Search
Search
About
Log in
Join
Experiences with
Haemolytic anaemia
Posts
Communities
7,558 public posts
Filter results
PV & Gene Editing for Sickle cell anemia
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
ERei
in
MPN Voice
7 months ago
Topamax insomnia?
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
wantokporo
in
Restless Legs Syndrome
1 year ago
waiting for ferritin infusion
I suffer with low iron and often have anaemia. The problem I am having is that when I have my infusion my ferritin goes up to 163 and then it slowly starts dropping I normally get about 6 months before my levels start dropping that I need regular blood tests I start feeling exhausted but I need to
I suffer with low iron and often have anaemia. The problem I am having is that when I have my infusion my ferritin goes up to 163 and then it slowly starts dropping I normally get about 6 months before my levels start dropping that I need regular blood tests I start feeling exhausted but I need to
Jolee91
in
Restless Legs Syndrome
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Taking Ferrous Sulphate Exhausts Me, Any Alternatives?
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Hi All, In February 2023 I requested a blood test from my GP as I felt generally awful. I had muscle and joint pain, shortness of breath, dizziness, irritability, hair loss, overall skin sensitivity and moderate acne that scarred. I was also losing my evenings as my body was so tired, I’d nap for hours
Sparklymacarons
in
Pernicious Anaemia Society
1 year ago
Advice on iron status
Hi lovely people, I was hoping to get some advice on my iron status. A bit of background, I have just recently increased levo to 88mcg a couple of weeks ago, and was on 75mcg before that. So, I am aware that my thyroid hormone is still too low. It's a slow process getting docs to increase! My question
Hi lovely people, I was hoping to get some advice on my iron status. A bit of background, I have just recently increased levo to 88mcg a couple of weeks ago, and was on 75mcg before that. So, I am aware that my thyroid hormone is still too low. It's a slow process getting docs to increase! My question
catpotter44
in
Thyroid UK
7 months ago
Iron levels
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. It’s worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and won’t give me further ferrous sulphate
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. It’s worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and won’t give me further ferrous sulphate
DrPaulHT
in
Restless Legs Syndrome
7 months ago
I noticed something.
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
I have done many trials of different amounts and forms of B12. I went over my notes and it could be that when I switched forms there were positive effects when I overlapped forms in that I still had both forms in my blood stream. Emphasis on could be. I have decided to change my self-treating regiment
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
1 year ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
1 year ago
blood test-nutrients advice
Hi everyone! First of all, I have to say thank you. This is my first time posting, but I've been lurking around here for a while now and I have already learnt so much from this forum! I was diagnosed with hypothyroidism in Nov 2021 and put on 25mcg levothyroxine. It has been a slow battle to get doctors
Hi everyone! First of all, I have to say thank you. This is my first time posting, but I've been lurking around here for a while now and I have already learnt so much from this forum! I was diagnosed with hypothyroidism in Nov 2021 and put on 25mcg levothyroxine. It has been a slow battle to get doctors
catpotter44
in
Thyroid UK
7 months ago
Iron panel test results
Hi, Had RL for about 8 years approx, 61 age now (male). The main results I have found on line form the test from my GP is:- Serum ferritin 89 Serum iron 19 Serum transferrin 2.5 Serum transferrin % saturation 30 I wonder if anyone can comment on this ie good, bad terrible etc? Thank
Hi, Had RL for about 8 years approx, 61 age now (male). The main results I have found on line form the test from my GP is:- Serum ferritin 89 Serum iron 19 Serum transferrin 2.5 Serum transferrin % saturation 30 I wonder if anyone can comment on this ie good, bad terrible etc? Thank
Davidbaldbloke
in
Restless Legs Syndrome
7 months ago
Ferritin success, anyone wishing to try the same ... especially if vegan
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
thyr01d
in
Thyroid UK
1 year ago
My evaluation of which form of B12 is best.
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
update pins n needles in both thumbs
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
9lives
in
PMRGCAuk
1 year ago
B12 and Serum Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Mumof3z
in
Pernicious Anaemia Society
1 year ago
Elevated enzymes from my blood test
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
Hope4me1
in
British Liver Trust
1 year ago
Can you help in reading these test results please?
Iron 7.9 - Range: 6.6 - 26 umol/L % IBC 18 - Range: 15 - 45 Total Iron Binding Capacity *44.2 - Range: 45 - 81 umol/L (The lab has put an asterisk at the side of result.) B12 - 738 ng/L - Range 197 - 771 Folate - 5.6 ug/L No range given Ferritin - 114 ug/L
Iron 7.9 - Range: 6.6 - 26 umol/L % IBC 18 - Range: 15 - 45 Total Iron Binding Capacity *44.2 - Range: 45 - 81 umol/L (The lab has put an asterisk at the side of result.) B12 - 738 ng/L - Range 197 - 771 Folate - 5.6 ug/L No range given Ferritin - 114 ug/L
Lavender-Blue
in
Thyroid UK
9 months ago
Tested my b12 level again after loading doses
Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000 microgram cyanocobalamin. At the first one my vitb12 level was 165(160-845pg/ml). I injected 5 dose of vitb12 shot during 56 days (July 07-september01
Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000 microgram cyanocobalamin. At the first one my vitb12 level was 165(160-845pg/ml). I injected 5 dose of vitb12 shot during 56 days (July 07-september01
Emiroskui
in
Pernicious Anaemia Society
9 months ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
advice please b12/folate
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Emmy1991
in
Pernicious Anaemia Society
1 year ago
1
...
31
32
33
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3511 results
Thyroid UK
2426 results
Restless Legs Syndrome
347 results
View top 10 communities
Sort by
Most Relevant
Newest