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IVIG recommended
I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG counts remain quite low. My oncologist is recommending IVIG infusions. Has anyone had these? How were the infusions tolerated? Thank you!
I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG counts remain quite low. My oncologist is recommending IVIG infusions. Has anyone had these? How were the infusions tolerated? Thank you!
Cllinmaryland
in
CLL Support
2 years ago
VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
CLLerinOz
Administrator
in
CLL Support
2 years ago
Aciclovir side effects
I am getting cloudy urine as I treat my shingles. Has anyone experienced this? I have done a urine test strip and all appears normal. Advice welcome. Thanks.
I am getting cloudy urine as I treat my shingles. Has anyone experienced this? I have done a urine test strip and all appears normal. Advice welcome. Thanks.
omits
in
Men's Health Forum
2 years ago
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Please help! RLS is very bad, also have leukemia, hemochromatosis and severely low immune globulins. Never heard of augmentation till read
Hi RLS community, I just joined. I have had RLS for 23 years but it has been fairly successfully treated with Mirapex although I have been on the max dose for a couple of years. I have been focusing on my other problems and not the RLS because as long as I took the pills by 7pm I could go to bed.
Hi RLS community, I just joined. I have had RLS for 23 years but it has been fairly successfully treated with Mirapex although I have been on the max dose for a couple of years. I have been focusing on my other problems and not the RLS because as long as I took the pills by 7pm I could go to bed.
maggiesgrandmom
in
Restless Legs Syndrome
2 years ago
Unexpected remission - Maybe it will help (even one person)
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Loftyc
in
ITP Support Association
2 years ago
complex question like your views please.
Hey everyone hope you’re all having a good day. So here’s my question. I’m currently taking 7.5 injections of methotrexate and yesterday I had a routine appointment with immunology. I’m clinically immune suppressed due to retuximab infusions in 2013 which knocked out my immunoglobulins and they’ve never
Hey everyone hope you’re all having a good day. So here’s my question. I’m currently taking 7.5 injections of methotrexate and yesterday I had a routine appointment with immunology. I’m clinically immune suppressed due to retuximab infusions in 2013 which knocked out my immunoglobulins and they’ve never
Leics
in
NRAS
2 years ago
Sildenafil Citrate Fildena 50 Mg Tablet
While taking Sildenafil Citrate 50 MG tablets for erectile dysfunction, you should discuss any potential side effects with your doctor before taking any medication. If you are pregnant, breastfeeding, or have undergone dental surgery, call your doctor for medical advice. Also, make sure to let your doctor
While taking Sildenafil Citrate 50 MG tablets for erectile dysfunction, you should discuss any potential side effects with your doctor before taking any medication. If you are pregnant, breastfeeding, or have undergone dental surgery, call your doctor for medical advice. Also, make sure to let your doctor
NinaGrace
in
Men's Health Forum
2 years ago
Are you wasting your money on supplements? Most likely, experts say.
https://jamanetwork.com/journals/jama/fullarticle/2793446?guestAccessKey=2a436fd3-f03d-453b-a0e9-a29595310e8e&utm_source=For_The_Media&utm_medium=referral&utm_campaign=ftm_links&utm_content=tfl&utm_term=062122 [i]The USPSTF concludes that the evidence is insufficient to determine the balance of benefits
https://jamanetwork.com/journals/jama/fullarticle/2793446?guestAccessKey=2a436fd3-f03d-453b-a0e9-a29595310e8e&utm_source=For_The_Media&utm_medium=referral&utm_campaign=ftm_links&utm_content=tfl&utm_term=062122 [i]The USPSTF concludes that the evidence is insufficient to determine the balance of benefits
Hidden
in
Advanced Prostate Cancer
2 years ago
Disheartening news 😞☹️
My precious Jeff … They now think the cancer has spread to his brain sheath and spine. To confirm this, he has to have a spinal tap, but first has to be off blood thinners for 72 hours. If cancer is in the brain sheath, there’s basically nothing they can do. We start the countdown. Tomorrow they
My precious Jeff … They now think the cancer has spread to his brain sheath and spine. To confirm this, he has to have a spinal tap, but first has to be off blood thinners for 72 hours. If cancer is in the brain sheath, there’s basically nothing they can do. We start the countdown. Tomorrow they
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
recent biopsy
Or can I go on to live a full
healthy
life
living
with these auto immune diseases on my skin and not develop any systemic involvement?
Or can I go on to live a full
healthy
life
living
with these auto immune diseases on my skin and not develop any systemic involvement?
QueenBee1989
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Good news and Bad news?
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
bertie260
in
CLL Support
2 years ago
Need help in understanding immunoglobulins..
I have a question about IGG. I have noticed IGG is slipping gradually. Now at 6.25. I keep reading the term IVIG on this site and I am wondering will we all have to have IVIG eventually as this disease progresses? As the number lowers, does it mean we will have more infections or hospitalizations
I have a question about IGG. I have noticed IGG is slipping gradually. Now at 6.25. I keep reading the term IVIG on this site and I am wondering will we all have to have IVIG eventually as this disease progresses? As the number lowers, does it mean we will have more infections or hospitalizations
Curling123
in
CLL Support
2 years ago
Managing Big Emotions with a New Diagnosis of Rheumatoid Arthritis
The 50-State Network is the grassroots advocacy arm of the Global
Healthy
Living
Foundation, comprised of patients with chronic illness who are trained as health care activists to raise awareness, share their stories, and proactively connect with local, state, and federal health policy stakeholders.
The 50-State Network is the grassroots advocacy arm of the Global
Healthy
Living
Foundation, comprised of patients with chronic illness who are trained as health care activists to raise awareness, share their stories, and proactively connect with local, state, and federal health policy stakeholders.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
happened again
this was my 3rd FET (first time with new clinic). Today found out it was a CP. last two was early mc. This time I was on multiple medications: 1. Prednisone 2.plaquinil 3. Baby aspirin 4. Lovenox 5. Low dose ivig 6. Calcium 7. Other supplements like prenatal, D3, fish oil etc. 8. Progesterone
this was my 3rd FET (first time with new clinic). Today found out it was a CP. last two was early mc. This time I was on multiple medications: 1. Prednisone 2.plaquinil 3. Baby aspirin 4. Lovenox 5. Low dose ivig 6. Calcium 7. Other supplements like prenatal, D3, fish oil etc. 8. Progesterone
Devi2021
in
Fertility Network UK
2 years ago
Food question
However, I find myself struggling with the idea of
living
with strictly
healthy
( more specifically bland) diet for the rest of my life !! I am 35 now and have a 10 year old son and of course I want to stay around him as long as possible and the idea of dying young horrifies me.
However, I find myself struggling with the idea of
living
with strictly
healthy
( more specifically bland) diet for the rest of my life !! I am 35 now and have a 10 year old son and of course I want to stay around him as long as possible and the idea of dying young horrifies me.
Sara978
in
PBC Foundation
2 years ago
Pacemaker with a leaky valve?
I have a slow heart rate...getting slower. Used to be in the 60's now commonly in the 50's and in the 40's when I sleep. I have a leaky heart valve which I believe is the cause of the slow heart rate. At my age of 78 and diabetes I do not think I am a good candidate for a valve replacement. Question
I have a slow heart rate...getting slower. Used to be in the 60's now commonly in the 50's and in the 40's when I sleep. I have a leaky heart valve which I believe is the cause of the slow heart rate. At my age of 78 and diabetes I do not think I am a good candidate for a valve replacement. Question
BainaiThai_1_2
in
Advanced Prostate Cancer
2 years ago
IVIG vs Intralipid
Hi ladies, this is more for anyone that’s had immune treatment success… my question is, has anyone NOT been successful with Intralipid but been successful with IVIG? About to have my 3rd transfer with Intralipids and my reproductive immunologist said that if this one doesn’t work, we have no choice but
Hi ladies, this is more for anyone that’s had immune treatment success… my question is, has anyone NOT been successful with Intralipid but been successful with IVIG? About to have my 3rd transfer with Intralipids and my reproductive immunologist said that if this one doesn’t work, we have no choice but
Kimbob82
in
Fertility Network UK
2 years ago
Healthy living
I've done my 5,000 steps for the day, in terms of being more active I'm getting there slowly but surely 😊
I've done my 5,000 steps for the day, in terms of being more active I'm getting there slowly but surely 😊
GettyA
in
Active 10
3 years ago
*Sensitive* - OE Testing update - 11dp5dt
Hi HealthUnlocked Fertility Warriors! I hope everyone is hanging in there. After 7 rounds of egg collections in 2019 (aged 42) and 2020 (aged 43), I ended up collecting 6 PGS normal embryos which I froze. I then took a break over Covid to recover, physically and mentally. After much preparation: weight
Hi HealthUnlocked Fertility Warriors! I hope everyone is hanging in there. After 7 rounds of egg collections in 2019 (aged 42) and 2020 (aged 43), I ended up collecting 6 PGS normal embryos which I froze. I then took a break over Covid to recover, physically and mentally. After much preparation: weight
Dogpark
in
Fertility Network UK
2 years ago
reaching out!!
I was diagnosed with Autoimmune Encephalitis of the brain and Spinal Cord October 2020. I received 1 year of IVIG infusions( tapered-completed) My 2 year anniversary is October 2022 love to share my story with any and all( ask me anything)😀
I was diagnosed with Autoimmune Encephalitis of the brain and Spinal Cord October 2020. I received 1 year of IVIG infusions( tapered-completed) My 2 year anniversary is October 2022 love to share my story with any and all( ask me anything)😀
Zanzibar3
in
Encephalitis International
2 years ago
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