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Has anyone experienced this...
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
Fauncey
in
British Liver Trust
1 year ago
Discontinuing hydroxychloroquine (or not)
I have fairly mild SLE and have stopped hydroxychloroquine because of some unrelated retinal damage caused by sepsis. I find I am tired all the time, more sun sensitive than ever, and frequently get oral ulcers. I'm not sure whether to risk more eye damage by returning to hydroxychloroquine or to risk
I have fairly mild SLE and have stopped hydroxychloroquine because of some unrelated retinal damage caused by sepsis. I find I am tired all the time, more sun sensitive than ever, and frequently get oral ulcers. I'm not sure whether to risk more eye damage by returning to hydroxychloroquine or to risk
Paloma25
in
LUPUS UK
1 year ago
EMDR.. anyone?
I am due to start EMDR next week. I have put it off for quite some time for one reason or another but I finally feel brave enough to start this. Anyone else on this journey? Or any success stories? My therapist thinks I have lots of little traumas mostly including health and death and believes this will
I am due to start EMDR next week. I have put it off for quite some time for one reason or another but I finally feel brave enough to start this. Anyone else on this journey? Or any success stories? My therapist thinks I have lots of little traumas mostly including health and death and believes this will
Kimbad1990
in
Anxiety and Depression Support
6 months ago
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Dry eyes and mouth
Is sea buckthorn oil capsules good for sjogrens syndrome? I had this diagnosis yrs ago and I know there is a correlation between sjogrens and hashimotos which I also have. Tried lots of eye lubricants (Prescriotion and OTC ) and oral sprays over the years but nothing has helped. Think I may have heard
Is sea buckthorn oil capsules good for sjogrens syndrome? I had this diagnosis yrs ago and I know there is a correlation between sjogrens and hashimotos which I also have. Tried lots of eye lubricants (Prescriotion and OTC ) and oral sprays over the years but nothing has helped. Think I may have heard
Hollybushroad
in
Thyroid UK
1 year ago
Hashimoto and Thyroid Eye Disease
Hi, I developed symptoms in my left eye about two weeks ago. First thought it was hayfever related, but it's only in my left eye. It started feeling worse (itching, sensation of swollen eye, some swelling in the under eye area) so I went to go see an ophthalmologist. He diagnosed me with Thyroid Eye
Hi, I developed symptoms in my left eye about two weeks ago. First thought it was hayfever related, but it's only in my left eye. It started feeling worse (itching, sensation of swollen eye, some swelling in the under eye area) so I went to go see an ophthalmologist. He diagnosed me with Thyroid Eye
thyroidqueen12
in
Thyroid UK
1 year ago
ET and healing
Hello. Has anyone experience of slow healing/healing complications following surgery? On both occasions of punch biopsy the wounds have been slow to heal, have become infected requiring antibiotics, similarly with a tooth extraction. I am on the waiting list for eye surgery and am anxious that I may
Hello. Has anyone experience of slow healing/healing complications following surgery? On both occasions of punch biopsy the wounds have been slow to heal, have become infected requiring antibiotics, similarly with a tooth extraction. I am on the waiting list for eye surgery and am anxious that I may
YogaLover
in
MPN Voice
1 year ago
Hydroxyurea to give
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
william-Indo
in
MPN Voice
1 year ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
1 year ago
eye problem
Hi all, any advice as it being Saturday. Yesterday, right eye got a swelling at the side of eyebrow, not painful just hurt to touch. By last night small lump which then became very itchy developed. Thought it may be a bite. Woke up this am. Small lump or spot still there, still itchy but eyelid all puffy
Hi all, any advice as it being Saturday. Yesterday, right eye got a swelling at the side of eyebrow, not painful just hurt to touch. By last night small lump which then became very itchy developed. Thought it may be a bite. Woke up this am. Small lump or spot still there, still itchy but eyelid all puffy
lennysmummy
in
PMRGCAuk
1 year ago
Eye watering
I had my acoustic neuroma surgery in 2018. I have been using Hylo Forte eye drops to keep my eye moist. Surgery was performed on right side and my right eye has always been good. But from past two days that eye is constantly watering. Does anyone know why?
I had my acoustic neuroma surgery in 2018. I have been using Hylo Forte eye drops to keep my eye moist. Surgery was performed on right side and my right eye has always been good. But from past two days that eye is constantly watering. Does anyone know why?
Frooti
in
Acoustic Neuroma Support
1 year ago
Help please is it possible in a month for the angle to change from narrow to wide open angles? This just doesn’t make sense to me.
Hello again, Well I am still in the system waiting for my next appointment on July 4th. My new consultant says I now have treated primary narrow angles, does that mean the laser has worked is this what opens the angles? My letter on 17th April stated the following: This was 6 Weeks after 2nd
Hello again, Well I am still in the system waiting for my next appointment on July 4th. My new consultant says I now have treated primary narrow angles, does that mean the laser has worked is this what opens the angles? My letter on 17th April stated the following: This was 6 Weeks after 2nd
KBIOW
in
Glaucoma UK
1 year ago
Upcoming Trabeculectomy
I've put a couple of posts on here, mainly about driving and my troubles with Specsavers and the DVLA. I'm currently still driving after getting a 12 month licence back on appeal. My latest visits to my consultant have revealed that my pressures are rising in both eyes ([i]I have advanced closed angle
I've put a couple of posts on here, mainly about driving and my troubles with Specsavers and the DVLA. I'm currently still driving after getting a 12 month licence back on appeal. My latest visits to my consultant have revealed that my pressures are rising in both eyes ([i]I have advanced closed angle
nstewart61
in
Glaucoma UK
1 year ago
Uti and vaginal irritation
.I suffer from recurrant uti .I also have on going vaginal itching on and off .does anyone have this prob and could uti cause irritation. Would appreciate any information thank you and have a nice day 🥲
.I suffer from recurrant uti .I also have on going vaginal itching on and off .does anyone have this prob and could uti cause irritation. Would appreciate any information thank you and have a nice day 🥲
Dextersam10
in
Pelvic Pain Support Network
1 year ago
DVLA /SPECSAVERS
Hi everyone -after reading of so many people and their awful experience with Specsavers and having licences revoked- and I am so fearful for my own future in this regard as we just never know! I contacted the administrators of this group to see if they could help or raise issues on our behalf and I
Hi everyone -after reading of so many people and their awful experience with Specsavers and having licences revoked- and I am so fearful for my own future in this regard as we just never know! I contacted the administrators of this group to see if they could help or raise issues on our behalf and I
swanlady123
in
Glaucoma UK
1 year ago
Woo hoo I've finally smashed it!
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Sax64
Graduate
in
Couch to 5K
1 year ago
Blepharitis and Gluacoma
Does anyone suffer with the above with their gluacoma, my gluacoma is open Angle and I also have Cataracts in both eyes which need surgery but first I have to get my blepharitis uncontrol, I have brought a eye bag to heat in the microwave which is working well, are there other things people used like
Does anyone suffer with the above with their gluacoma, my gluacoma is open Angle and I also have Cataracts in both eyes which need surgery but first I have to get my blepharitis uncontrol, I have brought a eye bag to heat in the microwave which is working well, are there other things people used like
PeterRabbit62
in
Glaucoma UK
1 year ago
new hear
Hi everyone. I’m a survivor of a traumatic childhood. And over the years, have been in private and group therapy(typical). With a little success . I’m reading the book the body keeps the score. In it, the author talks about emdr and neurofeedback and some other things I have not tried. But I don’
Hi everyone. I’m a survivor of a traumatic childhood. And over the years, have been in private and group therapy(typical). With a little success . I’m reading the book the body keeps the score. In it, the author talks about emdr and neurofeedback and some other things I have not tried. But I don’
Notmuch
in
Anxiety and Depression Support
6 months ago
US doctor discusses ways to prevent PD
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
pvw2
in
Cure Parkinson's
1 year ago
Pegasys Injection Help
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
russkatt
in
MPN Voice
1 year ago
Desperate
Hi,I have suffered from anxiety all my life, I've always been nervous and have little confidence. In 2020, I was diagnosed with CPTSD, and initially had a few sessions of EMDR, and also hypnotise, neither of which worked. I subsequent developed chronic panic attacks, which were more like seizures/ fits
Hi,I have suffered from anxiety all my life, I've always been nervous and have little confidence. In 2020, I was diagnosed with CPTSD, and initially had a few sessions of EMDR, and also hypnotise, neither of which worked. I subsequent developed chronic panic attacks, which were more like seizures/ fits
Patkin50
in
Mental Health Support
7 months ago
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