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Hypomyelination and congenital cataract
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New Normal
Good morning beautiful ladies š This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Good morning beautiful ladies š This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Kcap430
in
SHARE Metastatic Breast Cancer
7 months ago
can stress anxiety cause a flare up?
mum diagnosed GCA 4 years ago totally blind due to doctor negligence and in the meantime weāve dealt with her having lung cancer (2 years ago) the lung cancer has reared its ugly head got results from CT scan last week a week before the results she was complaining of headache so I contacted her rheumatologist
mum diagnosed GCA 4 years ago totally blind due to doctor negligence and in the meantime weāve dealt with her having lung cancer (2 years ago) the lung cancer has reared its ugly head got results from CT scan last week a week before the results she was complaining of headache so I contacted her rheumatologist
Daughters2
in
PMRGCAuk
7 months ago
Lymphocytic infiltration
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
cartwheels
in
CLL Support
7 months ago
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Almost there
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Pumukkale
in
PMRGCAuk
7 months ago
Is inconsistent bowel and urine part of the Prostate cancer? Also almost like dementia?
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
Bo1948
in
Advanced Prostate Cancer
7 months ago
I'm 75 years old and during a colonoscopy today, my doctor found 10 precancerous plops and one, malignant-looking mass at the end of colon.
He is confident that it is cancer but doesn't know what stage. He has referred me to a good surgeon, whose office will call me next week to set up an appointment. Meanwhile, he gave me a referral for a "CT scan of chest, abdomen and pelvis with PO & IV Contrast." He wants to see if the cancer has spread
He is confident that it is cancer but doesn't know what stage. He has referred me to a good surgeon, whose office will call me next week to set up an appointment. Meanwhile, he gave me a referral for a "CT scan of chest, abdomen and pelvis with PO & IV Contrast." He wants to see if the cancer has spread
CED48
in
Colon Cancer Connected
4 months ago
Biopsy results negative
Hi So I got the results of my recent colonoscopy biopsies. Nothing was seen during colonoscopy but 6 random biopsies were taken - no abnormalities were found. I have a follow up appointment with gastro on 23rd March so just over a week away. I am at a loss as to what is causing my symptoms ( abdominal
Hi So I got the results of my recent colonoscopy biopsies. Nothing was seen during colonoscopy but 6 random biopsies were taken - no abnormalities were found. I have a follow up appointment with gastro on 23rd March so just over a week away. I am at a loss as to what is causing my symptoms ( abdominal
Lastboyscout6
in
IBS Network
4 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
3 months ago
Weight loss with Felodipine anyone ?
I have now been on Felodipine 2.5mg for 10 days I have reduced appetite and have lost 4 pounds. I am usually 7st 10lbs and really don't want to lose any weight at all. I have IBS and had a bad flare up with diahorrea but didn't notice any weight loss at that point. Have an appointment with GP 26th but
I have now been on Felodipine 2.5mg for 10 days I have reduced appetite and have lost 4 pounds. I am usually 7st 10lbs and really don't want to lose any weight at all. I have IBS and had a bad flare up with diahorrea but didn't notice any weight loss at that point. Have an appointment with GP 26th but
BobbyCollins
in
High Blood Pressure Support
4 months ago
Tofacitinib
Morning guys and girls they have stopped my infliximab due to it not working i was on amgevita before and that failed. Ive got ulcerative colitis peripheral spondyloarthritis and axial spondyloarthritis but nothing is keeping the colitis at bay. I also need to stop my methotrexate injections because
Morning guys and girls they have stopped my infliximab due to it not working i was on amgevita before and that failed. Ive got ulcerative colitis peripheral spondyloarthritis and axial spondyloarthritis but nothing is keeping the colitis at bay. I also need to stop my methotrexate injections because
Brian1977
in
Crohn's and Colitis Support
4 months ago
skin cancer and Ruxo
Hello, all, so interesting thing happened to me yesterday. Iāve been having eye issues for a long time, at least six months, and I finally went to an ophthalmologist yesterday. I have myelofibrosis , and Iāve been on Ruxo since June and prior to that I was on hydroxy for four years. He told me with
Hello, all, so interesting thing happened to me yesterday. Iāve been having eye issues for a long time, at least six months, and I finally went to an ophthalmologist yesterday. I have myelofibrosis , and Iāve been on Ruxo since June and prior to that I was on hydroxy for four years. He told me with
Cja1956
in
MPN Voice
7 months ago
Pain/flare up
Although I have probably had IBS symptoms for years and years it has escalated for the past 3 months into something more permanent and painful. Is it usual to have constant pain, or maybe its cramps or spasms, a lot of the time or during a flare up? Although I am on low dose amitriptyline, mebeverine
Although I have probably had IBS symptoms for years and years it has escalated for the past 3 months into something more permanent and painful. Is it usual to have constant pain, or maybe its cramps or spasms, a lot of the time or during a flare up? Although I am on low dose amitriptyline, mebeverine
Poshy
in
IBS Network
4 months ago
Can anyone help interpret my iron panel results š
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tabletsā¦. I stopped these quite a few years back
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tabletsā¦. I stopped these quite a few years back
ThyroidObsessed
in
Thyroid UK
4 months ago
Maintenance Chemo
I was diagnosed with stage 2 endometrioid cancer five years ago. I went through chemo treatments: carboplatin and taxol. I even had IP belly washes of taxol. They are not doing these any longer in the US. Sadly, my cancer reoccurred six months ago. I was cancer free and in remission for five years. The
I was diagnosed with stage 2 endometrioid cancer five years ago. I went through chemo treatments: carboplatin and taxol. I even had IP belly washes of taxol. They are not doing these any longer in the US. Sadly, my cancer reoccurred six months ago. I was cancer free and in remission for five years. The
ARamage
in
My Ovacome
6 months ago
Gastric discomfort with Olaparib
Help needed please. Iām currently taking 300mg of Olaparib per day and am experiencing gastric discomfort and feelings of ā¦ .Wanting to burp but nothing happens .Something lodged in my food pipe (there isnāt and no problems with swallowing) . . A hollow feeling in my stomach I have been
Help needed please. Iām currently taking 300mg of Olaparib per day and am experiencing gastric discomfort and feelings of ā¦ .Wanting to burp but nothing happens .Something lodged in my food pipe (there isnāt and no problems with swallowing) . . A hollow feeling in my stomach I have been
Alfiepop
in
My Ovacome
4 months ago
Bam. Ibs
Have been having terrible stomach pains over the last few months like a twisting cramping feeling in upper stomach area , had a telephone appointment with doctor yesterday he said up my omprozole to 2 a day try mebeverine and gaviscon he mention eibgrastro thats wat the pain could be anyone know anything
Have been having terrible stomach pains over the last few months like a twisting cramping feeling in upper stomach area , had a telephone appointment with doctor yesterday he said up my omprozole to 2 a day try mebeverine and gaviscon he mention eibgrastro thats wat the pain could be anyone know anything
Netbet22
in
IBS Network
4 months ago
Gluten free diet
Hi all, hope youāre not suffering too much today. Just wanted to bring to your attention an article I was reading today about gluten, which you can find on google. https://en.m.wikipedia.org/wiki/Non-celiac_gluten_sensitivity Iāve recently been trialing a gluten free diet, which has helped me considerably
Hi all, hope youāre not suffering too much today. Just wanted to bring to your attention an article I was reading today about gluten, which you can find on google. https://en.m.wikipedia.org/wiki/Non-celiac_gluten_sensitivity Iāve recently been trialing a gluten free diet, which has helped me considerably
Kryptonite59
in
Fibromyalgia Action UK
4 months ago
Bone health: review about the guidelines
weight bearing exercise, biphosphonates o Denosumab, vitamin D, calcium I do all of the above, even if I have very thick bone and not yet CR, the oncologist says that zometa is also used to contrast the spread of bone metastasisā¦ https://www.urotoday.com/video-lectures/practice-guidelines-prostate
weight bearing exercise, biphosphonates o Denosumab, vitamin D, calcium I do all of the above, even if I have very thick bone and not yet CR, the oncologist says that zometa is also used to contrast the spread of bone metastasisā¦ https://www.urotoday.com/video-lectures/practice-guidelines-prostate
Maxone73
in
Advanced Prostate Cancer
7 months ago
Update on neuroendocerine prostate cancer mets to liver.
As mentioned previously my husbands prostate cancer has now metastasised to his liver. He also has bone mets. He had 6 cycles of Etoposide and Carboplatin. This combination of chemo worked very well. As we are looking at getting Pluvicto for his bone mets we also organised an FDG scan. (As advised on
As mentioned previously my husbands prostate cancer has now metastasised to his liver. He also has bone mets. He had 6 cycles of Etoposide and Carboplatin. This combination of chemo worked very well. As we are looking at getting Pluvicto for his bone mets we also organised an FDG scan. (As advised on
Believeit
in
Advanced Prostate Cancer
7 months ago
Update
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
very
in
CLL Support
7 months ago
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