Lymphocytic infiltration

[cartwheels]

As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were drug induced. However I got another letter yesterday stating that after another look at my skin biopsy if one of my raised lessions they have found lymphocytic infiltration. And I have appointments at both dermatology and heamotolgy in late January . At my last heamotolgy apparently a few weeks ago he discussed that I have been on Ibrutinib a long time 6.5 years and all year my numbers are rising now over 11 and wants to keep a close eye on me and talked of a possible trial I could go on but gave no details as he said there are other things to look at but will see me in January. Not sure what to think really, I suppose if all the skin issues I have been suffering this year are now related to my CLL and I'm relapsing then maybe they will resolve with new treatment. That is my hope but will have to wait and see . Anyone else had similar

[Shefflass]

Hi. Please would you lock your post before I reply to you? Many thanks. Gillian

[LeoPa in reply to Shefflass]

You already replied 🙂. You can send a direct message if you want to keep it private.

[Shefflass in reply to LeoPa]

Oops, so I did 😆! I never thought of direct messaging - I'll look at how to do it 😊

[CoachVera55]

This CLL is truly an onion that keeps unraveling🤦🏽‍♀️ My skin has changed too & I must find a Dermatologist real soon. Only Happy Thoughts of a great new treatment that will tackle the skin lesions & lower your CLL burden altogether. Happy Holidays🎉