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22 public communities
Cloudy with a Chance of Pain
1,514 members
A community for people with chronic pain or arthritis. Cloudy with a Chance of Pain is a UK smartphone study and citizen science experiment studying the association between weather and pain.
Pain Concern
38,603 members
Pain Concern is a charity campaigning for better pain services and a better understanding of the needs of people living with pain. Pain Concern runs a Helpline 0300 123 0789, publishes information leaflets; 'Pain Matters', a quarterly magazine; and produces 'Airing Pain', the internet radio programme for people living with pain.
Pelvic Pain Support Network
19,541 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Borders Pain Management
167 members
We are a peer support group specifically for individuals affected by Chronic Pain within the Scottish Borders. We offer support and advice to those diagnosed with Chronic Pain as well as carers, family, friends, employers and health care professionals. We actively encourage members to post their questions to get support from others in a similar position and to feel less isolated.
Australian Pain Management Association
341 members
APMA is a health promotion charity providing advocacy, information and practical support for people living with persistent (chronic) pain and their families. APMA is the consumer health organisation for all Australians who live with persistent pain. APMA is your voice. APMA provides advice, assistance and advocacy, and works with governments, health clinicians and researchers to deliver evidence-based pain management services and ameliorate the personal and economic impact for people living with severe pain.
Action on Pain
1,909 members
Action on Pain is a national charity established in 1998 by Ian Semmons, our Chairman, as a result of his own frustration that it took so long to get treatment for his pain. That frustration was heightened by the fact that when he eventually discovered Pain Clinics some three years after his injuries the treatment he received was superb. During that journey he met many others in a similar position so knowing that complaining to the NHS was a pointless exercise he was determined to do something positive to help others who were faced with a similar challenge.
Chronic Myofascial Pain
499 members
We have set up this community in order to provide support for anyone suffering from Chronic Myofascial Pain (CMP); to provide and share information about all things fascia related; to raise awareness about CMP, and fascia in general; and to bring together patients and professionals working in the field, to create a united front to campaign for better understanding of fascia and for better treatment models for CPS.
Foggy's "Invisible Illness" Support
5,569 members
With charitable donations, we are able to provide 2 Hydrotherapy sessions per week, for our paid members. We are dedicated to providing support, raising awareness and promoting positivity, for invisible conditions primarily for: Arthritic Condition's Chronic Fatigue Syndrome Chronic Widespread Pain Fibromyalgia Giant Cell Arteritis Long Covid M. E. Myalgic Encephalopathy Myofascial Pain Polymyalgia Rheumatic Condition's
Arthritis Ireland
459 members
Arthritis Ireland works to reduce the pain and improve the lives of almost one million children and adults in Ireland with arthritis.
Acid Reflux Support
1,625 members
For more than three decades, the OPA has fought against oesophageal and gastric cancers, raising awareness, supporting patients, caregivers and their families. Whether you are in the early stages or further along in your journey, the OPA is dedicated to offering support and guidance. Did you know? There are over 65 Million people in the UK and it is estimated that over 1 in 10 people suffer from Reflux Disease. Reflux disease can have a terrible impact on a patients quality of life affecting many aspects of their everyday functioning. For many people, this can be managed effectively with lifestyle changes and/or medication prescribed by their GP such as omeprazole, lansoprazole and esomeprazole (as well as others). However there are over 2 million people in the UK who do not respond effectively to this treatment and for these people, there are other options they can consider to treat their disease. Head to our website for more information - https://opa.org.uk/
Endometriosis New Zealand
1,288 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
The Children's Trust
240 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
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