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PMR UPDATE
Just get you up to speed. I found that 15mg of pred was relieving pain I had been experiencing for a year. I did not believe it was PMR because it presented differently then the last time. The pain is not bilateral. But my inflamation marks have been high for a long time. The relief has been so amazing
Just get you up to speed. I found that 15mg of pred was relieving pain I had been experiencing for a year. I did not believe it was PMR because it presented differently then the last time. The pain is not bilateral. But my inflamation marks have been high for a long time. The relief has been so amazing
Amkoffee
in
PMRGCAuk
8 months ago
Vibrating Sensation
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
AlphaWolf5195
in
Fibromyalgia Action UK
8 months ago
4.10 a.m. and up again!
I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really
I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really
Danni54
in
Restless Legs Syndrome
8 months ago
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Nausea wristbands?
Hi! Has anyone tried and had any luck with using those travel pressure points wristbands normally used for travel sickness? I often feel nauseous, usually for the first few hours of the day and have tried ginger, painkillers, sleep and eating with no luck! Thanks in advance
Hi! Has anyone tried and had any luck with using those travel pressure points wristbands normally used for travel sickness? I often feel nauseous, usually for the first few hours of the day and have tried ginger, painkillers, sleep and eating with no luck! Thanks in advance
JodieBells
in
LUPUS UK
9 months ago
Low t4 symptoms
hi all I have Graves’ disease with TED. Bloods fairly stable for 18mths still requiring medications which I trialed myself to go off and went back hyper !! Was treated with too much carbimazole that I am now gone hypo I think, t4 is <5 normal (8-22) , tsh 3.03 normal (0.35-4.9) t3-2.74 normal (2.4-
hi all I have Graves’ disease with TED. Bloods fairly stable for 18mths still requiring medications which I trialed myself to go off and went back hyper !! Was treated with too much carbimazole that I am now gone hypo I think, t4 is <5 normal (8-22) , tsh 3.03 normal (0.35-4.9) t3-2.74 normal (2.4-
Busyy
in
Thyroid UK
9 months ago
Any advice for pain for a broken shoulder
I will try not to offend anyone haha. Could anyone give me some advice for my husband? 3 weeks ago he had a nasty fall playing walking football he is 73 years old and very fit. He broke his shoulder, bruised his ribs and his arm turned black and blue. Since then he has been to orthopedics to check
I will try not to offend anyone haha. Could anyone give me some advice for my husband? 3 weeks ago he had a nasty fall playing walking football he is 73 years old and very fit. He broke his shoulder, bruised his ribs and his arm turned black and blue. Since then he has been to orthopedics to check
Imagine1
in
Pain Concern
9 months ago
40mg melatonin 1 night
Dad accidentally took 40mg of melatonin last night (4 pills, 10mg each). He thought they were pain killers. Ugh. He already has insomnia, severe sleep apnea, neck and back pain + nerve pain. Is 40mg of melatonin in one night life threatening????? Should I be concerned? He's moving. But complaining
Dad accidentally took 40mg of melatonin last night (4 pills, 10mg each). He thought they were pain killers. Ugh. He already has insomnia, severe sleep apnea, neck and back pain + nerve pain. Is 40mg of melatonin in one night life threatening????? Should I be concerned? He's moving. But complaining
daughter-Advocate
in
Sleep Matters
9 months ago
Monocular Vision Pain
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
ItsBrandon
in
Pain Concern
9 months ago
Bad day
My fibromyalgia has also really flared up so
pain
from
head
to toe.
My fibromyalgia has also really flared up so
pain
from
head
to toe.
Poppyg16
in
Endometriosis UK
11 months ago
Help- my 18 year old just diagnosed with grade 4
His health took a sudden nosedive that Sunday evening with severe vomiting, fatigue and
head
pain
. We live in China so went to a famous local hospital but treated like 1 in a billion.
His health took a sudden nosedive that Sunday evening with severe vomiting, fatigue and
head
pain
. We live in China so went to a famous local hospital but treated like 1 in a billion.
Sjdhunt
in
Glioblastoma Support
7 months ago
How to escape Augmentation?
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
davchar23
in
Restless Legs Syndrome
9 months ago
Neck & Head Pain - MSA-C
Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and headaches. Her neurological doctor has given her botox in her neck which has helped slightly but her headache does not seem to go away. I was wondering
Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and headaches. Her neurological doctor has given her botox in her neck which has helped slightly but her headache does not seem to go away. I was wondering
HOL69
in
Multiple System Atrophy Trust
1 year ago
how to improve appetite/consume more calories. Pls help!
My heart is broken. My dad’s cancer had progressed, he has started chemo but overall is very unwell. He’s lost almost 30 pounds in the last few months and is having a lot of pain. We have to help him with getting out of the bed and at times putting on his shoes and clothes. All the pain medicine he used
My heart is broken. My dad’s cancer had progressed, he has started chemo but overall is very unwell. He’s lost almost 30 pounds in the last few months and is having a lot of pain. We have to help him with getting out of the bed and at times putting on his shoes and clothes. All the pain medicine he used
StayingSTRNG
in
Advanced Prostate Cancer
9 months ago
Unexplained headaches
Had to see a private rheumie earlier this year for PMR diagnosis as nhs rheumie and GP were trying to say I had fibromyalgia. Was told to start on 10mgs of pred for one week and if that didn’t help was to increase to 15mgs and start on usual nhs method of tapering. I did have to go to the 15 mgs and
Had to see a private rheumie earlier this year for PMR diagnosis as nhs rheumie and GP were trying to say I had fibromyalgia. Was told to start on 10mgs of pred for one week and if that didn’t help was to increase to 15mgs and start on usual nhs method of tapering. I did have to go to the 15 mgs and
Paul76
in
PMRGCAuk
9 months ago
gallbladder post surgery
I’m recovering from gallbladder surgery, the op was a breeze and no more pain, I’ve stopped with the painkillers as they just made me dizzy , my bowels have been a bit all over but seem to be settling down and hope it was just down to anesthetic. My bellybutton wound is taking longer to heal but the
I’m recovering from gallbladder surgery, the op was a breeze and no more pain, I’ve stopped with the painkillers as they just made me dizzy , my bowels have been a bit all over but seem to be settling down and hope it was just down to anesthetic. My bellybutton wound is taking longer to heal but the
JudJud
in
Pelvic Pain Support Network
9 months ago
Low heart rate
Hi has anyone had or got any issues with being like me at present in bradycardia resting heart rate of 55-58 recently had severe chest pains went to hospital sent home all tests done ECG bloods etc and nothing showing of concern but here's the thing I have heart heart failure cardiomyopathy and AF and
Hi has anyone had or got any issues with being like me at present in bradycardia resting heart rate of 55-58 recently had severe chest pains went to hospital sent home all tests done ECG bloods etc and nothing showing of concern but here's the thing I have heart heart failure cardiomyopathy and AF and
Clarkee73
in
British Heart Foundation
9 months ago
Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
9 months ago
Problems with neck causing shoulder and arm pains
I have been back and forwards to the doctors over the past couple of years with a suspected torn rotator cuff in my right shoulder. I had a ultrasound on shoulder 2 months ago and was told my shoulder is fine and I probably have a neck problem which is causing the pain. Contacted doctors again and was
I have been back and forwards to the doctors over the past couple of years with a suspected torn rotator cuff in my right shoulder. I had a ultrasound on shoulder 2 months ago and was told my shoulder is fine and I probably have a neck problem which is causing the pain. Contacted doctors again and was
Papareaps
in
Pain Concern
9 months ago
PEG/RIG feeding tubes
Hi chaps, question for you. My wife has now had MSA since 2016 so is a fair way into it. She has the usual problems and is now too late for PEG tubes, however, it still might be possible for a RIG set up. She no longer eats much so I make her diet high in calories etc, drinking is sort of ok for now.
Hi chaps, question for you. My wife has now had MSA since 2016 so is a fair way into it. She has the usual problems and is now too late for PEG tubes, however, it still might be possible for a RIG set up. She no longer eats much so I make her diet high in calories etc, drinking is sort of ok for now.
Oliverwindsor
in
Multiple System Atrophy Trust
9 months ago
Advice needed on thyroxine management
I had recently developed pins and needles all over my body and had back, neck and
head
pain
(these symptoms are still ongoing now). The GP checked me for autoimmune disease and I had a spine MRI but neither showed any problems. The problem seemed to lie with my hormones.
I had recently developed pins and needles all over my body and had back, neck and
head
pain
(these symptoms are still ongoing now). The GP checked me for autoimmune disease and I had a spine MRI but neither showed any problems. The problem seemed to lie with my hormones.
SarrahMay
in
Thyroid UK
4 months ago
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