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Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
8 months ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
8 months ago
Inulin pre-biotic - bowels/stomach restoration aid
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Hi All, It seems to me one of the most common hypo complaints revolves around a slighty lazy digestion and slower bowels than desirable with poor absorption of nutrition from the food and a life taken up with researching any buying a load of supplements to mitigate the shortfall. This has certainly
Danielj1
in
Thyroid UK
8 months ago
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Lactose intolerant
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
Karen-Eleanor
in
Thyroid UK
6 months ago
Loss of voice!
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Tiggertheterrier
in
Asthma Community Forum
5 months ago
PMR/Hiatus hernia and PPIs
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered during a scan a couple of months ago. No particular problems with Omeprazole but asked for a different PPI after reading negative reports about a
Lclmlbls
in
PMRGCAuk
8 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
8 months ago
Abdominal ultrasound
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Hiya,Would just like people's views/experiences on if endo will be picked up on an ultrasound or the abdomen. I've had pelvic mri before which picked up endo everywhere and I'm awaiting surgery (endo,hysterectomy and bowel). I've not got abdomen pains so they've got me down for an ultrasound. I feel
Loveneige
in
Endometriosis UK
8 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
8 months ago
Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
8 months ago
Feeling a bit like a train wreck !!
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
adnewg73
Graduate
in
Couch to 5K
8 months ago
UK Cabazitaxel/Carboplatin availability
I have a fairly urgent decision to make regarding my treatment. For the benefit of our US warriors, the UK National Health Service means that the overwhelming majority of patients do not have private healthcare insurance. I'm one of those. Now, with the decision to switch from Docetaxel to Cabazataxel
I have a fairly urgent decision to make regarding my treatment. For the benefit of our US warriors, the UK National Health Service means that the overwhelming majority of patients do not have private healthcare insurance. I'm one of those. Now, with the decision to switch from Docetaxel to Cabazataxel
CrocodileShoes
in
Advanced Prostate Cancer
8 months ago
Severe reaction to Targinact - please help
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Claire_lc
in
Restless Legs Syndrome
6 months ago
iron tablets and raising lFT
4 years diagnosed, stopped responding to Urso . I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could this possibly affect my results?
4 years diagnosed, stopped responding to Urso . I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could this possibly affect my results?
Kingy68
in
PBC Foundation
1 year ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
8 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
8 months ago
Hi All. New member here.
I found this site after being utterly fed up and frustrated. A little back story first: I'm 53, male and I live in England. About a decade ago I noticed after a gig I attended as a punter that the usual "ringing in the ears" was taking longer than usual to go away, then after a few more weeks realised
I found this site after being utterly fed up and frustrated. A little back story first: I'm 53, male and I live in England. About a decade ago I noticed after a gig I attended as a punter that the usual "ringing in the ears" was taking longer than usual to go away, then after a few more weeks realised
MagikalMeeps
in
Tinnitus UK
8 months ago
Ibrutinib resistance
Resistance to IB after 6 yrs.. mutations c481 & Plcg2. Still on IB until progression. 13q, zap 70. What's next? No definitive answers from Onco/Hema Doc except watch & wait. Very anxious.
Resistance to IB after 6 yrs.. mutations c481 & Plcg2. Still on IB until progression. 13q, zap 70. What's next? No definitive answers from Onco/Hema Doc except watch & wait. Very anxious.
Rogerinhorn2015
in
CLL Support
8 months ago
Pseudomonas colonised.
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
falcon68
in
Lung Conditions Community Forum
5 months ago
Promethazine sleeping tablets following insomnia and increased episodes amnesia
So my T journey continues. I would say insomnia has been the biggest problem through out but I thought I'd learned to live with it. However, it certainly seems it may be catching up with me (I posted about this last month ago - but I'll recap briefly). I had what appeared to be an isolated episode
So my T journey continues. I would say insomnia has been the biggest problem through out but I thought I'd learned to live with it. However, it certainly seems it may be catching up with me (I posted about this last month ago - but I'll recap briefly). I had what appeared to be an isolated episode
daverussell
in
Tinnitus UK
8 months ago
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