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Neuroendocrine PCa
I posted awhile back that my PCa had progressed to high grade neuroendocrine carcinoma/small cell. I was treated with 4 rounds of atezolizumab/carboplatin/etoposide (chemotherapy and immunotherapy). A pet/CT scan shows it was effective, and I fared better than I expected going in, but definitely have
I posted awhile back that my PCa had progressed to high grade neuroendocrine carcinoma/small cell. I was treated with 4 rounds of atezolizumab/carboplatin/etoposide (chemotherapy and immunotherapy). A pet/CT scan shows it was effective, and I fared better than I expected going in, but definitely have
CharlieBC
in
Advanced Prostate Cancer
5 months ago
calprotectin levels
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Lo181
in
Bowel Disease Support
5 months ago
Living with glaucoma
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
Hi All I've had glaucoma and Uveitis in both eyes for many years and have had numerous procedures and drains put in both eyes like many other glaucoma patients , I was told yesterday that a cornea transplant is not viable now because of the complications with my eye and that all they can do is monitor
LondonStadium
in
Glaucoma UK
10 months ago
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Faricimab side effects
Hi all I have had injections monthly since 2011 for DMO I had Avastin then Lucentis and then since 2016 Eylea. Last Saturday I was switched to Faricimab it’s def thicker than Eylea. Since then I had tiny floaters in the eye that was injected it’s been a week now and although the number of floaters has
Hi all I have had injections monthly since 2011 for DMO I had Avastin then Lucentis and then since 2016 Eylea. Last Saturday I was switched to Faricimab it’s def thicker than Eylea. Since then I had tiny floaters in the eye that was injected it’s been a week now and although the number of floaters has
tallyho
in
Macular Society
10 months ago
Seeking advice about starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Texas_Mom
in
My Ovacome
5 months ago
Ibs bam
I have ibs and bile acid malabsorption seen gastroenterologist on monday shes ruling out ibd and cronhs but i am still not convinced dont know of wat she said as still get loads of stomach pain specially before and after bowel movements she did say it could b scar tissue nerve damage or fibromalgyia
I have ibs and bile acid malabsorption seen gastroenterologist on monday shes ruling out ibd and cronhs but i am still not convinced dont know of wat she said as still get loads of stomach pain specially before and after bowel movements she did say it could b scar tissue nerve damage or fibromalgyia
Netbet22
in
IBS Network
5 months ago
Black stools
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Petrina_gmfc
in
British Liver Trust
5 months ago
Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
10 months ago
ENT visit
So, I got to see adn ENT after a referral from my GP. However, it wasnt an ENT but a very nice assistant who did a hearing test, which I have had already and also a pressure test. What was interesting was that the pressure test was normal on my "good" ear but could not be performed on my bad ear.
So, I got to see adn ENT after a referral from my GP. However, it wasnt an ENT but a very nice assistant who did a hearing test, which I have had already and also a pressure test. What was interesting was that the pressure test was normal on my "good" ear but could not be performed on my bad ear.
Rekw
in
Tinnitus UK
10 months ago
Both eyes together!
Does anyone have experience of having surgery on both eyes at the same session? If so I would love to hear from you. My consultant is doing cataract and drainage improvement surgery at the same time for both eyes in the same session under general anaesthetic. I know this is a fairly uncommon arrangement
Does anyone have experience of having surgery on both eyes at the same session? If so I would love to hear from you. My consultant is doing cataract and drainage improvement surgery at the same time for both eyes in the same session under general anaesthetic. I know this is a fairly uncommon arrangement
YogaLover
in
Glaucoma UK
10 months ago
Dry-Needling and Low Level Laser Therapy By Physios: Does this really work and can it worsen tinnitus?
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
PuddingChipsAndGravy
in
Tinnitus UK
9 months ago
ANKLE ULCER
I have a 7 night holiday coming up in 4 weeks to austria,but have had a ankle ulser which is dressed weekly at my surgery .still some way to go before it heals,any advice or experience.
I have a 7 night holiday coming up in 4 weeks to austria,but have had a ankle ulser which is dressed weekly at my surgery .still some way to go before it heals,any advice or experience.
clivepratt12
in
IBS Network
10 months ago
Possible AN on my left, awaiting an MRI but struggling to take my mind off it
Good morning, I've struggled with a bit of tinnitus for a while so eventually contacted my GP about it 2 years ago. I also often feel a bit dizzy and stuff but I'm a long term Hypothyroidism and pernicious anaemia patient, so that kind of comes with the territory! GP sent me to Specsavers for a hearing
Good morning, I've struggled with a bit of tinnitus for a while so eventually contacted my GP about it 2 years ago. I also often feel a bit dizzy and stuff but I'm a long term Hypothyroidism and pernicious anaemia patient, so that kind of comes with the territory! GP sent me to Specsavers for a hearing
VB_Aylesbury
in
Acoustic Neuroma Support
10 months ago
Vagus nerve stimulation'
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
expatkerry
in
Pernicious Anaemia Society
5 months ago
Abraxane
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Willowsmum51
in
My Ovacome
5 months ago
Pre-biotics vs post biotics - do we need pre, post or both?
This is a follow up post to the recent one about inulin. I had spent a lot of time involved with post-biotics but never really considered pre-biotics at all to date. This all changed quite recently when I stumbled across inulin which is described in a recent post so will not repeat all those comments
This is a follow up post to the recent one about inulin. I had spent a lot of time involved with post-biotics but never really considered pre-biotics at all to date. This all changed quite recently when I stumbled across inulin which is described in a recent post so will not repeat all those comments
Danielj1
in
Thyroid UK
5 months ago
Any suggestion for constipation caused by Niraparib
Hey dear ladies, I am on niraparib (200mg/ day in the evening) since august 2023 and experience constipation. I try to go daily but is not always happening. I also have to work for it every day, lot of patience before I get sth out or not ... it is usually hard and little.. I am trying to eat as
Hey dear ladies, I am on niraparib (200mg/ day in the evening) since august 2023 and experience constipation. I try to go daily but is not always happening. I also have to work for it every day, lot of patience before I get sth out or not ... it is usually hard and little.. I am trying to eat as
Beatyourself
in
My Ovacome
5 months ago
Actemra problems.
My husband has been on Actemra for about two months and hasn't had any of the side affects that have been mentioned so far. However, he is ta king it because he has GCA and it was suggested it would help him get off some of the prednisone he is taking 25g when we started. He's down to 19g now but he
My husband has been on Actemra for about two months and hasn't had any of the side affects that have been mentioned so far. However, he is ta king it because he has GCA and it was suggested it would help him get off some of the prednisone he is taking 25g when we started. He's down to 19g now but he
Wilson1952
in
PMRGCAuk
10 months ago
Loss of taste re dental bridge
I had a dental bridge fitted in July - after four months of temporary bridges and suffering those felt the final one would be tons better. Since having it fitted - I have lost my taste - cannot taste anything and I find that I still cannot eat properly - still sticking to a softish diet and fish as
I had a dental bridge fitted in July - after four months of temporary bridges and suffering those felt the final one would be tons better. Since having it fitted - I have lost my taste - cannot taste anything and I find that I still cannot eat properly - still sticking to a softish diet and fish as
janetmtt
in
Dentistry Health Support
5 months ago
Eye Bag/Eye Mask
Hello my dear Lupus Warriors To bring you good vibes with my Optician's recommendation yesterday - Eye Bag/Eye Mask. Boots had on offer £10.99 and it works a treat. As part of Sjogren's Syndrome - my eyes are very dry but of late have been soooo dry. Optician explained and tested my tear film, with
Hello my dear Lupus Warriors To bring you good vibes with my Optician's recommendation yesterday - Eye Bag/Eye Mask. Boots had on offer £10.99 and it works a treat. As part of Sjogren's Syndrome - my eyes are very dry but of late have been soooo dry. Optician explained and tested my tear film, with
Energy14
in
LUPUS UK
10 months ago
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