Reply to Donna re Peripheral Neuropathy

[JW2shoes]

Hi Donna

First time posting in this forum .

Have read your post and I have experienced similar sensations since March . Neurologist did basic tests and referred me for nerve conduction tests . However these have not happened because of lockdown .

She did order a bank of blood tests which I had last week and one very specific test showed an abnormal protein . A paraprotein or M protein. It’s very complex but I was sent immediately to a haematologist to see if I have myeloma( bloodcancer). I do not have a definitive answer yet but I was told that a paraprotein in your blood can cause Peripheral neuropathy ! I am hoping my diagnosis will be MGus which is a benign condition at the moment . Paraproteins are found if these specific immunoglobulin tests are done .

Check you have had this blood test- electrophoresis. Just thought you may find this interesting ?

I have had more blood tests and awaiting scan to confirm diagnosis.

[orange33]

Hi I have the same problem yes I found this very difficult to understand,my neuro doc mentioned anti-MAG antibodies. I have had two infusions of Rituxamab for this and am due for another round but because of the covid this has been put on hold. I do have PN.

I really wish you well. I do have RA which hasn't helped.