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Haemolytic anaemia
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Next steps/where to get active b12 test?
Quick background: B12 deficiency (152) in 2017, negative IFAB, received 2x 3 monthly injections then taken off them. Investigating various symptoms now, recent bloods show drop in B12 from December 2022 (455) to now (206). Doctor saying I just need to take a multivitamin with B12 in, but I am not convinced
Quick background: B12 deficiency (152) in 2017, negative IFAB, received 2x 3 monthly injections then taken off them. Investigating various symptoms now, recent bloods show drop in B12 from December 2022 (455) to now (206). Doctor saying I just need to take a multivitamin with B12 in, but I am not convinced
Hullaballop
in
Pernicious Anaemia Society
11 months ago
Iron Deficiency and Iron Deficiency Anemia: Potential Risk Factors in Bone Loss
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
6 months ago
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Iron study results help please
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
Cn13
in
Thyroid UK
6 months ago
B12D bloods show positive TPOAb
Hi Guys A few weeks ago, I posted concern over hubby's bloods when GP said all was fine. To cut a long, and sadly not unfamiliar story to you short, I managed to get him to see a private consultant who identified at least 3 other long term health niggles associated with B12D. Hubby is now on SI treatment
Hi Guys A few weeks ago, I posted concern over hubby's bloods when GP said all was fine. To cut a long, and sadly not unfamiliar story to you short, I managed to get him to see a private consultant who identified at least 3 other long term health niggles associated with B12D. Hubby is now on SI treatment
Wwwdot
in
Pernicious Anaemia Society
11 months ago
Vitamin Levels Tested- advice please.
Hi there,I recently had my vitamin levels taken, as despite taking levothyroxine and T3 I am still feeling extremely tired, have hair loss, weight gain and lack of concentration. I wondered if it might be my vitamins. The results were: B12 & Folate Serum vitamin B12: 932 ng/L (180- 770) Serum folate
Hi there,I recently had my vitamin levels taken, as despite taking levothyroxine and T3 I am still feeling extremely tired, have hair loss, weight gain and lack of concentration. I wondered if it might be my vitamins. The results were: B12 & Folate Serum vitamin B12: 932 ng/L (180- 770) Serum folate
Misspinkdaisy
in
Thyroid UK
11 months ago
If your doctor worries that too much B12 is toxic, show them this study on ALS & B12
ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons. Ryosuke Oki, et al, "Efficacy and Safety of Ultrahigh-Dose Methylcobalamin in Early-Stage Amyotrophic Lateral Sclerosis" JAMA Neurol. 2022;
ALS is the same as Lou Gehrig's disease, and is also what Stephen Hawking had. It is a neurodegenerative disease, thought to mostly affect the motor neurons. Ryosuke Oki, et al, "Efficacy and Safety of Ultrahigh-Dose Methylcobalamin in Early-Stage Amyotrophic Lateral Sclerosis" JAMA Neurol. 2022;
jade_s
in
Pernicious Anaemia Society
11 months ago
Serum Ferritin levels
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
Dibbydog
in
Restless Legs Syndrome
6 months ago
Update re: Total Confusion about Ferritin (Medichecks) Results!
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
Jazz80
in
Thyroid UK
6 months ago
Membership of the Pernicious Anaemia Society
https://pernicious-anaemia-society.org/member/ Membership of Health Unlocked is not the same as membership of the charity which represents the interests of people with PA or suspected of having PA. You can join the Society at the link above. We are an international organisation and you don't have
https://pernicious-anaemia-society.org/member/ Membership of Health Unlocked is not the same as membership of the charity which represents the interests of people with PA or suspected of having PA. You can join the Society at the link above. We are an international organisation and you don't have
PAScomms
in
Pernicious Anaemia Society
8 months ago
blood test results
could someone interpret my blood results please? I have a phone conversation with my Endo next week and would like to be prepared. Many thanks. Haemaglobin 112 Red cell count 3.69 Haematocrit 0.331 Serum ferritin 19 Serum vitamin B12 882 Serum TSH 0.11 Serum Free T4 17 Serum Free T3 3.8 Thank
could someone interpret my blood results please? I have a phone conversation with my Endo next week and would like to be prepared. Many thanks. Haemaglobin 112 Red cell count 3.69 Haematocrit 0.331 Serum ferritin 19 Serum vitamin B12 882 Serum TSH 0.11 Serum Free T4 17 Serum Free T3 3.8 Thank
Silverangel
in
Thyroid UK
11 months ago
Not anemia? Lab results question.
It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614), Creatinine (1.04); [L] MCH (24.1), MCHC (30.5), Iron (22); [LL] Iron Saturation (7). Hemoglobin was just within normal range at 11.2, and
It's been a couple months since my last iron infusion. Last week, I had labs drawn, and results included: [H] WBC (18.1), RDW (16.4), Platelets (614), Creatinine (1.04); [L] MCH (24.1), MCHC (30.5), Iron (22); [LL] Iron Saturation (7). Hemoglobin was just within normal range at 11.2, and
hollywollydoodle
in
CLL Support
11 months ago
How often to Self Inject
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
MrJustatip
in
Pernicious Anaemia Society
8 months ago
Hyperplasia
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
Helliborous
in
Pernicious Anaemia Society
8 months ago
blood results and one mthfr variant - help please 🙏
Hi I have been trying to get my head around all of this and I find it very confusing. Can anyone give their honest opinion on my vitamin levels. I am about to start b12 injections and believe because I carry one mthfr variant I need to take methyl folate. I really struggle with vitamin d also.
Hi I have been trying to get my head around all of this and I find it very confusing. Can anyone give their honest opinion on my vitamin levels. I am about to start b12 injections and believe because I carry one mthfr variant I need to take methyl folate. I really struggle with vitamin d also.
Kath2022
in
Pernicious Anaemia Society
11 months ago
low iron and folate
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
mstp
in
Thyroid UK
6 months ago
B12 deficiency, macrocytosis, and potassium drop
I have macrocytic anemia. My MCV for the past 7 years has hovered around 100. I had one good result of 93 and that was 3 months after getting loading shots of Cyanocobalamin when I was first diagnosed with B12 deficiency over a year ago. My doctor stopped my shots after that and I took only sublingual
I have macrocytic anemia. My MCV for the past 7 years has hovered around 100. I had one good result of 93 and that was 3 months after getting loading shots of Cyanocobalamin when I was first diagnosed with B12 deficiency over a year ago. My doctor stopped my shots after that and I took only sublingual
OriginalSpinach
in
Pernicious Anaemia Society
11 months ago
Going To Self Inject -Questions
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
B12again
in
Pernicious Anaemia Society
8 months ago
Examining the Pathology of the Parietal cells
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
wedgewood
in
Pernicious Anaemia Society
8 months ago
Teenager with B12 Deficiency - Help
Hi In 2021 my 15 yr old daughter had symptoms of B12 deficiency (sleeping too much, poor appetite, exhausted in sport, depressed, moody) so I had her blood tested privately via online company and the Active B12 results were low normal (against adult ref ranges) so we had the recommended MMA which was
Hi In 2021 my 15 yr old daughter had symptoms of B12 deficiency (sleeping too much, poor appetite, exhausted in sport, depressed, moody) so I had her blood tested privately via online company and the Active B12 results were low normal (against adult ref ranges) so we had the recommended MMA which was
srf831
in
Pernicious Anaemia Society
11 months ago
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