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Haemolytic anaemia
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Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
4 months ago
Could my iron supplement be causing weight gain?
I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed results re this. Not sure what to believe. Any advice?
I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed results re this. Not sure what to believe. Any advice?
Hectorsmum2
in
Restless Legs Syndrome
8 months ago
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
4 months ago
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All symptoms back
Hi, Symptoms are now back with avengence. My breathing and headaches are terrible. I have moved my Endo forward to next week and having new bloods this morning. Any suggestions of issues for my consultant? I am going to ask to raise to at least 100 of meds - obviously depending on my bloods. Heart issues
Hi, Symptoms are now back with avengence. My breathing and headaches are terrible. I have moved my Endo forward to next week and having new bloods this morning. Any suggestions of issues for my consultant? I am going to ask to raise to at least 100 of meds - obviously depending on my bloods. Heart issues
JCMartin
in
Thyroid UK
4 months ago
Vitamin BT Results
Good Morning All Further to my last post when it was suggested that my Folate levels were on the low side I have since been supplementing with an additional 400 daily in adition to the folate in my B Complex capsule - making a daily Folate intake of 800. My GP has just ordered BT for Vitamin D
Good Morning All Further to my last post when it was suggested that my Folate levels were on the low side I have since been supplementing with an additional 400 daily in adition to the folate in my B Complex capsule - making a daily Folate intake of 800. My GP has just ordered BT for Vitamin D
Lemondrizz
in
Thyroid UK
4 months ago
switch from jakafi (RUX) to Ojjara/momelotinib
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
Bainbridge
in
MPN Voice
8 months ago
Second opinion for my daughter (ruling out thyroid, opinion on vitamins)
17 year old daughter has complained of headaches and fatigue for years. Chalked it up to teenager, pandemic, and irregular sleeping patterns. As all those things resolved, and the headaches and fatigue didn't, I ordered bloodwork to rule out Hashis and Hypo; and hopefully pinpoint a treatment to get
17 year old daughter has complained of headaches and fatigue for years. Chalked it up to teenager, pandemic, and irregular sleeping patterns. As all those things resolved, and the headaches and fatigue didn't, I ordered bloodwork to rule out Hashis and Hypo; and hopefully pinpoint a treatment to get
FallingInReverse
in
Thyroid UK
8 months ago
Pegasus and hematocrit spike
Hi just wondering if anyone else has experienced this. I started peg 2 months ago 45mg every 2 weeks all seemed to go well HCT and platlets lowered, platlets were never majorly high were around 480 I have HCT target of 43 after 2 sets of bloods Guys seemed happy so far, 3 weeks ago HCT 41.9 platlets
Hi just wondering if anyone else has experienced this. I started peg 2 months ago 45mg every 2 weeks all seemed to go well HCT and platlets lowered, platlets were never majorly high were around 480 I have HCT target of 43 after 2 sets of bloods Guys seemed happy so far, 3 weeks ago HCT 41.9 platlets
Cityreach
in
MPN Voice
8 months ago
Iron Blood Test Results
Hi i’m wondering if anyone could advise on my iron blood test. I had a recent thyroid test which showed Ferritin at 69.1 ug/L (range 30-150). This was through Thriva. I have since tested with Medicheck and my ferritin seems to have reduced. Am just wondering if there was a way I could increase ferritin
Hi i’m wondering if anyone could advise on my iron blood test. I had a recent thyroid test which showed Ferritin at 69.1 ug/L (range 30-150). This was through Thriva. I have since tested with Medicheck and my ferritin seems to have reduced. Am just wondering if there was a way I could increase ferritin
Llobs
in
Thyroid UK
8 months ago
Some Potentially Alarming Changes to Blood
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Horsechestnut
in
CLL Support
8 months ago
Update.
Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot
Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot
Jacksc06
in
CLL Support
8 months ago
Grandmother, 88 being denied B12 injections
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
TMur1990
in
Pernicious Anaemia Society
8 months ago
B12 very high with normal blood results?.
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
Jodie782
in
Pernicious Anaemia Society
5 months ago
Anyone else with consistently rising neutrophils?
My neutrophils have steadily risen from 67 to 78.2% over one year while my lymphocytes have decreased from 17.2 to 12.1%. My overall WBC went from 9 to 11.4. I’m going to bring this up at my next appointment, but thought I’d see if anyone here has had similar numbers. Platelets are at 731. Hematocrit
My neutrophils have steadily risen from 67 to 78.2% over one year while my lymphocytes have decreased from 17.2 to 12.1%. My overall WBC went from 9 to 11.4. I’m going to bring this up at my next appointment, but thought I’d see if anyone here has had similar numbers. Platelets are at 731. Hematocrit
Lena70
in
MPN Voice
8 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
Suesue246
in
Pernicious Anaemia Society
8 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
New ER for low hemoglobin
I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER, and last night’s ER doctor did not do all the bloodwork she wanted even though the two hospitals are in the same system. I chose to go to Yale Nee
I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER, and last night’s ER doctor did not do all the bloodwork she wanted even though the two hospitals are in the same system. I chose to go to Yale Nee
Goopteal
in
CLL Support
9 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
9 months ago
Can anyone recommend a good haematologist or Neurologist for pernicious anaemia
Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they won't act on any recommendation from a private doctor). Many of my neurological symptoms, although much improved, never went away completely
Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they won't act on any recommendation from a private doctor). Many of my neurological symptoms, although much improved, never went away completely
Rett713
in
Pernicious Anaemia Society
5 months ago
Iron Test
Hi I just wanted to check if there was a best time of the day to have a blood test for iron as there is for thyroid. Many thanks
Hi I just wanted to check if there was a best time of the day to have a blood test for iron as there is for thyroid. Many thanks
Llobs
in
Thyroid UK
9 months ago
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