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IAM having a moan,so I'm sorry.
My sister who has very bad arthritis, and was on methotrexate for years was taken off it, has had such a bad time having had sepsis and deep vein thrombosis and always in pain, hate to say even with my PMR I feel lucky I know what a comment to make as we all hate this illness. She had to fight to see
My sister who has very bad arthritis, and was on methotrexate for years was taken off it, has had such a bad time having had sepsis and deep vein thrombosis and always in pain, hate to say even with my PMR I feel lucky I know what a comment to make as we all hate this illness. She had to fight to see
Harrywogan
in
PMRGCAuk
10 months ago
Diverticulosis etc
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
interesting thread and a couple of anecdotes about having to rush off to the woods to do whatever the bears do there provoked some hollow laughter! I’ve been in them thar woods a couple of times myself. i don’t have coeliac but I do have diverticulitis flares and I do have severe sigmoid colon diverticular
Calceolaria
in
Thyroid UK
5 months ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
Rupa88
in
Cure Parkinson's
1 year ago
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A&E AGAIN!!
So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on Sat night! Having almost reached the end of lots of investigations following my ambulance ride a few weeks ago, I found myself with yet
another
So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on Sat night! Having almost reached the end of lots of investigations following my ambulance ride a few weeks ago, I found myself with yet
another
Kendrew
in
PMRGCAuk
5 months ago
piles and edoxoban
My poor hubby doesn’t seem to be able to catch a break at the moment, if you’ve read some of my previous posts concerning his stroke and AF. For the last five days he has bled after every bowel movement , he has had piles in the past but has not bled as much , I would say as much as a nosebleed ,
My poor hubby doesn’t seem to be able to catch a break at the moment, if you’ve read some of my previous posts concerning his stroke and AF. For the last five days he has bled after every bowel movement , he has had piles in the past but has not bled as much , I would say as much as a nosebleed ,
Jackiesmith7777
in
AF Association
10 months ago
Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
5 months ago
how did your GI/gut symptoms start?
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Hi I’m dory10. I was diagnosed inDec2019 but had it for 27 years. I fall over a lot now I’m having tests to find out why.
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
Dory10
in
Fibromyalgia Action UK
8 months ago
Post op sleeping position
Hi everyone my husband is nearly 9 months post oesophagectomy with 2/3 of his stomach removed. He was diagnosed T4aN1M0 in September last year, had the op in March and is overall recovering really well. We’re so grateful that generally he’s sleeping well but currently using an OPA wedge but slipping
Hi everyone my husband is nearly 9 months post oesophagectomy with 2/3 of his stomach removed. He was diagnosed T4aN1M0 in September last year, had the op in March and is overall recovering really well. We’re so grateful that generally he’s sleeping well but currently using an OPA wedge but slipping
Tighan
in
Oesophageal & Gastric Cancer
10 months ago
Loss of voice!
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Tiggertheterrier
in
Asthma Community Forum
8 months ago
Stopping Actemra
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
Good day all: Well, I called and canceled my Actemra infusion for today. I was recently diagnosed with something called MGRS (Monoclonal Gammopathy of renal Significance), It is related to Multiple Myeloma. I start chemotherapy for the MGRS next week, which is the same as the chemo for full
phebamom
in
PMRGCAuk
10 months ago
Very noisy ears and pressure
Hi - I have been diagnosed with TMJD - I have Tinnitus mostly in the right ear, but every so often I have ghastly whooshing in both ears very noisy and a feeling of pressure , is this possibly stress anxiety related? Or the TMJD effecting the ETs - I know it's a highly complex area, I have had this T
Hi - I have been diagnosed with TMJD - I have Tinnitus mostly in the right ear, but every so often I have ghastly whooshing in both ears very noisy and a feeling of pressure , is this possibly stress anxiety related? Or the TMJD effecting the ETs - I know it's a highly complex area, I have had this T
Hidden
in
Tinnitus UK
10 months ago
Waiting PMR Diagnosis
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Grandmaziggy
in
PMRGCAuk
10 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
10 months ago
Blepharitis
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
Golden87
in
Glaucoma UK
10 months ago
diverticulosis, itis, IBS etc
Hi everyone, I’ve taken note of discussions on here regarding gut issues vis a vis under active thyroid. Does levothyroxine of itself also cause gut issues? Many thanks.
Hi everyone, I’ve taken note of discussions on here regarding gut issues vis a vis under active thyroid. Does levothyroxine of itself also cause gut issues? Many thanks.
Calceolaria
in
Thyroid UK
5 months ago
Ovary discomfort a month after failed ET.
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
Saskiahope
in
Fertility Network UK
5 months ago
Chronic Pain,and fear.
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Breathless1943
in
Bowel Disease Support
5 months ago
Experiences with securing ss and private disability
Hello, Silent observor here, wife to Ed: Diagnosed with stage IV, Gleason 8, November 2020, with mets to nearby lymph nodes and lungs (of all places). Successfully treated so far with orchiectomy, Zytiga and prednisone with minimum SE. Age 60, living in PNW of US. Ed is considering an application
Hello, Silent observor here, wife to Ed: Diagnosed with stage IV, Gleason 8, November 2020, with mets to nearby lymph nodes and lungs (of all places). Successfully treated so far with orchiectomy, Zytiga and prednisone with minimum SE. Age 60, living in PNW of US. Ed is considering an application
MIkamom
in
Advanced Prostate Cancer
5 months ago
GCA flares and eyesight
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Gladys911
in
PMRGCAuk
10 months ago
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