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Hi all an update on my new rheumy
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
REBOOTING THE QUEST FOR HEALTHY LONGEVITY
[i]Dr. Ilia Stambler of Vetek – the Movement for Longevity and Quality of Life, speaking at the Longevity Nation conference at Bar-Ilan University, March 2023. Photo by Daria Chekhova/Vetek[/i]
Conference explores the biology of aging after pandemic years saw a global decline in average
[i]Dr. Ilia Stambler of Vetek – the Movement for Longevity and Quality of Life, speaking at the Longevity Nation conference at Bar-Ilan University, March 2023. Photo by Daria Chekhova/Vetek[/i]
Conference explores the biology of aging after pandemic years saw a global decline in average
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
*MCAS
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
We are currently in the middle of an important fundraising campaign to kickstart the production of a documentary. We are contacting businesses and individuals who share our passion for helping people with MCAS. Your donation, no matter how big or small, can make a meaningful impact and will be put to
Shewulf
Administrator
in
LDN Research Trust
1 year ago
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Germantara
I've getting my medical summary from doctors cause as you know I'm doing pip had fantastic advice and would like to thank everyone Well I was looking at it and some I didn't understand so I googled them the copd stage I'm at I'm end stage 3 it said I've got 5 to 8 years to live I thought
I've getting my medical summary from doctors cause as you know I'm doing pip had fantastic advice and would like to thank everyone Well I was looking at it and some I didn't understand so I googled them the copd stage I'm at I'm end stage 3 it said I've got 5 to 8 years to live I thought
Germantara
in
Lung Conditions Community Forum
10 months ago
awful cough before transfer- can I take anything?
Hello everyone, I hope everyone is doing ok on their journey. I have my transfer on Monday morning and have the worst cough I’ve ever had, it’s so chesty and painful. I just wondered if I could take some cough medicine or anything in advance of transfer or if it will affect my lining or chances? I
Hello everyone, I hope everyone is doing ok on their journey. I have my transfer on Monday morning and have the worst cough I’ve ever had, it’s so chesty and painful. I just wondered if I could take some cough medicine or anything in advance of transfer or if it will affect my lining or chances? I
Daisy-Delilah
in
Fertility Network UK
10 months ago
Itchy ear
Hi all I have too much itchy in my left ear. Which one is a big hole inside. I can’t use any ears drops because of the hole .antihistamine ointment doesn’t work. recently dr gave me fexofenadine hydrochloride tablets 120mg . it’s not work. dr referred me to ENT again but I don’t know when I get appointment
Hi all I have too much itchy in my left ear. Which one is a big hole inside. I can’t use any ears drops because of the hole .antihistamine ointment doesn’t work. recently dr gave me fexofenadine hydrochloride tablets 120mg . it’s not work. dr referred me to ENT again but I don’t know when I get appointment
sun_1234
in
Tinnitus UK
1 year ago
Runny
My nose keeps running and I have to cough to clear throat what can it be?
My nose keeps running and I have to cough to clear throat what can it be?
amberrose2
in
PSP Association
10 months ago
Long Covid gut symptoms
Does anyone have experience with long coviid and problems with abdominal pain, bloating and slower gut transit times? I am still waiting for a diagnosis of symptoms since having an episode of low blood pressure and dizziness after trying to return to work 3 weeks after getting covid for the first time
Does anyone have experience with long coviid and problems with abdominal pain, bloating and slower gut transit times? I am still waiting for a diagnosis of symptoms since having an episode of low blood pressure and dizziness after trying to return to work 3 weeks after getting covid for the first time
Purpledharma
in
Thyroid UK
1 year ago
Change from Nucala to Dupixent
Hello all! I don’t post much but read daily. I have eosinophilic asthma and chronic sinusitis. I’ve been on Nucala for the last 5 years and have been relatively well controlled. After a mild case of covid I developed bronchitis and was treated, but after that, I can’t seem to stop coughing. I have constant
Hello all! I don’t post much but read daily. I have eosinophilic asthma and chronic sinusitis. I’ve been on Nucala for the last 5 years and have been relatively well controlled. After a mild case of covid I developed bronchitis and was treated, but after that, I can’t seem to stop coughing. I have constant
kdr112
in
Asthma Community Forum
10 months ago
FLU VACCINE
I am in the UK on Venetoclax and have just spent 5 days in hospital with COVID. Is it safe to have the flu vaccine and is it hit or miss whether the vaccine is actually for the strain of flu which is going to be around this winter
I am in the UK on Venetoclax and have just spent 5 days in hospital with COVID. Is it safe to have the flu vaccine and is it hit or miss whether the vaccine is actually for the strain of flu which is going to be around this winter
Marisa
in
CLL Support
10 months ago
Dreading seeing the Rheumatologist
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Bramble2000
in
PMRGCAuk
1 year ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
10 months ago
Drogheda 10K
Due to that awful Covid pandemic 😷 I had kind of lost my mojo for running as there was nothing to train for. My running went from 4 days per week to one or two days per week. My fitness dropped and I gained weight, a Covid stone plus another for good measure. I was finding it hard to get back into
Due to that awful Covid pandemic 😷 I had kind of lost my mojo for running as there was nothing to train for. My running went from 4 days per week to one or two days per week. My fitness dropped and I gained weight, a Covid stone plus another for good measure. I was finding it hard to get back into
damienair
Administrator
in
Bridge to 10K
1 year ago
Covid
Well at last I got the dreaded Covid!! First signs were cough and awful taste in my mouth. Also my tinnitus was off the scale. I thought it was a bad flare! But this is different. Getting anti-virals tomorrow. I suppose it was bound to happen....
Well at last I got the dreaded Covid!! First signs were cough and awful taste in my mouth. Also my tinnitus was off the scale. I thought it was a bad flare! But this is different. Getting anti-virals tomorrow. I suppose it was bound to happen....
Salamanca21
in
NRAS
1 year ago
Slow, slow, quick quick slow -to taper or not?
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
IdasMum
in
PMRGCAuk
1 year ago
osteoarthritis hip pain
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
Margie21
in
Osteoarthritis Action
1 year ago
Rheumatologist appointment help
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Good Morning. ( This is a long story so will try to make it as condensed as I can) 4 years ago I was diagnosed with PMR after painful joints, hands arms, shoulders and toes. I was put on a dose of 40mg of pred as they also thought I may have GCA. Although that turned out to be a dental issue. I was
Gyspysmum
in
NRAS
1 year ago
covid booster - adverse reaction?
Hi - first of all a big thank you to all contributors and the admin on this site. The advice given has got me through some challenging times, particularly when I was first diagnosed with PMR about a year ago. Initially I was prescribed 15 mg and this immediately eased the pain. I was then left to
Hi - first of all a big thank you to all contributors and the admin on this site. The advice given has got me through some challenging times, particularly when I was first diagnosed with PMR about a year ago. Initially I was prescribed 15 mg and this immediately eased the pain. I was then left to
Mandyq
in
PMRGCAuk
1 year ago
methotrexate and Covid booster
I’ve just had my Covid booster, when I asked the nurse if I should pause my methotrexate for 2 weeks she said, no, definitely not. She checked with the GP there and they said there was no evidence to support pausing methotrexate. I’ve definitely read that pausing methotrexate is helpful. I’m currently
I’ve just had my Covid booster, when I asked the nurse if I should pause my methotrexate for 2 weeks she said, no, definitely not. She checked with the GP there and they said there was no evidence to support pausing methotrexate. I’ve definitely read that pausing methotrexate is helpful. I’m currently
Avon14
in
PMRGCAuk
1 year ago
Covid booster prednisolone dose criterion - NHS
Update to post below: Thanks firstly to all who responded illustrating the inconsistency in Covid booster policy. Anyhow, after being refused a booster by my GP practice, I received an NHS text asking me to come in for a booster as I “may” meet the criteria … again to be assessed when presenting myself
Update to post below: Thanks firstly to all who responded illustrating the inconsistency in Covid booster policy. Anyhow, after being refused a booster by my GP practice, I received an NHS text asking me to come in for a booster as I “may” meet the criteria … again to be assessed when presenting myself
Bungalows
in
PMRGCAuk
1 year ago
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