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Giant axonal neuropathy
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Delayed neuropathy after chemotherapy?
My last chemo (Taxel / Carbo) was 6 weeks ago. Two days ago I felt neuropathy in my left leg. Now it involves both legs (below knees): shooting pain, numbness and pins and needles sensation. Also the ankles have become painful as well. I never experienced such severe and wide spread neuropathy during
My last chemo (Taxel / Carbo) was 6 weeks ago. Two days ago I felt neuropathy in my left leg. Now it involves both legs (below knees): shooting pain, numbness and pins and needles sensation. Also the ankles have become painful as well. I never experienced such severe and wide spread neuropathy during
Pat_01
in
My Ovacome
2 years ago
Genistein potentiates the radiation effect on prostate carcinoma cells
In 2004, after my failed prostatectomy, I came across the Life Extension protocol for PCa (at that time). It included their Ultra Soy Extract. 5 caps provided a massive amount of genistein. LEF suggested taking this 4 times daily. I think that one bottle was $75 & I would need 4 for a month. I didn't
In 2004, after my failed prostatectomy, I came across the Life Extension protocol for PCa (at that time). It included their Ultra Soy Extract. 5 caps provided a massive amount of genistein. LEF suggested taking this 4 times daily. I think that one bottle was $75 & I would need 4 for a month. I didn't
pjoshea13
in
Fight Prostate Cancer
1 year ago
docetaxel side effects
hello, my dad completed his second (of six) rounds of docetaxel last Monday the 31 and starting around Wednesday or Thursday of last week began experiencing severe burning in his feet. He states they are very tender, red, and describes it as feeling like they have been sunburned. He is having difficulty
hello, my dad completed his second (of six) rounds of docetaxel last Monday the 31 and starting around Wednesday or Thursday of last week began experiencing severe burning in his feet. He states they are very tender, red, and describes it as feeling like they have been sunburned. He is having difficulty
Juju0713
in
Advanced Prostate Cancer
2 years ago
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Injections after Caelyx
Hi All. Well I’ve just had my first infusion of Caelyx. I’ve been told I done need to inject Filgrastim. I asked the chemo nurse to check and she said no injections. Has anyone else had Caelyx with no filgrastim afterwards? Thank you. Gill X
Hi All. Well I’ve just had my first infusion of Caelyx. I’ve been told I done need to inject Filgrastim. I asked the chemo nurse to check and she said no injections. Has anyone else had Caelyx with no filgrastim afterwards? Thank you. Gill X
Guilane
in
My Ovacome
1 year ago
Does anyone have severe (Grade 3 or 4) internal prolapsed and thrombosed hemorrhoids and told you need a hemmoroidectomy?
Sorry for the sensitivity of the subject..but can anyone relate? They say that one in three people develop hemorrhoids especially as one ages and they grow more severe. I want mine done with a laser as it is not such a painful long recovery. I'm also afraid of incontinence and long term recovery. Since
Sorry for the sensitivity of the subject..but can anyone relate? They say that one in three people develop hemorrhoids especially as one ages and they grow more severe. I want mine done with a laser as it is not such a painful long recovery. I'm also afraid of incontinence and long term recovery. Since
Eliana5
in
IBS Network
1 year ago
Agony of Reducing Ropinerole
I have been weaning off Ropinerole for a while now. I am down from 4mg per day to .5 mg per day. However I when I try to come off or even try .25 mg, my legs always start up. My neurologist reckons my RLS is secondary due to a spinal tumour I have. When I get an attack, my left leg feels it has
I have been weaning off Ropinerole for a while now. I am down from 4mg per day to .5 mg per day. However I when I try to come off or even try .25 mg, my legs always start up. My neurologist reckons my RLS is secondary due to a spinal tumour I have. When I get an attack, my left leg feels it has
Scottie99
in
Restless Legs Syndrome
2 years ago
Cold feet and numbness
Anyone have extremely cold feet and numbness? I do and all of my legs and muscles and tendons are getting weaker I can hardly stand. Any advice?
Anyone have extremely cold feet and numbness? I do and all of my legs and muscles and tendons are getting weaker I can hardly stand. Any advice?
Marcia123
in
Cure Parkinson's
2 years ago
Delta Gold & Docetaxel
New cell study from Italy [1]. The failed SELECT study shows the danger of relying on alpha tocopherol as a vitamin E supplement. The eight isoforms compete for uptake. Supplement with one & you may drive down levels of another. PCa research suggests that gamma tocotrienol is the isoform with the
New cell study from Italy [1]. The failed SELECT study shows the danger of relying on alpha tocopherol as a vitamin E supplement. The eight isoforms compete for uptake. Supplement with one & you may drive down levels of another. PCa research suggests that gamma tocotrienol is the isoform with the
pjoshea13
in
Fight Prostate Cancer
1 year ago
Constipation after chemo
Can anyone please advise how they dealt with the constipation. My first chemo last week and I can honestly say I have never experienced anything like it! I ended up in hospital with faecal impaction. Ended up having an enema! Nurse called it a poobabie! Any advice would be very much appreciated xxx
Can anyone please advise how they dealt with the constipation. My first chemo last week and I can honestly say I have never experienced anything like it! I ended up in hospital with faecal impaction. Ended up having an enema! Nurse called it a poobabie! Any advice would be very much appreciated xxx
Hidden
in
My Ovacome
1 year ago
Ivf cycle failed again
Hi, Feeling really fed up. I've just had my sixth cycle of ivf which has today ended with my period. I'm 37, my first two cycles, August 2017 and November 2017, both fresh. Third cycle in January 2018 was successful and we have a 4 year old boy. Which is the main reason for doing this, for his sake.
Hi, Feeling really fed up. I've just had my sixth cycle of ivf which has today ended with my period. I'm 37, my first two cycles, August 2017 and November 2017, both fresh. Third cycle in January 2018 was successful and we have a 4 year old boy. Which is the main reason for doing this, for his sake.
Noahsmummy2018
in
Fertility Network UK
2 years ago
Any experience of improving egg quality & quantity?
Hi guys, I’ve just had my second failed round of IVF. Both have been fresh cycles and there’s not been anything to freeze either time. I’m 39 and have an average AMH. On my first cycle they collected 5 eggs, 3 fertilised, 1 made it to blastocyst (3CC) but didn’t implant. The consultant said they’d expected
Hi guys, I’ve just had my second failed round of IVF. Both have been fresh cycles and there’s not been anything to freeze either time. I’m 39 and have an average AMH. On my first cycle they collected 5 eggs, 3 fertilised, 1 made it to blastocyst (3CC) but didn’t implant. The consultant said they’d expected
ccsea
in
Fertility Network UK
2 years ago
2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
Exflex
in
PMRGCAuk
2 years ago
Can I switch from 200 mg Lyrica to 1200 mg gabapentin…
all at once? I’m having side effects from pregabalin and was thinking that maybe gabapentin might be better. Can I just stop the pregabalin and start the gabapentin in one day? I’m so tired of the tapering down of the ropinerole until I’m off of it (and when that’s done, I’ll continue the tapering
all at once? I’m having side effects from pregabalin and was thinking that maybe gabapentin might be better. Can I just stop the pregabalin and start the gabapentin in one day? I’m so tired of the tapering down of the ropinerole until I’m off of it (and when that’s done, I’ll continue the tapering
Abby2525
in
Restless Legs Syndrome
2 years ago
New protocol
Hi my beautiful ladies As some of you know I just had my 3rd FET that ended in a BFN. I said that I don't know if I'll do another egg retrieval ( that would be number 4 ) after a hard year but my doctor called me a few days ago and told me the next plan with a massive change for me. He told me about
Hi my beautiful ladies As some of you know I just had my 3rd FET that ended in a BFN. I said that I don't know if I'll do another egg retrieval ( that would be number 4 ) after a hard year but my doctor called me a few days ago and told me the next plan with a massive change for me. He told me about
Hidden
in
Fertility Network UK
2 years ago
Fibro & Magnesium Spray.
Evening all. So as I've only been recently been diagnosed with Fibro (although had many symptoms for many years ) and I've been on Pregabalin for a number of years too, I was wondering if anyone else has had much success with using Magnesium Spray?. I did some research and this was something that cropped
Evening all. So as I've only been recently been diagnosed with Fibro (although had many symptoms for many years ) and I've been on Pregabalin for a number of years too, I was wondering if anyone else has had much success with using Magnesium Spray?. I did some research and this was something that cropped
catcalling
in
Fibromyalgia Action UK
2 years ago
3 1/2 year old with speech difficulties still using nappies. Ant advice?
Hi my little boy has been assessed for bowel concerns and loose stools and had been diagnosed with toddler diarrohea last year.I had been advised to continue with toilet training and have been trying same from early last year but my little boy will hold his pee and poos all day until I put a nappy on
Hi my little boy has been assessed for bowel concerns and loose stools and had been diagnosed with toddler diarrohea last year.I had been advised to continue with toilet training and have been trying same from early last year but my little boy will hold his pee and poos all day until I put a nappy on
Donn001
in
Pregnancy and Parenting Support
1 year ago
Muscle spasm in right hand??? Has anyone else had/ have this?
I can barely use my right hand, I am right handed. The spasms run up to mid arm. Has anyone had a similar problem. I am at my wits end, I don't know how to reduce it. I use magnesium, high doses of Nortritypline and nothing seems to help? I think the issue is coming from my neck? Neck very sore, currently
I can barely use my right hand, I am right handed. The spasms run up to mid arm. Has anyone had a similar problem. I am at my wits end, I don't know how to reduce it. I use magnesium, high doses of Nortritypline and nothing seems to help? I think the issue is coming from my neck? Neck very sore, currently
Alecinthesun
in
Fibromyalgia Action UK
2 years ago
N-DOSE: A Dose Optimization Trial of Nicotinamide Riboside in Parkinson's Disease
https://clinicaltrials.gov/ct2/show/NCT05589766 Brief Summary: N-DOSE is a double-blinded placebo-controlled randomized trial aiming to determine the optimal biological dose (OBD) of nicotinamide riboside (NR), in individuals with Parkinson's disease (PD). The investigators recently reported the
https://clinicaltrials.gov/ct2/show/NCT05589766 Brief Summary: N-DOSE is a double-blinded placebo-controlled randomized trial aiming to determine the optimal biological dose (OBD) of nicotinamide riboside (NR), in individuals with Parkinson's disease (PD). The investigators recently reported the
Hidden
in
Cure Parkinson's
2 years ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
feeling loopy and VERY tired from gabapentin. And buspar. It’s affecting my job. Help
hi everyone, So I weaned off my ropinerole about 2 weeks ago and started gabapentin for my RLS. I also weaned off my Prozac last month and started buspar 10 mg in the morning and 10 mg at night for my anxiety . I’m also taking 65 mg of iron I. The morning and at night with vit c to help it absorb better
hi everyone, So I weaned off my ropinerole about 2 weeks ago and started gabapentin for my RLS. I also weaned off my Prozac last month and started buspar 10 mg in the morning and 10 mg at night for my anxiety . I’m also taking 65 mg of iron I. The morning and at night with vit c to help it absorb better
Treebabys
in
Restless Legs Syndrome
2 years ago
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