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Anyone had to massage eye themselves post trabeculectomy ?
Hi hope everyone is doing ok? I have just had my one week post trabeculectomy check up and I am healing well, possibly too well !!! My IOP was up at 30 but consultant got it down to 10 by massaging lower lid. I bled a lot during op and needed a massage following day to break up blood clot which was
Hi hope everyone is doing ok? I have just had my one week post trabeculectomy check up and I am healing well, possibly too well !!! My IOP was up at 30 but consultant got it down to 10 by massaging lower lid. I bled a lot during op and needed a massage following day to break up blood clot which was
Hidden
in
Glaucoma UK
3 years ago
Breathless while walking
Breathless when walking Recently I notice more and more being out of breath while walking. I take apixaban and perindopril I have asymptomatic AF and I am a 72 years female. I just wonder if this is due to age or has my AF deteriorated. To get a GP appointment is difficult at this time. Has anyone
Breathless when walking Recently I notice more and more being out of breath while walking. I take apixaban and perindopril I have asymptomatic AF and I am a 72 years female. I just wonder if this is due to age or has my AF deteriorated. To get a GP appointment is difficult at this time. Has anyone
emsling
in
AF Association
3 years ago
Hi everyone...I am 26 years old and last year was diagnosed with myopic CNV and PIC in my left eye...
Hi everyone... I am 26 years old and last year was diagnosed with myopic CNV and PIC in my left eye. I’ve just had my 6th Lucentis injection. I am going back to see the doctor next week to discuss immunosuppressant treatment. I would be keen to know anyone’s experience from taking these? (The side
Hi everyone... I am 26 years old and last year was diagnosed with myopic CNV and PIC in my left eye. I’ve just had my 6th Lucentis injection. I am going back to see the doctor next week to discuss immunosuppressant treatment. I would be keen to know anyone’s experience from taking these? (The side
Janki_x
in
Macular Society
3 years ago
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High IOP’s but NOT GLAUCOMA. Why continue with drops?
Hi all, So I have had a first appt with a glaucoma consultant (went private) due to waiting time on NHS - was the SAME consultant I had been referred to on NHS! My history - Previously had cataracts (both ages 18 now 50) and lens implants both eyes. Then retinal detachments both eyes and artisan lens
Hi all, So I have had a first appt with a glaucoma consultant (went private) due to waiting time on NHS - was the SAME consultant I had been referred to on NHS! My history - Previously had cataracts (both ages 18 now 50) and lens implants both eyes. Then retinal detachments both eyes and artisan lens
Tiger31
in
Glaucoma UK
3 years ago
Dental Problems with Behçet’s
Please take the time to read I know this is a long post but I really need help. I have had the effects of Behçet’s since 2009 and because of the pain in my mouth I spent almost 5 years completely unable to use toothpaste or a toothbrush I was only able to use interdental brushes on top of that the only
Please take the time to read I know this is a long post but I really need help. I have had the effects of Behçet’s since 2009 and because of the pain in my mouth I spent almost 5 years completely unable to use toothpaste or a toothbrush I was only able to use interdental brushes on top of that the only
paige1991
in
Vasculitis UK
3 years ago
Eye problems and dry mouth etc
Hello again to this lovely forum which has been so supportive. As you may know from my previous posts , I have had Graves’ disease for 22 years and am on Carbimazole , having refused the alternative treatments. Over the past few weeks I have started having increasing eye problems - these came to a
Hello again to this lovely forum which has been so supportive. As you may know from my previous posts , I have had Graves’ disease for 22 years and am on Carbimazole , having refused the alternative treatments. Over the past few weeks I have started having increasing eye problems - these came to a
Bananas4ski
in
Thyroid UK
3 years ago
Volunteers needed for Medical Student Education
Dr Lucy Ziegler, Associate Professor in Palliative Care at the University of Leeds, is looking for volunteers to be a part of the Chronic Illness & Disability Project for first-year medical students. As a volunteer you will be matched with two or three first-year medical students via Zoom or an alternative
Dr Lucy Ziegler, Associate Professor in Palliative Care at the University of Leeds, is looking for volunteers to be a part of the Chronic Illness & Disability Project for first-year medical students. As a volunteer you will be matched with two or three first-year medical students via Zoom or an alternative
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
3 years ago
Food and nutrition for CLL
There are lots of things you can do with food and nutrition. My husband has CLL we were told there was nothing to do but wait and watch. Then 4 months later it transformed into a brain tumor. I was told to take him home and start palliative care. I started him on a crazy juicing program and we
There are lots of things you can do with food and nutrition. My husband has CLL we were told there was nothing to do but wait and watch. Then 4 months later it transformed into a brain tumor. I was told to take him home and start palliative care. I started him on a crazy juicing program and we
Abbysmom
in
CLL Support
3 years ago
Not coping
Been diagnosed since December just crying all the time. Convinced I will go blind
Been diagnosed since December just crying all the time. Convinced I will go blind
Hidden
in
Glaucoma UK
3 years ago
Richter’s Transformation - Update 27-01-2021
I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted to share an update as I reached remission in a very unexpectedly and to me almost miraculous way. I have in a way been conducting a “N of 1 trial
I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted to share an update as I reached remission in a very unexpectedly and to me almost miraculous way. I have in a way been conducting a “N of 1 trial
Priss69
in
CLL Support
3 years ago
Appointment
I was diagnosed with Glaucoma in December so scared. They say they have caught it early my optician found the glaucoma. Went to the hospital and they done tests and also said my optician was very good and catching this. They have me drops Lantanprost preservative free. One drop each night in each eye
I was diagnosed with Glaucoma in December so scared. They say they have caught it early my optician found the glaucoma. Went to the hospital and they done tests and also said my optician was very good and catching this. They have me drops Lantanprost preservative free. One drop each night in each eye
Hidden
in
Glaucoma UK
3 years ago
My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.
I wanted to share an update as my “[i]N of 1 trial[/i]” have so far been a success for me. I reached remission in a very unexpectedly and to me almost miraculous way when
combining Ibrutinib + Idelalisib + Venetoclax
. My disease have proven resistant to all these when they where used separately
I wanted to share an update as my “[i]N of 1 trial[/i]” have so far been a success for me. I reached remission in a very unexpectedly and to me almost miraculous way when
combining Ibrutinib + Idelalisib + Venetoclax
. My disease have proven resistant to all these when they where used separately
UniversallyPersonal
in
CLL Support
3 years ago
1st NHS Glaucoma check coming up - how frequently do they check you?
Hi, I was diagnosed with glaucoma in 2015 by optician. After numerous attempts over the years to get a referral to my local nhs eye dept they rang out of the blue yesterday to offer me an appointment next week (yhay). I really want to get regular checks as my mother is blind from this and I have other
Hi, I was diagnosed with glaucoma in 2015 by optician. After numerous attempts over the years to get a referral to my local nhs eye dept they rang out of the blue yesterday to offer me an appointment next week (yhay). I really want to get regular checks as my mother is blind from this and I have other
Tricia3
in
Glaucoma UK
3 years ago
It’s been a week post Lu 177 #1
I received several private messages to see how I am faring after my first Lu 177 infusion so I thought I would update. It has been 8 days and to be honest I continue to decline. My mobility has been reduced to being able to limp between the bathroom and bed. My pain in still out of control but the
I received several private messages to see how I am faring after my first Lu 177 infusion so I thought I would update. It has been 8 days and to be honest I continue to decline. My mobility has been reduced to being able to limp between the bathroom and bed. My pain in still out of control but the
Cleodman
in
Advanced Prostate Cancer
3 years ago
Stuff that helps me
Diagnosed 2012 PBC alp222 ALT 60 antibody pos On UCDA for lft since 2013 Bezafibrate my request since 2020 ( papers from Japan/ France Methotrexate for inflammatory arthritis ( i think related to PBC Coenzyme Q10 - fatigue 2021 LFT normal egfr69 lower end normal Well some fatigue run 5k x4 a week
Diagnosed 2012 PBC alp222 ALT 60 antibody pos On UCDA for lft since 2013 Bezafibrate my request since 2020 ( papers from Japan/ France Methotrexate for inflammatory arthritis ( i think related to PBC Coenzyme Q10 - fatigue 2021 LFT normal egfr69 lower end normal Well some fatigue run 5k x4 a week
milo2002
in
PBC Foundation
3 years ago
Can you believe it? A doctor actually promoted prednisone.
I had my eyes checked yesterday and found I have cateracts to be removed. When I went into see the doctor who would remove them in March, I mentioned polymyalgia and not being about to get down on my prednisone. He said it was very important that I take it and that probably I would not get completely
I had my eyes checked yesterday and found I have cateracts to be removed. When I went into see the doctor who would remove them in March, I mentioned polymyalgia and not being about to get down on my prednisone. He said it was very important that I take it and that probably I would not get completely
Trevgrrl
in
PMRGCAuk
3 years ago
Blurry eyes - caused by Pred? And resolving after Pred stops?
About 2 weeks ago I started to have problems with focussing out of my left eye. I went to the Optometrist who said all was fine - nerve, glaucoma, cataracts. I had been to an opthalmologist a month before with a stye (sorry!) and he carried out a similar exam and said the same. Ie: all was fine . But
About 2 weeks ago I started to have problems with focussing out of my left eye. I went to the Optometrist who said all was fine - nerve, glaucoma, cataracts. I had been to an opthalmologist a month before with a stye (sorry!) and he carried out a similar exam and said the same. Ie: all was fine . But
Predderman2020
in
PMRGCAuk
3 years ago
FT3 - A legal Requirement?
Dear All, I have a friend who is quite obviously suffering form thyroid troubles: dry skin, oedema, fatigue etc etc. However, he has been to his GP in Wales and they are consistently refusing to test his FT3 levels. his is obscuring an overall diagnosis. He has had it done, in the past, privately and
Dear All, I have a friend who is quite obviously suffering form thyroid troubles: dry skin, oedema, fatigue etc etc. However, he has been to his GP in Wales and they are consistently refusing to test his FT3 levels. his is obscuring an overall diagnosis. He has had it done, in the past, privately and
Eloisesupergirl
in
Thyroid UK
3 years ago
Pricking sensation
Hi all I awaiting my second Injection at the start of march. Every now and then I get a prickinling sensation on the outside front of my thigh. It's not pins and needles it's like a spikey tingly sensation. And the floaters are back in my eyes. Anyone else suffer this?
Hi all I awaiting my second Injection at the start of march. Every now and then I get a prickinling sensation on the outside front of my thigh. It's not pins and needles it's like a spikey tingly sensation. And the floaters are back in my eyes. Anyone else suffer this?
Darcey14
in
Pernicious Anaemia Society
3 years ago
Newly Diagnosed First Treatment Coming Up
Recently diagnosed with DME and going for first eylea injection in two days. Have always been one to put my faith in medical specialists. Hoping this works. Looking for good vibes and positive stories. Thanks for your time.
Recently diagnosed with DME and going for first eylea injection in two days. Have always been one to put my faith in medical specialists. Hoping this works. Looking for good vibes and positive stories. Thanks for your time.
elandja
in
Macular Society
3 years ago
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