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Thrombocytopenia?
I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with the dogs in case their claws catch me, I can't get to the outdoor tap because it's buried in the hedge that will attack me and wrench off a lump
I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with the dogs in case their claws catch me, I can't get to the outdoor tap because it's buried in the hedge that will attack me and wrench off a lump
Coppernob
in
Hughes Syndrome APS Forum
1 year ago
Anxiety about all the immune based meds
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
Skittles11
in
Fertility Network UK
1 year ago
Chemo round 2 - fingernail beds feel bruised
This isn’t how I pictured neuropathy feeling, that would be numbness or pins and needles, correct? Yesterday I noticed pressing on my fingernail caused a bruising feeling. Today some of the fingernail beds just ache a little, and feel bruised when touched. It’s obviously from chemo, is there a name
This isn’t how I pictured neuropathy feeling, that would be numbness or pins and needles, correct? Yesterday I noticed pressing on my fingernail caused a bruising feeling. Today some of the fingernail beds just ache a little, and feel bruised when touched. It’s obviously from chemo, is there a name
Gl448
in
Advanced Prostate Cancer
2 years ago
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ivig advice and experiences
hi all I need to have IVIG for my frozen embryo transfer soon. We have been quoted 1.8k . …just wondering how much you paid and how many infusions of IVIG you needed? thanks!
hi all I need to have IVIG for my frozen embryo transfer soon. We have been quoted 1.8k . …just wondering how much you paid and how many infusions of IVIG you needed? thanks!
Poop84
in
Fertility Network UK
1 year ago
ERA results advice needed
Hi I have had my endo trio me test my Emma Alice and era results back. All is fine but I have elevated nk cell blood markers in particular cd19 ….I did a Google and it says it’s indicative of b lymphoma or an auto immune issue. Has anyone experienced this? I don’t want to worry but my consultant didn
Hi I have had my endo trio me test my Emma Alice and era results back. All is fine but I have elevated nk cell blood markers in particular cd19 ….I did a Google and it says it’s indicative of b lymphoma or an auto immune issue. Has anyone experienced this? I don’t want to worry but my consultant didn
Poop84
in
Fertility Network UK
1 year ago
Viagra, Ambien?
I have been on Cialis for several years now and worked pretty well, until lately. I've have had total failure with it. Dr. gave me a script for Viagra. I tried it twice and both times it knocked me out after 30 minutes. I wasn't even tired either. Slept for 4 hours and woke up with a killer hard on.
I have been on Cialis for several years now and worked pretty well, until lately. I've have had total failure with it. Dr. gave me a script for Viagra. I tried it twice and both times it knocked me out after 30 minutes. I wasn't even tired either. Slept for 4 hours and woke up with a killer hard on.
richlandfarmboy
in
Men's Health Forum
2 years ago
COMT inhibitors
He is now off all the bad stuff and has implemented his own
healthy
living
protocol. Phew! Also hubby has had a week with his older 2 kids looking after while I went away to a family wedding which he was dreading as he didn’t want them to see him in his state.
He is now off all the bad stuff and has implemented his own
healthy
living
protocol. Phew! Also hubby has had a week with his older 2 kids looking after while I went away to a family wedding which he was dreading as he didn’t want them to see him in his state.
LAJ12345
in
Cure Parkinson's
1 year ago
The NICE guidelines for diagnosis and rehabilitation of TBI of all types have been updated. Good news and bad news.
The current model includes mental health and good
living
recommendations (anti-depressants, nerve inhibitors), psychological therapy and
healthy
eating without any advice on active rehabilitation. https://www.nice.org.uk/guidance/ng211 Have you been diagnosed properly?
The current model includes mental health and good
living
recommendations (anti-depressants, nerve inhibitors), psychological therapy and
healthy
eating without any advice on active rehabilitation. https://www.nice.org.uk/guidance/ng211 Have you been diagnosed properly?
Hidden
in
Headway
8 months ago
Viagra
Since my stroke my interest has dropped down to noting, I'm fine with that but have a girlfriend, wondering any knows if i take it with my current medication, MTX, and whole load of others. Is it something I ask neurologist? or take it in my own?
Since my stroke my interest has dropped down to noting, I'm fine with that but have a girlfriend, wondering any knows if i take it with my current medication, MTX, and whole load of others. Is it something I ask neurologist? or take it in my own?
PhoenixJ75
in
Men's Health Forum
2 years ago
Candida with Cellcept
I am being treated for primary ethromelalgia, Sjogrens, and Scleroderma. Has anyone had oral thrush associated with taking Cellcept? I have been on Cellcept for three months and IVIG for 14 months. Today, the inside of my lower lip exploded with white bumps. My research indicates that Candida is common
I am being treated for primary ethromelalgia, Sjogrens, and Scleroderma. Has anyone had oral thrush associated with taking Cellcept? I have been on Cellcept for three months and IVIG for 14 months. Today, the inside of my lower lip exploded with white bumps. My research indicates that Candida is common
HALNEUROPATHY
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Zanubrutinib and water intake and sodium level
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
Bethsaida
in
CLL Support
1 year ago
Hello friend
Thanks again Hunter may 2003 find you happy,
healthy
and
living
with ease MPN buddy Adiewon.
Thanks again Hunter may 2003 find you happy,
healthy
and
living
with ease MPN buddy Adiewon.
Hidden
in
MPN Voice
2 years ago
Colonoscopy & CT scan
This time a year ago I was
living
my best life, I felt happy &
healthy
, now I’m the total opposite of the person I was which makes me so sad & upset. 😞 At least on Sunday I know I will get some answers from the colonoscopy. I absolutely dreading the prep.
This time a year ago I was
living
my best life, I felt happy &
healthy
, now I’m the total opposite of the person I was which makes me so sad & upset. 😞 At least on Sunday I know I will get some answers from the colonoscopy. I absolutely dreading the prep.
Mah43
in
Colon Cancer Connected
8 months ago
thought provoking book
lifespan - why we age and why we don’t have to David Sinclair Having read literally 00s of
healthy
living
/
healthy
diet books over the past 4 decades, I am half way through this book and it has introduced me to some new understand about how our bodies work that will motivate me to keep strong in my
lifespan - why we age and why we don’t have to David Sinclair Having read literally 00s of
healthy
living
/
healthy
diet books over the past 4 decades, I am half way through this book and it has introduced me to some new understand about how our bodies work that will motivate me to keep strong in my
Danielj1
in
Thyroid UK
2 years ago
When to give up.....?
So today I got a BFN on my latest round. Was my 7th in total but 5th failed transfer (nothing to transfer in the other 2). It was our 3rd transfer with donor eggs. I know I have some immune issues and they've tried various options to treat them- prednisole, tacrolimus, IVIG, granocyte. How do you decide
So today I got a BFN on my latest round. Was my 7th in total but 5th failed transfer (nothing to transfer in the other 2). It was our 3rd transfer with donor eggs. I know I have some immune issues and they've tried various options to treat them- prednisole, tacrolimus, IVIG, granocyte. How do you decide
river242
in
Fertility Network UK
1 year ago
Brain shrinking
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
Kw55
in
Encephalitis International
1 year ago
Yay for The Last Hawaii QoL post 🤣
Last chance for romance, its the last dancehttps://youtu.be/v22YbORzDD0 Day started with a shopping trip to get Mom Chinese dumplings for lunch and sashimi/sushi for me🤗. Then the Chinese Lion Dance happened🎉😁 https://www.chinahighlights.com/travelguide/special-report/chinese-new-year/new-year-lion-dance.htm
Last chance for romance, its the last dancehttps://youtu.be/v22YbORzDD0 Day started with a shopping trip to get Mom Chinese dumplings for lunch and sashimi/sushi for me🤗. Then the Chinese Lion Dance happened🎉😁 https://www.chinahighlights.com/travelguide/special-report/chinese-new-year/new-year-lion-dance.htm
dockam
in
Advanced Prostate Cancer
2 years ago
update
i informed in my last post about my father advised to start acalabrutinib soon . but it was paused for some time as we admitted him in hospital last to last week due to sudden onset of fever and cough . after a 5 days course of amoxicillin followed by first IVIG the fever went down & it took 4-5 days
i informed in my last post about my father advised to start acalabrutinib soon . but it was paused for some time as we admitted him in hospital last to last week due to sudden onset of fever and cough . after a 5 days course of amoxicillin followed by first IVIG the fever went down & it took 4-5 days
Hidden
in
CLL Support
1 year ago
Hello everyone
I really hope I’m doing this right and posting in the correct place. This is my first week of joining the weight loss support. For the first few weeks I’m going to follow a very low calorie sole source diet. It seems to be the only way I’ve had success in the past. Starting weight today 88kg Would
I really hope I’m doing this right and posting in the correct place. This is my first week of joining the weight loss support. For the first few weeks I’m going to follow a very low calorie sole source diet. It seems to be the only way I’ve had success in the past. Starting weight today 88kg Would
Halcyon-Days
Visitor
in
Weight Loss Support
2 years ago
Friend or Foe ?
Your friend does not believe in being
healthy
. He is really repulsed by the thought of you
living
a long and productive life. So every chance he gets he makes you sick. He helps you catch colds and flu. Not just by running out in the middle of the lousy weather to pick him up at the store.
Your friend does not believe in being
healthy
. He is really repulsed by the thought of you
living
a long and productive life. So every chance he gets he makes you sick. He helps you catch colds and flu. Not just by running out in the middle of the lousy weather to pick him up at the store.
monky
Administrator
in
Quit Support
3 months ago
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