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help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
4 months ago
Curious why GPs are so reticent to support B12 symptoms
Having struggled with sudden onset of strange symptoms last April ('buzzing' bottom extending to full leg, extreme fatigue, numbness in legs and no pain in arthritic knees suddenly, numbness in pelvic floor, hands and nostrils, pins and needles, hot/cold soles of feet, weakness esp in thigh muscles which
Having struggled with sudden onset of strange symptoms last April ('buzzing' bottom extending to full leg, extreme fatigue, numbness in legs and no pain in arthritic knees suddenly, numbness in pelvic floor, hands and nostrils, pins and needles, hot/cold soles of feet, weakness esp in thigh muscles which
Cotswolds23
in
Pernicious Anaemia Society
5 months ago
High ferritin and high TSH
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
I have Bile Acid Malabsorption, does anyone know if this affects thyroid symptoms? Ferritin 291, TSH 159 Thanks
Dylan555
in
Thyroid UK
8 months ago
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following first 10 S/Is now totally exhausted
have now been S/I ing EOD for the last 20 days, and am feeling mentally uplifted and hopeful and done some housework, ( my home had turned itself into a tip over the last 10 years or so) but last 3 days feeling really exhausted, cannot wake up or get out of bed in the morning, in a peculiar way worse
have now been S/I ing EOD for the last 20 days, and am feeling mentally uplifted and hopeful and done some housework, ( my home had turned itself into a tip over the last 10 years or so) but last 3 days feeling really exhausted, cannot wake up or get out of bed in the morning, in a peculiar way worse
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
B12 or folic acid first?
My daughter has just been diagnosed with B12 and folate deficiency, The likely cause is poor diet so I’m happy not to pursue injections at this stage. Her GP has prescribed B12 and 5mg folic acid, both in tablet form. Please can anyone confirm which she should take first and for how long before
My daughter has just been diagnosed with B12 and folate deficiency, The likely cause is poor diet so I’m happy not to pursue injections at this stage. Her GP has prescribed B12 and 5mg folic acid, both in tablet form. Please can anyone confirm which she should take first and for how long before
JanD236
in
Pernicious Anaemia Society
8 months ago
Suspected B12 deficiency
Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from November attached. I have lots of symptoms which I initially thought was thyroid issues but am now looking into B12 deficiency. I have an appt on
Hello everyone I found this group via thyroid UK group. It was there that they helpfully made me aware of my low b12 results. Please see results from November attached. I have lots of symptoms which I initially thought was thyroid issues but am now looking into B12 deficiency. I have an appt on
RedOne1
in
Pernicious Anaemia Society
5 months ago
Manometry studies
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
Imerslund-Gräsbeck one to know about
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
https://en.m.wikipedia.org/wiki/Imerslund%E2%80%93Gr%C3%A4sbeck_syndrome I had an argument last week with a Dr 'Fresh out the box' quoting the text book at me. He said the intrinsic factor antibody test was 95% accurate. So I retorted maybe I was one of the 5%! "That would be very unlikely." About 5
Oneash
in
Pernicious Anaemia Society
5 months ago
Continue with monthly injection?
Hello everybody, my B12 was 218 (range 206-1000) now 2000 after two injections, one per month.Ferritin was 19.9 (range 23-393) now 25.2 after two months of one daily tablet of 305mg ferrous fumarate. Folate was 3.4 (range 4.5-20) now 4.1 after two months of daily of one 0.4mg folic acid.
Hello everybody, my B12 was 218 (range 206-1000) now 2000 after two injections, one per month.Ferritin was 19.9 (range 23-393) now 25.2 after two months of one daily tablet of 305mg ferrous fumarate. Folate was 3.4 (range 4.5-20) now 4.1 after two months of daily of one 0.4mg folic acid.
Sotired3
in
Pernicious Anaemia Society
9 months ago
Grumpy Old Lady in Pain - am I being too cynical?
I had an unpleasant experience at my very recently previous practice. I’ve been back in the UK for five years and only used the practice a handful of times. I had emergency surgery recently and have just had a crash course in how the NHS operates.! Am I being too cynical? and have I got most of the
I had an unpleasant experience at my very recently previous practice. I’ve been back in the UK for five years and only used the practice a handful of times. I had emergency surgery recently and have just had a crash course in how the NHS operates.! Am I being too cynical? and have I got most of the
Loco99
in
PMRGCAuk
9 months ago
Blood tests
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Thyroid UK
9 months ago
Blood test tomorrow
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Pernicious Anaemia Society
9 months ago
positive then negative intrinsic factor
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
Ellamae2
in
Pernicious Anaemia Society
9 months ago
blood test results
can I please have your help in interpreting my blood test results below: Serum iron levels 17.8 umol/L range 11-36 Total iron binding capacity 51.8 range 53-85 serum ferritin 127 range 40-250 B12 630 range 160-925 Serum folate 11.6 range 2.90-50 Vitamin D 107 range 51-250 Thyroid serum TSH level
can I please have your help in interpreting my blood test results below: Serum iron levels 17.8 umol/L range 11-36 Total iron binding capacity 51.8 range 53-85 serum ferritin 127 range 40-250 B12 630 range 160-925 Serum folate 11.6 range 2.90-50 Vitamin D 107 range 51-250 Thyroid serum TSH level
Munp
in
Thyroid UK
9 months ago
Blood Test Results
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Crazy_Diamond
in
Thyroid UK
9 months ago
Finally
Morning I actually got to see my GP last night! Thankfully she listened ( borderline B12 and very low folate) this is after speaking to two other Gps in the surgery who didn’t believe me ☹️ Anyway she suggest Pernicious Anemia! Woohoo! So have some blood tests to follow ❤️
Morning I actually got to see my GP last night! Thankfully she listened ( borderline B12 and very low folate) this is after speaking to two other Gps in the surgery who didn’t believe me ☹️ Anyway she suggest Pernicious Anemia! Woohoo! So have some blood tests to follow ❤️
Doris11
in
Thyroid UK
9 months ago
Fatigue
Good Day Everyone My question is, should I be feeling fatigued with lymphocytes around 43 and haemoglobin at 12.1 g/dl or could the fatigue be caused by some other blood deficiency such as iron or vitamin B12. Thanks very much Ken
Good Day Everyone My question is, should I be feeling fatigued with lymphocytes around 43 and haemoglobin at 12.1 g/dl or could the fatigue be caused by some other blood deficiency such as iron or vitamin B12. Thanks very much Ken
Buttons42
in
CLL Support
9 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
5 months ago
B12 Deficiency or Underactive Thyroid at Play?
Recently, my FBC came back with:
Mean cell haemoglobin level 32.7 pg [27.0 - 32.0]; Above high reference limit
Only just above the range. Am I right in thinking this confirms anemia? I have been supplementing with B complex, so my blood serum tests show they are quite healthy (upper quarter
Recently, my FBC came back with:
Mean cell haemoglobin level 32.7 pg [27.0 - 32.0]; Above high reference limit
Only just above the range. Am I right in thinking this confirms anemia? I have been supplementing with B complex, so my blood serum tests show they are quite healthy (upper quarter
HealthStarDust
in
Thyroid UK
9 months ago
Time for you all to take another bow.
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
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