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Haemolytic anaemia
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body heat and buprenorphine
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Hi, I have been using Buprenorphine patches for 4 weeks and was wondering whether body heat releases more opioids into the system. When I’m really warm I feel spacey and drowsy. Has anyone else experienced this?
Navy20
in
Restless Legs Syndrome
1 year ago
Zanabrutinib
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
Happy New year, everyone! I was treated with Ibrutinib for about 2 years, and taken off after a grade 3 event (SVT Tachycardia). It was decided I would stay off treatment until progression. Although I should get somewhere between one and three years in remission, my consultant has already started to
MovingForward4423
in
CLL Support
1 year ago
Statins
Apologies, this is a very long post! Statins are known by members of this forum to trigger/exacerbate RLS, although the NHS doesn’t formally recognise this. Statins are the most prescribed drug in the world, recommended for the reduction of cholesterol. Many doctors will say that they are essential,
Apologies, this is a very long post! Statins are known by members of this forum to trigger/exacerbate RLS, although the NHS doesn’t formally recognise this. Statins are the most prescribed drug in the world, recommended for the reduction of cholesterol. Many doctors will say that they are essential,
ChrisColumbus
in
Restless Legs Syndrome
1 year ago
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Fibro & Severe Stiffness.
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
Hello all. So it's been a while since I posted last. Many of you were so incredibly helpful and knowledgeable on many questions about fibro. I had never realised or put the two together when it came down to severe stiffness that some people experienced this as a symptom of fibro. Can anybody explain
catcalling
in
Fibromyalgia Action UK
1 year ago
anaemia
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
Gardendaffodil
in
PMRGCAuk
1 year ago
Protein and B12
The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms might be due in part to insufficient protein. The entire article is available at no charge. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439950
The information in this article on protein deficiency seemed interesting to me. It seems like some of the symptoms I was attributing to B12 deficiency symptoms might be due in part to insufficient protein. The entire article is available at no charge. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439950
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Test results advice high b12 and iron
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
clairel996
in
Thyroid UK
1 year ago
13 days on +5mg but still not completely sorted. Link to covid jab? Also dex scan disappointing.
After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and was feeling good after 2 weeks on 6 every day but stiffness started at week3. Now had 13 days on higher dose...11/12mg.It was better some days
After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and was feeling good after 2 weeks on 6 every day but stiffness started at week3. Now had 13 days on higher dose...11/12mg.It was better some days
Ebiker
in
PMRGCAuk
1 year ago
Vitamin test
Can I have advice with my testPlease B12.......376ng/L (211.0-911.0 Serum iron Level 17.4......umoi/L (9.0-30.0 Serum Transferrin Level 3.00gL.....(2.5-3.8) Red Bloodcell count 4.68.....3.8-5.8) Serum B12...376ng/L (211.0-911.0) Serum Folate Level 22.1ug /L (>4.0) Serum FreeT4 Level 17.7pmoi
Can I have advice with my testPlease B12.......376ng/L (211.0-911.0 Serum iron Level 17.4......umoi/L (9.0-30.0 Serum Transferrin Level 3.00gL.....(2.5-3.8) Red Bloodcell count 4.68.....3.8-5.8) Serum B12...376ng/L (211.0-911.0) Serum Folate Level 22.1ug /L (>4.0) Serum FreeT4 Level 17.7pmoi
Madge72
in
Thyroid UK
1 year ago
Monofer is making me feel crap
Hi, I had an iron infusion 10 days ago as I had Feratin at 10 and low iron transfusions. I am sure in long run it will help me but Monofer is making my life bit of hell. Not slept one night in the past 10 days without waking up in the middle of the night. My sleep quality has been crap. (a) has anyone
Hi, I had an iron infusion 10 days ago as I had Feratin at 10 and low iron transfusions. I am sure in long run it will help me but Monofer is making my life bit of hell. Not slept one night in the past 10 days without waking up in the middle of the night. My sleep quality has been crap. (a) has anyone
abhishekjoshi9
in
Pernicious Anaemia Society
1 year ago
Effect of exercise on thyroid blood tests?
Just wondering,what effect have people noticed on their blood tests if exercising the day before/same day/other time? SlowDragon has previously shared that the ideal time for thyroid blood tests is just before 9am, and I'm wondering if exercising should also be taken into account? https://pubmed.ncbi.nlm.nih.gov
Just wondering,what effect have people noticed on their blood tests if exercising the day before/same day/other time? SlowDragon has previously shared that the ideal time for thyroid blood tests is just before 9am, and I'm wondering if exercising should also be taken into account? https://pubmed.ncbi.nlm.nih.gov
Hidden
in
Thyroid UK
1 year ago
Glenmark Levothyroxine
Whilst we saw their levothyroxine withdrawn last year, I just saw something that made me wonder if it is coming back. The dm+d is a database of all medicines. Much else in the NHS uses the dm+d data as a starting point. It is a legal requirement for new medicines to be added to dm+d within something
Whilst we saw their levothyroxine withdrawn last year, I just saw something that made me wonder if it is coming back. The dm+d is a database of all medicines. Much else in the NHS uses the dm+d data as a starting point. It is a legal requirement for new medicines to be added to dm+d within something
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Daughter's blood results
Merry Christmas everyone 🎄⛄Following on from my post about my daughter's Vitamin D and Folate deficiency diagnosis, attached are my daughter's blood test results. I wanted a copy to check if they'd checked her B12 as I was concerned about her starting Folic acid if deficient in B12 . I don't see anything
Merry Christmas everyone 🎄⛄Following on from my post about my daughter's Vitamin D and Folate deficiency diagnosis, attached are my daughter's blood test results. I wanted a copy to check if they'd checked her B12 as I was concerned about her starting Folic acid if deficient in B12 . I don't see anything
Ritchie1268
in
Pernicious Anaemia Society
1 year ago
Help with Iron test results please
Inflammation CRP HS 0.46 mg/L ( 0 - 5) Iron Status Iron 22.2 umol/L (5.8 - 34.5) TIBC 58.0 umol/L (45 - 81) UIBC 35.8 umol/L (24.2 - 70.1) Transferrin Saturation 38.3 % (20 - 50) Ferritin 53.4 ug/L (13 - 150) These are my results from medichecks iron test. This was a retest and Interestingly
Inflammation CRP HS 0.46 mg/L ( 0 - 5) Iron Status Iron 22.2 umol/L (5.8 - 34.5) TIBC 58.0 umol/L (45 - 81) UIBC 35.8 umol/L (24.2 - 70.1) Transferrin Saturation 38.3 % (20 - 50) Ferritin 53.4 ug/L (13 - 150) These are my results from medichecks iron test. This was a retest and Interestingly
BiscuitBaby
in
Thyroid UK
1 year ago
Start of B12 treatment but can I do exercise?
Really don’t know how to managed my deficiency until my B12 levels improve. Looking for advice on whether I can keep doing sports? I was diagnosed with B12 deficiency on Monday. I have digestive issues (which I’ve learnt can affect absorption) and family history of pernicious anaemia but have been
Really don’t know how to managed my deficiency until my B12 levels improve. Looking for advice on whether I can keep doing sports? I was diagnosed with B12 deficiency on Monday. I have digestive issues (which I’ve learnt can affect absorption) and family history of pernicious anaemia but have been
Foodie101
in
Pernicious Anaemia Society
1 year ago
magnesium glycinate and pregnancy
Knowing that lots of you take magnesium glycinate, have any of you taken it safely during pregnancy? Slightly off topic as I’m enquiring for my daughter who does not have a thyroid problem but is in the first trimester of pregnancy and is only sleeping about three hours a night. I suggested magnesium
Knowing that lots of you take magnesium glycinate, have any of you taken it safely during pregnancy? Slightly off topic as I’m enquiring for my daughter who does not have a thyroid problem but is in the first trimester of pregnancy and is only sleeping about three hours a night. I suggested magnesium
Bearo
in
Thyroid UK
2 years ago
Intrinsic Factorn Antibodies test
Hi, My B12, folate, ferritin and vit d were all really low a few months ago, i've had ferritin infusions, folate and D tablets and am injecting B12 a couple times a week. I am feeling somewhat better and my bloods are all fine now. My original doctor said i had pernicious Anaemia, i've had other autoimmune
Hi, My B12, folate, ferritin and vit d were all really low a few months ago, i've had ferritin infusions, folate and D tablets and am injecting B12 a couple times a week. I am feeling somewhat better and my bloods are all fine now. My original doctor said i had pernicious Anaemia, i've had other autoimmune
fuzzletoff
in
Pernicious Anaemia Society
2 years ago
information on test results
Haemoglobin. 153 g/L. 120-150 g/L. Total White cell 7.94. 10*9/L. 4.00-10.00. Platelet
Haemoglobin. 153 g/L. 120-150 g/L. Total White cell 7.94. 10*9/L. 4.00-10.00. Platelet
Spoticus
in
Pernicious Anaemia Society
2 years ago
Vitamin D, Folate but not B12?
Not been about much lately due to getting busy with the new service I set up, so I hope everyone is well. A few will remember the hassle I had around 18 months ago getting my daughter's GP to get her 'Active' B12 checked, it never happened. She's continued to struggle feeling tired etc etc. Her new
Not been about much lately due to getting busy with the new service I set up, so I hope everyone is well. A few will remember the hassle I had around 18 months ago getting my daughter's GP to get her 'Active' B12 checked, it never happened. She's continued to struggle feeling tired etc etc. Her new
Ritchie1268
in
Pernicious Anaemia Society
2 years ago
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