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Giant axonal neuropathy
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Tocilizumab
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
PQXZT
in
PMRGCAuk
2 years ago
Gonal f not stimulating my folicle
IV been on gonal f 25 for well over a week folicle is still 10mm any ideas why my folicle isn't being stimulated nurse has drew blood today to check progesterone levels and is going to call me tomorrow to see if I need to up my dose xxxx
IV been on gonal f 25 for well over a week folicle is still 10mm any ideas why my folicle isn't being stimulated nurse has drew blood today to check progesterone levels and is going to call me tomorrow to see if I need to up my dose xxxx
Dashound1
in
Fertility Network UK
2 years ago
Tingling and tinnitus
hi , Just wondered if anyone suffers with pins and needles / tingling - in arms / hands ? Since the weather has got cooler my hands are e really suffering and I’m not sure if this is part of my raynauds or just fm in general ? also does anyone have tinnitus my us fo bad right now snd it’s always
hi , Just wondered if anyone suffers with pins and needles / tingling - in arms / hands ? Since the weather has got cooler my hands are e really suffering and I’m not sure if this is part of my raynauds or just fm in general ? also does anyone have tinnitus my us fo bad right now snd it’s always
PBMB
in
Fibromyalgia Action UK
2 years ago
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Calquence and mouth issues?
I’m wondering if anyone taking Calquence has experienced white patches in their mouth? My dentist noticed I have one on my tongue side of gums. It doesn’t hurt and can’t be scraped off (fits the description of leukoplakia when I Google). My dentist thought it looked like trauma and said to call if it
I’m wondering if anyone taking Calquence has experienced white patches in their mouth? My dentist noticed I have one on my tongue side of gums. It doesn’t hurt and can’t be scraped off (fits the description of leukoplakia when I Google). My dentist thought it looked like trauma and said to call if it
CoCoLuna11
in
CLL Support
2 years ago
Pred affects glucose...what about thyroid?
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
Wallysma
in
PMRGCAuk
2 years ago
IVF gonal F dosage
hi all Starting IVF again & my doc has put me on what seems to be a low dose of gonal : 225 Last time I was on 300 and got 11 eggs. she can see a lot of follicles which is her logic behind the lower dose but for me I just want as many eggs as possible anyone else on 225? Thanks
hi all Starting IVF again & my doc has put me on what seems to be a low dose of gonal : 225 Last time I was on 300 and got 11 eggs. she can see a lot of follicles which is her logic behind the lower dose but for me I just want as many eggs as possible anyone else on 225? Thanks
Kit12345
in
Fertility Network UK
2 years ago
Fistula
hi all. Has anyone who has a full hysterectomy to help clear stage 4 endometriosis ended up with a fistula. Unfortunately my partner has been told she has this. We ended up in A&E the other night due to my partner being in a lot of abdominal pain. Has blood tests done and a ct scan which has shown a
hi all. Has anyone who has a full hysterectomy to help clear stage 4 endometriosis ended up with a fistula. Unfortunately my partner has been told she has this. We ended up in A&E the other night due to my partner being in a lot of abdominal pain. Has blood tests done and a ct scan which has shown a
Helpwithpain1984
in
Endometriosis UK
1 year ago
Help with diagnosis please.
I'm guessing fibromyalgia is going to be my company for the coming years unfortunately but is for thr doctors to decide that of course. How yours was diagnosed? Was your GP helpful? Did they send you for what tests? Did they make a referral to a rheumatologist? Any advice is more than welcome. I've
I'm guessing fibromyalgia is going to be my company for the coming years unfortunately but is for thr doctors to decide that of course. How yours was diagnosed? Was your GP helpful? Did they send you for what tests? Did they make a referral to a rheumatologist? Any advice is more than welcome. I've
ANMRED
in
Fibromyalgia Action UK
2 years ago
Big, big trouble Houston
I’m 60 now but a guy so I’m still prone to daft things like buying Microsoft Flight Simulator. I flew a 747 the other day and blimey did it let me know when I tried a questionable manoeuvre. Red lights, Commercial Airliner Crash Warning sirens etc. Well it’s sort of a metaphor for me currently. Some
I’m 60 now but a guy so I’m still prone to daft things like buying Microsoft Flight Simulator. I flew a 747 the other day and blimey did it let me know when I tried a questionable manoeuvre. Red lights, Commercial Airliner Crash Warning sirens etc. Well it’s sort of a metaphor for me currently. Some
jeeves19
in
Cure Parkinson's
2 years ago
Severely constipated what next?
I've been slightly constipated for weeks until 8 days ago . Then I just stopped. Been in severe pain since and tried every laxative. Been to doctors and she put me on docusate sodium. Now I'm on molaxole powder and having 8 sachets in 6 hours for faecal impaction. Still nothing at all. I'm in pain now
I've been slightly constipated for weeks until 8 days ago . Then I just stopped. Been in severe pain since and tried every laxative. Been to doctors and she put me on docusate sodium. Now I'm on molaxole powder and having 8 sachets in 6 hours for faecal impaction. Still nothing at all. I'm in pain now
BlueKeith
in
IBS Network
1 year ago
raynauds pain 🥶
Hi all , This condition is slowly making everyday life quite difficult 😞 I have tried all the handwarmers in the world and some medication and nifedipine- but can’t cope with the side effects . As soon as I get a little cold my hands ‘go’ and the only thing that helps is running under the warm
Hi all , This condition is slowly making everyday life quite difficult 😞 I have tried all the handwarmers in the world and some medication and nifedipine- but can’t cope with the side effects . As soon as I get a little cold my hands ‘go’ and the only thing that helps is running under the warm
PBMB
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
NAD injections? What if anything can this so for PA?
Someone sent me info on NAD injections and how it can restore nerves and brain fog and all sorts of symptoms we experience with b12d, but doesn't claim to help PA or b12d. Does anyone know more about this? Online info is confusing too me. We make NAD. But it declines as we age. So injecting it is supposed
Someone sent me info on NAD injections and how it can restore nerves and brain fog and all sorts of symptoms we experience with b12d, but doesn't claim to help PA or b12d. Does anyone know more about this? Online info is confusing too me. We make NAD. But it declines as we age. So injecting it is supposed
EllaNore
in
Pernicious Anaemia Society
2 years ago
Appointment to try again at 8:30
So I'm siting here thinking if I want to do this for another round then take a break the gonal f and trigger and timed intercourse if I do would it be rude to ask my nurse for progesterone? My body feels like it's getting out under pressure with TTC wish it could be easier:/ xxxxxx
So I'm siting here thinking if I want to do this for another round then take a break the gonal f and trigger and timed intercourse if I do would it be rude to ask my nurse for progesterone? My body feels like it's getting out under pressure with TTC wish it could be easier:/ xxxxxx
Dashound1
in
Fertility Network UK
2 years ago
Have you found a way to cure/improve your peripheral neuropathy?
Hello ladies, I previously posted a message asking about foot massagers or foot spas - best ones to use? I see that some people have also mentioned that acupuncture helped to relieve the pain and others have said that acupuncture did not work for them. Others have said Vitamin B/B12. I do use cream
Hello ladies, I previously posted a message asking about foot massagers or foot spas - best ones to use? I see that some people have also mentioned that acupuncture helped to relieve the pain and others have said that acupuncture did not work for them. Others have said Vitamin B/B12. I do use cream
Meridian14
in
My Ovacome
2 years ago
Helpful ways to relieve peripheral neuropathy. Ideas welcome please.
Hello lovely ladies, For the past 6 weeks I have been having terrible neuropathy in my feet and hands. I have been prescribed Pregabalin and i'm having to build up my tolerance of it so currently only on 150mg per day. It looks like the neuropathy is going to be with me for a while before I can get
Hello lovely ladies, For the past 6 weeks I have been having terrible neuropathy in my feet and hands. I have been prescribed Pregabalin and i'm having to build up my tolerance of it so currently only on 150mg per day. It looks like the neuropathy is going to be with me for a while before I can get
Meridian14
in
My Ovacome
2 years ago
How do they manage Peripheral neuropathy induced by docetaxel?
Peripheral neuropathy treatment in docetaxel for Ca prostate
Peripheral neuropathy treatment in docetaxel for Ca prostate
Igra
in
Advanced Prostate Cancer
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
HCQ, Eye problem and eosinophillia
hello I have been diagnosed with lupus since 2004. Currently, i am using HCQ aand ahve been prescribed low dose steroids and blood thinners. I am facing few pbs. And am unable to comprehend either it is presntation of symptom or side effect of drugs. I face head aches, eye pbs., which are disabling
hello I have been diagnosed with lupus since 2004. Currently, i am using HCQ aand ahve been prescribed low dose steroids and blood thinners. I am facing few pbs. And am unable to comprehend either it is presntation of symptom or side effect of drugs. I face head aches, eye pbs., which are disabling
happine
in
LUPUS UK
2 years ago
Cool, newly discovered AI search engine for supplements - SUPP.ai
While updating my files on curcumin formulations (Thanks to MB's recent post on Thracurmin for cognitive function), this website popped up in my search results. It was developed by the Allen Institute for AI (founded by Microsoft co-founder, Paul Allen) and is designed to search for supplement interactions
While updating my files on curcumin formulations (Thanks to MB's recent post on Thracurmin for cognitive function), this website popped up in my search results. It was developed by the Allen Institute for AI (founded by Microsoft co-founder, Paul Allen) and is designed to search for supplement interactions
cujoe
in
Fight Prostate Cancer
1 year ago
Sedation--pregabalin to gabapentin
I switched from 150 mg. pregabalin to 900 mg. gabapentin about three weeks ago because I was hoping that maybe I wouldn't have the same daytime sedation side effect. At the very first I didn't but now in the last 10 days it has set in and feels very similar to what I experienced on pregabalin. Two
I switched from 150 mg. pregabalin to 900 mg. gabapentin about three weeks ago because I was hoping that maybe I wouldn't have the same daytime sedation side effect. At the very first I didn't but now in the last 10 days it has set in and feels very similar to what I experienced on pregabalin. Two
wantokporo
in
Restless Legs Syndrome
2 years ago
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