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Pegasys and high levels of liver enzyme or
Hi everyone! I was diagnosed with PV Jak2 back in 2012 and was advised to continue aspirin regimen with Phlebotomys every 3 months as I was not high risk. So, I turned 60 last fall (considered high risk now) and was placed on low dose Pegasys interferon. I've only been on this drug for 2 months and
Hi everyone! I was diagnosed with PV Jak2 back in 2012 and was advised to continue aspirin regimen with Phlebotomys every 3 months as I was not high risk. So, I turned 60 last fall (considered high risk now) and was placed on low dose Pegasys interferon. I've only been on this drug for 2 months and
ritaandscooter1
in
MPN Voice
3 years ago
Long running prescription issues
I've had problems getting my drops for the last year, can get all my other meds with no problems, but recently it's getting really bad, I should get 10ml Dorzolomide& Timolol monthly, the last 2 scripts had given me 5ml, enough for 2 weeks, also it appears that GP surgery have over ruled the eye hospital
I've had problems getting my drops for the last year, can get all my other meds with no problems, but recently it's getting really bad, I should get 10ml Dorzolomide& Timolol monthly, the last 2 scripts had given me 5ml, enough for 2 weeks, also it appears that GP surgery have over ruled the eye hospital
Jennymary
in
Glaucoma UK
3 years ago
Dry Eyes
I have been really suffering with dry eyes, I was wondering if anyone else has the same problem? I know it's thyroid related, should I expect an improvement on the right dose of thyroid hormones or is it more to do with the autoimmune? Thanks 😊
I have been really suffering with dry eyes, I was wondering if anyone else has the same problem? I know it's thyroid related, should I expect an improvement on the right dose of thyroid hormones or is it more to do with the autoimmune? Thanks 😊
Lilacsocks
in
Thyroid UK
3 years ago
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Monopost side affects
I'm getting headaches and blurry vision, even though I've had a recent eye test. It was fo the optician at vision express that referred me to Glaucoma clinic in January. So I've been using Monopost drops since then. Will I be offered an alternative and do I stop using them straight away? My next appt
I'm getting headaches and blurry vision, even though I've had a recent eye test. It was fo the optician at vision express that referred me to Glaucoma clinic in January. So I've been using Monopost drops since then. Will I be offered an alternative and do I stop using them straight away? My next appt
Tattycat
in
Glaucoma UK
3 years ago
Worried
I’m really having a bad day today. I’ve felt a strange sensation on the top of my eyes not sure if it’s dry eye and when I put my glasses on I feel things are not so clear. Scared of going blind. I have been told disc cupping is 0.7 and 0.8 I googled and I think it’s really bad. I’m so sad right now.
I’m really having a bad day today. I’ve felt a strange sensation on the top of my eyes not sure if it’s dry eye and when I put my glasses on I feel things are not so clear. Scared of going blind. I have been told disc cupping is 0.7 and 0.8 I googled and I think it’s really bad. I’m so sad right now.
Hidden
in
Glaucoma UK
3 years ago
New here
Hi, I was diagnosed 9 weeks ago and have had two appointments. Diagnosis: left eye glaucomatous optic neuropathy, cataracts 3+ on both eyes and astigmatism on right eye. I’ve been using Monopost for 8 weeks and pressure has come down from16 on both eyes to 13 on L and 11 on R eye. Consultant is pleased
Hi, I was diagnosed 9 weeks ago and have had two appointments. Diagnosis: left eye glaucomatous optic neuropathy, cataracts 3+ on both eyes and astigmatism on right eye. I’ve been using Monopost for 8 weeks and pressure has come down from16 on both eyes to 13 on L and 11 on R eye. Consultant is pleased
14_50
in
Glaucoma UK
3 years ago
Hair loss and dry eye
I am female and I’ve been on 75mg of Levothyroxine for 10 years now, I have recently noticed my hair is receding and am suffering from dry eye conditions. Is there any supplement that can help me or do I need to ask for an increase in my medication. I recently had a blood test that said it was normal
I am female and I’ve been on 75mg of Levothyroxine for 10 years now, I have recently noticed my hair is receding and am suffering from dry eye conditions. Is there any supplement that can help me or do I need to ask for an increase in my medication. I recently had a blood test that said it was normal
frascina
in
Thyroid UK
3 years ago
Does anyone else have this
I'm going for blood tests tomorrow. I have had a sore throat for months. Dry eyes, dry nose, tingling in my mouth and lumps that look like they will be ulcers. My tongue is sore and I'm now itching behind my ears and on the inside of my wrists where I am now getting red spots. Dr has requested tests
I'm going for blood tests tomorrow. I have had a sore throat for months. Dry eyes, dry nose, tingling in my mouth and lumps that look like they will be ulcers. My tongue is sore and I'm now itching behind my ears and on the inside of my wrists where I am now getting red spots. Dr has requested tests
Den64
in
Anxiety Support
3 years ago
Promotion to a new a job
According to the Capita I have a new role - I have been classified as a walking aid, how I rank compared to a guide dog for the blind or an assistance dog for intelligence or hazard awareness is going to be a some debate ! Yesterday, my wife had her PIP telephone assessment. We had the usual trick questions
According to the Capita I have a new role - I have been classified as a walking aid, how I rank compared to a guide dog for the blind or an assistance dog for intelligence or hazard awareness is going to be a some debate ! Yesterday, my wife had her PIP telephone assessment. We had the usual trick questions
sospan
in
Headway
3 years ago
Struggling to be positive
At home with Stage 4 NSCLC with brain mets. Palliative care only. At first I was ok just trying to make the most of each day but finding it harder and harder to do this. Thinking about how long I’ve got , how fast I’ll deteriorate and how death will be Don’t know how to lift myself out of this
At home with Stage 4 NSCLC with brain mets. Palliative care only. At first I was ok just trying to make the most of each day but finding it harder and harder to do this. Thinking about how long I’ve got , how fast I’ll deteriorate and how death will be Don’t know how to lift myself out of this
Debs0768
in
The Roy Castle Lung Cancer Foundation
3 years ago
Nearing the end
This picture was just one month ago when Joe went to Vienna for cell balancing treatment and he looked AMAZING so it’s hard to believe just a month later- here we are. Joe refuses to go on hospice, but we have a palliative care doctor (who is also a hospice physician) who comes to our home. We are no
This picture was just one month ago when Joe went to Vienna for cell balancing treatment and he looked AMAZING so it’s hard to believe just a month later- here we are. Joe refuses to go on hospice, but we have a palliative care doctor (who is also a hospice physician) who comes to our home. We are no
joekaty
in
Advanced Prostate Cancer
3 years ago
Had first Appointment Yesterday
So as previously mentioned in Jan at routine opticians visit , he referred me to eye clinic at hospital ( Moorfields Bedford ) as iop was 24/23 and narrow angle in left eye (15) right ( 35) . Field test normal. Went to hospital yesterday had iop done had gone up 😢 26/28 . Corneas are slightly thicker
So as previously mentioned in Jan at routine opticians visit , he referred me to eye clinic at hospital ( Moorfields Bedford ) as iop was 24/23 and narrow angle in left eye (15) right ( 35) . Field test normal. Went to hospital yesterday had iop done had gone up 😢 26/28 . Corneas are slightly thicker
Lovemy2woofs
in
Glaucoma UK
3 years ago
Worried about Laparoscopy
Hi - I’m due to have a laparoscopy and hysteroscopy on Monday and I’m starting freak out a bit. I’m really worried about blood clots forming post surgery - I have intermittent positive antiphospholipid syndrome and have suffered acute coronary syndrome and a central retinal vein occlusion. I have not
Hi - I’m due to have a laparoscopy and hysteroscopy on Monday and I’m starting freak out a bit. I’m really worried about blood clots forming post surgery - I have intermittent positive antiphospholipid syndrome and have suffered acute coronary syndrome and a central retinal vein occlusion. I have not
emma1210
in
Endometriosis UK
3 years ago
Update & many Thanks to you all.
I wanted to give a big thank you to all of you that gave me such informative information. Boy did it help. Went to Specsavers this morning was very impressed with them. Upshot is a burst blood vessel caused she thinks by the possibility of high blood pressure. I’ve also got the beginning of cataracts
I wanted to give a big thank you to all of you that gave me such informative information. Boy did it help. Went to Specsavers this morning was very impressed with them. Upshot is a burst blood vessel caused she thinks by the possibility of high blood pressure. I’ve also got the beginning of cataracts
Caza
in
NRAS
3 years ago
Maintenance without Steroid
Has anyone got any suggestions? With inhaled steroids of any kind, my eye pressure is increasing. I have had an iridotomy in both eyes and the pressure decreased to 17. However, I started retaking Symbicort 100/6 one puff twice daily. Only doing this for 8 weeks and my eye pressure has increased to 25
Has anyone got any suggestions? With inhaled steroids of any kind, my eye pressure is increasing. I have had an iridotomy in both eyes and the pressure decreased to 17. However, I started retaking Symbicort 100/6 one puff twice daily. Only doing this for 8 weeks and my eye pressure has increased to 25
trimt
in
Asthma Community Forum
3 years ago
Steroids and cataracts
I had an eye test last week and was told I have developed steroid related cataracts (as opposed to age related). Something to get checked out for those with blurry vision. The optician also suggested a slight tint for my lenses to help with the extra light sensitivity they cause. The best news is
I had an eye test last week and was told I have developed steroid related cataracts (as opposed to age related). Something to get checked out for those with blurry vision. The optician also suggested a slight tint for my lenses to help with the extra light sensitivity they cause. The best news is
Waves2
in
PMRGCAuk
3 years ago
Cataract ops,PMR and vertigo
I haven’t posted for more than a year but on opening the app was delighted and amazed to see PMRPro and Dorset Lady still giving up their time helping us all. After 4 years I’m alternating between 4.00 and 4.5 every other day. PMR still hanging round but yoga and other exercises to start my day tend
I haven’t posted for more than a year but on opening the app was delighted and amazed to see PMRPro and Dorset Lady still giving up their time helping us all. After 4 years I’m alternating between 4.00 and 4.5 every other day. PMR still hanging round but yoga and other exercises to start my day tend
Pym1
in
PMRGCAuk
3 years ago
Drug side effects pilocarpine, dorzolamide/timolol, diamox generic acetazolomide
Narrow angle glaucoma cataract surgery in a few weeks. Taking pilocarpine, dorzolamide/timolol for over a month but recently seems to make me dizzy especially when lying flat. Also slowly withdrawing diamox 250mg. How can I lie still for surgery with this. Does anyone have advice or experience of this
Narrow angle glaucoma cataract surgery in a few weeks. Taking pilocarpine, dorzolamide/timolol for over a month but recently seems to make me dizzy especially when lying flat. Also slowly withdrawing diamox 250mg. How can I lie still for surgery with this. Does anyone have advice or experience of this
Crafted
in
Glaucoma UK
3 years ago
Advice please
I’ve been taking hydroxychoroquine for nine years now. Up until this year they were working well with no side effects. Since October I’ve been flaring regularly my joints have got a lot worse, as in painful & swollen. But also I’ve been feeling sick & have really itchy skin with a rash on my chest.
I’ve been taking hydroxychoroquine for nine years now. Up until this year they were working well with no side effects. Since October I’ve been flaring regularly my joints have got a lot worse, as in painful & swollen. But also I’ve been feeling sick & have really itchy skin with a rash on my chest.
Caza
in
NRAS
3 years ago
More advice please prior to GP consultation
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Pocketdog
in
PMRGCAuk
3 years ago
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