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Haemolytic anaemia
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Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
4 months ago
Follow up to contacting my GP......
Some of you may remember that I had been in receipt of regular injections from my GP, but not regular enough, so I also sourced my own supplies. My prescription for Hydroxocobalamin was recently reduced to the standard 1 injection every 3 months. So I sent a letter to my doctor requesting they be reinstated
Some of you may remember that I had been in receipt of regular injections from my GP, but not regular enough, so I also sourced my own supplies. My prescription for Hydroxocobalamin was recently reduced to the standard 1 injection every 3 months. So I sent a letter to my doctor requesting they be reinstated
BeachArt
in
Pernicious Anaemia Society
4 months ago
Magnesium type
I had my husband on Natural Calm which is the brand I take. His mood lifted, he was less tired etc etc. The problem is it affected his toilet habits! My friend said better to spray and take it trans-dermally but she's talking about Magnesium Chloride. Is that any good to take? I've only ever taken
I had my husband on Natural Calm which is the brand I take. His mood lifted, he was less tired etc etc. The problem is it affected his toilet habits! My friend said better to spray and take it trans-dermally but she's talking about Magnesium Chloride. Is that any good to take? I've only ever taken
Boldgirl45
in
Restless Legs Syndrome
4 months ago
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Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
4 months ago
headache on top of head
I can’t remember posting this before?!? Bit of brain fog.. am 85 but no excuse. ?! I’m haveing problems with headaches on top of my head. Couple of times woken up in night .. so strong. Other times just slight but most of the day. Gp requested blood tests.. all normal.homeopathic remedies ease it for
I can’t remember posting this before?!? Bit of brain fog.. am 85 but no excuse. ?! I’m haveing problems with headaches on top of my head. Couple of times woken up in night .. so strong. Other times just slight but most of the day. Gp requested blood tests.. all normal.homeopathic remedies ease it for
Bedwell
in
PMRGCAuk
4 months ago
K2 with Vit D
I have a question about K2 The reason for the post is that on a previous blood test over a year ago. it stated that my Haemoglobin estimation was abnormal ( over range). I put a note to the Dr for an understanding on this point but no reply, its just I have a little worry that if there is a blood
I have a question about K2 The reason for the post is that on a previous blood test over a year ago. it stated that my Haemoglobin estimation was abnormal ( over range). I put a note to the Dr for an understanding on this point but no reply, its just I have a little worry that if there is a blood
Fortie
in
Thyroid UK
4 months ago
8 Day Trial.
Current trial 1 mg hydroxocobalamin, 1.5 mg of adenosylcobalamin, 1.5 mg of methylcobalamin. Day one. No other supplements other than 50 mg of B6 twice a day in the form or P-5-P as symptoms do not indicate a need for any other supplements. Without supplementing B6 I experience peripheral neuropathy
Current trial 1 mg hydroxocobalamin, 1.5 mg of adenosylcobalamin, 1.5 mg of methylcobalamin. Day one. No other supplements other than 50 mg of B6 twice a day in the form or P-5-P as symptoms do not indicate a need for any other supplements. Without supplementing B6 I experience peripheral neuropathy
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Can anyone help interpret my iron panel results 🙏
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tablets…. I stopped these quite a few years back
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tablets…. I stopped these quite a few years back
ThyroidObsessed
in
Thyroid UK
4 months ago
Buprenorphine tablet's refused....why ?
I have, yet another, short story! I had spoken to the Pain Clinic Specialist Nurse about changing from the Buprenorphine patch to tablet's and she agreed to write to my Dr. and ask him to change over because I am having a reaction to the gum on the patch and the itch is driving me nuts! I have been
I have, yet another, short story! I had spoken to the Pain Clinic Specialist Nurse about changing from the Buprenorphine patch to tablet's and she agreed to write to my Dr. and ask him to change over because I am having a reaction to the gum on the patch and the itch is driving me nuts! I have been
Danni54
in
Restless Legs Syndrome
4 months ago
Buprenorphine side effects
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
I have successfully blocked my long standing RLS by use of buprenorphine at the cost of quite severe nausea and whilst I have had good sound advice from Joolsg, 707twitcher, Lotte M and others on this matter I am interested to know of other peoples experiences on this problem My main problems are Nausea
davchar23
in
Restless Legs Syndrome
4 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Iron studies blood test results
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Scubaholic
in
Restless Legs Syndrome
4 months ago
My mom just got diagnosed with CLL at 59 - we have questions - thank you for all the support on my previous post!
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
1. We live in Southern California - does anyone know a great specialist near by? 2. Her ABSOLUTE LYMPHOCYTES are 9533 - does anyone have similar numbers but they have increased 24% from a month ago when they were at 7732?? Is this alarming? 3. Her IGHV test came back at 6.87% - what does that mean?
Chickenoodlesoup
in
CLL Support
4 months ago
new to RLS
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
hi, I’ve been trying to understand what RLS is and what treatments to have. The neurologist tells me I have RLS, my symptoms are tingling sensation, sometime pins and needles in both feet and calves. I have it all day, everyday. I notice it when resting and don’t when standing and walking. My B12
Rosecup
in
Restless Legs Syndrome
4 months ago
folate dropping
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
I have been injecting since July 2023, thanks to you all, I knew to check my ferritin when I felt something else was off…since no doctor thought it necessary. It was 14. Now I am on iron supplements. My folate has always been >24. However, since starting the iron, my folate has dropped to 15 (still
MuppDog
in
Pernicious Anaemia Society
4 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
4 months ago
Blood results
Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly don’t feel normal 😂 I’ll set it out June 23 v. March 24 for comparison. June 23 Serum folate 14.7 ug/L Serum ferritin 16 ug/L Serum B12
Hi all. Just had my blood test results back, which I’m told are all normal. Just thought I’d ask if anyone can confirm they are in fact normal, as I certainly don’t feel normal 😂 I’ll set it out June 23 v. March 24 for comparison. June 23 Serum folate 14.7 ug/L Serum ferritin 16 ug/L Serum B12
MLJ2024
in
Pernicious Anaemia Society
4 months ago
vitamin B12 injection
I am SO exhausted and want to see if I’m lacking B12 (I’m vegetarian) please can you let me know a good but cheap company to use. Thank you
I am SO exhausted and want to see if I’m lacking B12 (I’m vegetarian) please can you let me know a good but cheap company to use. Thank you
sidneymark70
in
Thyroid UK
4 months ago
Confused about iron infusion and low ferritin.
Am I reading it wrong when Dr. Winkelmann recommends infusion if ferritin is 50 – 75 mcg/L but iron tablets if ferritin is below 50 mcg/L or lower? Gibbel
Am I reading it wrong when Dr. Winkelmann recommends infusion if ferritin is 50 – 75 mcg/L but iron tablets if ferritin is below 50 mcg/L or lower? Gibbel
Gibbel
in
Restless Legs Syndrome
4 months ago
Anaemia query
Is it at all possible to have some form of anaemia, even though blood results dont support that or are inconclusive? I havent felt well now for 4 years and have driven myself to distraction trying to pin down what is going on-convinced myself I was hypothyroid but Im not. Ive just had blood tests again
Is it at all possible to have some form of anaemia, even though blood results dont support that or are inconclusive? I havent felt well now for 4 years and have driven myself to distraction trying to pin down what is going on-convinced myself I was hypothyroid but Im not. Ive just had blood tests again
ValDee88
in
Pernicious Anaemia Society
4 months ago
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