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Communities
50 public communities
Dancing Eye Syndrome Support Trust
107 members
The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.
Care Community
5,889 members
The Care Community is a place for all carers to discuss health and caring for loved ones, particularly in later life. Talking about the challenges you face as a carer for an older person can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
Xeroderma Pigmentosum UK
144 members
We are the only designated national service for xeroderma pigmentosum in the UK. We diagnose and treat adults and children from across the country, working closely with our specialists in dermatology, neurology, genetics, ophthalmology (eye) and psychology.
Reedyford Health Care
18 members
Reedyford Health Care is a community dedicated to providing reliable information and support to its members
Bereavement Care & Share
877 members
The purpose of this Community is to care, share and support members who have been bereaved and suffering grief. A place of refuge to chat to others in a similar situation and share your distress. Ultimately, a place to find support and offer others support too.
Talk ED (eating disorders)
3,554 members
Talk ED (previously ABC) is a national UK eating disorders organisation with over 25 years of experience. We provide on-going care, emotional support and practical guidance for anyone affected by eating disorders. We support and care for those struggling personally and resource and equip parents, families, friends and professionals.
HealthWeb Navigator
228 members
The goal of this community is to help patients to find the best resources about the health care. At HealthWeb Navigator, we evaluate healthcare websites, allowing users to see which resources provide consumer-friendly and up-to-date information. Health care has become complicated. Many patients are spending more of their own money to cover medical costs and less time receiving the care they need. Consumers are turning to the internet for diagnosis and learning more about health conditions. Major challenges include understanding medical costs and conditions, finding the right doctor or hospital, and accessing the latest research.
Sharing patient stories - Picker Institute Europe
90 members
The Picker Institute Europe put patients first always. We believe that the only way to improve the quality of care available is to ask YOU, the patient, what you want, need and expect from your treatment. We are committed to measuring, understanding and sharing your feedback so that it can then be used to improve health & social care services and experiences. To contribute to this important conversation, join our community and share your experiences with us!
South West Wales Neurological Alliance
293 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.
Making Space
900 members
We are a UK charity providing quality care and support to people with a wide variety of needs including those with physical and/or mental health conditions, learning disabilities and dementia.
DC Action
28 members
We are a peer support group for people and families affected by telomeropathies and dyskeratosis congenita (DC). DC Action aims to improve diagnosis, treatment and health services. DC is rare but other telomeropathies may be more common and can be confused with other conditions. Specialist care is essential but can be difficult to find. Please share your experiences. We are a small group so it's really important that our voices are heard to help improve access to specialist care and treatment. Post about diagnosis, treatment, access to health services, share problems, ask questions and offer solutions. Polls and questionnaires will help us to lobby for better NHS services.
Atrial Fibrillation Support
31,758 members
AF Association supports individuals affected by, or involved in the care of atrial fibrillation (AF). We are an international charity providing support through various means, including a helpline and comprehensive resources written by experts in the field and endorsed by the Department of Health.
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