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IBS meds not working....
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Hello, I have been struggling with an IBS flare for 3 months, I'm taking Alverine and Peppermint capsules. My GP has checked for celiac disease which thankfully was normal, had my poo checked twice, bloods are fine except for inflammation markers slightly raised, checked my thyroid but it's fine as
Kooks
in
IBS Network
6 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
8 months ago
May be doing IV chemo for the first time. Need tips - really freaked out!
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Hi, so I’ve successfully avoided doing IV chemo since 2019. But due to bone mets I just had hip surgery and the pills I’ve been on are not working. I was told by the surgeon 2 days ago that I need systemic treatment asap or I’ll die. I’m having a petscan tomorrow and depending on how it looks, I’ll
Verbena1
in
SHARE Metastatic Breast Cancer
8 months ago
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Decision Time (again)
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
Time to decide (again) how to proceed. 2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. Began active surveillance. 10/2023 New status: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral
adventure4me
in
Prostate Cancer Network
8 months ago
8CT Scan Protocol
I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist wants to do one not because nodes are palpably swollen but because of my anxiety about other symptoms. This doesn't seem reason to expose myself
I have SLL, been on BTKs for 2.5 years. I still have a lot of disease symptoms + drug side effects. It's been 2 years since my last CT scan and hematologist wants to do one not because nodes are palpably swollen but because of my anxiety about other symptoms. This doesn't seem reason to expose myself
Amberesque
in
CLL Support
8 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
6 months ago
Functional B12 problem, advice wanted
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Hi Over the last 20 odd years I got very sick with lots of the typical PA symptoms. I was virtually housebound and incapable of any physical activity, with lots of neurological problems, muscle wasting, anemia etc. These were so pronounced that I received a preliminary (incorrect) diagnosis of motor
Uluru72
in
Pernicious Anaemia Society
6 months ago
Buprenorphine and nausea
I have received much support from various persons on this forum concerning the nausea I suffer from the low dose use of buprenorphine to block my RLS. However this symptom remains unresolved and I am posting my situation in case there are some of you who might be able to enlighten me further? I currently
I have received much support from various persons on this forum concerning the nausea I suffer from the low dose use of buprenorphine to block my RLS. However this symptom remains unresolved and I am posting my situation in case there are some of you who might be able to enlighten me further? I currently
davchar23
in
Restless Legs Syndrome
3 months ago
Buprenorphine side effects
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
davchar23
in
Restless Legs Syndrome
3 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Finally a specialist appointment...
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
NewEnglander
in
IBS Network
6 months ago
Newly diagnosed MBC
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
I am a cancer survivor of 25 years but a recent ER trip, (I was sent there by my PCP because my blood pressure was really high). Five hours later, a CT scan among other scans and blood work, I was diagnosed with metastatic breast cancer. Left breast same side as previous breast cancer. This time it was
monkeygirl62
in
SHARE Metastatic Breast Cancer
8 months ago
do I need to stop Biotin containing supplements before a Blue Horizon iron status profile test?
I am testing my iron after very low ferritin results on a thyroid plus vitamins test ( I am seeing a Dr at private online clinic from the Thyroid UK list) In the past II had normal/high iron, so before I supplement I want to check all the iron indicators my question is: do I need to stop my b complex
I am testing my iron after very low ferritin results on a thyroid plus vitamins test ( I am seeing a Dr at private online clinic from the Thyroid UK list) In the past II had normal/high iron, so before I supplement I want to check all the iron indicators my question is: do I need to stop my b complex
london81
in
Thyroid UK
6 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
6 months ago
cancer spread to bone marrow
My husband was told by his doctor that his prostate cancer might have spread to the bone marrow. He is waiting to have Bone marrow biopsy done. Has anyone had their cancer spread to the marrow and what type of treatment have you done?
My husband was told by his doctor that his prostate cancer might have spread to the bone marrow. He is waiting to have Bone marrow biopsy done. Has anyone had their cancer spread to the marrow and what type of treatment have you done?
Peloton
in
Advanced Prostate Cancer
8 months ago
Information and experiences please?
Hello. I am new, here on behalf of a friend with lung cancer. She is an otherwise healthy 75 year-old. A CT scan shows multiple spots in her lungs as well as a mass. She is to hear the results of a PET scan on Wednesday and to talk about treatment. Can you give us some idea what to expect? If the
Hello. I am new, here on behalf of a friend with lung cancer. She is an otherwise healthy 75 year-old. A CT scan shows multiple spots in her lungs as well as a mass. She is to hear the results of a PET scan on Wednesday and to talk about treatment. Can you give us some idea what to expect? If the
marcyh
in
Lung Cancer Support
8 months ago
Precancerous polyps removed, new symptoms 8 years later
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
Incogkneetoe
in
Colon Cancer Connected
6 months ago
HCC cancer diagnosis
Hi everyone. my partner recently diagnosed with HCC and awaiting which treatment he should have. Either ablation or resection. The hospital called and told him the surgeon is unsure if it is hcc and wants a ct scan done. Now we are wondering what it could be. Has anyone else had this experience .
Hi everyone. my partner recently diagnosed with HCC and awaiting which treatment he should have. Either ablation or resection. The hospital called and told him the surgeon is unsure if it is hcc and wants a ct scan done. Now we are wondering what it could be. Has anyone else had this experience .
pussycat66
Patient
in
Blue Faery Liver Cancer
8 months ago
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
A somewhat lacklustre MHRA warning: [i]
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
[/i] [i][/i] [i]The medicines used to treat vitamin B12 deficiency (hydroxocobalamin, cyanocobalamin) contain cobalt. There
A somewhat lacklustre MHRA warning: [i]
Vitamin B12 (hydroxocobalamin, cyanocobalamin): advise patients with known cobalt allergy to be vigilant for sensitivity reactions
[/i] [i][/i] [i]The medicines used to treat vitamin B12 deficiency (hydroxocobalamin, cyanocobalamin) contain cobalt. There
helvella
in
Pernicious Anaemia Society
6 months ago
Any advice for gastro symptoms which respond to steroids, but no diagnosis? Does normal colonoscopy cover the small bowel?
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
Megaloo
in
Crohn's and Colitis Support
6 months ago
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