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Hypomyelination and congenital cataract
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Lab Tests Indicate High Lipase
Has anyone taking prednisone and Actemra had a high lipase on their routine lab tests. I’m on 4 mg prednisone and bi-weekly injections of Actemra for GCA. I get lab tests every month, and the past several months Lipase is high (usually around 60-70). I’ve done a CT scan with the dye, and was told
Has anyone taking prednisone and Actemra had a high lipase on their routine lab tests. I’m on 4 mg prednisone and bi-weekly injections of Actemra for GCA. I get lab tests every month, and the past several months Lipase is high (usually around 60-70). I’ve done a CT scan with the dye, and was told
Pamk1949
in
PMRGCAuk
8 months ago
Cataract surgery advice please.
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
Quiet_Lin
in
Glaucoma UK
7 months ago
Stopped Actemra, new questions
Hi community, I decided to stop Actemra after 1 year so I am not on so many drugs. I was concerned about the risk of infections, diverticulitis, etc. I figured that so many people have done this with only Prednisone, that I can too. Here's what has happened since. I stopped Actemra 1 month ago. I
Hi community, I decided to stop Actemra after 1 year so I am not on so many drugs. I was concerned about the risk of infections, diverticulitis, etc. I figured that so many people have done this with only Prednisone, that I can too. Here's what has happened since. I stopped Actemra 1 month ago. I
potterylady
in
PMRGCAuk
9 months ago
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cataract surgery with MPN any one else had this done
I’m going to have cataract surgery and I am very nervous and baca use susceptible to infection.So please any advice .Thankyou in advance
I’m going to have cataract surgery and I am very nervous and baca use susceptible to infection.So please any advice .Thankyou in advance
Polish1
in
MPN Voice
9 months ago
Cataract Laser Treatment
Within the last 18 months I have had cataracts removed in both eyes, all of a sudden my sight deteriorated! I went back to the hospital who then told me I needed Laser treatment in both eyes! My problem is I have now been on Hydroxychloroquine 400mg for 7 years and I feel worried 😟 that the drug is
Within the last 18 months I have had cataracts removed in both eyes, all of a sudden my sight deteriorated! I went back to the hospital who then told me I needed Laser treatment in both eyes! My problem is I have now been on Hydroxychloroquine 400mg for 7 years and I feel worried 😟 that the drug is
wakeham
in
NRAS
9 months ago
Upcoming surgery
I recently had cataract surgery on one eye. It was successful, but my surgeon told me afterward that it was very difficult. My RLS kicked in under sedation (even ketamine) so badly that at times my eye disappeared from her view under the microscope! She is unwilling to take chances with my other eye,
I recently had cataract surgery on one eye. It was successful, but my surgeon told me afterward that it was very difficult. My RLS kicked in under sedation (even ketamine) so badly that at times my eye disappeared from her view under the microscope! She is unwilling to take chances with my other eye,
MountainWanderer
in
Restless Legs Syndrome
9 months ago
Tikosyn/Dofetilide
Just spent 2 1/2 day in hospital to get Tikosyn dosage right and get heart back into sinus rhythm. It Worked! I feel great. I using the generic Dofetilide. Much cheaper. I lost 7 1/2 lbs. on the bland meals. I call it "The Hospital Diet". 😊
Just spent 2 1/2 day in hospital to get Tikosyn dosage right and get heart back into sinus rhythm. It Worked! I feel great. I using the generic Dofetilide. Much cheaper. I lost 7 1/2 lbs. on the bland meals. I call it "The Hospital Diet". 😊
dixiedad
in
AF Association
10 months ago
cataract op
I am on Methotrexate and Benepali for RA and due to have a cataract op in about five weeks time. Has anybody who has had similar op and taking similar medication been advised to stop meds for a while.
I am on Methotrexate and Benepali for RA and due to have a cataract op in about five weeks time. Has anybody who has had similar op and taking similar medication been advised to stop meds for a while.
Pythagorus
in
NRAS
10 months ago
Cataract surgery with AMD
I have injections in both eyes for wet macular degeneration. Left eye has scar tissue caused by retinal tear. Am having cataract surgery on 23rd October in right eye first. I am short sighted and have agreed to have sight corrected at same time. I am now worried about wisdom of this as think it will
I have injections in both eyes for wet macular degeneration. Left eye has scar tissue caused by retinal tear. Am having cataract surgery on 23rd October in right eye first. I am short sighted and have agreed to have sight corrected at same time. I am now worried about wisdom of this as think it will
Cockeyed
in
Macular Society
9 months ago
GCA and Ear Swelling, Pressure
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Pamk1949
in
PMRGCAuk
10 months ago
Vision after surgery
I found out in 2022 I had a macular hole. I had the surgery then the cataract surgery. I then had cataract surgery for my other eye. My vision seems to have gotten worse in the last month or two. I go back this Wednesday for a check up and to be fitted for glasses. I was told at my last visit the
I found out in 2022 I had a macular hole. I had the surgery then the cataract surgery. I then had cataract surgery for my other eye. My vision seems to have gotten worse in the last month or two. I go back this Wednesday for a check up and to be fitted for glasses. I was told at my last visit the
Nancy924
in
Macular Society
10 months ago
Thyroid Eye Disease
I am having trouble with my eyes, can’t move the up, down or side to side. I had cataract surgery four years ago and after that always has pain in it. I didn’t know I had Hashimotos then. Now need cataract surgery in the other eye. I have been reading about TED and I have a lot of symptoms. Does anyone
I am having trouble with my eyes, can’t move the up, down or side to side. I had cataract surgery four years ago and after that always has pain in it. I didn’t know I had Hashimotos then. Now need cataract surgery in the other eye. I have been reading about TED and I have a lot of symptoms. Does anyone
Meerkat1234
in
Thyroid UK
10 months ago
Upcoming cataract surgery
Hello, I am so grateful for this group and the information and advice I have gotten here. I hope someone can help me with this: I am having cataract surgery next week and wonder if any of the medications on this list, which they MAY use, would have an adverse effect on my RLS: ofloxacin (antibiotic
Hello, I am so grateful for this group and the information and advice I have gotten here. I hope someone can help me with this: I am having cataract surgery next week and wonder if any of the medications on this list, which they MAY use, would have an adverse effect on my RLS: ofloxacin (antibiotic
MountainWanderer
in
Restless Legs Syndrome
9 months ago
Actemra; The elephant in the room. Is it working or not working for you?
GCA Feb 2018 Prednisone therapy only. Here I am 6 and half years later and still trying to find the sweet spot with prednisone--not too much/not too little---Just right. I am trying to reduce slowly using the DSNS program because it has always worked for me. I am, however, struggling now at 4.25/4.0
GCA Feb 2018 Prednisone therapy only. Here I am 6 and half years later and still trying to find the sweet spot with prednisone--not too much/not too little---Just right. I am trying to reduce slowly using the DSNS program because it has always worked for me. I am, however, struggling now at 4.25/4.0
Blurry62
in
PMRGCAuk
10 months ago
Who has had cataract surgery with a bleb?
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
So as is the way with this condition, you cruise for a while then your eyes decide they do not wish to play ball! So basically I’ve been noticing a decrease in clarity with my right eye. The Glaucoma clinic doesn’t think I’m an urgent case so I’m waiting till November where I will see a nurse 😒.
Vich81
in
Glaucoma UK
9 months ago
Cataract surgery on an eye with a functioning bleb.
Has anyone had cataract removal on an eye with a functioning bleb? Was it successful? I know that the chance of bleb failure is about 30%.
Has anyone had cataract removal on an eye with a functioning bleb? Was it successful? I know that the chance of bleb failure is about 30%.
Beaudidily
in
Glaucoma UK
9 months ago
Ibrutinib and Cataract surgery
I have been on Ibrutinib for 4 years and need to do cataract surgery for both eyes . I am worried about the bleeding because of Ibrutinib. Anyone else experience this? Appreciate any advice.
I have been on Ibrutinib for 4 years and need to do cataract surgery for both eyes . I am worried about the bleeding because of Ibrutinib. Anyone else experience this? Appreciate any advice.
ANA4
in
CLL Support
10 months ago
Posterior subcapsular cataracts surgery
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
Oceansideup
in
Kidney Transplant
9 months ago
URGENT - can I have elective surgery whilst RA is flaring ?
does anyone know what the recommended practice is regarding an RA flare and elective surgery? my RA is still flaring and I have yet to start a 3 week prednisolone course. is it considered safe to have elective surgery to my left wrist when I have active RA in my right elbow? I know if I take the
does anyone know what the recommended practice is regarding an RA flare and elective surgery? my RA is still flaring and I have yet to start a 3 week prednisolone course. is it considered safe to have elective surgery to my left wrist when I have active RA in my right elbow? I know if I take the
lindyloo2018
in
NRAS
11 months ago
Low B6... taking a complex with pyridoxine which obviously doesn't suit
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
Back to the search for the best B complex (Thorne being elusive at the moment and didn't do particularly well at keeping my B12 up)... one which contains pyridoxal 5' phosphate Does anyone rate Igennus Super B Complex? All suggestions welcome 🤗
TiggerMe
in
Thyroid UK
11 months ago
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