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Haemolytic anaemia
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Less symptoms but still RLS sleep issues
I have supplemented iron for 4 months now and my RLS has reduced more and more but still have a bit of sleeping problems. I take no medications beside also Vitamin D. Last time my doctors checked my blood my ferritin level were in the normal range (around 140). Question is if I should continue taking
I have supplemented iron for 4 months now and my RLS has reduced more and more but still have a bit of sleeping problems. I take no medications beside also Vitamin D. Last time my doctors checked my blood my ferritin level were in the normal range (around 140). Question is if I should continue taking
LineVec
in
Restless Legs Syndrome
1 year ago
Paper: Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
I assume this has been posted before but I saw this for the first time today Seage, et al,
Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
, J Patient Exp. 2020 Oct; 7(5): 766–770. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705842
I assume this has been posted before but I saw this for the first time today Seage, et al,
Receiving a Diagnosis of Pernicious Anemia: Exploring Experiences of Relationships With Health Professionals
, J Patient Exp. 2020 Oct; 7(5): 766–770. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7705842
jade_s
in
Pernicious Anaemia Society
1 year ago
MCV and supplement question
Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want to ask though if there is anything concerning and how to address these results. Is my ferritin ok or are there additional tests to run? Thank
Hi all, I'm hypothyroid and frequently have MCV and MCH outside of range. In general I feel better supplementing with methyl Bs and have added folate. I want to ask though if there is anything concerning and how to address these results. Is my ferritin ok or are there additional tests to run? Thank
EchoWS
in
Pernicious Anaemia Society
1 year ago
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Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
1 year ago
Liposomal Iron
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
I have atrophic gastritis and my stomach can not tolerate normal iron supplements.I came across Liposomal on the web and wondered if anyone has had any success taking this supplement please as I am iron deficient ? Thanks
davina70
in
Pernicious Anaemia Society
1 year ago
Atrophic Gastritis
Hi everyone, I have deen trying slippery elm to no avail for general stomach discomfort. I sometimes feel as if I have a 'fist' moving around in my stomach. The 'fist'feeling then just stays perfectly still, I then feel like I need to stretch to accomodate the 'fist' and then it feels a little better
Hi everyone, I have deen trying slippery elm to no avail for general stomach discomfort. I sometimes feel as if I have a 'fist' moving around in my stomach. The 'fist'feeling then just stays perfectly still, I then feel like I need to stretch to accomodate the 'fist' and then it feels a little better
Helliborous
in
Pernicious Anaemia Society
9 months ago
Diagnosis
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of fibromyalgia but says they haven't givin it that label as it all falls under the same umbrella of musculoskeletal disorder, which is what I have
pixieraine23
in
Fibromyalgia Action UK
1 year ago
any advice 🙏🏽
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi I’m new here I have RA I’m (stero positive)I’m having flare after flare in so sick of feeling poorly with it and so tired.I feel like it’s stole my life away from me,I can’t plan as I don’t know how I will feel I’m so fed up.I
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi I’m new here I have RA I’m (stero positive)I’m having flare after flare in so sick of feeling poorly with it and so tired.I feel like it’s stole my life away from me,I can’t plan as I don’t know how I will feel I’m so fed up.I
Mybirthday1975
in
NRAS
7 months ago
Low ferritin again
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Rollercoaster44
in
Thyroid UK
7 months ago
Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
1 year ago
Exhaustion
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Lili6
in
British Liver Trust
1 year ago
Iron Deficiency and Iron Deficiency Anemia: Potential Risk Factors in Bone Loss
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
helvella
Thyroid UK
in
Thyroid UK
7 months ago
What does this mean?
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
quanglewangle
in
MPN Voice
1 year ago
Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
7 months ago
B12 217ng/L low folate/serum ferritin
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Sotired3
in
Pernicious Anaemia Society
1 year ago
Iron study results help please
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
Cn13
in
Thyroid UK
7 months ago
Advice re purple lidded blood tubes.
Four times now I have had a failure with the purple lidded tube when trying to do the full health screen from Monitor my Health. It is for the anemia panel and I mainly get “clot detected “ and that I am not inverting the tube and rolling it between my hands for thirty seconds. Thing is that I am following
Four times now I have had a failure with the purple lidded tube when trying to do the full health screen from Monitor my Health. It is for the anemia panel and I mainly get “clot detected “ and that I am not inverting the tube and rolling it between my hands for thirty seconds. Thing is that I am following
Dadof5
in
Thyroid UK
10 months ago
Serum Ferritin levels
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
Dibbydog
in
Restless Legs Syndrome
7 months ago
Update re: Total Confusion about Ferritin (Medichecks) Results!
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
Jazz80
in
Thyroid UK
7 months ago
Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
1 year ago
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