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Haemolytic anaemia
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Long time no see, a brief update from me and a daughter with a diagnosis…
Hello all! I don’t know if anyone will remember me as it’s been a few years since I last posted. I’ll try to keep my update brief (and positive) as it’s not regarding myself that I’m drawn back to this forum, although I may well start posting more about myself once I’m back into the swing of it! I expect
Hello all! I don’t know if anyone will remember me as it’s been a few years since I last posted. I’ll try to keep my update brief (and positive) as it’s not regarding myself that I’m drawn back to this forum, although I may well start posting more about myself once I’m back into the swing of it! I expect
Ms_J
in
Pernicious Anaemia Society
11 months ago
Further info on blood panel
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Onefish
in
Pernicious Anaemia Society
11 months ago
Frequency of B12 injections
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
I have just been for my usual injection after 10 weeks and 2 days and it has been refused because it's not 12 weeks since the last one.I have had injections every 10 weeks for 18 years since I was diagnosed with pernicious anaemia. I was told at the start the injections were due every 10 to 12 weeks
Suesue246
in
Pernicious Anaemia Society
8 months ago
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Please could I have some advice about “normal” vitamin levels?
I have just had some bloods done by my GP, all of which are in the normal range. Some are low in range and I would be grateful for any recommendations, especially from SlowDragon Thanks. Serum ferritin level 131 ug/L [30.0 - 250.0 Serum vitamin B12 level 267 ng/L [200.0 - 900.0 Serum folate level
I have just had some bloods done by my GP, all of which are in the normal range. Some are low in range and I would be grateful for any recommendations, especially from SlowDragon Thanks. Serum ferritin level 131 ug/L [30.0 - 250.0 Serum vitamin B12 level 267 ng/L [200.0 - 900.0 Serum folate level
Mollyfan
in
Thyroid UK
11 months ago
Another! GP appt. Tips for making the best of it please?
I posted on Monday about my experience of not having my low but still apparently "normal" vit B12 etc levels not taken seriously and ignoring the fact I have a lot of symptoms of pernicious anemia (I've also posted on the PAS forum, but there are far fewer people on there). https://healthunlocked.com
I posted on Monday about my experience of not having my low but still apparently "normal" vit B12 etc levels not taken seriously and ignoring the fact I have a lot of symptoms of pernicious anemia (I've also posted on the PAS forum, but there are far fewer people on there). https://healthunlocked.com
TheSnufkin
in
Thyroid UK
11 months ago
Problems with medication supplies
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Wytchylady
in
LUPUS UK
8 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
8 months ago
Ferrous sulphate
Can anyone help please with the best time of day to take these tablets? Or any experience with having taken them? It's all well and good to say take on an empty stomach, but they seem to cause reflux and when one is already taking PPI 's for acid reflux this is no easy task. Also advised by GP
Can anyone help please with the best time of day to take these tablets? Or any experience with having taken them? It's all well and good to say take on an empty stomach, but they seem to cause reflux and when one is already taking PPI 's for acid reflux this is no easy task. Also advised by GP
gillsky8
in
PMRGCAuk
11 months ago
What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
8 months ago
High Transferrin Saturation without optimal iron levels
Hello, I am currently trying to get my iron levels up and they are slowly creeping in the right direction. However. My latest bloods show that my TSAT is now too high at 65% (up from 39% two months ago), and ferritin at 70ug/L (up from 65ug/L.) Is this just something to monitor for now?
Hello, I am currently trying to get my iron levels up and they are slowly creeping in the right direction. However. My latest bloods show that my TSAT is now too high at 65% (up from 39% two months ago), and ferritin at 70ug/L (up from 65ug/L.) Is this just something to monitor for now?
Thywotsit
in
Thyroid UK
5 months ago
flow cytometry is showing about 74% CLL involvement.
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
juniper1975
in
CLL Support
11 months ago
Help with supplements please
On the advice of greygoose who has said that my B12 is dangerously low despite being in the "normal" range, I'm posting to ask how I should be supplementing and what brands of supplements people recommend. This is on the basis that whilst my energy levels are slightly improved on the levo, my neurological
On the advice of greygoose who has said that my B12 is dangerously low despite being in the "normal" range, I'm posting to ask how I should be supplementing and what brands of supplements people recommend. This is on the basis that whilst my energy levels are slightly improved on the levo, my neurological
TheSnufkin
in
Thyroid UK
11 months ago
GP thinks my memory and concentration issues are fibromyalgia or CFS not thyroid
Hi all I posted a few weeks ago about my first GP's reluctance to prescribe thyroid medication https://healthunlocked.com/thyroiduk/posts/149794194/gp-wont-diagnose-despite-abnormal-test-results-what-should-i-do-next and then how I was prescribed a very low dose of levo (25mg) by a second GP https:
Hi all I posted a few weeks ago about my first GP's reluctance to prescribe thyroid medication https://healthunlocked.com/thyroiduk/posts/149794194/gp-wont-diagnose-despite-abnormal-test-results-what-should-i-do-next and then how I was prescribed a very low dose of levo (25mg) by a second GP https:
TheSnufkin
in
Thyroid UK
11 months ago
Diagnosed 2015 complete CBC has changed
last phlebotomy was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood. I am exhausted no energy sleeping way too
last phlebotomy was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood. I am exhausted no energy sleeping way too
Pickleball11
in
MPN Voice
11 months ago
Do I need to up my Iron supplement?
Hi All I posted these results the other day; SlowDragon kindly offered information and resources. However, I am uncertain whether I need to up my iron supplement. Can anyone help please? I did look on the site that SlowDragon gave but still unsure? Also, since posting last time, I have now added
Hi All I posted these results the other day; SlowDragon kindly offered information and resources. However, I am uncertain whether I need to up my iron supplement. Can anyone help please? I did look on the site that SlowDragon gave but still unsure? Also, since posting last time, I have now added
Lavender-Blue
in
Thyroid UK
11 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
6 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
8 months ago
Advice on Iron levels
Serum Ferritin level blood test has come back showing at 15 ug/l - is this low? Doctor saying it is low normal rangeand not normally consdered as iron deficiency - but am presenting symptoms and thought range was 15.0 - 300.0 ug/L. Advise needed please.
Serum Ferritin level blood test has come back showing at 15 ug/l - is this low? Doctor saying it is low normal rangeand not normally consdered as iron deficiency - but am presenting symptoms and thought range was 15.0 - 300.0 ug/L. Advise needed please.
Rolbo
in
Thyroid UK
6 months ago
What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
6 months ago
advice needed please re iron and thyroxine
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
Poppyqueen
in
Thyroid UK
6 months ago
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