for bowel adhesions as they were left. It turns out the GMC don’t feel it’s at all dangerous to have to have an operation and quite happy
Hi I’ve had a complaint in with GMC for a long time, it was about not having the hysterectomy with colorectal involvement which meant I had to have a further op for bowel adhesions as they were left. It turns out the GMC don’t feel it’s at all dangerous to have to have an operation and quite happy
Moon_maiden
in
Endometriosis UK
9 months ago
HE4 blood test
hi all Has anyone had the experience where your CA125 was within the normal range at the time of your diagnosis? Mine was 29 the night before my hysterectomy. That was in 2020 and the CA125 since then has been in the single digits even when it recurred in 2022. My June 2023 CT scan didn’t show evidence
hi all Has anyone had the experience where your CA125 was within the normal range at the time of your diagnosis? Mine was 29 the night before my hysterectomy. That was in 2020 and the CA125 since then has been in the single digits even when it recurred in 2022. My June 2023 CT scan didn’t show evidence
WildflowerTheWarrior
in
SHARE Ovarian Cancer Support
10 months ago
What age to start HRT
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Bassem1979
in
Menopause and Perimenopause Support
10 months ago
pregnancy after surgery?
hi ladies, I just wanted to know if any of you managed to have babies after surgery for stage 4 endometriosis and with adenomyosis. I’m 36 now and I’m due my surgery in just under 3 weeks time. I’m very nervous about being able to have a baby with my partner. We don’t want to do it straight away
hi ladies, I just wanted to know if any of you managed to have babies after surgery for stage 4 endometriosis and with adenomyosis. I’m 36 now and I’m due my surgery in just under 3 weeks time. I’m very nervous about being able to have a baby with my partner. We don’t want to do it straight away
Kieraface
in
Endometriosis UK
10 months ago
Can HRT stop working?
Hi, I had a total hysterectomy June 22 and have been on everol estrogen 100mg patches since and my menopause symptoms were controlled for the most. However, these past few weeks my symptoms have been creeping back starting with sleeplessness, night sweats, brain fog and now my skin is itchy as anything
Hi, I had a total hysterectomy June 22 and have been on everol estrogen 100mg patches since and my menopause symptoms were controlled for the most. However, these past few weeks my symptoms have been creeping back starting with sleeplessness, night sweats, brain fog and now my skin is itchy as anything
EvieJ70
in
Menopause and Perimenopause Support
6 months ago
prostrap injections
Hi All, thank you for the add- I am new here. I have ademomyosis, fibroids and also possibly endometriosis. I am listed for a total hysterectomy but start (thursday!) prostrap injections to see how I would cope with no ovaries (with add back HRT) and to check the effect on my terrible ovulation symptoms
Hi All, thank you for the add- I am new here. I have ademomyosis, fibroids and also possibly endometriosis. I am listed for a total hysterectomy but start (thursday!) prostrap injections to see how I would cope with no ovaries (with add back HRT) and to check the effect on my terrible ovulation symptoms
ForestFi
in
Endometriosis UK
6 months ago
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