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Giant axonal neuropathy
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Fluid in lower legs and foot numbness ..
Hi All, Been On Imbruvica 140mg 3 per day for 3.5 years , no side effects to speak of except now, fluid in lower legs And some numbness in feet and toes ..Walking 4 km everyday , so not restricted in that area ..Anyone else having the fluid and numbness Problem ..Tks. Vin
Hi All, Been On Imbruvica 140mg 3 per day for 3.5 years , no side effects to speak of except now, fluid in lower legs And some numbness in feet and toes ..Walking 4 km everyday , so not restricted in that area ..Anyone else having the fluid and numbness Problem ..Tks. Vin
Rance2222
in
CLL Support
4 years ago
Low amh high fsh...feeling really low after first ivf failed & doctor doesn’t seem confident
Hello, I’m just looking for some advise...anyone that can relate and can share stories of what they found worked for them. I’ve been told my amh is critically low for my age, 32...of 3.2.. After trying to conceive for 3 years and getting no where due to being classed as unexplained infertility, I had
Hello, I’m just looking for some advise...anyone that can relate and can share stories of what they found worked for them. I’ve been told my amh is critically low for my age, 32...of 3.2.. After trying to conceive for 3 years and getting no where due to being classed as unexplained infertility, I had
Nmhbaxy
in
Fertility Network UK
4 years ago
First ivf , on day 5 of Gonal f
Hey everyone . I’m on day 5 on my Gonal f injections and they’ve found 34 follicles in total . They are 10 mm in size . They have up’d my dose from 225 to 300 . Is 10mm sound about the right size for day 5 ? I have for more injections to go . Thank you x
Hey everyone . I’m on day 5 on my Gonal f injections and they’ve found 34 follicles in total . They are 10 mm in size . They have up’d my dose from 225 to 300 . Is 10mm sound about the right size for day 5 ? I have for more injections to go . Thank you x
Smcphie28
in
Fertility Network UK
4 years ago
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Sifrol end game
My fith week fighting augmentation from sifrol got back to 1 1/2 .25 mg tabs from max dose of 3 . I now am effected in all limbs but usually only one at a time my jerks were very severe but lessened as I reduced dosage pluss increased Lirica dosage.I was falling apart ,lack of sleep and depression
My fith week fighting augmentation from sifrol got back to 1 1/2 .25 mg tabs from max dose of 3 . I now am effected in all limbs but usually only one at a time my jerks were very severe but lessened as I reduced dosage pluss increased Lirica dosage.I was falling apart ,lack of sleep and depression
Jumpingboy9
in
Restless Legs Syndrome
4 years ago
Rectal bleeding/mucus
Hey I'm new here I have had problems for 2 months now with stomach pain and rectal bleeding. The bleeding has been on and off. I have been told its ibs and hemorrhoids but I have had 4 internal examinations done and never a hemroid felt. All my stoole samples have came back fine. Now the last week or
Hey I'm new here I have had problems for 2 months now with stomach pain and rectal bleeding. The bleeding has been on and off. I have been told its ibs and hemorrhoids but I have had 4 internal examinations done and never a hemroid felt. All my stoole samples have came back fine. Now the last week or
Clover1235
in
IBS Network
4 years ago
naturopathic medicine & PMR
Has anyone seen a naturopath for PMR? If so, what were the results?
Has anyone seen a naturopath for PMR? If so, what were the results?
blueisgreen
in
PMRGCAuk
4 years ago
Appt update, not as well as I’d hoped
Well.. so my new neuro muscular specialist has come to the conclusion that I have small fiber neuropathy (not new information) as well as being under the assumption that my positive ganglioside antibodies are from cross reactivity since my antibodies are slightly elevated and I have symptoms that match
Well.. so my new neuro muscular specialist has come to the conclusion that I have small fiber neuropathy (not new information) as well as being under the assumption that my positive ganglioside antibodies are from cross reactivity since my antibodies are slightly elevated and I have symptoms that match
JennaShi
in
LUPUS UK
4 years ago
Whole body numbness is getting worse. Gabapentin used to help but does not now. Neurologist says it is progressing Parkinsons?
Numbness no longer helped by Gabapentin
Numbness no longer helped by Gabapentin
gl2238
in
Cure Parkinson's
4 years ago
Restless feet
Hi I’m new to this post had anyone experienced restless leg syndrome in their feet only. I keep moving my feet continually and they have pins and needles. Did anyone find out it was a vitamin B deficiency. Thank you
Hi I’m new to this post had anyone experienced restless leg syndrome in their feet only. I keep moving my feet continually and they have pins and needles. Did anyone find out it was a vitamin B deficiency. Thank you
Awaywiththeheiddoon
in
Restless Legs Syndrome
4 years ago
Magnesium dosing
Not posted here for a long while but as I have posted a number of times in the past on the subject of magnesium, I thought I would provide an update again. Having tried all the various spray options I made a bit of a breakthrough when I found magnesium glycinate in 500 size pills. What has really helped
Not posted here for a long while but as I have posted a number of times in the past on the subject of magnesium, I thought I would provide an update again. Having tried all the various spray options I made a bit of a breakthrough when I found magnesium glycinate in 500 size pills. What has really helped
Danielj1
in
Thyroid UK
4 years ago
CMT carrier
I have genetic testing stating I am a CMT4j carrier. But I believe I have CMT symptoms. Typical high arches with 8 hammer toes. Peripheral neuropathy. Pain in hands, weak hands and respiratory issues. Is it possible to be a carrier WITH symptoms? My neuromuscular doctor says no.
I have genetic testing stating I am a CMT4j carrier. But I believe I have CMT symptoms. Typical high arches with 8 hammer toes. Peripheral neuropathy. Pain in hands, weak hands and respiratory issues. Is it possible to be a carrier WITH symptoms? My neuromuscular doctor says no.
Moonshadows
in
Charcot-Marie-Tooth UK
4 years ago
Is VERU-111 (Novel Oral Tubulin Inhibitor) similar to Fenbendazole or Mebendazole?
Does anyone have enough background to tell me if this looks like something similar to fenbendazole and/or mebendazole? VERU-111 is an oral, next-generation, first-in-class selective small molecule that targets and binds to the alpha and beta-tubulin subunits of microtubules in cells. Microtubules are
Does anyone have enough background to tell me if this looks like something similar to fenbendazole and/or mebendazole? VERU-111 is an oral, next-generation, first-in-class selective small molecule that targets and binds to the alpha and beta-tubulin subunits of microtubules in cells. Microtubules are
cigafred
in
Advanced Prostate Cancer
4 years ago
Ivf & smear test at the same time.
Hi all! I was wondering if anyone could help me. When we decided to go ahead with ivf, I asked the doctor whether I’d need a more update smear result...as it was July and my smear was due November. He said because we were starting ivf end of September we would be fine. Last Wednesday when I was due to
Hi all! I was wondering if anyone could help me. When we decided to go ahead with ivf, I asked the doctor whether I’d need a more update smear result...as it was July and my smear was due November. He said because we were starting ivf end of September we would be fine. Last Wednesday when I was due to
Nmhbaxy
in
Fertility Network UK
4 years ago
Colestyramine for Mal absortion of Bile
Does anyone have experience of Colestyramine? When not taking it, has resulted in diarrhea. Suggestions would be appreciated.
Does anyone have experience of Colestyramine? When not taking it, has resulted in diarrhea. Suggestions would be appreciated.
Eastbourne11
in
IBS Network
4 years ago
Cancelled cycle due to cyst
Hello ladies my cycle was cancelled last week after 8 day stimmimg I was reacting quite well to the bureslin and gonal f apart from the cyst not letting one ovary produce any follicles. I need to have an operation to remove it before we try again. Has anyone experienced this and had to wait a long time
Hello ladies my cycle was cancelled last week after 8 day stimmimg I was reacting quite well to the bureslin and gonal f apart from the cyst not letting one ovary produce any follicles. I need to have an operation to remove it before we try again. Has anyone experienced this and had to wait a long time
Jadey36
in
Fertility Network UK
4 years ago
Pbc
Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm finding working my shift pattern difficult hes reply was your bloods are ok also your liver scan so he said I cant understand why your fealing tired
Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm finding working my shift pattern difficult hes reply was your bloods are ok also your liver scan so he said I cant understand why your fealing tired
Purdy2017
in
PBC Foundation
4 years ago
Day 5 stims
Hi everyone just an update, so I am on a longer protocol this time. I have taken bc for 21 days and 7 other tablets mainly multi's. Well really glad I have finished with decapeptyal the needle is really long and painful injection. Now just on gonal f and luveris. Headaches are back!! Goodluck to you
Hi everyone just an update, so I am on a longer protocol this time. I have taken bc for 21 days and 7 other tablets mainly multi's. Well really glad I have finished with decapeptyal the needle is really long and painful injection. Now just on gonal f and luveris. Headaches are back!! Goodluck to you
Pittapatta
in
Fertility Network UK
4 years ago
IVF - buserelin and gonal-f
Hi folks Hoping someone can put my mind at rest. I’ve been injecting buserelin since 1st October and had a scan on the 14th. I started bleeding on the 11th which was a relief as i could them attend my scan as planned. All looked good bar my right ovary. The sonographer said that I had what he thought
Hi folks Hoping someone can put my mind at rest. I’ve been injecting buserelin since 1st October and had a scan on the 14th. I started bleeding on the 11th which was a relief as i could them attend my scan as planned. All looked good bar my right ovary. The sonographer said that I had what he thought
Swampy_time
in
Fertility Network UK
4 years ago
First time at 40! I'm clueless!
Hi all, I have recently found this forum and loving all the advice, support and love everyone shares. I am just 40 and just started our first round of IVF. Owing to COVID-19, we have never met with the consultants but spoken online etc which, in my opinion, is a little harder to ask questions etc.
Hi all, I have recently found this forum and loving all the advice, support and love everyone shares. I am just 40 and just started our first round of IVF. Owing to COVID-19, we have never met with the consultants but spoken online etc which, in my opinion, is a little harder to ask questions etc.
Goose12345
in
Fertility Network UK
4 years ago
Occasional sore tongue
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
Karenjaninaz
in
PMRGCAuk
4 years ago
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