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Giant axonal neuropathy
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Burning hot hands and feet,ike got water filling them... 2/3 times a day?
I am having lots episode's of my hands and feet, often more the right, feel hot and like filling up with water... My hands feel tight.. Can't see anything, but wi der what it is.. Also get Terri le pins and needles ery easily, even holding a phone.!
I am having lots episode's of my hands and feet, often more the right, feel hot and like filling up with water... My hands feel tight.. Can't see anything, but wi der what it is.. Also get Terri le pins and needles ery easily, even holding a phone.!
Luppykate
in
LUPUS UK
5 years ago
Lyrica update
Maybe some folks will find this helpful. After stopping mirapexin due to augmentation (again) and going through hell, I started lyrica, which did nothing for 3 weeks and I was up to 300mgs. Thanks to great advice from you guys I decided to reduce it, so I reintroduced mirapexin at 0.45mgs + 150mgs lyrica
Maybe some folks will find this helpful. After stopping mirapexin due to augmentation (again) and going through hell, I started lyrica, which did nothing for 3 weeks and I was up to 300mgs. Thanks to great advice from you guys I decided to reduce it, so I reintroduced mirapexin at 0.45mgs + 150mgs lyrica
Memmy
in
Restless Legs Syndrome
5 years ago
help has anyone found a particular medication that helped relieve nerve pain besides pregabalin and amitriptyline
nerve pain
nerve pain
stenosis49
in
Pain Concern
5 years ago
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Devastated IVF cycle cancelled 😢
Didn’t think this bit of the journey would be this hard, I prepared myself more that the egg collection / seeing how many / fertilizing and transfer back would be the challenging bits. No one really prepared me that after 14 days of stims 6 scans my cycle is cancelled due to poor reaction from stims.
Didn’t think this bit of the journey would be this hard, I prepared myself more that the egg collection / seeing how many / fertilizing and transfer back would be the challenging bits. No one really prepared me that after 14 days of stims 6 scans my cycle is cancelled due to poor reaction from stims.
amandac84
in
Fertility Network UK
5 years ago
Acupuncture for Hypo
Can anyone advise if they have used acupuncture therapy in place of meds for their hypo diagnosis? Have symptoms subsided?
Can anyone advise if they have used acupuncture therapy in place of meds for their hypo diagnosis? Have symptoms subsided?
HashiDaz
in
Thyroid UK
5 years ago
First Round of IVF
I’m day 7 of my first round of IVF. I went for an ultrasound today and had 4 follicles, all on the left. I had a cyst removed from the right ovary just over a year ago and have had 6 unsuccessful IUIs since then. I think I was expecting more than 4 follicles and felt quite down afterwards. Hubby keeps
I’m day 7 of my first round of IVF. I went for an ultrasound today and had 4 follicles, all on the left. I had a cyst removed from the right ovary just over a year ago and have had 6 unsuccessful IUIs since then. I think I was expecting more than 4 follicles and felt quite down afterwards. Hubby keeps
Crafti
in
Fertility Network UK
5 years ago
Neuritis
I have been diagnosed with neuropathy both motor and peripheral there is constant pain to all areas of my body. Can anyone offer any advice on pain relief please. Thank you
I have been diagnosed with neuropathy both motor and peripheral there is constant pain to all areas of my body. Can anyone offer any advice on pain relief please. Thank you
ceedy
in
Fibromyalgia Action UK
5 years ago
social anxiety /phobia
I am five years on c/l I wonder what's causing social phobia to get worse as time passes on c/l or pd any suggestions any natural remedies ? thanks
I am five years on c/l I wonder what's causing social phobia to get worse as time passes on c/l or pd any suggestions any natural remedies ? thanks
Yhae
in
Cure Parkinson's
5 years ago
Pregabalin
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Well its 4.39 in the morning and Ive decided that lyrica is not working for me. Its just over 3 weeks and it still doesnt work. Im exhausted. Hardly any sleep. My question is , Is horizant the same.as lyrica. Has anyone had good results with it.
Memmy
in
Restless Legs Syndrome
5 years ago
Could my pain be attributed to Fybromyalgia?
Hello. I'm Philip For many years, I have suffered with diabetic peripheral neuropathy. Lately it has spread throughout my limbs from originally feet to lower limbs and now as far as my hips. I was diagnosed with sciatica, then trochanteric pain syndrome. I have never had faith in these diagnosis and
Hello. I'm Philip For many years, I have suffered with diabetic peripheral neuropathy. Lately it has spread throughout my limbs from originally feet to lower limbs and now as far as my hips. I was diagnosed with sciatica, then trochanteric pain syndrome. I have never had faith in these diagnosis and
Touchthewild
in
Fibromyalgia Action UK
5 years ago
New Hope For Darvon / Co-proxamol Prescribing
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Manufacture and sale of Dextropropoxyphene based products. (Darvon / Co-proxamol) was banned in India during 2013 by the Drugs Technical Advisory Board (DTAB). The UK 'Named Patient' facility relied on imports from India from 2008. In order for the 'Named Patient' scheme to continue the NHS had to
Whowillgiveastuff
in
Pain Concern
5 years ago
Relief finally?
Hi everyone I am fairly new to the group, and this is my first post. I am 60 and have suffered with this insidious , cruel, merciless disease ever since I can remember. However the past year or so it has become so bad that it is affecting every aspect of my life. Morning, afternoon, night it doesn’t
Hi everyone I am fairly new to the group, and this is my first post. I am 60 and have suffered with this insidious , cruel, merciless disease ever since I can remember. However the past year or so it has become so bad that it is affecting every aspect of my life. Morning, afternoon, night it doesn’t
Restlesssufferer
in
Restless Legs Syndrome
5 years ago
Hungarian Snacking Tray - Inspired!
I found this article on a click-bait type site, so I decided to share the image and the content, and a link (which you don't have to click) but to give credit to the author, but probably best not to click it. Anyways... I just loved the photo and the article and the great inspiration, and since summer
I found this article on a click-bait type site, so I decided to share the image and the content, and a link (which you don't have to click) but to give credit to the author, but probably best not to click it. Anyways... I just loved the photo and the article and the great inspiration, and since summer
WebMistress
IF Star
in
Healthy Eating
5 years ago
MGUS and thyroid
Has anyone e been diagnosed with MGUS . I had raised m protein 20 years ago which went down. Now it is raised again. I wonder if any relation to under active thyroid Thanks Johan
Has anyone e been diagnosed with MGUS . I had raised m protein 20 years ago which went down. Now it is raised again. I wonder if any relation to under active thyroid Thanks Johan
jojomac23
in
Thyroid UK
5 years ago
Neurotransmitter changes in rat brain regions following glyphosate exposure.
Glyphosate is the "active" ingredient in Roundup. It is toxic to neurotransmitters. This includes dopamine. [i]The present findings indicate that glyphosate significantly altered central nervous system (CNS) monoaminergic neurotransmitters in a brain regional- and dose-related manner, effects that
Glyphosate is the "active" ingredient in Roundup. It is toxic to neurotransmitters. This includes dopamine. [i]The present findings indicate that glyphosate significantly altered central nervous system (CNS) monoaminergic neurotransmitters in a brain regional- and dose-related manner, effects that
SilentEchoes
in
Cure Parkinson's
5 years ago
Changing from Sotalol to Flecaine side effects. Who has made this change too?
Hello I changed from Sotalol 80x2 a day to Flecaine 200 mg slow release and 3.75 mg Bisoprolol today because I was having more frequent Afib ( Paroxysmal) episodes and a lot of PVC and PAC's . I've just had a few seconds of a hammering heart but feel fine. I can't halve my dose as it is a capsule .
Hello I changed from Sotalol 80x2 a day to Flecaine 200 mg slow release and 3.75 mg Bisoprolol today because I was having more frequent Afib ( Paroxysmal) episodes and a lot of PVC and PAC's . I've just had a few seconds of a hammering heart but feel fine. I can't halve my dose as it is a capsule .
Lilypocket
in
AF Association
5 years ago
More B12 or not?
Hi all, I haven't posted for a while as I thought I was on the up! However, maintaining good health it seems is always complicated and I wondered whether anyone could help me out with the benefit of their experience with PA. I was diagnosed with PA last year. I started loading doses in the summer of
Hi all, I haven't posted for a while as I thought I was on the up! However, maintaining good health it seems is always complicated and I wondered whether anyone could help me out with the benefit of their experience with PA. I was diagnosed with PA last year. I started loading doses in the summer of
natcap1
in
Pernicious Anaemia Society
5 years ago
***Sensitive post*** (but a story to hopefully give hope to those with severe endo and low AMH going through IVF)
This is a bit of a long story and is my first post but wanted to share it as reading positive stories on here really helped to keep me going when we were first starting out on this journey. I was diagnosed with severe stage 4 endometriosis with a large chocolate cyst, a hydrosalpinx and a frozen pelvis
This is a bit of a long story and is my first post but wanted to share it as reading positive stories on here really helped to keep me going when we were first starting out on this journey. I was diagnosed with severe stage 4 endometriosis with a large chocolate cyst, a hydrosalpinx and a frozen pelvis
Mariposa1981
in
Fertility Network UK
5 years ago
Severe drug induced constipation
I take Amitryptiline, Clonazepam, trazadobe and Risperidone. I only ever passed bits of diarrhoea and use colonic irrigation but now nothing is coming out hardly at all. I take 3 x Laxido a day. It's got worse since I started the Amitryptiline. I eat my greens , fibre etc fruit. The bowel consultant
I take Amitryptiline, Clonazepam, trazadobe and Risperidone. I only ever passed bits of diarrhoea and use colonic irrigation but now nothing is coming out hardly at all. I take 3 x Laxido a day. It's got worse since I started the Amitryptiline. I eat my greens , fibre etc fruit. The bowel consultant
basten
in
Bowel Disease Support
5 years ago
Snap, Crackle & Pop: PA, B12 and tendon pain?
I've had a long history (nearly 4 decades) of idiopathic health issues which may be related to B12 & PA. Recent testing has shown low B12 & blood factors which appear to confirm this as a possibility. I have begun injections, did my 5th yesterday. Across time, a number of typical PA issues have come
I've had a long history (nearly 4 decades) of idiopathic health issues which may be related to B12 & PA. Recent testing has shown low B12 & blood factors which appear to confirm this as a possibility. I have begun injections, did my 5th yesterday. Across time, a number of typical PA issues have come
SouthSounder
in
Pernicious Anaemia Society
5 years ago
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